Ethical considerations about reporting research results with potential for further stigmatization of undocumented immigrants

Clinical Infectious Diseases

Volumn 48, Issue 9, 2009, Pages 1250-1253

  Achkar, Jacqueline M ^a   Macklin, Ruth ^a  

^a ALBERT EINSTEIN COLLEGE OF MEDICINE   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ANTIBIOTIC AGENT;

ANTIBIOTIC THERAPY; BIRTHPLACE; CLINICAL RESEARCH; DISEASE TRANSMISSION; HUMAN; IMMIGRANT; IMMIGRATION; INFECTION CONTROL; LUNG TUBERCULOSIS; MEDICAL DOCUMENTATION; MEDICAL ETHICS; MEDICAL SOCIETY; MOLECULAR EPIDEMIOLOGY; PATIENT CARE; PRIORITY JOURNAL; PUBLIC HEALTH SERVICE; PUBLICATION; REVIEW; STIGMA; UNITED STATES; ARTICLE; ETHICS; MEDICAL RESEARCH; METHODOLOGY; MIGRATION; SOCIAL PSYCHOLOGY;

BIOMEDICAL RESEARCH; DISEASE TRANSMISSION, INFECTIOUS; EMIGRANTS AND IMMIGRANTS; HUMANS; RESEARCH DESIGN; STEREOTYPING; UNITED STATES;

EID: 65549169967     PISSN: 10584838     EISSN: None     Source Type: Journal    
DOI: 10.1086/597587     Document Type: Review

References (29)

1. Center for Immigration Studies. Camarota SA. Immigrants in the United States, 2007: a profile of America's foreign-born population. 2007. Available at: http://www.cis.org/ immigrants-profile-2007. Accessed 3 August 2008.
2. Cain KP, Mac Kenzie WR, Castro KG, LoBue PA. No man is an island: reducing diagnostic delays in undocumented foreign-born persons is needed to decrease the risk of tuberculosis transmission. Clin Infect Dis 2008;47:1284-6.
3. Kullgren JT. Restrictions on undocumented immigrants' access to health services: the public health implications of welfare reform. Am J Public Health 2003;93:1630-3.
4. Achkar JM, Sherpa T, Cohen HW, Holzman RS. Differences in clinical presentation among persons with pulmonary tuberculosis: a comparison of documented and undocumented foreign-born versus US-born persons. Clin Infect Dis 2008;47:1277-83.
5. Golub JE, Bur S, Cronin WA, et al. Delayed tuberculosis diagnosis and tuberculosis transmission. Int J Tuberc Lung Dis 2006; 10:24-30.
6. Cronin WA, Golub JE, Lathan MJ, et al. Molecular epidemiology of tuberculosis in a low- to moderate-incidence state: are contact investigations enough? Emerg Infect Dis 2002; 8:1271-9.
7. Dowdle WR. A strategic plan for the elimination of tuberculosis in the United States. MMWR Morb Mortal Wkly Rep 1989; 38(Suppl 3):1-25.
8. Centers for Disease Control and Prevention. US Department of Health and Human Services. Reported tuberculosis in the United States 2006. 2007. Available at: http://www.cdc.gov/tb/surv/surv2006/default.htm. Accessed 3 August 2008.
9. Cain KP, Benoit SR, Winston CA, Mac Kenzie WR. Tuberculosis among foreign-born persons in the United States. JAMA 2008; 300: 405-12.
10. Groch J. CDC identifies foreign-born groups in U.S. at higher TB risk. MedPage Today. 22 July 2008. Available at: http://www.medpage today.com/InfectiousDisease/Tuberculosis/tb/ 10218. Accessed 3 August 2008.
11. Chin DP, DeRiemer K, Small PM, et al. Differences in contributing factors to tuberculosis incidence in US-born and foreign-born persons. Am J Respir Crit Care Med 1998; 158: 1797-803.
12. Dahle UR, Eldholm V, Winje BA, Mannsaker T, Heldal E. Impact of immigration on the molecular epidemiology of Mycobacterium tuberculosis in a low-incidence country. Am J Respir Crit Care Med 2007; 176:930-5.
13. Diz S, Lopez-Velez R, Moreno A, et al. Epi- demiologyand clinical features oftuberculosis in immigrants at an infectious diseases department in Madrid. Int J Tuberc Lung Dis 2007;11:769-74.
14. Geng E, Kreiswirth B, Driver C, et al. Changes in the transmission of tuberculosis in New York City from 1990 to 1999. N Engl J Med 2002;346:1453-8.
15. Inigo J, Garcia de Viedma D, Arce A, et al. Analysis of changes in recent tuberculosis transmission patterns after a sharp increase in immigration. J Clin Microbiol 2007; 45:63-9.
16. Martinez-Lirola M, Alonso-Rodriguez N, Sanchez ML, et al. Advanced survey of tuberculosis transmission in a complex socioepide- miologic scenario with a high proportion of cases in immigrants. Clin Infect Dis 2008;47: 8-14.
17. National Institutes of Health. US Department of Health and Human Services. Certificates of confidentiality: background information. http:/ /grants.nih.gov/grants/policy/coc/background .htm. Accessed 3 August 2008.
18. Ziv TA, Lo B. Denial of care to illegal immigrants: Proposition 187 in California. N Engl J Med 1995;332:1095-8.
19. US House of Representatives. 104th Congress. Committee on Ways and Means. Summary of welfare reforms made by public law 104-193. The Personal Responsibility and Work Opportunity Reconciliation Act and Associated Legislation. 1996. Available at: http://www.access.gpo.gov/congress/ wm015.pdf. Accessed 3 August 2008.
20. US House of Representatives. 108th Congress. Undocumented Alien Emergency Medical Assistance Amendments of2004.2004. Available at: http://www.govtrack.us/congress/bill.xpd?tab=main&bill=h108-3722. Accessed 3 August 2008.
21. Asch S, Leake B, Anderson R, Gelberg L. Why do symptomatic patients delay obtaining care for tuberculosis? Am J Respir Crit Care Med 1998; 157:1244-8.
22. Asch S, Leake B, Gelberg L. Does fear of immigration authorities deter tuberculosis patients from seeking care? West J Med 1994; 161:373-6.
23. Jensen AR. How much can we boost IQ and scholastic achievement? Harv Educ Rev 1969;39:1-123.
24. Jensen A R. How much can we boost IQ and scholastic achievement? Harvard Educ Rev 1969;39:1-123. Citation Classics. 9 October 1978; 41. Available at: http://www.garfield.library.upenn.edu/classics1978/A1978FQ53600002.pdf. Accessed 3 August 2008.
25. Neisser U, Boodoo G, Bouchard T, et al. Intelligence: knowns and unknowns. American Psychologist 1996;51:77-101.
26. Office for Human Research Protections. US Department of Health and Human Services. Biomedical and behavioral research. Ch. V, section A. In: IRB Guidebook. 1993. Available at: http://www.hhs.gov/ohrp/irb/irb-guide book.htm. Accessed 3 August 2008.
27. US Department of Health and Human Services. Title 45: Public Welfare. Part 46: Protection of Human Subjects. Code of Federal Regulations. 2005. Available at: http://www.hhs.gov/ohrp/humansubjects/guidance/45cfr46 .htm. Accessed 3 August 2008.
28. Low DE. Antimicrobial drug use and resistance among respiratory pathogens in the community. Clin Infect Dis 2001; 33(Suppl 3): S206-13.
29. Taylor Z, Nolan CM, Blumberg HM. Controlling tuberculosis in the United States: recommendations from the American Thoracic Society, CDC, and the Infectious Diseases Society of America. MMWR Recomm Rep 2005;54:1-81.