Information provision in fertility care: A call for improvement

Human Reproduction

Volumn 24, Issue 6, 2009, Pages 1420-1426

  Mourad, S M ^a   Hermens, R P M G ^a   Cox Witbraad, T ^b   Grol, R P T M ^a   Nelen, W L D M ^a   Kremer, J A M ^a  

^a RADBOUD UNIVERSITY MEDICAL CENTER   (Netherlands)

^b ST ANTONIUS HOSPITAL   (Netherlands)

Author keywords

Clinical practice guidelines; Counselling; Infertility; Information provision

Indexed keywords

ADULT; ANXIETY; ARTICLE; CLINICAL PRACTICE; CONTROLLED STUDY; FEMALE; FERTILITY; GYNECOLOGY; HEALTH CARE; HEALTH SURVEY; HUMAN; HUMAN EXPERIMENT; MALE; MARITAL THERAPY; NURSING STAFF; PATIENT INFORMATION; PATIENT SATISFACTION; PRACTICE GUIDELINE;

EID: 66249090847     PISSN: 02681161     EISSN: 14602350     Source Type: Journal    
DOI: 10.1093/humrep/dep029     Document Type: Article

References (45)

1. Ankem K. Factors influencing information needs among cancer patients: a meta-analysis. Libr InfSci Res 2006;28:7-23.
2. Beck AT, Guth D, Steer RA, Ball R. Screening for major depression disorders in medical inpatients with the Beck Depression Inventory for Primary Care. Behav Res Ther 1997;352:785-791.
3. Cegala DJ, Street RL Jr, Clinch CR. The impact of patient participation on physicians' information provision during a primary care medical interview. Health Commun 2007;21:177-185.
4. Coulter A, Entwistle V, Gilbert D. Sharing decisions with patients: is the information good enough? BMJ 1999;318:318-322.
5. Davis DA, Taylor-Vaisey A. Translating guidelines into practice. A systematic review of theoretic concepts, practical experience and research evidence in the adoption of clinical practice guidelines. CMAJ 1997;157:408-416.
6. de Boer EJ, den Tonkelaar I, Burger CW, van Leeuwen FE. Validity of self-reported causes of subfertility. Am J Epidemiol 2005;161:978- 986.
7. Elsass P, Eikard B, Junge J, Lykke J, Staun P, Feldt-Rasmussen M. Psychological effect of detailed preanesthetic information. Acta Anaesthesiol Scand 1987;31:579-583.
8. EPF. The European Patients' Forum Position Statement on Information to Patients. 2007. http://www.eu-patient.eu/news/attached-documents/ EPF-itp-position-fin.pdf.
9. Epstein RM, Alper BS, Quill TE. Communicating evidence for participatory decision making. JAMA 2004;291:2359-2366.
10. Godwin Y. Do they listen? A review of information retained by patients following consent for reduction mammoplasty. Br J Plast Surg 2000; 53:121-125.
11. Grol R. Personal paper. Beliefs and evidence in changing clinical practice. BMJ 1997;315:418-421.
12. Haagen EC, Nelen WL, Hermens RP, Braat DD, Grol RP, Kremer JA. Barriers to physician adherence to a subfertility guideline. Hum Reprod 2005;20:3301-3306.
13. Hassan E. Recall bias can be a threat to retrospective and prospective research designs. Internet J Epidemiol 2006;3.
14. Houts PS, Bachrach R, Witmer JT, Tringali CA, Bucher JA, Localio RA. Using pictographs to enhance recall of spoken medical instructions. Patient Educ Couns 1998;35:83-88.
15. Houts PS, Witmer JT, Egeth HE, Loscalzo MJ, Zabora JR. Using pictographs to enhance recall of spoken medical instructions II. Patient Educ Couns 2001;43:231-242.
16. Katz MG, Jacobson TA, Veledar E, Kripalani S. Patient literacy and question-asking behavior during the medical encounter: a mixed-methods analysis. J Gen Intern Med 2007;22:782-786.
17. Kerrigan DD, Thevasagayam RS, Woods TO, Mc Welch I, Thomas WE, Shorthouse AJ, Dennison AR. Who's afraid of informed consent? BMJ 1993;3062:298- 300.
18. Kessels RP. Patients' memory for medical information. J R Soc Med 2003; 96:219-222.
19. Ley P. Memory for medical information. Br J Soc Clin Psychol 1979; 18:245-255.
20. Ley P. Communicating With Patients: Improving Communication, Satisfaction and Compliance. Croom Helm Ltd, 1989.
21. Lloyd AJ, Hayes PD, London NJ, Bell PR, Naylor AR. Patients' ability to recall risk associated with treatment options. Lancet 1999;353:645.
22. Luck A, Pearson S, Maddern G, Hewett P. Effects of video information on precolonoscopy anxiety and knowledge: a randomised trial. Lancet 1999;354:2032-2035.
23. Lukoschek P, Fazzari M, Marantz P. Patient and physician factors predict patients' comprehension of health information. Patient Educ Couns 2003;50:201-210.
24. Malin M, Hemmink E, Raikkonen O, Sihvo S, Perala ML. What do women want? Women's experiences of infertility treatment. Soc Sci Med 2001; 53:123-133.
25. McColl A, Roderick P, Smith H, Wilkinson E, Moore M, Exworthy M, Gabbay J. Clinical governance in primary care groups: the feasibility of deriving evidence-based performance indicators. Qual Health Care 2000;9:90-97.
26. Mourad SM, Nelen WL, Hermens RP, Bancsi LF, Braat DD, Zielhuis GA, Grol RP, Kremer JA. Variation in subfertility care measured by guideline-based performance indicators. Hum Reprod 2008; 23:2493-2500.
27. Patterson C, Teale C. Influence of written information on patients' knowledge of their diagnosis. Age Ageing 1997;26:41-42.
28. Sabourin S, Wright J, Duchesne C, Belisle S. Are consumers of modern fertility treatments satisfied? Fertil Steril 1991;56:1084-1090.
29. Say RE, Thomson R. The importance of patient preferences in treatment decisions - challenges for doctors. BMJ 2003;327:542-545.
30. Schmidt L. Infertile couples' assessment of infertility treatment. Acta Obstet Gynecol Scand 1998;77:649-653.
31. Schmidt L, Holstein BE, Boivin J, Tjornhoj-Thomsen T, Blaabjerg J, Hald F, Rasmussen PE, Nyboe AA. High ratings of satisfaction with fertility treatment are common: findings from the Copenhagen Multi-centre Psychosocial Infertility (COMPI) Research Programme. Hum Reprod 2003;18:2638-2646.
32. Simpson M, Buckman R, Stewart M, Maguire P, Lipkin M, Novack D, Till J. Doctor-patient communication: the Toronto consensus statement. BMJ 1991;303:1385-1387.
33. Sorg BA, Whitney P. The effect of trait anxiety and situational stress on working memory capacity. J Res Pers 1992;26:235-241.
34. Souter VL, Penney G, Hopton JL, Templeton AA. Patient satisfaction ith the management of infertility. Hum Reprod 1998;13:1831-1836.
35. Spielberger R, Gorsuch R, Lushene R. STAI Manual for the State-Trait Anxiety Inventory 1970. Palo Alto, CA: Consulting Psychologists, 1970.
36. Timmermans LM, van der Maazen RW, van Spaendonck KP, Leer JW, Kraaimaat FW. Enhancing patient participation by training radiation oncologists. Patient Educ Couns 2006;63:55-63.
37. van den Berg H, Langeveld NE. Parental knowledge of fertility in male childhood cancer survivors. Psychooncology 2008;17:287-291.
38. Van Der Ploeg H, Defares P, Spielberger C. Handleiding bij de Zelf-Beoordelings Vragenlijst ZBV: Een nederlandstalige bewerking Van de Spielberger State-Trait Anxiety Inventory, STAI-DY [Manual of the Self-Evaluation Questionnaire: a Dutch version of the State-Trait Anxiety Inventory]. Lisse, The Netherlands: Swets and Zeitlinger B.V., 1980.
39. van Eijsden M, van der Wal MF, Bonsel GJ. Folic acid knowledge and use in a multi-ethnic pregnancy cohort: the role of language proficiency. BJOG 2006;113:1446-1451.
40. Verhaak CM, Smeenk JM, van MA, Kremer JA, Kraaimaat FW. A longitudinal, prospective study on emotional adjustment before, during and after consecutive fertility treatment cycles. Hum Reprod 2005; 20:2253-2260.
41. Volgsten H, Skoog SA, Ekselius L, Lundkvist O, Sundstrom Poromaa I. Prevalence of psychiatric disorders in infertile women and men undergoing in vitro fertilization treatment. Hum Reprod 2008; 23:2056-2063.
42. Waitzkin H. Doctor-patient communication. Clinical implications of social scientific research. JAMA 1984a;252:2441-2446.
43. Wallace LM. Communication variables in the design of pre-surgical preparatory information. Br J Clin Psychol 1986;25:111-118.
44. Weinman J. Providing written information for patients: psychological considerations. J R Soc Med 1990;83:303-305.
45. WHO. A Declaration on the Promotion of Patients' Rights in Europe: Principles of the Rights of Patients in Europe: A Common Framework. Copenhagen, Denmark: WHO Regional Office for Europe, 1994. http://www.who. int/genomics/public/eu-declaration 1994.pdf.