Preferences for disclosure of information about serious illness among older Korean American immigrants in New York City

Journal of Palliative Medicine

Volumn 12, Issue 4, 2009, Pages 351-357

  Berkman, Cathy S ^a   Ko, Eunjeong ^b  

^a FORDHAM UNIVERSITY   (United States)

^b SAN DIEGO STATE UNIVERSITY   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

AGED; ARTICLE; CONTROLLED STUDY; DOCTOR PATIENT RELATION; FEMALE; HEALTH; HEALTH PRACTITIONER; HUMAN; HUMAN EXPERIMENT; IMMIGRANT; INTERPERSONAL COMMUNICATION; MALE; MENTAL HEALTH; UNITED STATES;

AGED; CRITICAL ILLNESS; CROSS-SECTIONAL STUDIES; EMIGRANTS AND IMMIGRANTS; FEMALE; HUMANS; INTERVIEWS AS TOPIC; KOREA; MALE; NEW YORK CITY; PATIENT SATISFACTION; TRUTH DISCLOSURE;

EID: 63449096495     PISSN: 10966218     EISSN: None     Source Type: Journal    
DOI: 10.1089/jpm.2008.0236     Document Type: Article

References (62)

1. Butow PN, Dowsett S, Hagerty R, Tattersall MH: Communicating prognosis to patients with metastatic disease: What do they really want to know? Support Care Cancer 2002;10:161-168.
2. Hagerty RG, Butow PN, Ellis PA, Lobb EA, Pendlebury S, Leighl N, Goldstein D, Lo SK, Tattersall MH: Cancer patient preferences for communication of prognosis in the metastatic setting. J Clin Oncol 2004;22:1721-1730.
3. Jenkins V, Fallowfield L, Saul J: Information needs of patients with cancer: Results from a large study in UK cancer centres. Br J Cancer 2001;84:48-51.
4. Keating DT, Nayeem K, Gilmartin JJ, O'Keeffe ST: Advance directives for truth disclosure. Chest 2005;128:1037-1039.
5. Noone I, Crowe M, Pillay I, O'Keeffe ST: Telling the truth about cancer: Views of elderly patients and their relatives. Ir Med J 2000;93:104-105.
6. Sullivan RJ, Menapace LW, White RM: Truth-telling and patient diagnoses. J Med Ethics 2001;27:192-197.
7. Butow PN, Kazemi JN, Beeney LJ, Griffin AM, Dunn SM, Tattersall MH: When the diagnosis is cancer: Patient communication experiences and preferences. Cancer 1996;77:2630-2637.
8. Degner LF, Kristjanson LJ, Bowman D, Sloan JA, Carriere KC, O'Neil J, Bilodeau B, Watson P, Mueller B: Information needs and decisional preferences in women with breast cancer. JAMA 1997;277:1485-1492.
9. Fallowfield LJ, Ford S, Lewis S: Information preferences of patients with cancer. Lancet 1994;344:1576.
10. Fallowfield LJ, Ford S, Lewis S: No news is not good news: Information preferences of patients with cancer. Psychooncology 1995;4:197-202.
11. Greisinger AJ, Lorimor RJ, Aday LA, Winn RJ, Baile WF: Terminally ill cancer patients. Their most important concerns. Cancer Pract 1997;5:147-154.
12. Kaplowitz SA, Campo S, Chiu WT: Cancer patients' desires for communication of prognosis information. Health Commun 2002;14:221-241.
13. Kirk P, Kirk I, Kristjanson LJ: What do patients receiving palliative care for cancer and their families want to be told? A Canadian and Australian qualitative study. BMJ 2004;328:1343.
14. Lobb EA, Kenny DT, Butow PN, Tattersall MH: Women's preferences for discussion of prognosis in early breast cancer. Health Expect 2001;4:48-57.
15. Meredith C, Symonds P, Webster L, Lamont D, Pyper E, Gillis CR, Fallowfield L: Information needs of cancer patients in west Scotland: Cross sectional survey of patients' views. BMJ 1996;313:724-726.
16. Sapir R, Catane R, Kaufman B, Isacson R, Segal A, Wein S, Cherny NI: Cancer patient expectations of and communication with oncologists and oncology nurses: The experience of an integrated oncology and palliative care service. Support Care Cancer 2000;8:458-463.
17. Blackhall LJ, Murphy ST, Frank G, Michel V, Azen S: Ethnicity and attitudes toward patient autonomy. JAMA 1995;274:820-825.
18. Carrese JA, Rhodes LA: Western bioethics on the Navajo reservation. Benefit or harm? JAMA 1995;274:826-829.
19. Searight HR, Gafford J: "It's like playing with your destiny": Bosnian immigrants' views of advance directives and endof-life decision-making. J Immigr Health 2005;7:195-203.
20. Beyene Y: Medical disclosure and refugees. Telling bad news to Ethiopian patients. West J Med 1992;157:328-332.
21. Butow PN, Tattersall MH, Goldstein D: Communication with cancer patients in culturally diverse societies. Ann NY Acad Sci 1997;809:317-329.
22. Dalla-Vorgia P, Katsouyanni K, Garanis TN, Touloumi G, Drogari P, Koutselinis A: Attitudes of a Mediterranean population to the truth-telling issue. J Med Ethics 1992;18:67-74.
23. Elwyn TS, Fetters MD, Sasaki H, Tsuda T: Responsibility and cancer disclosure in Japan. Soc Sci Med 2002;54:281-293.
24. Goldstein D, Thewes B, Butow P: Communicating in a multicultural society. II: Greek community attitudes towards cancer in Australia. Intern Med J 2002;32:289-296.
25. Gostin LO: Informed consent, cultural sensitivity, and respect for persons. JAMA 1995;274:844-845.
26. Iconomou G, Viha A, Koutras A, Vagenakis AG, Kalofonos HP: Information needs and awareness of diagnosis in patients with cancer receiving chemotherapy: A report from Greece. Palliat Med 2002;16:315-321.
27. Levine RJ: Informed consent: Some challenges to the universal validity of the Western model. Law Med Health Care 1991;19:207-213.
28. Mizushima Y, Kashii T, Hoshino K, Morikage T, Takashima A, Hirata H, Kawasaki A, Konishi K, Yano S: A survey regarding the disclosure of the diagnosis of cancer in Toyama Prefecture, Japan. Jpn J Med 1990;29:146-155.
29. Werth JLJ, Blevins D, Toussaint KL, Durham MR: The influence of cultural diversity on end-of-life care and decisions. Am Behav Sci 2002;46:204-219.
30. Blackhall LJ, Frank G, Murphy S, Michel V: Bioethics in a different tongue: The case of truth-telling. J Urban Health 2001;78:59-71.
31. Kagawa-Singer M, Chi-Ying Chung R: A paradigm for culturally based care in ethnic minority populations. Ann Epidemiol 1994;10(8 Suppl):192-208.
32. Barnes JS, Bennett CE: The Asian Population: 2000. Census 2002 Brief. Washington, DC: US Dept of Commerce; 2002, pp. 1-12.
33. Census Profile: New York City's Korean American Population. Asian American Federation of New York, 2004. www.aafny.org=cic=briefs=korean.pdf (Last accessed August 9, 2007).
34. Mitchell JL: Cross-cultural issues in the disclosure of cancer. Cancer Pract 1998;6:153-160.
35. Searight HR, Gafford J: Cultural diversity at the end of life: Issues and guidelines for family physicians. Am Fam Physician 2005;71:515-522.
36. Berger JT: Culture and ethnicity in clinical care. Ann Intern Med 1998;158:2085-2090.
37. Hallenbeck J, Goldstein MK, Mebane EW: Cultural considerations of death and dying in the United States. Clin Geriatr Med 1996;12:393-406.
38. Hallenbeck J, Goldstein MK: Decisions at the end of life: Cultural considerations beyond medical ethics. Generations 1999;23:24-29.
39. Kagawa-Singer M, Blackhall LJ: Negotiating cross-cultural issues at the end of life: "You got to go where he lives". JAMA 2001;286:2993-3001.
40. Orona CJ, Koenig BA, Davis AJ: Cultural aspects of nondisclosure. Camb Q Healthc Ethics 1994;3:338-346.
41. Yeo G, Hikuyeda N: Cultural issues in end-of-life decision making among Asians and Pacific Islanders in the United States. In: Braun KL, Pietsch JH, Blanchette P (eds): Cultural Issues in End-of-Life Decision Making. Thousand Oaks, CA: Sage, 2000, pp. 101-125.
42. Yun YH, Lee CG, Kim S-y, Lee SW, Heo DS, Kim JS, Lee KS, Hong YS, Lee JS, You CH: The attitudes of cancer patients and their families toward the disclosure of terminal illness. J Clin Oncol 2004;22:307-314.
43. Hu WY, Chiu TY, Chuang RB, Chen CY: Solving familyrelated barriers to truthfulness in cases of terminal cancer in Taiwan. A professional perspective. Cancer Nurs 2002;25:486-492.
44. Kirwan JM, Tincello DG, Lavender T, Kingston RE: How doctors record breaking bad news in ovarian cancer. Br J Cancer 2003;88:839-842.
45. Frank G, Blackhall LJ, Michel V, Murphy ST, Azen SP, Park K: A discourse of relationships in bioethics: Patient autonomy and end-of-life decision making among elderly Korean Americans. Med Anthropol Q 1998;12:403-423.
46. Murphy ST, Palmer JM, Azen S, Frank G, Michel V, Blackhall LJ: Ethnicity and advance care directives. J Law Med Ethics 1996;24:108-117.
47. Kutner JS, Steiner JF, Corbett KK, Jahnigen DW, Barton PL: Information needs in terminal illness. Soc Sci Med 1999;48:1341-1352.
48. Idler EL, Kasl SV, Lemke JH: Self-evaluated health and mortality among the elderly in New Haven, Connecticut, and Iowa and Washington counties, Iowa, 1982-1986. Am J Epidemiol 1990;131:91-103.
49. Lown EA, Vega WA: Intimate partner violence and health: Self-assessed health, chronic health, and somatic symptoms among Mexican American women. Psychosom Med 2001;63:352-360.
50. Marin G, Marin BV: Research with Hispanic Populations. Newbury Park, CA: Sage Publications, 1991.
51. Curtis JR, Engelberg R, Young JP, Vig LK, Reinke LF, Wenrich MD, McGrath B, McCown E, Back AL: An approach to understanding the interaction of hope and desire for explicit prognostic information among individuals with severe chronic obstructive pulmonary disease or advanced cancer. J Palliat Med 2008;11:610-620.
52. Candib LM: Truth telling and advance planning at the end of life: Problems with autonomy in a multicultural world. Fam Syst Health 2002;20:213-228.
53. Holland JC, Geary N, Marchini A, Tross S: An international survey of physician attitudes and practice in regard to revealing the diagnosis of cancer. Cancer Invest 1987;5:151-154.
54. Seo M, Tamura K, Shijo H, Morioka E, Ikegame C, Hirasako K: Telling the diagnosis to cancer patients in Japan: attitude and perception of patients, physicians and nurses. Palliat Med 2000;14:105-110.
55. Miyata H, Takahashi M, Saito T, Tachimori H, Kai I: Disclosure preferences regarding cancer diagnosis and prognosis: To tell or not to tell? J Med Ethics 2005;31:447-451.
56. Tang ST, Lee S-YC: Cancer diagnosis and prognosis in Taiwan: Patient preferences versus experiences. Psychooncology 2004;13:1-13.
57. Lobb EA, Butow PN, Kenny DT, Tattersall MH: Communicating prognosis in early breast cancer: Do women understand the language used? Med J Aust 1999;171:290-294.
58. Marwit SJ, Datson SL: Disclosure preferences about terminal illness: An examination of decision-related factors. Death Stud 2002;26:1-20.
59. Harris JJ, Shao J, Sugarman J: Disclosure of cancer diagnosis and prognosis in Northern Tanzania. Soc Sci Med 2003;56:905-913.
60. Hagerty RG, Butow PN, Ellis PM, Dimitry S, Tattersall MHN: Communicating prognosis in cancer care: A systematic review of the literature. Ann Oncol 2005;16:1005-1053.
61. Butow PN, Maclean M, Dunn SM, Tattersall MH, Boyer MJ: The dynamics of change: cancer patients' preferences for information, involvement and support. Ann Oncol 1997;8:857-863.
62. Leydon GM, Boulton M, Moynihan C, Jones A, Mossman J, Boudioni M, McPherson K: Cancer patients' information needs and information seeking behaviour: In depth interview study. BMJ 2000;320:909-913.