Inactive lifestyle in adults with bilateral spastic cerebral palsy

Journal of Rehabilitation Medicine

Volumn 41, Issue 5, 2009, Pages 375-381

  Nieuwenhuijsen, Channah ^a   van der Slot, Wilma M A ^a,b   Beelen, Anita ^c   Arendzen, J Hans ^d   Roebroeck, Marij E ^a   Stam, Henk J ^a   van den Berg Emons, Rita J G ^a   Janssen, W G M ^a   Bergen, M P ^b   Spijkerman, D ^b   Pangalila, R F ^b   Nieuwstraten, W ^e   Terburg, M ^f   vd Heijden Maessen, H ^g   Buijs, H J R ^d,h   Ras, B ⁱ   Voogt, Th ⁱ   Janssens, P J ^j   Pesch, J ^j   Dallmeijer, A J ^k   Wensink Boonstra, A ^c,l   more..

^a ERASMUS MEDICAL CENTER   (Netherlands)

^b Erasmus MC University Medical Center and Rijndam Rehabilitation Center Rotterdam   (Netherlands)

^c Rehabilitation Centre De Trappenberg   (Netherlands)

^d LEIDEN UNIVERSITY MEDICAL CENTER   (Netherlands)

^e Sophia Rehabilitation Centre   (Netherlands)

^f Sophia Rehabilitation Centre   (Netherlands)

^g Rijnlands Rehabilitation Center   (Netherlands)

^h Rehabilitation Centre de Waarden   (Netherlands)

ⁱ Foundation of Rehabilitation Medicine Zeeland   (Netherlands)

^j Medisch Centrum Rijnmond Zuid   (Netherlands)

^k VU UNIVERSITY MEDICAL CENTER   (Netherlands)

^l Rehabilitation Centre De Hoogstraat   (Netherlands)

more..

Author keywords

Ambulatory monitoring; Cerebral palsy; Motor activity

Indexed keywords

ACCELEROMETRY; ADULT; ARTICLE; CEREBRAL PALSY; CONTROLLED STUDY; DAILY LIFE ACTIVITY; DISEASE ASSOCIATION; DISEASE SEVERITY; FEMALE; HUMAN; IMMOBILIZATION; LIFESTYLE; MAJOR CLINICAL STUDY; MALE; MOTOR PERFORMANCE; PHYSICAL ACTIVITY; PHYSICAL MOBILITY; QUANTITATIVE ANALYSIS; RISK ASSESSMENT; COMPARATIVE STUDY; MIDDLE AGED; MOTOR ACTIVITY; MOVEMENT (PHYSIOLOGY); OUTCOME ASSESSMENT; PATHOPHYSIOLOGY; PHYSIOLOGY; PSYCHOLOGICAL ASPECT;

ACTIVITIES OF DAILY LIVING; ADULT; CEREBRAL PALSY; FEMALE; HUMANS; LIFE STYLE; MALE; MIDDLE AGED; MOTOR ACTIVITY; MOVEMENT; OUTCOME ASSESSMENT (HEALTH CARE);

EID: 64349115266     PISSN: 16501977     EISSN: None     Source Type: Journal    
DOI: 10.2340/16501977-0340     Document Type: Article

References (40)

1. SCPE. Surveillance of cerebral palsy in Europe: a collaboration of cerebral palsy surveys and registers. Surveillance of Cerebral Palsy in Europe (SCPE). Dev Med Child Neurol 2000; 42: 816-824.
2. Rosenbaum P, Paneth N, Leviton A, Goldstein M, Bax M, Damiano D, et al. A report: the definition and classification of cerebral palsy April 2006. Dev Med Child Neurol Suppl 2007; 109: 8-14.
3. Wichers MJ, van der Schouw YT, Moons KG, Stam HJ, van Nieuwenhuizen O. Prevalence of cerebral palsy in The Netherlands (1977-1988). Eur J Epidemiol 2001; 17: 527-532.
4. Strauss D, Shavelle R. Life expectancy of adults with cerebral palsy. Dev Med Child Neurol 1998; 40: 369-375.
5. Stempien LM, Gaebler-Spira D. Rehabilitation of children and adults with cerebral palsy. In: Braddom RL, editor. Physical medicine and rehabilitation. Indianapolis: WB Saunders; 1996, p. 1113-1132.
6. Bax MC, Smyth DP, Thomas AP. Health care of physically handicapped young adults. Br Med J (Clin Res Ed) 1988; 296: 1153-1155.
7. Ng SY, Dinesh SK, Tay SK, Lee EH. Decreased access to health care and social isolation among young adults with cerebral palsy after leaving school. J Orthop Surg (Hong Kong) 2003; 11: 80-89.
8. Andersson C, Mattsson E. Adults with cerebral palsy: a survey describing problems, needs, and resources, with special emphasis on locomotion. Dev Med Child Neurol 2001; 43: 76-82.
9. Turk MA, Geremski CA, Rosenbaum PF, Weber RJ. The health status of women with cerebral palsy. Arch Phys Med Rehabil 1997; 78: 10-17.
10. Jahnsen R, Villien L, Egeland T, Stanghelle JK, Holm I. Locomotion skills in adults with cerebral palsy. Clin Rehabil 2004; 18: 309-316.
11. van den Berg-Emons HJG, Bussmann JB, Meyerink HJ, Roebroeck ME, Stam HJ. Body fat, fitness and level of everyday physical activity in adolescents and young adults with meningomyelocele. J Rehabil Med 2003; 35: 271-275.
12. Pate RR, Pratt M, Blair SN, Haskell WL, Macera CA, Bouchard C, et al. Physical activity and public health. A recommendation from the Centers for Disease Control and Prevention and the American College of Sports Medicine. JAMA 1995; 273: 402-07.
13. Crespo CJ. Exercise and the Prevention of Chronic Disabling Illness. In: Frontera WR, Dawson DM, Slovik DM, editors. Exercise in rehabilitation medicine. Champaign, IL: Human Kinetics; 1999, p. 151-172.
14. Rimmer JH. Exercise and physical activity in persons aging with a physical disability. Phys Med Rehabil Clin N Am 2005; 16: 41-56.
15. van den Berg-Emons HJ, Saris WH, de Barbanson DC, Westerterp KR, Huson A, van Baak MA. Daily physical activity of school-children with spastic diplegia and of healthy control subjects. J Pediatr 1995; 127: 578-584.
16. Maher CA, Williams MT, Olds T, Lane AE. Physical and sedentary activity in adolescents with cerebral palsy. Dev Med Child Neurol 2007; 49: 450-457.
17. Bjornson KF, Belza B, Kartin D, Logsdon R, McLaughlin JF. Ambulatory physical activity performance in youth with cerebral palsy and youth who are developing typically. Phys Ther 2007; 87: 248-257; discussion 257-260.
18. Bandini LG, Schoeller DA, Fukagawa NK, Wykes LJ, Dietz WH. Body composition and energy expenditure in adolescents with cerebral palsy or myelodysplasia. Pediatr Res 1991; 29: 70-77.
19. van der Slot WM, Roebroeck ME, Landkroon AP, Terburg M, Berg-Emons RJ, Stam HJ. Everyday physical activity and community participation of adults with hemiplegic cerebral palsy. Disabil Rehabil 2007; 29: 179-189.
20. Palisano R, Rosenbaum P, Walter S, Russell D, Wood E, Galuppi B. Development and reliability of a system to classify gross motor function in children with cerebral palsy. Dev Med Child Neurol 1997; 39: 214-223.
21. Jahnsen R, Aamodt G, Rosenbaum P. Gross Motor Function Classification System used in adults with cerebral palsy: agreement of self-reported versus professional rating. Dev Med Child Neurol 2006; 48: 734-738.
22. Sandstrom K, Alinder J, Oberg B. Descriptions of functioning and health and relations to a gross motor classification in adults with cerebral palsy. Disabil Rehabil 2004; 26: 1023-1031.
23. Boyd RNHKG. Objective measurement of clinical findings in the use of botulinum toxin type A for the management of children with cerebral palsy. Eur J Neurol 1999; 6: S23-S35.
24. Scholtes VA, Becher JG, Beelen A, Lankhorst GJ. Clinical assessment of spasticity in children with cerebral palsy: a critical review of available instruments. Dev Med Child Neurol 2006; 48: 64-73.
25. Bussmann JB, Martens WL, Tulen JH, Schasfoort FC, van den Berg-Emons HJ, Stam HJ. Measuring daily behavior using ambulatory accelerometry: the Activity Monitor. Behav Res Methods Instrum Comput 2001; 33: 349-356.
26. Postma K, van den Berg-Emons HJ, Bussmann JB, Sluis TA, Bergen MP, Stam HJ. Validity of the detection of wheelchair propulsion as measured with an Activity Monitor in patients with spinal cord injury. Spinal Cord 2005; 43: 550-557.
27. Scott J, Huskisson EC. Vertical or horizontal visual analogue scales. Ann Rheum Dis 1979; 38: 560.
28. Gaskin CJ, Morris T. Physical activity, health-related quality of life, and psychosocial functioning of adults with cerebral palsy. J Phys Act Health 2008; 5: 146-157.
29. Sallis JF, Saelens BE. Assessment of physical activity by self-report: status, limitations, and future directions. Res Q Exerc Sport 2000; 71: S1-S14.
30. Heath GW, Fentem PH. Physical activity among persons with disabilities - a public health perspective. Exerc Sport Sci Rev 1997; 25: 195-234.
31. Haskell WL, Lee IM, Pate RR, Powell KE, Blair SN, Franklin BA, et al. Physical activity and public health: updated recommendation for adults from the American College of Sports Medicine and the American Heart Association. Med Sci Sports Exerc 2007; 39: 1423-1434.
32. Rimmer JH. Physical activity among adults with a disability - United States, 2005. MMWR Morb Mortal Wkly Rep 2007; 56: 1021-1024.
33. Waters RL, Mulroy S. The energy expenditure of normal and pathologic gait. Gait Posture 1999; 9: 207-231.
34. Johnson RK, Hildreth HG, Contompasis SH, Goran MI. Total energy expenditure in adults with cerebral palsy as assessed by doubly labeled water. J Am Diet Assoc 1997; 97: 966-970.
35. Maltais DB, Pierrynowski MR, Galea VA, Bar-Or O. Physical activity level is associated with the O2 cost of walking in cerebral palsy. Med Sci Sports Exerc 2005; 37: 347-353.
36. Longmuir PE, Bar-Or O. Factors influencing the physical activity levels in youths with physical and sensory disabilities. Adapted Physical Activity Quarterly 2000; 17: 40-53.
37. Jahnsen R, Villien L, Aamodt G, Stanghelle J, Holm I. Physiotherapy and physical activity - experiences of adults with cerebral palsy, with implications for children. Adv Physiother 2003; 5: 21-32.
38. Heller T, Ying Gs GS, Rimmer JH, Marks BA. Determinants of exercise in adults with cerebral palsy. Public Health Nurs 2002; 19: 223-231.
39. Trost SG, Pate RR, Freedson PS, Sallis JF, Taylor WC. Using objective physical activity measures with youth: how many days of monitoring are needed? Med Sci Sports Exerc 2000; 32: 426-131.
40. Hilberink SR, Roebroeck ME, Nieuwstraten W, Jalink L, Verheijden JM, Stam HJ. Health issues in young adults with cerebral palsy: towards a life-span perspective. J Rehabil Med 2007; 39: 605-611.