The italian version of the pedsqltm in children with rheumatic diseases

Clinical and Experimental Rheumatology

Volumn 27, Issue 2, 2009, Pages 373-380

  Trapanotto, M ^a   Giorgino, D ^a   Zulian, F ^a   Benini, F ^a   Varni, J W ^b  

^a UNIVERSITY OF PADOVA   (Italy)

^b TEXAS A M COLLEGE OF MEDICINE   (United States)

Author keywords

children.; juvenile chronic arthritis; Quality of life

Indexed keywords

ABSENTEEISM; ADOLESCENT; ADULT; CHILD; CONFERENCE PAPER; CONSTRUCT VALIDITY; DAILY LIFE ACTIVITY; EMOTION; HUMAN; INTERNAL CONSISTENCY; ITALY; JUVENILE RHEUMATOID ARTHRITIS; LANGUAGE; MAJOR CLINICAL STUDY; MUCOCUTANEOUS LYMPH NODE SYNDROME; PAIN ASSESSMENT; PARENT; PRESCHOOL CHILD; PRIORITY JOURNAL; QUALITY OF LIFE; QUESTIONNAIRE; RELIABILITY; RHEUMATIC DISEASE; RHEUMATOLOGY; SARCOIDOSIS; SCHOOL CHILD; SCORING SYSTEM; SOCIAL INTERACTION; SPONDYLARTHRITIS; VALIDITY;

ACTIVITIES OF DAILY LIVING; ADOLESCENT; CHILD; CHILD, PRESCHOOL; DISABILITY EVALUATION; FEMALE; HUMANS; ITALY; MALE; PARENTS; QUALITY OF LIFE; RHEUMATIC DISEASES; SEVERITY OF ILLNESS INDEX;

EID: 67249126710     PISSN: 0392856X     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Conference Paper

References (28)

1. DEYO RA: The quality of life, research, and care. Ann Intern Med 1991; 114: 695-7.
2. GUYATT GH, VELDHUYZEN VAN ZANTEN SJ, FEENY DH, PATRICK DL: Measuring quality of life in clinical trials: a taxonomy and review. CMAJ 1989; 140: 1441-8.
3. WILKIN D, HALLAM L, DOGGETT M-A: Measures of need and outcome for primary health care hardcover: Oxford University Press; 1992.
4. RUPERTO N, RAVELLI A, PISTORIO A et ai: The Italian version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin Exp Rheumatol 2001; 19 (Suppl. 23): S91-5.
5. COONS SJ, RAO S, KEININGER DL. HAYS RD: A comparative review of generic quality-of-life instruments. Pharmacoeconomics 2000; 17: 13-35.
6. NODARI E, BATTISTELLA PA, NACCARELLA C, VIDI M: Quality of life in young Italian patients with primary headache. Headache 2002; 42: 268-74.
7. EISER C, MORSE R: The measurement of quality of life in children: past and future perspectives. J Dev Behav Pedialr 2001; 22: 248-56.
8. NOLL RB, GARTSTEIN MA, VANNATTA K, CORRELL J, BUKOWSKI WM, DAVIES WH: Social, emotional, and behavioral functioning of children with cancer. Pediatrics 1999; 103:71-8.
9. VARNI JW, SEID M, RODE CA: The PedsQL: measurement model for the pediatric quality of life inventory. Med Care 1999; 37: 126-39.
10. PATRICK DL, DEYO RA: Generic and disease-specific measures in assessing health status and quality of life. Med Care 1989; 27 (Suppl.): S217-32.
11. SPRANGERS MA, CULL A, BJORDAL K, GROENVOLD M, AARONSON NK: The European Organization for Research and Treatment of Cancer. Approach to quality of life assessment: guidelines for developing questionnaire modules. EORTC Study Group on Quality of Life. Qual Life Res 1993; 2: 287-95.
12. VARNI JW, RODE CA, SEID M, KATZ ER, FRIEDMAN-BENDER A, QUIGGINS DJ: The Pediatric Cancer Quality of Life Inventory-32 (PCQL-32). II. Feasibility and range of measurement. J Behav Med 1999b; 22: 397-406.
13. VARNI JW, SEID M, KURTIN PS: PedsQL 4.0: reliability and validity of the Pediatric Quality of Life Inventory version 4.0 generic core scales in healthy and patient populations. Med Care 2001; 39: 800-12.
14. WHO: Preamble to the Constitution of the World Health Organisation as adopted by the International Health Conference. In Organisation WH, editor. 1946; Geneva; 1946.
15. UPTON P,EISERC,CHEUNG I et al: Measurement properties of the UK-English version of the Pediatric Quality of Life Inventory 4.0 (PedsQL) generic core scales. Health Qual Life Outcomes 2005; 3: 22.
16. VARNI JW. SEID M, SMITH KNIGHT T, BUR-WINKLE T, BROWN J, SZER IS: The PedsQL in pediatric rheumatology: reliability, validity, and responsiveness of the Pediatric Quality of Life Inventory Generic Core Scales and Rheumatology Module. Arthritis Rheum 2002; 46: 714-25.
17. http://www.mapi-research.fr.
18. BARDARE M: Chronic rheumatic diseases in childhood and GH-treatment: new insights. Milan, Italy, May 14, 1999. Clin Exp Rheumatol 2000; 18:781-3.
19. RIDER LG: Outcome assessment in the adult and juvenile idiopathic inflammatory myopathies. Rheum Dis ClinN Am 2002; 28: 935-77.
20. BOMBARDIER C, GLADMAN DD, UROWITZ MB, CARON D, CHANG CH: Derivation of the SLEDAI. A disease activity index for lupus patients. The Committee on Prognosis Studies in SLE. Arthritis Rheum 1992; 35: 630-40.
21. VARNI JW, THOMPSON KL, HANSON V: The Varni/Thompson Pediatric Pain Questionnaire. I. Chronic musculoskeletal pain in juvenile rheumatoid arthritis. PaIn 1987; 28: 27-38.
22. VARNI JW, WALDRON SA, GRAGG RA et al.: Development of the Waldron/Varni pediatric pain coping inventory. PaIn 1996; 67: 141-50.
23. FAIRCLOUGH DL. CELLA DF: Functional Assessment of Cancer Therapy (FACT-G): non-response to individual questions. Qual Life Res 1996:5:321-9.
24. LANDGRAF J. ABETZ I.. WARE JJ: Child Health Questionnaire (CHQ). In: Boston, Mass: The Health Institute, New England Medical Center; 1996.
25. WRIGHT JG, YOUNG NL: A comparison of different indices of responsiveness. J din Epidemiol 1997; 50: 239-46.
26. COHEN J: Statistical power analysis for the behavioral sciences, 2nd Ed: Hillsdale (NJ): 1988.
27. DAZZ1 C PL: Fondamenti ed esercitazioni di statistica applicata ai test. Bologna: 1999.
28. WH1TEHOUSE R. SHOPE JT. SULLIVAN DB. KULIK CL: Children with juvenile rheumatoid arthritis at school. Functional problems, participation in physical education. The implementation of Public Law 94-142. din Pediatr (Thila) 1989; 28: 509-14.