Can population-based carrier screening be left to the community?

Journal of Genetic Counseling

Volumn 18, Issue 2, 2009, Pages 114-118

  Raz, Aviad E ^a  

^a BEN GURION UNIVERSITY OF THE NEGEV   (Israel)

Author keywords

Community genetics; Dor Yeshorim; Orthodox Jews

Indexed keywords

ABORTION; ALLELE; BLOOD SAMPLING; COMMUNITY ASSESSMENT; GENE IDENTIFICATION; GENE MUTATION; GENETIC COMPATIBILITY; GENETIC COUNSELING; GENETIC DISORDER; GENETIC SCREENING; GENETIC SERVICE; HEALTH CARE PERSONNEL; HEALTH PROGRAM; HETEROZYGOTE DETECTION; JEW; METAGENOMICS; NOTE; POPULATION GENETICS; RELIGION; SPOUSE;

GENETIC SCREENING; HETEROZYGOTE DETECTION; HUMANS; JEWS; POPULATION SURVEILLANCE;

EID: 62449300285     PISSN: 10597700     EISSN: 15733599     Source Type: Journal    
DOI: 10.1007/s10897-008-9209-5     Document Type: Note

References (22)

1. Agar, N. (2004). Liberal eugenics: In defense of human enhancement. Oxford: Blackwell.
2. L. Biesecker 2004 Surrendered autonomy for genetic screening American Journal of Medical Genetics. Part A 129A 2 165 168
3. Buchanan, A., Brock, D., Daniels, N., & Wikler, D. (2000). From chance to choice. Cambridge: Cambridge University Press.
4. C. Condit 2007 Science and society: How geneticists can help reporters to get their story right Nature Reviews. Genetics 8 815 820
5. J. Ekstein H. Katzenstein 2001 The Dor Yeshorim story: Community-based carrier screening for Tay-Sachs disease Advances in Genetics 44 297 310
6. Gavaghan, C. (2007). Defending the genetic supermarket: Law and ethics of selecting the next generation. Abingdon: Routledge-Cavendish.
7. M. J. Goodman L. E. Goodman 1982 The overselling of genetic anxiety The Hastings Center Report 12 20 27
8. Green, R. M. (2007). Babies by design: The ethics of genetic choice. New Haven and London: Yale University Press.
9. S. J. Gross B. A. Pletcher K. G. Monaghan 2008 Carrier screening in individuals of Ashkenazi Jewish descent Genetics in Medicine 10 54 56
10. Harris, J. (2007). Enhancing evolution: The ethical case for making people better. Princeton and Oxford: Princeton University Press.
11. Kolata, G. (1993). Nightmare or the dream of a new era in genetics? New York Times December 7: p. A1.
12. I. S. Mittman J. Bowie S. Maman 2007 Exploring the discourse between genetic counselors and Orthodox Jewish community members related to reproductive genetic technology Patient Education and Counseling 65 230 236
13. K. G. Monaghan G. L. Feldman G. E. Palomaki E. B. Spector 2008 Technical standards and guidelines for reproductive screening in the Ashkenazi Jewish population Genetics in Medicine 10 57 72
14. B. Pletcher S. J. Gross K. G. Monaghan D. A. Driscoll M. S. Watson 2008 The future is now: carrier screening for all populations Genetics in Medicine 10 33 37
15. Raz, A. R. (2009). Community genetics and genetic alliances: Eugenics, carrier testing, and networks of risk. NY and London: Routledge, Forthcoming.
16. A. R. Raz Y. Vizner 2008 Carrier matching and collective socialization in community genetics: Dor Yeshorim and the Reinforcement of Stigma Social Science & Medicine 67 1361 1369
17. Rozario, S., & Gilliat-Ray, S. (2007). Genetics, Religion and Identity: A Study of British Bangladeshis. Working Paper 93. School of Social Sciences, Cardiff University.
18. M. Sagi 1998 Genetic screening in Israel Science in Context 11 3-4 419 431
19. A. Shaw 2000
20. C. Sher O. Romano-Zelekha M. Green T. Shohat 2003 Factors affecting performance of prenatal genetic testing by Israeli Jewish women American Journal of Medical Genetics 30 120A 418 422
21. R. Zinberg R. Kornreich L. Edelmann R. Desnick 2001 Prenatal genetic screening in the Ashkenazi Jewish population Clinics in Perinatology 28 2 367 382
22. J. Zlotogora A. Leventhal 2000 Screening for genetic disorders among Jews: How should the Tay-Sachs screening program be continued? The Israel Medical Association Journal 2 9 665 667