Negotiating science and experience in medical knowledge: Gynaecologists on endometriosis

Social Science and Medicine

Volumn 68, Issue 8, 2009, Pages 1489-1497

  Whelan, Emma ^a  

^a DALHOUSIE UNIVERSITY   (Canada)

Author keywords

Endometriosis; Epistemology; Experience; Gynecology; Medical discourse; Medical knowledge; Science

Indexed keywords

DISEASE; KNOWLEDGE; MEDICINE; RESEARCH AND DEVELOPMENT; SCIENCE AND TECHNOLOGY; WOMENS HEALTH;

ARTICLE; CLINICAL COMPETENCE; ENDOMETRIOSIS; EPISTEMOLOGY; EVIDENCE BASED MEDICINE; MEDICAL LITERATURE;

BIOMEDICAL RESEARCH; ENDOMETRIOSIS; EVIDENCE-BASED MEDICINE; FEMALE; GYNECOLOGY; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HUMANS; PAIN MEASUREMENT; PATIENT-CENTERED CARE;

EID: 63149122323     PISSN: 02779536     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.socscimed.2009.01.032     Document Type: Article

References (88)

1. American College of Obstetricians and Gynecologists. Important facts about endometriosis (1983), American College of Obstetricians and Gynecologists, Washington
2. American Fertility Society. Classification of endometriosis. Fertility and Sterility 32 6 (1979) 633-634
3. American Fertility Society. Revised American Fertility Society classification of endometriosis: 1985. Fertility and Sterility 43 3 (1985) 351-352
4. American Society for Reproductive Medicine. Revised American Society for Reproductive Medicine classification of endometriosis: 1996. Fertility and Sterility 67 5 (1997) 817-821
5. Anderson I. Bodies, disease and the problem of Foucault. Social Analysis 37 April (1995) 67-81
6. Anderson W. The reasoning of the strongest: the polemics of skill and science in medical diagnosis. Social Studies of Science 22 (1992) 653-684
7. Audebert A.J.M. Current classification of endometriosis: practical concerns. In: Chadha D.R., and Buttram Jr. V.C. (Eds). Current concepts in endometriosis (1990), Alan R. Liss, New York 122-136
8. Ballweg M.L. The enigma called endometriosis. In: Ballweg M.L., and The Endometriosis Association (Eds). The endometriosis sourcebook (1995), Contemporary Books, Chicago 10-15
9. Buttram Jr. V.C. Editor's corner: Evolution of the Revised American Fertility Society classification of endometriosis. Fertility and Sterility 43 3 (1985) 347-350
10. Bynum W.F. Science and the practice of medicine in the nineteenth century (1994), Cambridge University Press, Cambridge
11. Canadian Consensus Conference on Endometriosis. (1993). Report published in Journal SOGC, Special Supplement (April).
12. Canadian Consensus Conference on Endometriosis. Available at: (1999). http://www.sogc.org/SOGCnet/sogc_docs/common/guide/pdfs/endoeng.pdf 67 pages. Report originally published in Journal SOGC 21(5), 468-98 and 21(6), 574-610
13. Candiani G.B., Vercellini P., Fedele L., Colombo A., and Candiani M. Mild endometriosis and infertility: a critical review of epidemiologic data, diagnostic pitfalls, and classification limits. Obstetrical and Gynecological Survey 46 6 (1991) 374-382
14. Canis M., Jolinières J.B.D., Wattiez A., Pouly J.L., Mage G., Manhes H., et al. Classification of endometriosis. Ballière's Clinical Obstetrics and Gynecology 7 4 (1993) 759-774
15. Canis M., Pouly J.L., Wattiez A., Manhes H., Mage G., and Bruhat M.A. Incidence of bilateral adnexal disease in severe endometriosis (revised American Fertility Society [AFS], stage IV): should a stage V be included in the AFS classification?. Fertility and Sterility 57 3 (1992) 691-692
16. Chalmers J.A. Endometriosis (1975), Butterworths, London
17. Cochrane A.L. Effectiveness and efficiency: Random reflections on health services (1972), Nuffield Provincial Hospitals Trust, London
18. Comelles J.M. The role of local knowledge in medical practice: a trans-historical perspective. Culture, Medicine and Psychiatry 24 1 (2000) 41-75
19. Cornillie F.J., Smith S.K., Luciano A.A., Beard R.W., Distler W., Barlow D.H., et al. Discussion I. British Journal of Clinical Practice 45 3, Suppl. 72 (1991) 11-13
20. Corson S.L. Endometriosis: The enigmatic disease (1992), Essential Medical Information Systems, Durant, OK
21. Dalmiya V., and Alcoff L. Are 'old wives' tales' justified?. In: Alcoff L., and Potter E. (Eds). Feminist epistemologies (1993), Routledge, London 217-264
22. Darrow S.L., Selman S., Batt R.E., Zielezny M.A., and Vena J.E. Sexual activity, contraception, and reproductive factors in predicting endometriosis. American Journal of Epidemiology 140 6 (1994) 500-509
23. Doherty S. History of evidence-based medicine. Oranges, chloride of lime and leeches: barriers to teaching old dogs new tricks. Emergency Medicine Australasia 17 4 (2005) 314-321
24. Donnez J. Letters to the editor: Pelvic endometriosis - the same or different entities in disguise? Reply of the author to letter 1. Fertility and Sterility 70 3 (1998) 588-589
25. Donnez J. Letters to the editor: Pelvic endometriosis - The same or different entities in disguise? Reply of the Author to Letters 2, 3, and 4. Fertility and Sterility 70 3 (1998) 591-592
26. Eisenberg L. Disease and illness: distinctions between professional and popular ideas of sickness. Culture, Medicine and Psychiatry 1 (1977) 9-23
27. Engelhardt Jr. H.T. Medical knowledge and medical action: competing visions. In: Have H.A.M.J.t., Kimsma G.K., and Spicker S.K. (Eds). The growth of medical knowledge (1990), Kluwer Academic Publishers, Dordrecht 63-71
28. Eskenazi B., and Warner M.L. Epidemiology of endometriosis. Obstetrics and Gynecology Clinics of North America 24 2 (1997) 235-258
29. Evidence-Based Medicine Working Group. Evidence-based medicine: a new approach to teaching the practice of medicine. JAMA 268 17 (1992) 2420-2425
30. Fedele L. Letters-to-the-editor: American Fertility Society classification of endometriosis - the last word? Reply of the author. Fertility and Sterility 54 1 (1990) 181
31. Fleck L. (F. Bradley and T.J. Trenn, Trans.). In: Trenn T.J., and Merton R.K. (Eds). Genesis and development of a scientific fact (1979), University of Chicago Press, Chicago Originally published as Entstehung und Entwicklung einer wissenshaftlichen Tatsache: Einführung in die Lehre vom Denkstil und Denkkollektiv. Basel: Benno Schwabe & Co., 1935
32. Fleck L. Some specific features of the medical way of thinking. In: Cohen R.S., and Schnelle T. (Eds). Cognition and fact: Materials on Ludwik Fleck (1986), D. Reidel, Dordrecht 39-46
33. Freidson E. Profession of medicine: A study of the sociology of applied knowledge. 2nd ed. (1988), University of Chicago Press, Chicago
34. Funai E.F. Obstetrics and Gynecology in 1996: marking the progress toward evidence-based medicine by classifying studies based on methodology. Obstetrics and Gynecology 90 6 (1997) 1020-1022
35. Gelfand T. The history of the medical profession. In: Bynum W.F., and Porter R. (Eds). Companion encyclopedia of the history of medicine Vol. II. (1993), Routledge, London 1119-1150
36. Glaser B.G., and Strauss A.L. The discovery of grounded theory: Strategies for qualitative research (1967), Aldine de Gruyter, New York
37. Goldman M.B., and Cramer D.W. The epidemiology of endometriosis. In: Chadha D.R., and Buttram Jr. V.C. (Eds). Current concepts in endometriosis (1990), Alan R. Liss, New York 15-31
38. Gomibuchi H., Taketani Y., Doi M., Yoshida K., Mizukawa H., Kaneko M., et al. Is personality involved in the expression of dysmenorrhoea in patients with endometriosis?. American Journal of Obstetrics and Gynecology 169 3 (1993) 723-725
39. Gordon D.R. Tenacious assumptions in western medicine. In: Lock M., and Gordon D. (Eds). Biomedicine examined (1988), Kluwer Academic Publishers, Dordrecht 19-56
40. Green M.L. Evidence-based medicine training in graduate medical education: past, present and future. Journal of Evaluation in Clinical Practice 6 2 (2000) 121-138
41. Groff T.R. Classifications. In: Schenken R.S. (Ed). Endometriosis: Contemporary concepts in clinical management (1989), J.B. Lippincott, Philadelphia 145-167
42. Guarnaccia M., and Olive D.L. The structure and future of endometriosis research. Obstetrics and Gynecology Clinics of North America 24 2 (1997) 455-465
43. Guzick D.S., Silliman N.P., Adamson G.D., Buttram Jr. V.C., Canis M., Malinak L.R., et al. Prediction of pregnancy in infertile women based on the American Society for Reproductive Medicine's revised classification of endometriosis. Fertility and Sterility 67 5 (1997) 822-829
44. Hamer S., and Collinson G. Achieving evidence-based practice: A handbook for practitioners (2005), Baillière Tindall Elsevier, Edinburgh
45. Haney A.F. Etiology and histogenesis of endometriosis. In: Chadha D.R., and Buttram Jr. V.C. (Eds). Current concepts in endometriosis (1990), Alan R. Liss, New York 1-14
46. Hansen B. New images of a new medicine: visual evidence for the widespread popularity of therapeutic discoveries in America after 1885. Bulletin of the History of Medicine 73 4 (1999) 629-678
47. Helman C.G. "Feed a cold, starve a fever" - folk models of infection in an English Suburban Community, and their relation to medical treatment. Culture, Medicine and Psychiatry 2 (1978) 107-137
48. Hoeger K.M., and Guzick D.S. Classification of endometriosis. Obstetrics and Gynecology Clinics of North America 24 2 (1997) 347-359
49. Hornstein M.D., Gleason R.E., Orav J., Haas S.T., Freidman A.J., Rein M.S., et al. The reproducibility of the revised American Fertility Society classification for endometriosis. Fertility and Sterility 59 5 (1993) 1015-1021
50. Houston D.E., Noller K.L., Melton III L.J., and Selwyn B.J. The epidemiology of pelvic endometriosis. Clinical Obstetrics and Gynecology 31 4 (1988) 787-800
51. Hunter K.M. Doctors' stories: The narrative structure of medical knowledge (1991), Princeton University Press, Princeton
52. Jordan K., and Lynch M. The sociology of a genetic engineering technique: ritual and rationality in the performance of the 'Plasmid Prep'. In: Clarke A.E., and Fujimura J.H. (Eds). The right tools for the job: At work in the twentieth-century life sciences (1992), Princeton University Press, Princeton 77-114
53. Kaptchuk T.J. Intentional ignorance: a history of blind assessment and placebo controls in medicine. Bulletin of the History of Medicine 72 3 (1998) 389-433
54. Kistner R.W. Gynecology: Principles and practice. 4th ed. (1986), Year Book Medical Publishers, Chicago
55. Kleinman A. The illness narratives: Suffering, healing, and the human condition (1988), Basic Books, New York
56. Koninckx P.R., Oosterlynck D., D'Hooghe T., and Meuleman C. Deeply infiltrating endometriosis is a disease whereas mild endometriosis could be considered a non-disease. Annals of the New York Academy of Sciences 734 (1994) 333-341
57. Lauersen N., and de Swaan C. The endometriosis answer book (1988), Fawcett Columbine, New York
58. Levenstein J.H., McCracken E.C., McWhinney I.R., Stewart M.A., and Brown J.B. The patient-centred clinical method. 1. A model for the doctor-patient interaction in family medicine. Family Practice 3 1 (1986) 24-30
59. Low W.Y., Edelmann R.J., and Sutton C. A Psychological profile of endometriosis patients in comparison to patients with pelvic pain of other origins. Journal of Psychosomatic Research 37 2 (1993) 111-116
60. Malterud K. The legitimacy of clinical knowledge: towards a medical epistemology embracing the art of medicine. Theoretical Medicine 16 2 (1995) 183-198
61. Mishler E. The discourse of medicine (1984), Ablex, Norwood, New Jersey
62. Mykhalovskiy E., and Weir L. The problem of evidence-based medicine: directions for social science. Social Science & Medicine 59 (2004) 1059-1069
63. Nelson L.H. Epistemological communities. In: Alcoff L., and Potter E. (Eds). Feminist epistemologies (1993), Routledge, New York 121-159
64. Nisolle M., and Donnez J. Peritoneal endometriosis, ovarian endometriosis, and adenomyotic nodules of the rectovaginal septum are three different entities. Fertility and Sterility 68 4 (1997) 585-596
65. Palmisiano G.P., Adamson G.D., and Lamb E.J. Can staging systems for endometriosis based on anatomic location and lesion type predict pregnancy rates?. International Journal of Fertility 38 4 (1993) 241-249
66. Pauerstein C.J. Clinical presentation and diagnosis. In: Schenken R.S. (Ed). Endometriosis: Contemporary concepts in clinical management (1989), J.B. Lippincott, Philadelphia 127-144
67. Redwine D.B. Letters to the editor: Pelvic endometriosis - the same or different entities in disguise? Letter 1 of 4. Fertility and Sterility 70 3 (1998) 588
68. Ripps B.A., and Martin D.C. Endometriosis and chronic pelvic pain. Obstetrics and Gynecology Clinics of North America 20 4 (1993) 709-717
69. Rock J.A., and Zoladex Endometriosis Study Group. The revised American Fertility Society classification of endometriosis: reproducibility of scoring. Fertility and Sterility 63 5 (1995) 1108-1110
70. Romano T.M. Gentlemanly versus scientific ideals: John Burdon Sanderson, Medical Education, and the failure of the Oxford School of Physiology. Bulletin of the History of Medicine 71 2 (1997) 224-248
71. Rousseau S. Letters to the editor: Pelvic endometriosis - the same or different entities in disguise? Letter 4. Fertility and Sterility 70 3 (1998) 590
72. Schenken R.S. Modern concepts of endometriosis: classification and its consequences for therapy. Journal of Reproductive Medicine 43 3, Suppl. (1998) 269-275
73. Shortt S.E.D. Physicians, science, and status: issues in the professionalization of Anglo-American medicine in the nineteenth century. Medical History 27 (1983) 51-68
74. Starr P. The social transformation of American medicine (1982), Basic Books, New York
75. Stout A.L., Steege J.F., Dodson W.C., and Hughes C.L. Relationship of laparoscopic findings to self-report of pelvic pain. American Journal of Obstetrics and Gynecology 164 1 (1991) 73-79
76. Straus S.E., and McAlister F.A. Evidence-based medicine: a commentary on common criticisms. CMAJ 163 7 (2000) 837-841
77. Timmermans S., and Berg M. The gold standard: The challenge of evidence-based medicine and standardization in health care (2005), Temple University Press, Philadelphia
78. Tindall V.R. Jeffcoate's principles of gynaecology. 5th ed. (1986), Butterworths, London
79. Tuckett D., Boulton M., Olson C., and Williams A. Meetings between experts (1985), Tavistock, London
80. Wardle P.G., and Hull M.G.R. Is endometriosis a disease?. Ballière's Clinical Obstetrics and Gynaecology 7 4 (1993) 673-685
81. Wartofsky M.W. Medical knowledge as social product: rights, risks and responsibilities. In: Bondeson W.B., Engelhardt Jr. H.T., Spicker S.F., and White Jr. J.M. (Eds). New knowledge in the biomedical sciences: Some moral implications of its acquisition, possession, and use (1982), D. Reidel, Dordrecht 113-130
82. Wheeler J.M. Editor's corner: The emperor (or, rather, his statistician) has new clothes. Fertility and Sterility 53 2 (1990) 220-222
83. Wheeler J.M. Letters-to-the-Editor: More on 'misuse of statistics': Reply of the Author. Fertility and Sterility 54 4 (1990) 743-744
84. Whelan E. Staging and profiling: the constitution of the endometriotic subject in gynecological discourse. Alternate Routes 14 (1997) 45-68
85. Whelan, E. (2000). 'Well now, who's the doctor here?' Boundary-work and transgression in lay and expert knowledges of endometriosis. Unpublished Ph.D. Dissertation, Carleton University, Ottawa, Ontario, Canada.
86. Whelan E. Putting pain to paper: endometriosis and the documentation of suffering. Health 7 4 (2003) 463-482
87. Whelan E. 'No one agrees except for those of us who have it': endometriosis patients as an epistemological community. Sociology of Health & Illness 29 7 (2007) 957-982
88. Williams G., and Popay J. Lay knowledge and the privilege of experience. In: Gabe J., Kelleher D., and Williams G. (Eds). Challenging medicine (1994), Routledge, London 118-139