Impact of dystonia on quality of life and health in a Swedish population

Acta Neurologica Scandinavica

Volumn 119, Issue 6, 2009, Pages 376-382

  Zetterberg, Lena ^a   Aquilonius, S M ^a   Lindmark, B ^a  

^a UPPSALA UNIVERSITY HOSPITAL   (Sweden)

Author keywords

Dystonia; health; quality of life

Indexed keywords

ADULT; ARTICLE; CLINICAL ASSESSMENT; CLINICAL EVALUATION; DEMOGRAPHY; DISEASE ASSOCIATION; DYSTONIA; FEMALE; HEALTH SURVEY; HUMAN; MAJOR CLINICAL STUDY; MALE; PATIENT SATISFACTION; PHYSICAL ACTIVITY; PHYSIOTHERAPY; QUALITY OF LIFE; QUESTIONNAIRE; RISK FACTOR; SELF REPORT; SWEDEN; THERAPY EFFECT;

ADULT; AGED; AGED, 80 AND OVER; DYSTONIA; FEMALE; HEALTH STATUS INDICATORS; HUMANS; MALE; MIDDLE AGED; PATIENT SATISFACTION; QUALITY OF LIFE; QUESTIONNAIRES; SWEDEN;

EID: 65649148657     PISSN: 00016314     EISSN: 16000404     Source Type: Journal    
DOI: 10.1111/j.1600-0404.2008.01111.x     Document Type: Article

References (25)

1. Fahn S, Marsden CD. Movement disorders 2. London : Butterworths, 1987.
2. Brin M, CL C. Pathophysiology of dystonia. In : Brin M, Comella C, Jankovic J, eds. Etiology, clinical features, and treatment. Philadelphia, PA : Lippincott Williams & Williams, 2004 5 9.
3. Page D, Butler A, Jahanshahi M. Quality of life in focal, segmental, and generalized dystonia. Mov Disord 2007 22 : 341 7. (Pubitemid 46569687)
4. Jankovic J. Treatment of dystonia. Lancet Neurol 2006 5 : 864 72.
5. Tassorelli C, Mancini F, Balloni L et al. Botulinum toxin and neuromotor rehabilitation: an integrated approach to idiopathic cervical dystonia. Mov Disord 2006 21 : 2240 3. (Pubitemid 46140449)
6. Defazio G, Abbruzzese G, Livrea P, Berardelli A. Epidemiology of primary dystonia. Lancet Neurol 2004 3 : 673 8. (Pubitemid 39370637)
7. Le KD, Nilsen B, Dietrichs E. Prevalence of primary focal and segmental dystonia in Oslo. Neurology 2003 61 : 1294 6. (Pubitemid 37377561)
8. Muller J, Wissel J, Kemmler G et al. Craniocervical dystonia questionnaire (CDQ-24): development and validation of a disease-specific quality of life instrument. J Neurol Neurosurg Psychiatry 2004 75 : 749 53. (Pubitemid 38526688)
9. Cano SJ, Warner TT, Linacre JM et al. Capturing the true burden of dystonia on patients: the Cervical Dystonia Impact Profile (CDIP-58). Neurology 2004 63 : 1629 33. (Pubitemid 39507580)
10. Cano SJ, Hobart JC, Edwards M et al. CDIP-58 can measure the impact of botulinum toxin treatment in cervical dystonia. Neurology 2006 67 : 2230 2. (Pubitemid 46035484)
11. Rinnerthaler M, Mueller J, Weichbold V, Wenning GK, Poewe W. Social stigmatization in patients with cranial and cervical dystonia. Mov Disord 2006 21 : 1636 40.
12. Papathanasiou I, MacDonald L, Whurr R, Jahanshahi M. Perceived stigma in Spasmodic Torticollis. Mov Disord 2001 16 : 280 5. (Pubitemid 36049974)
13. Slawek J, Friedman A, Potulska A et al. Factors affecting the health-related quality of life of patients with cervical dystonia and the impact of botulinum toxin type A injections. Funct Neurol 2007 22 : 95 100. (Pubitemid 47249614)
14. Muller J, Kemmler G, Wissel J et al. The impact of blepharospasm and cervical dystonia on health-related quality of life and depression. J Neurol 2002 249 : 842 6. (Pubitemid 34754220)
15. Ben-Shlomo Y, Camfield L, Warner T. What are the determinants of quality of life in people with cervical dystonia? J Neurol Neurosurg Psychiatry 2002 72 : 608 14. (Pubitemid 34462815)
16. Skogseid IM, Malt UF, Roislien J, Kerty E. Determinants and status of quality of life after long-term botulinum toxin therapy for cervical dystonia. Eur J Neurol 2007 14 : 1129 37. (Pubitemid 47459746)
17. Miller KM, Okun MS, Fernandez HF, Jacobson CET, Rodriguez RL, Bowers D. Depression symptoms in movement disorders: comparing Parkinson's disease, dystonia, and essential tremor. Mov Disord 2007 22 : 666 72. (Pubitemid 46800136)
18. Jahanshahi M, Marsden CD. Body concept, disability, and depression in patients with spasmodic torticollis. Behav Neurol 1990 3 : 117 31.
19. Lim VK. Health related quality of life in patients with dystonia and their caregivers in New Zealand and Australia. Mov Disord 2007 22 : 998 1003. (Pubitemid 46999297)
20. The Global Parkinson's Disease Survey (GPDS) Steering Committee. Factors impacting on quality of life in Parkinson's disease: results from an international survey. Mov Disord 2002 17 : 60 7.
21. Haskell WL, Lee IM, Pate RR et al. Physical activity and public health: updated recommendation for adults from the American College of Sports Medicine and the American Heart Association. Circulation 2007 116 : 1081 93. (Pubitemid 47329572)
22. Jahanshahi M. Factors that ameliorate or aggravate spasmodic torticollis. J Neurol Neurosurg Psychiatry 2000 68 : 227. (Pubitemid 30245851)
23. Zetterberg L, Halvorsen K, Farnstrand C, Aquilonius SM, Lindmark B. Physiotherapy in cervical dystonia: six experimental single-case studies. Physiother Theory Pract 2008 24 : 275 90.
24. Asgeirsson H, Jakobsson F, Hjaltason H, Jonsdottir H, Sveinbjornsdottir S. Prevalence study of primary dystonia in Iceland. Mov Disord 2006 21 : 293 8.
25. The Epidemiological Study of Dystonia in Europe (ESDE) Collaborative Group. A prevalence study of primary dystonia in eight European countries. J Neurol 2000 247 : 787 92.