A health literacy assessment of the epilepsy.com website

Seizure

Volumn 18, Issue 6, 2009, Pages 434-439

  Elliott, John O ^a   Shneker, Bassel F ^a  

^a OHIO STATE UNIVERSITY   (United States)

Author keywords

Epilepsy; epilepsy.com; Health education; Health literacy; Reading level assessments

Indexed keywords

ARTICLE; EDUCATIONAL STATUS; EPILEPSY; HEALTH CARE; HEALTH EDUCATION; HEALTH SERVICE; HUMAN; INTERNET; LOWEST INCOME GROUP; MEDICAL INFORMATION; ORGANIZATION; PRACTICE GUIDELINE; PRIORITY JOURNAL; RISK FACTOR; UNITED STATES;

ANTICONVULSANTS; EDUCATIONAL STATUS; EPILEPSY; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HUMANS; MEDICAL INFORMATICS; ONLINE SYSTEMS; READING;

EID: 67349250437     PISSN: 10591311     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.seizure.2009.04.003     Document Type: Article

References (55)

1. Oates D.J., and Paasche-Orlow M.K. Health literacy: communication strategies to improve patient comprehension of cardiovascular health. Circulation 119 (2009) 1049-1051
2. Nielsen-Bohlman L., Panzer A.M., and Kindig D.A. Institute of Medicine. Health Literacy: A Prescription to End Confusion (2004), The National Academies Press, Washington, D.C.
3. Wilson J.F. The crucial link between literacy and health. Ann Intern Med 139 (2003) 875-878
4. Parker R.M., Ratzan S.C., and Lurie N. Health literacy: a policy challenge for advancing high-quality health care. Health Aff 22 (2003) 147-153
5. Vernon JA, University of Connecticut. Department of Finance. Low health literacy: implications for national health policy. Hartford, CT: University of Connecticut, Department of Finance [online]; 2006 [cited 2008 October 9]. Available from: URL: http://www.gwumc.edu/sphhs/departments/healthpolicy/chsrp/downloads/LowHealthLiteracyReport10_4_07.pdf.
6. Gazmararian J.A., Baker D.W., Williams M.V., Parker R.M., Scott T.L., Green D.C., et al. Health literacy among Medicare enrollees in a managed care organization. JAMA 281 (1999) 545-551
7. King M.M., Winton A.S.W., and Adkins A.D. Assessing the readability of mental health internet brochures for children and adolescents. J Child Fam Stud 12 (2003) 91-99
8. Kobau R., Zahran H., Thurman D.J., Zack M.M., Henry T.R., Schachter S.C., et al. Epilepsy surveillance among adults-19 States, Behavioral Risk Factor Surveillance System, 2005. MMWR Surveill Summ 57 (2008) 1-20
9. Elliott J.O., Lu B., Moore J.L., McAuley J.W., and Long L. Exercise, diet, health behaviors, and risk factors among persons with epilepsy based on the California Health Interview Survey, 2005. Epilepsy Behav 13 (2008) 307-315
10. Elliott J.O., Moore J.L., and Lu B. Health status and behavioral risk factors among persons with epilepsy in Ohio based on the 2006 Behavioral Risk Factor Surveillance System. Epilepsy Behav 12 (2008) 434-444
11. Kobau R., Zahran H., Grant D., Thurman D.J., Price P.H., and Zack M.M. Prevalence of active epilepsy and health-related quality of life among adults with self-reported epilepsy in California: California Health Interview Survey, 2003. Epilepsia 48 (2007) 1904-1913
12. Kobau R., DiIorio C.A., Price P.H., Thurman D.J., Martin L.M., Ridings D.L., et al. Prevalence of epilepsy and health status of adults with epilepsy in Georgia and Tennessee: Behavioral Risk Factor Surveillance System, 2002. Epilepsy Behav 5 (2004) 358-366
13. Garnett W.R. Antiepileptic drug treatment: outcomes and adherence. Pharmacotherapy 20 (2000) 191S-199S
14. Pugh M.J., Berlowitz D.R., Montouris G., Bokhour B., Cramer J.A., Bohm V., et al. What constitutes high quality of care for adults with epilepsy?. Neurology 69 (2007) 2020-2027
15. Long L., Reeves A.L., Moore J.L., Roach J., and Pickering C.T. An assessment of epilepsy patients' knowledge of their disorder. Epilepsia 41 (2000) 727-731
16. Long L., and Montouris G. Knowledge of women's issues and epilepsy (KOWIE-II): a survey of health care professionals. Epilepsy Behav 6 (2005) 90-93
17. Elliott J., and Shneker B. Patient, caregiver, and health care practitioner knowledge of, beliefs about, and attitudes toward epilepsy. Epilepsy Behav 12 (2008) 547-556
18. Jain P., Patterson V.H., and Morrow J.I. What people with epilepsy want from a hospital clinic. Seizure 2 (1993) 75-78
19. Hoch D.B., Norris D., Lester J.E., and Marcus A.D. Information exchange in an epilepsy forum on the World Wide Web. Seizure 8 (1999) 30-34
20. Cline R.J., and Haynes K.M. Consumer health information seeking on the internet: the state of the art. Health Educ Res 16 (2001) 671-692
21. Khechine H., Pascot D., and Premont P. Use of health-related information from the Internet by English-speaking patients. Health Informatics J 14 (2008) 17-28
22. Kaye HS. Computer and internet use among people with disabilities. Disability Statistics Report;13:1-13 [online]. 2000 [cited 2008 October 2008]. Available from URL: http://dsc.ucsf.edu/pdf/report13.pdf.
23. Day JC, Janus A, Davis J, U.S. Census Bureau. Computer and internet use in the United States, 2003 [online]; 2005 [cited 9 October 2008]. Available from URL: http://www.census.gov/prod/2005pubs/p23-208.pdf.
24. Friedman D.B., Hoffman-Goetz L., and Arocha J.F. Health literacy and the World Wide Web: comparing the readability of leading incident cancers on the internet. Med Inform Internet Med 31 (2006) 67-87
25. D'Alessandro D.M., Kingsley P., and Johnson-West J. The readability of pediatric patient education materials on the World Wide Web. Arch Pediatr Adolesc Med 155 (2001) 807-812
26. Croft D.R., and Peterson M.W. An evaluation of the quality and contents of asthma education on the World Wide Web. Chest 121 (2002) 1301-1307
27. Adkins A.D., and Singh N.N. Reading level and readability of patient education materials in mental health. J Child Fam Stud 10 (2001) 1-8
28. Healthy People 2010 [online]; 2000 [cited 2008 October 9]. Available from: URL: http://www.healthypeople.gov/Document/pdf/uih/2010uih.pdf.
29. Hawley S.R., Paschal A.M., Ablah E., St Romain T., Liow K., and Molgaard C.A. Initial perspectives from Midwestern neurologists: epilepsy patients' barriers and motivators for seeking treatment. Epilepsia 48 (2007) 1920-1925
30. Moult B., Franck L.S., and Brady H. Ensuring quality information for patients: development and preliminary validation of a new instrument to improve the quality of written health care information. Health Expect 7 (2004) 165-175
31. Entwistle V.A., and Watt I.S. Disseminating information about healthcare effectiveness: a survey of consumer health information services. Qual Health Care 7 (1998) 124-129
32. Macfarlane J., Holmes W., Gard P., Thornhill D., Macfarlane R., and Hubbard R. Reducing antibiotic use for acute bronchitis in primary care: blinded, randomised controlled trial of patient information leaflet. BMJ 324 (2002) 91-94
33. Flesch R. A new readability yardstick. J App Psych 32 (1948) 221-233
34. Kincaid JP, Fishburne RP, Rodgers RL, Chissom BS. Derivation of new readability formulas (Automated Readability Index, Fog Count and Flesch Reading Ease Formula) for Navy enlisted personnel. Research Branch Report 8-75 Millington, TN: Naval Technical Training US Naval Air Station, Memphis; 1975.
35. Caylor JS, Sticht TG, Fox LC, Ford JP. Methodologies for determining reading requirements of military occupational specialties. Human Resources Research Organization, Alexandria, VA. Office of the Chief of Research and Development (Army), Washington, DC. Technical Report No. 3; 1973: p. 73-5.
36. McLaughlin G.H. SMOG grading: a new reading formula. J Reading 12 (1969) 639-640
37. Elliott J.O., Charyton C., and Long L. A health literacy assessment of the National Epilepsy Foundation Web site. Epilepsy Behav 11 (2007) 525-532
38. Ball D.E., and Taderera A. Development of drug use indicators for epilepsy. Cent Afr J Med 49 (2003) 134-138
39. Paschal A.M., Hawley S.R., St Romain T., and Ablah E. Measures of adherence to epilepsy treatment: review of present practices and recommendations for future directions. Epilepsia 49 (2008) 1115-1122
40. Pignone M.P., and DeWalt D.A. Literacy and health outcomes: is adherence the missing link?. J Gen Intern Med 21 (2006) 896-897
41. Pignone M., DeWalt D.A., Sheridan S., Berkman N., and Lohr K.N. Interventions to improve health outcomes for patients with low literacy. A systematic review. J Gen Intern Med 20 (2005) 185-192
42. DeWalt D.A., Malone R.M., Bryant M.E., Kosnar M.C., Corr K.E., Rothman R.L., et al. A heart failure self-management program for patients of all literacy levels: a randomized, controlled trial [ISRCTN11535170]. BMC Health Serv Res 6 (2006) 1-10
43. Wallace AS, Seligman HK, Davis TC, Schillinger D, Arnold CL, Bryant-Shilliday B, et al. Literacy-appropriate educational materials and brief counseling improve diabetes self-management. Patient Educ Couns 2009, in press: doi:10.1016/j.pec.2008.12.017, [Epub ahead of print].
44. Foster D.R., and Rhoney D.H. Readability of printed patient information for epileptic patients. Ann Pharmacother 36 (2002) 1856-1861
45. Friedman D.B., and Hoffman-Goetz L. A systematic review of readability and comprehension instruments used for print and web-based cancer information. Health Educ Behav 33 (2006) 352-373
46. Friedman D.B., Hoffman-Goetz L., and Arocha J.F. Readability of cancer information on the internet. J Cancer Educ 19 (2004) 117-122
47. Freda M.C. The readability of American Academy of Pediatrics patient education brochures. J Pediatr Health Care 19 (2005) 151-156
48. Lorig K. Patient education: a practical approach. 3rd ed. (2001), Sage, Thousand Oaks, CA
49. Wolff K., Cavanaugh K., Malone R., Hawk V., Gregory B.P., Davis D., et al. The diabetes literacy and numeracy education toolkit (DLNET): materials to facilitate diabetes education and management in patients with low literacy and numeracy skills. Diabetes Educ 35 (2009) 233-236 238-241, 244-245.
50. Ley P., Jain V.K., and Skilbeck C.E. A method for decreasing patients' medication errors. Psychol Med 6 (1976) 599-601
51. Davis T.C., Fredrickson D.D., Arnold C., Murphy P.W., Herbst M., and Bocchini J.A. A polio immunization pamphlet with increased appeal and simplified language does not improve comprehension to an acceptable level. Patient Educ Couns 33 (1998) 25-37
52. Morris N.S., MacLean C.D., Chew L.D., and Littenberg B. The Single Item Literacy Screener: evaluation of a brief instrument to identify limited reading ability. BMC Fam Pract 7 (2006) 1-7
53. Doak C.C., Doak L.G., and Root J.H. Teaching patients with low literacy skills (1996), J.B. Lippincott, Philadelphia PA
54. Lindau S.T., Tomori C., Lyons T., Langseth L., Bennett C.L., and Garcia P. The association of health literacy with cervical cancer prevention knowledge and health behaviors in a multiethnic cohort of women. Am J Obstet Gynecol 186 (2002) 938-943
55. Redish J.C., and Selzer J. The place of readability formulas in technical communication. Tech Commun 32 (1985) 46-53