Patients' reflections on communication in the second-opinion hematology-oncology consultation

Patient Education and Counseling

Volumn 76, Issue 1, 2009, Pages 44-50

  Goldman, Roberta E ^a,b   Sullivan, Amy ^c   Back, Anthony L ^d   Alexander, Stewart C ^e,f   Matsuyama, Robin K ^c   Lee, Stephanie J ^g  

^a BROWN UNIVERSITY   (United States)

^b HARVARD SCHOOL OF PUBLIC HEALTH   (United States)

^c VIRGINIA COMMONWEALTH UNIVERSITY   (United States)

^d UNIVERSITY OF WASHINGTON   (United States)

^e DUKE UNIVERSITY SCHOOL OF MEDICINE   (United States)

^f DURHAM VA MEDICAL CENTER   (United States)

^g Fred Hutchinson Cancer Research Center   (United States)

Author keywords

Focus groups; Oncology consultations; Patients' recommendations to patients; Patients' recommendations to physicians; Physician patient cancer communication; Qualitative research

Indexed keywords

ACUTE LEUKEMIA; ADULT; AGED; APLASTIC ANEMIA; ARTICLE; CHRONIC LEUKEMIA; CLINICAL ARTICLE; CONSULTATION; CONTROLLED STUDY; DOCTOR PATIENT RELATION; EMPATHY; FEMALE; HEMATOLOGIC MALIGNANCY; HUMAN; LYMPHOMA; MALE; MULTIPLE MYELOMA; MYELODYSPLASTIC SYNDROME; OBSERVATIONAL STUDY; PATIENT ATTITUDE; PATIENT DECISION MAKING; PATIENT SATISFACTION; PRIORITY JOURNAL; PROFESSIONAL KNOWLEDGE; PROGNOSIS; TRUST; ATTITUDE TO HEALTH; HEMATOLOGIC DISEASE; INFORMATION PROCESSING; INTERPERSONAL COMMUNICATION; MIDDLE AGED; NEOPLASM; PATIENT REFERRAL; PERCEPTION; QUALITATIVE RESEARCH;

ADULT; AGED; COMMUNICATION; FEMALE; FOCUS GROUPS; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HEMATOLOGIC DISEASES; HUMANS; MALE; MIDDLE AGED; NEOPLASMS; PATIENT ACCEPTANCE OF HEALTH CARE; PATIENT SATISFACTION; PHYSICIAN-PATIENT RELATIONS; PROGNOSIS; QUALITATIVE RESEARCH; REFERRAL AND CONSULTATION; SOCIAL PERCEPTION;

EID: 67349288433     PISSN: 07383991     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.pec.2008.11.016     Document Type: Article

References (53)

1. Jemal A., Siegel R., Ward E., Murray T., Xu J., and Thun M.J. Cancer statistics. CA Cancer J Clin 57 (2007) 43-66
2. Eide H., Graugaard P., Holgersen K., and Finset A. Physician communication in different phases of a consultation at an oncology outpatient clinic related to patient satisfaction. Patient Educ Couns 51 (2003) 259-266
3. Graugaard P.K., Holgersen K., Eide H., and Finset A. Changes in physician-patient communication from initial to return visits: a prospective study in a haematology outpatient clinic. Patient Educ Couns 57 (2005) 22-29
4. Vogel B.A., Bengel J., and Helmes A.W. Information and decision making: patients' needs and experiences in the course of breast cancer treatment. Patient Educ Couns 71 (2008) 79-85
5. Wright E.B., Holcombe C., and Salmon P. Doctors' communication of trust, care, and respect in breast cancer: qualitative study. BMJ 328 (2004) 864
6. Zachariae R., Pedersen C.G., Jensen A.B., Ehrnrooth E., Rossen P.B., and von der Maase H. Association of perceived physician communication style with patient satisfaction, distress, cancer-related self-efficacy, and perceived control over the disease. Br J Cancer 88 (2003) 658-665
7. Hack T.F., Degner L.F., and Parker P.A. The communication goals and needs of cancer patients: a review. Psychooncology 14 (2005) 831-845
8. Feldman-Stewart D., Brundage M.D., and Tishelman C. A conceptual framework for patient-professional communication: an application to the cancer context. Psychooncology 14 (2005) 801-809
9. Frojd C., Lampic C., Larsson G., Birgegard G., and von Essen L. Patient attitudes, behaviours, and other factors considered by doctors when estimating cancer patients' anxiety and desire for information. Scand J Caring Sci 21 (2007) 523-529
10. Delgado A., Andres Lopez-Fernandez L., de Dios Luna J., Gil N., Jimenez M., and Puga A. Patient expectations are not always the same. J Epidemiol Commun Health 62 (2008) 427-434
11. Mauksch L.B., Dugdale D.C., Dodson S., and Epstein R. Relationship, communication, and efficiency in the medical encounter: creating a clinical model from a literature review. Arch Intern Med 168 (2008) 1387-1395
12. Epstein R.M., and Street Jr. R.L. Patient-centered communication in cancer care: promoting healing and reducing suffering (2007), National Cancer Institute, Bethedsa
13. Schmid Mast M., Kindlimann A., and Langewitz W. Recipients' perspective on breaking bad news: how you put it really makes a difference. Patient Educ Couns 58 (2005) 244-251
14. Sollner W., DeVries A., Steixner E., Lukas P., Sprinzl G., Rumpold G., and Maislinger S. How successful are oncologists in identifying patient distress, perceived social support, and need for psychosocial counselling?. Br J Cancer 84 (2001) 179-185
15. Merckaert I., Libert Y., Marchal S., Boniver J., Etienne A.M., Klastersky J., Reynaert C., Scalliet P., Slachmuylder J.L., and Razavi D. Factors that influence physicians' detection of distress in patients with cancer: can a communication skills training program improve physicians' detection?. Cancer 104 (2005) 411-421
16. Butow P.N., Brown R.F., Cogar S., Tattersall M.H., and Dunn S.M. Oncologists' reactions to cancer patients' verbal cues. Psychooncology 11 (2002) 47-58
17. Pollak K.I., Arnold R.M., Jeffreys A.S., Alexander S.C., Olsen M.K., Abernethy A.P., Sugg Skinner C., Rodriguez K.L., and Tulsky J.A. Oncologist communication about emotion during visits with patients with advanced cancer. J Clin Oncol 25 (2007) 5748-5752
18. Epstein R.M., Carroll J., and Jaen C.R. Have you really addressed your patient's concerns?. Family Pract Manage 15 (2008) 35-40
19. Jayasinghe U.W., Proudfoot J., Holton C., Davies G.P., Amoroso C., Bubner T., Beilby J., and Harris M.F. Chronically ill Australians' satisfaction with accessibility and patient-centredness. Int J Qual Health Care 20 (2008) 105-114
20. Clark N.M., Cabana M.D., Nan B., Gong Z.M., Slish K.K., Birk N.A., and Kaciroti N. The clinician-patient partnership paradigm: outcomes associated with physician communication behavior. Clin Pediatr 47 (2008) 49-57
21. Clark N.M., Gong M., Schork M.A., Kaciroti N., Evans D., Roloff D., Hurwitz M., Maiman L.A., and Mellins R.B. Long-term effects of asthma education for physicians on patient satisfaction and use of health services. Eur Respir J 16 (2000) 15-21
22. Street Jr. R.L., Gordon H.S., Ward M.M., Krupat E., and Kravitz R.L. Patient participation in medical consultations: why some patients are more involved than others. Med Care 43 (2005) 960-969
23. Borkan J. Immersion/crystallization. In: Crabtree B., and Miller W. (Eds). Doing qualitative research (1999), Sage Publications, Thousand Oaks 179-194
24. Weft QDA: a free qualitative analysis software application; 2007. .
25. Hagerty R.G., Butow P.N., Ellis P.M., Lobb E.A., Pendlebury S.C., Leighl N., MacLeod C., and Tattersall M.H. Communicating with realism and hope: incurable cancer patients' views on the disclosure of prognosis. J Clin Oncol 23 (2005) 1278-1288
26. Kagan A.R. Statistics is not a surrogate for judgment. Am J Clin Oncol 28 (2005) 327-328
27. Veazie P.J., and Cai S. A connection between medication adherence, patient sense of uniqueness, and the personalization of information. Med Hypotheses 68 (2007) 335-342
28. Brown R., Dunn S., and Butow P. Meeting patient expectations in the cancer consultation. Ann Oncol 8 (1997) 877-882
29. Evans W.G., Tulsky J.A., Back A.L., and Arnold R.M. Communication at times of transitions: how to help patients cope with loss and re-define hope. Cancer J 12 (2006) 417-424
30. Buckman R., and Baile W. Truth telling: yes, but how?. J Clin Oncol 25 (2007) 3181 author reply
31. Randall T.C., and Wearn A.M. Receiving bad news: patients with haematological cancer reflect upon their experience. Palliat Med 19 (2005) 594-601
32. Parker P.A., Baile W.F., de Moor C., Lenzi R., Kudelka A.P., and Cohen L. Breaking bad news about cancer: patients' preferences for communication. J Clin Oncol 19 (2001) 2049-2056
33. McGrath P. The burden of the 'RA RA' positive: survivors' and hospice patients' reflections on maintaining a positive attitude to serious illness. Supp Care Cancer 12 (2004) 25-33
34. Clayton J.M., Hancock K., Parker S., Butow P.N., Walder S., Carrick S., Currow D., Ghersi D., Glare P., Hagerty R., Olver I.N., and Tattersall M.H. Sustaining hope when communicating with terminally ill patients and their families: a systematic review. Psychooncology 17 (2007) 641-659
35. Robinson T.M., Alexander S.C., Hays M., Jeffreys A.S., Olsen M.K., Rodriguez K.L., Pollack K.I., Abernethy A.P., Arnold R., and Tulsky J.A. Patient-oncologist communication in advanced cancer: predictors of patient perception of prognosis. Supp Care Cancer 16 (2008) 1049-1057
36. Thorne S.E., Hislop T.G., Armstrong E.A., and Oglov V. Cancer care communication: the power to harm and the power to heal?. Patient Educ Couns 71 (2008) 31-40
37. Baile W.F., and Aaron J. Patient-physician communication in oncology: past, present, and future. Curr Opin Oncol 17 (2005) 331-335
38. Back A. Patient-physician communication in oncology: what does the evidence show?. Oncology 20 (2006) 67-74
39. Butow P., Cockburn J., Girgis A., Bowman D., Schofield P., D'Este C., Stojanovski E., and Tattersall M.H. Increasing oncologists' skills in eliciting and responding to emotional cues: evaluation of a communication skills training program. Psychooncology 17 (2008) 209-218
40. Merckaert I., Libert Y., Delvaux N., Marchal S., Boniver J., Etienne A.M., Klastersky J., Revnaert C., Scalliet P., Slachmuylder J.L., and Razavi D. Factors influencing physicians' detection of cancer patients' and relatives' distress: can a communication skills training program improve physicians' detection?. Psychooncology 17 (2008) 260-269
41. Zandbelt L.C., Smets E.M., Oort F.J., Godfried M.H., and de Haes H.C. Patient participation in the medical specialist encounter: does physicians' patient-centred communication matter?. Patient Educ Couns 65 (2007) 396-406
42. Eide H., Quera V., Graugaard P., and Finset A. Physician-patient dialogue surrounding patients' expression of concern: applying sequence analysis to RIAS. Soc Sci Med 59 (2004) 145-155
43. O'Reilly M., Cahill M.R., and Perry I.J. Writing to patients: a randomised controlled trial. Clin Med 6 (2006) 178-182
44. Hack T.F., Pickles T., Bultz B.D., Ruether J.D., and Degner L.F. Impact of providing audiotapes of primary treatment consultations to men with prostate cancer: a multi-site, randomized, controlled trial. Psychooncology 16 (2007) 543-552
45. Fallowfield L., Ford S., and Lewis S. No news is not good news: information preferences of patients with cancer. Psychooncology 4 (1995) 197-202
46. Jenkins V., Fallowfield L., and Saul J. Information needs of patients with cancer: results from a large study in UK cancer centres. Br J Cancer 84 (2001) 48-51
47. Bruera E., Sweeney C., Willey J., Palmer J.L., Tolley S., Rosales M., and Ripamonti C. Breast cancer patient perception of the helpfulness of a prompt sheet versus a general information sheet during outpatient consultation: a randomized, controlled trial. J Pain Symptom Manage 25 (2003) 412-419
48. McJannett M., Butow P., Tattersall M.H., and Thompson J.F. Asking questions can help: development of a question prompt list for cancer patients seeing a surgeon. Eur J Cancer Prev 12 (2003) 397-405
49. Glynne-Jones R., Ostler P., Lumley-Graybow S., Chait I., Hughes R., Grainger J., and Leverton T.J. Can I look at my list? An evaluation of a 'prompt sheet' within an oncology outpatient clinic. Clin Oncol (R Coll Radiol) 18 (2006) 395-400
50. Street Jr. R.L., and Gordon H.S. The clinical context and patient participation in post-diagnostic consultations. Patient Educ Couns 64 (2006) 217-224
51. Eggly S., Penner L.A., Greene M., Harper F.W., Ruckdeschel J.C., and Albrecht T.L. Information seeking during "bad news" oncology interactions: question asking by patients and their companions. Soc Sci Med 63 (2006) 2974-2985
52. Sepucha K.R., Belkora J.K., Mutchnick S., and Esserman L.J. Consultation planning to help breast cancer patients prepare for medical consultations: effect on communication and satisfaction for patients and physicians. J Clin Oncol 20 (2002) 2695-2700
53. Steinsbekk A., and Launso L. Empowering the cancer patient or controlling the tumor? A qualitative study of how cancer patients experience consultations with complementary and alternative medicine practitioners and physicians, respectively. Integr Cancer Ther 4 (2005) 195-200