Sense of competence in a Dutch sample of informal caregivers of frontotemporal dementia patients

Dementia and Geriatric Cognitive Disorders

Volumn 27, Issue 4, 2009, Pages 337-343

  Riedijk, Samantha ^a,b   Duivenvoorden, Hugo ^a   Van Swieten, John ^b   Niermeijer, Martinus ^a   Tibben, Aad ^c  

^a RADBOUD UNIVERSITY MEDICAL CENTER   (Netherlands)

^b ERASMUS MEDICAL CENTER   (Netherlands)

^c LEIDEN UNIVERSITY MEDICAL CENTER   (Netherlands)

Author keywords

Frontotemporal dementia; Self care; Sense of competence

Indexed keywords

ADULT; ARTICLE; BEHAVIOR DISORDER; CAREGIVER BURDEN; CLINICAL ARTICLE; CONTROLLED STUDY; DISEASE SEVERITY; FEMALE; FOLLOW UP; FRONTOTEMPORAL DEMENTIA; HUMAN; MALE; NETHERLANDS; PRIORITY JOURNAL; PROFESSIONAL COMPETENCE; QUALITY OF LIFE; SELF CARE;

AGED; CAREGIVERS; COST OF ILLNESS; CROSS-SECTIONAL STUDIES; DEMENTIA; EDUCATION; EMOTIONS; FEMALE; FOLLOW-UP STUDIES; HUMANS; MALE; MIDDLE AGED; NETHERLANDS; PRINCIPAL COMPONENT ANALYSIS; QUALITY OF LIFE; QUESTIONNAIRES; SOCIOECONOMIC FACTORS;

EID: 61649101257     PISSN: 14208008     EISSN: None     Source Type: Journal    
DOI: 10.1159/000207447     Document Type: Article

References (35)

1. Rosso SM, Donker Kaat L, Baks T, Joosse M, de Koning I, Pijnenburg Y, de Jong D, Dooijes D, Kamphorst W, Ravid R, Niermeijer MF, Verheij F, Kremer HP, Scheltens P, van Duijn CM, Heutink P, van Swieten JC: Frontotem-poral dementia in the Netherlands: patient characteristics and prevalence estimates from a population-based study. Brain 2003; 126:2016-2022.
2. Snowden JS, Neary D, Mann A: Frontotem-poral dementia. Br J Psychiatry 2002;180: 140-143.
3. Sorensen S, Duberstein P, Gill D, Pinquart M: Dementia care: mental health effects, intervention strategies, and clinical implications. Lancet Neurol 2006;5:961-973.
4. Riedijk S, Duivenvoorden H, Rosso S, Van Swieten J, Niermeijer M, Tibben A: Fronto-temporal dementia: change of familial care-giver burden and partner relation in a Dutch cohort of 63 patients. Dement Geriatr Cogn Disord 2008;21:398-406.
5. Gaugler JE, Kane RL, Kane RA, Newcomer R: The longitudinal effects of early behavior problems in the dementia caregiver career. Psychol Aging 2005;20:100-116.
6. Yaffe K, Fox P, Newcomer R, Sands L, Lindquist K, Dane K, Covinsky KE: Patient and caregiver characteristics and nursing home placement in patients with dementia. J Am Med Assoc 2002;287:2090-2097.
7. Berger G, Bernhardt T, Weimer E, Peters J, Kratsch T, Frolich L: Longitudinal study on the relationship between symptomatology of dementia and levels of subjective burden and depression among family caregivers in memory clinic patients. J Geriatr Psychiatry Neurol 2005;18:119-128.
8. Danhauer SC, McCann JJ, Gilley DW, Beckett LA, Bienias JL, Evans DA: Do behavioral disturbances in persons with Alzheimer's disease predict caregiver depression over time? Psychol Aging 2004;19:198-202.
9. Vernooij-Dassen MJFJ, Persoon JMG, Felling AJA: Predictors of sense of competence in caregivers of demented persons. Soc Sci Med 1996;43:41-49.
10. Meiland FJM, Kat MG, Van Tilburg W, Jonk-er C, Droes RM: The emotional impact of psychiatric symptoms in dementia on partner caregivers: do caregiver, patient, and situation characteristics make a difference? Alzheimer Dis Assoc Disord 2005;19:195-201.
11. Jansen APD, Van Hout HPJ, Van Marwijk HWJ, Nijpels G, Gundy C, Vernooij-Dassen MJFJ, De Vet HCW, Schellevis FG, Stalman WAB: Sense of competence questionnaire among informal caregivers of older adults with dementia symptoms: a psychometric evaluation. Clin Pract Epidemol Ment Health 2007;3:11.
12. Bengtson VL, Kuypers JA: The Family Support Cycle. Psychosocial Issues in the Aging Family. New York, Academic Press, 1985.
13. Zarit SH, Reever KE, Bach-Peterson J: Relatives of the impaired elderly: correlates of feelings of burden. Gerontologist 1980;20: 649-655.
14. Andrieu S, Balardy L, Gillette-Guyonnet S, Bocquet H, Cantet C, Albarede JL, Vellas B, Grand A: Informal caregiver's burden of Alzheimer's patients: assessment and factors associated. Rev Med Interne 2003; 24:351S- 359S.
15. Zanetti O, Frisoni GB, Bianchetti A, Taman-za G, Cigoli V, Trabucchi M: Depressive sy mptoms of Alzheimer caregivers are mainly due to personal rather t ha n patient factors. Int J Geriatr Psychiatry 1998;13:358-367.
16. Rymer S, Salloway S, Norton L, Malloy P, Correia S, Monast D: Impaired awareness, behavior disturbance, and caregiver burden in Alzheimer disease. Alzheimer Dis Assoc Disord 2002;16:248-253.
17. Aguglia E, Onor ML, Trevisiol M, Negro C, Saina M, Maso E: Stress in the caregivers of Alzheimer's patients: an experimental investigation in Italy. Am J Alzheimers Dis Other Demen 2004;19:248-252.
18. Hooker K, Bowman SR, Coehlo DP, Lim SR, Kaye J, Guariglia R, Li FZ: Behavioral change in persons with dementia: relationships with mental and physical health of caregivers. J Gerontol B Psychol Sci Soc Sci 2002; 57: P453-P460.
19. The Lund and Manchester Groups: Clinical and neuropathological criteria for fronto-temporal dementia. J Neurol Neurosurg Psychiatry 1994;57:416-418.
20. Rosso SM, Roks G, Stevens M, de Koning I, Tanghe HLJ, Kamphorst W, Ravid R, Nier-meijer MF, van Swieten JC: Complex compulsive behaviour in the temporal variant of frontotemporal dementia. J Neurol 2001; 248:965-970.
21. Reisberg B, Ferris SH, de Leon MJ, Crook T: The Global Deterioration Scale for assessment of primary degenerative dementia. Am J Psychiatr y 1982;139:1136-1139.
22. Cummings JL, Mega M, Gray K, Rosenberg-Thompson S, Carusi DA, Gronbein J: The Neuropsychiatric Inventory: comprehensive assessment of psychopathology in dementia. Neurology 1994; 44:2308-2314.
23. De Jonghe JF, Kat MG, Kalisvaart CJ, Boelaarts L: Neuropsychiatric inventory questionnaire (NPI-Q): a validity study of the Dutch form. Tijdschr Gerontol Geriatr 2003; 32:74 -77.
24. Vernooij-Dassen MJ, Felling AJ, Brum-melkamp E, Dauzenberg MG, van den Bos GA, Grol R: Assessment of caregiver's competence in dealing with the burden of care-giving for a dementia patient: a Short Sense of Competence Questionnaire (SSCQ) suitable for clinical practice. J Am Geriatr Soc 1999;47:256-257.
25. Derogatis LR, Cleary PA: Factor invariance across gender for the primary symptom dimensions of the SCL-90-R. Br J Soc Clin Psy-chol 1977;16:347-356.
26. Ware JE, Snow KK: SF-36 health survey: manual and interpretation guide. Boston, Health Institute, New England Medical Center, 1993.
27. McHorney CA, Ware JE Jr, Raczek AE: The MOS 36-Item Short-Form Health Survey (SF-36). II. Psychometric and clinical tests of validity in measuring physical and mental health constructs. Med Care 1993;31:247- 263.
28. Muthèn LK, Muthèn BO: Mplus User's Guide. Statistical Analysis with Latent Variables. Los Angeles, Muthen & Muthen, 2004.
29. Arrindell WA, Ettema JHM: SCL-90 Han-dleiding bij een multidimensionele psycho-pathologie indicator, ed 3. Enshede, Swets Test Publishers, 2003.
30. Scholte op Reimer WJM, De Haan J, Pijnen-borg JMA, Limburg M, Van den Bos GAM: Assessment of burden in partners of stroke patients with the sense of competence questionnaire. Stroke 1998;29:373-379.
31. Kurz X, Scuvee-Moreau J, Vernooij-Dassen M, Dresse A: Cognitive impairment, dementia and quality of life in patients and caregivers. Acta Neurol Belg 2003;103:24-34.
32. Ankri J, Andrieu S, Beaufils B, Grand A, Henrard JC: Beyond the global score of the Zarit burden interview: useful dimensions for clinicians. Int J Geriatr Psychiatry 2005; 20:254-260.
33. Habermann B, Davis LL: Caring for family with Alzheimer's disease and Parkinson's disease: needs, challenges and satisfaction. J Gerontol Nurs 2005; 31:49-54.
34. Knussen C, Tolson D, Brogan CA, Swan IR, Stott DJ, Sullivan F: Family caregivers of older relatives: ways of coping and change in distress. Psychol Health Med 2008;13:274- 290.
35. Frank JB: Evidence for grief as the major barrier faced by Alzheimer caregivers: a qualitative analysis. Am J Alzheimer Dis Other Demen 2007;22:516-527.