Trends in US autism research funding

Journal of Autism and Developmental Disorders

Volumn 39, Issue 5, 2009, Pages 788-795

  Singh, Jennifer ^a   Illes, Judy ^a,b   Lazzeroni, Laura ^a   Hallmayer, Joachim ^a  

^a STANFORD UNIVERSITY SCHOOL OF MEDICINE   (United States)

^b UNIVERSITY OF BRITISH COLUMBIA   (Canada)

Author keywords

Autism spectrum disorder; Diagnosis; Funding; Neurogenetics; Treatment

Indexed keywords

ARTICLE; AUTISM; BASIC RESEARCH; COMPARATIVE STUDY; CONTROLLED STUDY; FUNDING; MEDICAL RESEARCH; NATIONAL HEALTH ORGANIZATION; PRIORITY JOURNAL; SCIENCE; TIME SERIES ANALYSIS;

AUTISTIC DISORDER; BUDGETS; CHILD; FINANCING, ORGANIZED; HUMANS; NATIONAL INSTITUTES OF HEALTH (U.S.); RESEARCH SUPPORT AS TOPIC; RETROSPECTIVE STUDIES; UNITED STATES;

EID: 67349203978     PISSN: 01623257     EISSN: 15733432     Source Type: Journal    
DOI: 10.1007/s10803-008-0685-0     Document Type: Article

References (46)

1. Aarons, M., & Gittens, T. (1999). The handbook of autism. A guide for parents and professionals (2nd ed.). New York: Routledge.
2. Autism Speaks. (2006a). Autism speaks and the national alliance for autism research complete merger. Retrieved June 1, 2007, from http://www.autismspeaks.org/press/autism-speaks-naar-merger.php .
3. Autism Speaks. (2006b). Research funded: 2006 (December). Retrieved March 31, 2008, from http://www.autismspeaks.org/science/research/grants/funded-2006- dec.php .
4. Autism Speaks. (2006c). Research funded: 2006 (June). Retrieved March 31, 2008, from http://www.autismspeaks.org/science/research/grants/funded-2006- june.php .
5. Autism Speaks. (2007a). Government relations, activities and objectives. Retrieved July 17, 2007, from http://www.autismspeaks.org/government-affairs/ index.php .
6. Autism Speaks. (2007b). History of national alliance for autism research. Retrieved July 23, 2007, from http://www.autismspeaks.org/naar-history.php .
7. Autism Speaks. (2007c). Autism speaks and cure autism now complete merger. Retrieved June 1, 2007, from http://www.autismspeaks.org/press/autism- speaks-can-complete.php .
8. Autism Speaks. (2007d). Research we have funded. Retrieved July 7, 2007, from http://www.autismspeaks.org/science/research/grants/research-we-have- funded.php .
9. Autism Speaks. (2007e). What we fund and how we fund it. Retrieved March 31, 2008, from http://www.autismspeaks.org/science/research/grants/index.php .
10. M Bauman T Kemper 2005 Neuroanatomic observations of the brain in autism: A review and future directions International Journal of Developmental Neuroscience 23 183 187 10.1016/j.ijdevneu.2004.09.006
11. Bazell, R. (2005). Parents push for autism cure. Retrieved July 17, 2007, from http://www.msnbc.msn.com/id/7012176/ .
12. M Brimacombe R Pickett J Pickett 2007 Autism post-mortem neuroinformatic resource: The autism tissue program (ATP) informatics portal Journal of Autism and Developmental Disorders 37 574 579 10.1007/s10803-006-0188-9
13. Center for Disease Control and Prevention (CDC). (2006). Single gene disorders and disability. Retrieved June 1, 2007, from http://www.cdc.gov/ ncbddd/single-gene/fragilex.htm .
14. Center for Disease Control and Prevention (CDC) 2007 Prevalence of autism spectrum disorders and developmental disabilities monitoring network, 14 sites, United States, 2002 Morbidity and Mortality Weekly Report 58 12 27
15. Center for Disease Control and Prevention (CDC). (2007b). National Center for Health Statistics. Retrieved June 1, 2007, from http://www.cdc.gov/nchs/ fastats/adhd.htm .
16. Center for Disease Control and Prevention (CDC). (2007c). CADDRE: Centers for autism and developmental disabilities research and epidemiology. Retrieved June 19, 2007, from http://www.cdc.gov/ncbddd/autism/caddre.htm .
17. Charman, T., & Clare, P. (2004). Mapping autism research: Identifying UK priorities for the future. London: National Autistic Society.
18. Coalition to Protect Research (CPR). (2005). National institutes of health research priorities Q&A. Retrieved July 13, 2007, from http://www.cossa.org/CPR/CPR-NIH-Priorities-QA.html .
19. CRISP. (2007). Computer retrieval information on scientific projects. Retrieved June 1, 2007, from http://crisp.cit.nih.gov/ .
20. Cure Autism Now. (2007). About cure autism now. Retrieved July 7, 2007, from http://www.cureautismnow.org/site/c.bhLOK2PILuF/b.1031951/k.EB1C/Key-Facts. htm.
21. Department of Health and Human Services. (2004). Congressional appropriations committee report on the state of autism research. Retrieved July 13, 2007, from http://www.nimh.nih.gov/autismiacc/researchmatrix.pdf .
22. Department of Health and Human Services. (2006). Autism centers of excellence request for application. Retrieved July 22, 2007, from http://grants.nih.gov/grants/guide/rfa-files/RFA-HD-06-016.html .
23. D Geschwind J Sowinski C Lord P Iversen J Shestack 2001 The autism genetic resource exchange: A resource for the study of autism and related neuropsychiatric conditions American Journal of Human Genetics 69 463 466 10.1086/321292
24. E Hanson LA Kalish E Bruce C Curtis S McDaniel 2007 Use of complementary and alternative medicine among children diagnosed with autism spectrum disorder Journal of Autism and Developmental Disorders 37 628 636 10.1007/s10803-006- 0192-0
25. M Herbert 2008 Treatment-guided research Autism Advocate 50 8 16
26. Insel, T. (2007). The combating autism act. Paper presented at the international meeting for autism research, Seattle, WA.
27. S Levy D Madell S Merhar R Ittenbach J Pinto-Martin 2003 Use of complementary and alternative medicine among children recently diagnosed with autistic spectrum disorder Journal of Developmental and Behavioral Pediatrics 24 418 423 10.1097/00004703-200312000-00003
28. E London 1997 A psychiatrist's journey from parent to founder of research advocacy organization Psychiatric Times 14 1 2
29. J Mervis 2007 Budget policy. U.S. science advisor tells researchers to look elsewhere Science 316 817 818 10.1126/science.316.5826.817b
30. National Institute of Child Health and Development (NICHD). (2006). Facts about Down's syndrome. Retrieved June 1, 2007, from http://www.nichd.nih.gov/ publications/pubs/downsyndrome.cfm/ .
31. National Institutes of Health (NIH). (2007a). Estimates of funding for various diseases, conditions, research areas. Retrieved June 1, 2007, from http://www.nih.gov/news/fundingresearchareas.htm/ .
32. National Institutes of Health (NIH). (2007b). Re-engineering the clinical research enterprise. Retrieved July 12, 2007, from http://nihroadmap.nih.gov/ clinicalresearch/overview-translational.asp .
33. National Institute of Mental Health (NIMH). (2000). Depression. Retrieved June 1, 2007, from http://www.nimh.nih.gov/publicat/depression.cfmptdep3 .
34. National Institute of Mental Health (NIMH). (2001a). Eating disorders: Facts about eating disorders and the search for solutions. Retrieved June 1, 2007, from http://www.nimh.nih.gov/publicat/eatingdisorders.cfmed1 .
35. National Institute of Mental Health (NIMH). (2001b). When someone has schizophrenia. Retrieved June 1, 2007, from http://www.nimh.nih.gov/publicat/ schizsoms.cfm .
36. National Institute of Mental Health (NIMH). (2007). Autism spectrum disorders (pervasive developmental disorders). Retrieved June 1, 2007, from http://www.nimh.nih.gov/publicat/autism.cfm .
37. M Rutter 2005 Autism research: Lessons from the past and prospects for the future Journal of Autism and Developmental Disorders 35 241 257 10.1007/s10803-004-2003-9
38. M Rutter 2006 Autism: Its recognition, early diagnosis, and service implications Journal of Developmental and Behavioral Pediatrics 27 S54 S58 10.1097/00004703-200604002-00002
39. Shestak, J. (2007). Advocacy group introduction: Cure autism now. Paper presented at the international meeting for autism research, Seattle, WA.
40. C Silverman JP Brosco 2007 Understanding autism Archives of Pediatrics and Adolescent Medicine 161 392 398 10.1001/archpedi.161.4.392
41. J Singh J Hallmayer J Illes 2007 The interacting and paradoxical forces in neuroscience and society Nature Reviews. Neuroscience 8 153 159 10.1038/nrn2073
42. StataCorp. (2007). Stata statistical software: Release 10. College Station, TX: StataCorp LP.
43. E Stokstad 2007 New autism law focuses on patients, environment Science 315 27 10.1126/science.315.5808.27a
44. NS Sung WF Crowley M Genel P Salber L Sandy 2003 Central challenges facing the national clinical research enterprise Journal of the American Medical Association 289 1278 1287 10.1001/jama.289.10.1278
45. B Vitiello A Wagner 2007 The rapidly expanding field of autism research Biological Psychiatry 61 427 428 10.1016/j.biopsych.2006.11.024
46. M Wadman 2007 Autism speaks: The United States pays up Nature 448 628 629 10.1038/448628a