A Systematic Review Examining the Literature on Attitudes of Patients with Advanced Cancer Toward Research

Journal of Pain and Symptom Management

Volumn 37, Issue 6, 2009, Pages 1078-1085

  Todd, Anne M H ^a   Laird, Barry J A ^a   Boyle, Dorothy ^a   Boyd, Angela C ^a   Colvin, Lesley A ^a   Fallon, Marie T ^a  

^a WESTERN GENERAL HOSPITAL   (United Kingdom)

Author keywords

attitudes; cancer; patient; Research

Indexed keywords

ADVANCED CANCER; ALTRUISM; CANCER PATIENT; CINAHL; COCHRANE LIBRARY; DATA BASE; HOPE; HOSPITAL ADMISSION; HUMAN; LANGUAGE; MEDICAL RESEARCH; MOTIVATION; NOMENCLATURE; PAIN; PALLIATIVE THERAPY; PATIENT ATTITUDE; REVIEW; SCIENTIFIC LITERATURE; SELF CONCEPT; SOCIAL ASPECT; SYMPTOM; SYSTEMATIC REVIEW;

ALTRUISM; ATTITUDE; DISEASE PROGRESSION; HUMANS; NEOPLASMS; PATIENTS; RESEARCH;

EID: 67349171501     PISSN: 08853924     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.jpainsymman.2008.07.009     Document Type: Review

References (24)

1. National Comprehensive Cancer Network. NCCN clinical practice guidelines in oncology. Version1: 2007. National Comprehensive Cancer Network, Inc. http://www.nccn.org. Accessed December 16, 2007.
2. National Institute for Health and Clinical Excellence (NICE). Improving supportive and palliative care for adults with cancer-research evidence (2004), National Institute for Health and Clinical Excellence, London
3. Pautex S., Hermann F.R., and Zulian G.B. Is research really problematic in palliative care? A pilot study. J Pain Symptom Manage 30 2 (2005) 109-111
4. Dean R.A., and McClement S.E. Palliative care research: methodological and ethical challenges. Int J Palliat Nurs 8 8 (2002) 376-378
5. Casarett D. Looking beyond vulnerability: the ethics and science of research involving dying patients. [Commentary]. J Pain Symptom Manage 18 2 (1999) 144-145
6. Mills E.J., Seely D., Rachlis B., et al. Barriers to participation in clinical trials of cancer: a meta-analysis and systematic review of patient-reported factors. Lancet Oncol 7 2 (2006) 141-148
7. Williams A. Recruitment challenges for end-of-life research. J Hosp Palliat Nurs 8 8 (2007) 79-85
8. Scottish Intercollegiate Guidelines Network (SIGN). SIGN 50: A guideline developer's handbook (2008), Scottish Intercollegiate Guidelines Network, Edinburgh. http://www.sign.ac.uk/methodology/checklists.html Available from http://www.sign.ac.uk/methodology/checklists.html. Accessed January 20, 2008.
9. Steinhauser K.E., Clipp E.C., Hays J.C., et al. Identifying, recruiting and retaining seriously-ill patients and their caregivers in longitudinal research. Palliat Med 20 (2006) 745-754
10. McGrath P., Moore A., McNaught M., et al. Another form to fill in! Clients' reflections on the hospice use of questionnaires. Support Care Cancer 13 (2005) 691-701
11. Wright D.N.M., Hopkinson J.B., Corner J.L., and Foster C.L. How to involve cancer patients at the end of life as co-researchers. Palliat Med 20 (2006) 821-827
12. Cook A.M., Finlay I.G., and Butler-Keating R.J. Recruiting into palliative care trials: lessons learnt from a feasibility study. Palliat Med 16 (2002) 163-165
13. Hardy J. Consent for trials in palliative care. Lancet Supp. 365 (2000) s44
14. Perkins P., Barclay S., and Booth S. What are patients' priorities for palliative care research? Focus group study. Palliat Med 21 3 (2007) 219-225
15. Moore S. A need to try everything: patient participation in phase I trials. J Adv Nurs 33 6 (2000) 738-747
16. Ross C., and Cornbleet M. Attitudes of patients and staff to research in a specialist palliative care unit. Palliat Med 17 6 (2003) 491-497
17. Wright J.R., Whelan T.J., Schiff S., et al. Why cancer patients enter randomized clinical trials: exploring the factors that influence their decision. J Clin Oncol 22 21 (2004) 4312-4318
18. Casarett D., Kassner C.T., and Kutner J.S. Recruiting for research in hospice: feasibility of a research screening protocol. J Palliat Med 7 6 (2004) 854-860
19. Agrawal M., Grady C., Fairclough D.L., et al. Patients' decision-making process regarding participation in phase I oncology research. J Clin Oncol 24 27 (2006) 4479-4484
20. Cox K., and Avis M. Psychosocial aspects of participation in early anticancer drug trials: report of a pilot study. Cancer Nurs 19 3 (1996) 177-186
21. Ling J., Rees E., and Hardy J. What influences participation in clinical trials in palliative care in a cancer centre?. Eur J Cancer 36 (2000) 621-626
22. Terry W., Olsen L.G., Ravenscroft P., Wilss L., and Boulten-Lewis G. Hospice patients' views on research in palliative care. Intern Med J 36 7 (2006) 406-413
23. Henderson M., Addington-Hall J.M., and Hotopf M. The willingness of palliative care patients to participate in research. J Pain Symptom Manage 29 2 (2005) 116-118
24. Thompson K.L. Evolution of global distress amongst patients with advanced cancer from referral to palliative care services to death [dissertation] (2008), University of Edinburgh, Edinburgh