Subjective well-being and satisfaction with life in adults with spastic cerebral palsy: A pilot study of a randomized sample

Developmental Medicine and Child Neurology

Volumn 51, Issue 5, 2009, Pages 389-396

  Hergenröder, Heike ^a,c   Blank, Rainer ^b  

^a District Office Miesbach   (Germany)

^b Child Centre Maulbronn   (Germany)

^c NONE   (Germany)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; ARTICLE; CEREBRAL PALSY; CLINICAL ARTICLE; CONTROLLED STUDY; FEMALE; GERMANY; HUMAN; INTELLECTUAL IMPAIRMENT; LIFE SATISFACTION; MALE; OUTPATIENT; PILOT STUDY; PRIORITY JOURNAL; RANDOM SAMPLE; SPASTICITY; SWEDEN; WELLBEING;

ACTIVITIES OF DAILY LIVING; ADULT; CEREBRAL PALSY; CONFOUNDING FACTORS (EPIDEMIOLOGY); EDUCATIONAL STATUS; FEMALE; GERMANY; HUMANS; INTELLIGENCE; LEISURE ACTIVITIES; LOCOMOTION; MALE; MENTAL RETARDATION; MOTOR SKILLS; MUSCLE SPASTICITY; PILOT PROJECTS; QUALITY OF LIFE; QUESTIONNAIRES; REGISTRIES; REPRODUCIBILITY OF RESULTS; SAMPLING STUDIES; SWEDEN; SWITZERLAND;

EID: 64849099017     PISSN: 00121622     EISSN: 14698749     Source Type: Journal    
DOI: 10.1111/j.1469-8749.2008.03169.x     Document Type: Article

References (20)

1. Vargus-Adams J. Longitudinal use of the Child Health Questionnaire in childhood cerebral palsy. Dev Med Child Neurol 2006; 48: 343-47.
2. Vitale MG, Roye EA, Choe JC, Hyman JE, Lee FY, Roye DP Jr. Assessment of health status in patients with cerebral palsy: What is the role of quality-of-life measures? J Pediatr Orthop 2005; 25: 792-97.
3. Dickinson HO, Parkinson KN, Ravens-Sieberer U, et al. Self-reported quality of life of 8-12-year-old children with cerebral palsy: A cross-sectional European study. Lancet 2007; 369: 2171-78.
4. Livingston MH, Rosenbaum PL, Russell DJ, Palisano RJ. Quality of life among adolescents with cerebral palsy: What does the literature tell us? Dev Med Child Neurol 2007; 49: 225-31.
5. Andren E, Grimby G. Dependence in daily activities and life satisfaction in adult subjects with cerebral palsy or spina bifida: A follow-up study. Disabil Rehabil 2004; 26: 528-36.
6. Andren E, Grimby G. Activity limitations in personal, domestic and vocational tasks: A study of adults with inborn and early acquired mobility disorders. Disabil Rehabil 2004; 26: 262-71.
7. Balandin S, Berg N, Waller A. Assessing the loneliness of older people with cerebral palsy. Disabil Rehabil 2006; 28: 469-79.
8. Gaskin CJ, Morris T. Physical activity, health-related quality of life, and psychosocial functioning of adults with cerebral palsy. J Phys Act Health 2008; 5: 146-57.
9. Liptak GS. Health and well being of adults with cerebral palsy. Curr Opin Neurol 2008; 21: 136-42.
10. Cans C, Dolk H, Platt MJ, Colver A, Prasauskiene A, Krageloh-Mann I. Recommendations from the SCPE collaborative group for defining and classifying cerebral palsy. In: The Definition and Classification of Cerebral Palsy. Dev Med Child Neurol 2007; 49(Suppl. 109): 35-38.
11. Wood E, McLean D, Stewart W, Hung R, Gordon K, Dooley J. Reliability and stability of the Gross Motor Function Classification System for young adults with cerebral palsy. (Scientific paper presented at the Annual Meeting of the American Academy for Cerebral Palsy and Developmental Medicine, 2003.)
12. Sandstrom K, Alinder J, Oberg B. Descriptions of functioning and health and relations to a gross motor classification in adults with cerebral palsy. Disabil Rehabil 2004; 26: 1023-31.
13. Grob A. Subjective well-being and significant life-events across life span. Swiss J Psychol 1995; 54: 3-18.
14. Grob A, Luethi R, Kaiser F, Flammer A, Mackinnon A, Wearing A. Berner Fragebogen zum Wohlbefinden Jugendlicher (BFW). Diagnostica 1995; 37: 66-75.
15. Fugl-Meyer AR, Melin R, Fugl-Meyer KS. Life satisfaction in 18- to 64-year-old Swedes: In relation to gender, age, partner and immigrant status. J Rehabil Med 2002; 34: 239-46.
16. Grimby G, Andren E, Holmgren E, Wright B, Linacre JM, Sundh V. Structure of a combination of Functional Independence Measure and Instrumental Activity Measure items in community-living persons: A study of individuals with cerebral palsy and spina bifida. Arch Phys Med Rehabil 1996; 77: 1109-14.
17. Jahnsen R, Aamodt G, Rosenbaum P. Gross Motor Function Classification System used in adults with cerebral palsy: Agreement of self-reported versus professional rating. Dev Med Child Neurol 2006; 48: 734-38.
18. Himmelmann K, Beckung E, Hagberg G, Uvebrant P. Gross and fine motor function and accompanying impairments in cerebral palsy. Dev Med Child Neurol 2006; 48: 417-23.
19. Hoenig H, McIntyre L, Sloane R, Branch LG, Truncali A, Horner RD. The reliability of a self-reported measure of disease, impairment, and function in persons with spinal cord dysfunction. Arch Phys Med Rehabil 1998; 79: 378-87.
20. Grey N, Kennedy P. The Functional Independence Measure: A comparative study of clinician and self ratings. Paraplegia 1993; 31: 457-61.