Improving methods for measuring quality of care: A patient-centered approach in chronic disease

Medical Care Research and Review

Volumn 66, Issue 2, 2009, Pages 147-166

  Bokhour, Barbara G ^a,b   Pugh, Mary Jo ^c   Rao, Jaya K ^d,e   Avetisyan, Ruzan ^a   Berlowitz, Dan R ^a   Kazis, Lewis E ^a  

^a VETERANS AFFAIRS MEDICAL CENTER   (United States)

^b BOSTON UNIVERSITY SCHOOL OF PUBLIC HEALTH   (United States)

^c UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT SAN ANTONIO   (United States)

^d NATIONAL CENTER FOR CHRONIC DISEASE PREVENTION AND HEALTH PROMOTION   (United States)

^e EMORY UNIVERSITY SCHOOL OF MEDICINE   (United States)

Author keywords

Chronic disease; Epilepsy; Patient centered care; Qualitative methods; Quality indicators

Indexed keywords

ADULT; ATTITUDE TO HEALTH; EPILEPSY; FEMALE; FOCUS GROUPS; HUMANS; MALE; PATIENT-CENTERED CARE; PROFESSIONAL-PATIENT RELATIONS; QUALITATIVE RESEARCH; QUALITY INDICATORS, HEALTH CARE; QUALITY OF HEALTH CARE;

EID: 61849089466     PISSN: 10775587     EISSN: 15526801     Source Type: Journal    
DOI: 10.1177/1077558708327174     Document Type: Article

References (45)

1. Aldenkamp, A.P., & Van Donselaar, C. (2003). Treatment of epilepsy in general hospitals: Do patients and neurologists agree on success or failure ? Seizure, 12 (8). 523-528.
2. Annas, G.J. (2008). Doctors, drugs, and driving-Tort liability for patient-caused accidents. New England Journal of Medicine, 359 (5). 521-525.
3. Boylan, L.S., Flint, L.A., Labovitz, D.L., Jackson, S.C., Starner, K., & Devinsky, O. (2004). Depression but not seizure frequency predicts quality of life in treatment-resistant epilepsy. Neurology, 62 (2). 258-261.
4. Brook, R. (1994). The Rand/UCLA appropriateness method. In K. McCormick, S. Moore, & R. Siegel (Eds.), Clinical practice guideline development: Methodology perspectives (pp. 59-70). Rockville, MD: U.S. Department of Health & Human Services, Public Health Service, Agency for Health Care Policy & Research.
5. Cegala, D.J., Marinelli, T., & Post, D. (2000). The effects of patient communication skills training on compliance. Archives of Family Medicine, 9 (1). 57-64.
6. Chassin, M., Galvin, R., & National Roundtable on Health Care Quality. (1998). The urgent need to improve health care quality: Institute of Medicine national roundtable on health care quality. Journal of the American Medical Association, 280 (11). 1000-1005.
7. Cleary, P.D., & Edgman-Levitan, S. (1997). Health care quality. Incorporating consumer perspectives. Journal of the American Medical Association, 278 (19). 1608-1612.
8. Committee on Quality Health Care in America, & Institute of Medicine. (2001). Crossing the quality chasm: A new health system for the 21st century. Washington, DC: National Academy Press.
9. Crawford, P., Appelton, E., Betts, T., Duncan, J., Guthrie, E., Morrow, J., et al. (1999). Best practice guidelines for the management of women with epilepsy. Seizure, 8, 201-217.
10. Crofton, C., Lubalin, J.S., & Darby, C. (1999). Consumer Assessment of Health Plans Study (CAHPS). Foreword. Medical Care, 37 (Suppl. 3). MS1 - MS9.
11. Davies, E., Shaller, D., Edgman-Levitan, S., Safran, D.G., Oftedahl, G., Sakowski, J., et al. (2008). Evaluating the use of a modified CAHPS survey to support improvements in patient-centred care: Lessons from a quality improvement collaborative. Health Expect, 11 (2). 160-176.
12. Delbanco, T., Berwick, D.M., Boufford, J.I., Edgman-Levitan, S., Ollenschlager, G., Plamping, D., et al. (2001). Healthcare in a land called PeoplePower: Nothing about me without me. Health Expectations, 4 (3). 144-150.
13. Elwyn, G., Todd, S., Hibbs, R., Thapar, A., Edwards, P., Webb, A., et al. (2003). A 'real puzzle': The views of patients with epilepsy about the organisation of care. Retrieved September 1, 2007, from http://www. biomedcentral.com/1471-2296/4/4
14. Epstein, K.R., Laine, C., Farber, N.J., Nelson, E.C., & Davidoff, F. (1996). Patients' perceptions of office medical practice: Judging quality through the patients' eyes. American Journal of Medical Quality, 11 (2). 73-80.
15. Fiscella, K., Franks, P., Gold, M.R., & Clancy, C.M. (2000). Inequalities in racial access to health care. Journal of the American Medical Association, 284 (16). 2053.
16. Fisher, R.S., Vickrey, B.G., Gibson, P., Hermann, B., Penovich, P., Scherer, A., et al. (2000 a). The impact of epilepsy from the patient's perspective I. Descriptions and subjective perceptions. Epilepsy Research, 41 (1). 39-51.
17. Fisher, R.S., Vickrey, B.G., Gibson, P., Hermann, B., Penovich, P., Scherer, A., et al. (2000 b). The impact of epilepsy from the patient's perspective II: Views about therapy and health care. Epilepsy Research, 41 (1). 53-61.
18. Fitch, K., Bernstein, S., Aguilar, M., Burnand, B., LaCalle, J.R., Lazaro, P., et al. (2001). The Rand/UCLA appropriateness method user's manual [MR-1269]. Santa Monica, CA: RAND Corporation.
19. Groenewegen, P.P., Kerssens, J.J., Sixma, H.J., van der Eijk, I., & Boerma, W.G.W. (2005). What is important in evaluating health care quality? An international comparison of user views. BMC Health Services Research, 5 (1). 16.
20. Heisler, M., Vijan, S., Anderson, R.M., Ubel, P.A., Bernstein, S.J., & Hofer, T.P. (2003). When do patients and their physicians agree on diabetes treatment goals and strategies, and what difference does it make? Journal of General Internal Medicine, 18 (11). 893-902.
21. Hibbard, J.H. (2004). Moving toward a more patient-centered health care delivery system. Retrieved September 30, 2007, from http://content. healthaffairs.org/cgi/content/abstract/hlthaff.var.133
22. Institute of Medicine. (1990). Medicare: A strategy for quality assurance. Washington, DC: National Academy Press.
23. Jacobi, C.E., Boshuizen, H.C., Rupp, I., Dinant, H.J., & van den Bos, G.A.M. (2004). Quality of rheumatoid arthritis care: The patient's perspective. International Journal for Quality in Health Care, 16 (1). 73-81.
24. Kerr, E. A., Asch, S. M., Hamilton, E. G., & McGlynn, E. A. (Eds.). (2000). Quality of care for general medical conditions: A review of the literature and quality indicators. Santa Monica, CA: RAND.
25. Kitzinger, J. (1994). The methodology of focus groups: The importance of interaction between research participants. Sociology of Health & Illness, 16 (1). 103-121.
26. Krahn, M., & Naglie, G. (2008). The next step in guideline development: Incorporating patient preferences. Journal of the American Medical Association, 300 (4). 436-438.
27. Kravitz, R.L., Cope, D.W., Bhrany, V., & Leake, B. (1994). Internal medicine patients' expectations for care during office visits. Journal of General Internal Medicine, 9 (2). 75-81.
28. Laine, C., Davidoff, F., Lewis, C.E., Nelson, E.C., Nelson, E., Kessler, R.C., et al. (1996). Important elements of outpatient care: A comparison of patients' and physicians' opinions. Annals of Internal Medicine, 125, 640-645.
29. Meredith, L.S., Orlando, M., Humphrey, N., Camp, P., & Sherbourne, C.D. (2001). Are better ratings of the patient-provider relationship associated with higher quality care for depression ? Medical Care, 39 (4). 349-360.
30. Patton, M.Q. (2002). Qualitative research and evaluation methods (3 rd ed.). Thousand Oaks, CA: Sage.
31. Politi, M.C., Han, P.K.J., & Col, N.F. (2007). Communicating the uncertainty of harms and benefits of medical interventions. Medical Decision Making, 27 (5). 681-695.
32. Pugh, M.J., Berlowitz, D.R., Montouris G., Bokhour, B.G., Cramer, J., Bohm, V., et al. (2007). What constitutes high quality of care for adults with epilepsy ? Neurology, 69 (21). 2020-2027.
33. Pugh, M.J., Cramer, J., & Knoefel, J. (2004). Potentially inappropriate antiepileptic drugs fore elderly patients with epilepsy. Journal of the American Geriatrics Society, 62, 417-422.
34. Roter, D.L., Hall, J.A., Merisca, R., Nordstrom, B., Cretin, D., & Svarstad, B. (1998). Effectiveness of interventions to improve patient compliance: A meta-analysis. Medical Care, 36 (8). 1138-1161.
35. Safran, D.G., Kosinski, M., Tarlov, A.R., Rogers, W.H., Taira, D.H., Lieberman, N., et al. (1998). The Primary Care Assessment Survey: Tests of data quality and measurement performance. Medical Care, 36 (5). 728-739.
36. Sample, P.L., Ferguson, P.L., Wagner, J.L., Elisabeth Pickelsimer, E., & Selassie, A.W. (2006). Experiences of persons with epilepsy and their families as they look for medical and community care: A focus group study from South Carolina. Epilepsy & Behavior, 9 (4). 649-662.
37. Shekelle, P., Chassin, M., & Park, R. (1998). Assessing the predictive validity of the RAND/UCLA appropriateness method criteria for performing carotid endarterectomy. International Journal of Technology Assessment in Health Care, 14, 707-727.
38. Silverman, D. (2006). Interpreting qualitative data (3 rd ed.). Thousand Oaks, CA: Sage.
39. Smedley, B. D., Stith, A. Y., Nelson, A. R., & Committee on Understanding and Eliminating Racial and Ethnic Disparities in Health Care. (Eds.). (2002). Unequal treatment: Confronting racial and ethnic disparities in health care. Washington, DC: The National Academies Press.
40. Sofaer, S., & Firminger, K. (2005). Patient perceptions of the quality of health services. Annual Review of Public Health, 26, 513-559.
41. Spencer, B., Steinberg, M., Mali, J., Adams, J., & Litwin, M. (2003). Quality-of-care indicators for early-stage prostate cancer. Journal of Clinical Oncology, 21 (10). 1928-1936.
42. Strauss, A.L. (1987). Qualitative analysis for social scientists. Cambridge, UK: Cambridge University Press.
43. Swarztrauber, K., Dewar, S., & Engel, J., Jr. (2003). Patient attitudes about treatments for intractable epilepsy. Epilepsy & Behavior, 4 (1). 19-25.
44. Trost, J. (1986). Statistically nonrepresentative stratified sampling: A sampling technique for qualitative studies. Qualitative Sociology, 9 (1). 54-57.
45. Young, G.J., White, B., Burgess, J.F., Jr., Berlowitz, D., Meterko, M., Guldin, M.R., et al. (2005). Conceptual issues in the design and implementation of pay-for-quality programs. American Journal of Medical Quality, 20 (3). 144-150.