Performing motherhood in a disablist world: Dilemmas of motherhood, femininity and disability

International Journal of Qualitative Studies in Education

Volumn 22, Issue 1, 2009, Pages 99-117

  Malacrida, Claudia ^a  

^a UNIVERSITY OF LETHBRIDGE   (Canada)

Author keywords

Disability; Embodiment; Femininity; Ideal motherhood; Narrative; Performativity; Stigma

Indexed keywords

EID: 60849122859     PISSN: 09518398     EISSN: 13665898     Source Type: Journal    
DOI: 10.1080/09518390802581927     Document Type: Article

References (67)

1. Abramowitz, M. 1996. Regulating the lives of women: Social welfare policy from Colonial times to the present. Boston, Massachusetts: South End Press.
2. Ambert, Anne-Marie. 1992. The effect of children on parents. Binghamton, New York: The Haworth Press.
3. Appell, A.R. 1998. On fixing 'bad' mothers and saving their children. In 'Bad' mothers: The politics of blame in twentieth-century America, ed. M. Ladd-Taylor and L. Umansky, 356-80. New York: New York University Press.
4. Arnup, K. 1994. Education for motherhood: Advice for mothers in twentieth-century Canada. Toronto: University of Toronto Press.
5. Aseh, A., and M. Fine. 1992. Beyond pedestals: Revisiting the lives of women with disabilities, In Disruptive voices: The possibilities of feminist research, ed. M. Fine, 139-71. Ann Arbour, MI: The University of Michigan Press.
6. -. 1997. Nurturance, sexuality, and women with disabilities: The example of women and literature. In The disability studies reader, ed. L.J. Davis, 241-59. New York/London: Routledge.
7. Asch, A., H. Rousso, and T. Jefieries. 2001. Beyond pedestals: The lives of girls and women with disabilities. In Double jeopardy: addressing gender equity in special education, ed. H. Rousso and M.L. Wehmeyer, 13-48. Albany, NY: State University of New York Press.
8. Badinter, E. 1981. The myth of motherhood: An historical view of the maternal instinct. London: Souvenir Press Ltd.
9. Balshern, M. 1993. Cancer in the community: Class and medical authority. Washington/London: Smithsonian Institution Press.
10. Blackford, K.A. 1993. Erasing mothers with disabilities through Canadian family-related policy. Disability, Handicap & Society 8, no. 3: 281-94.
11. -. 1999. Caring to overcome differences, inequities, and lifestyle pressures: When a parent has a disability. In Feminist success stories, K.A. Blackford, M.-L. Garceau, and S. Kirby, 279-87. Ottawa: University of Ottawa Press.
12. Booth, T., and W. Booth. 1998. The myth of the upside down family. In Growing up with parents who have learning difficulties, ed. T. Booth and W. Booth, 146-68. London: Routledge.
13. Boyd, S.C. 1999. Mothers and illicit drugs: Transcending the myths. Toronto: University of Toronto Press.
14. Butler, J. 2004. Undoing gender. New York/London: Routledge.
15. Caplan, P. 1989. Don't blame mother: Mending the mother-daughter relationship. New York: Harper & Row Publishers.
16. Charmaz, K. 1990. Discovering chronic illness: Using grounded theory. Social Science & Medicine 30, no. 11: 1161-72.
17. Choi, P., C. Henshaw, S. Baker, and J. Tree. 2005. Supermum, superwife, supereverything: Performing femininity in the transition to motherhood. Journal of Reproductive and Infant Psychology 23, no. 2: 167-80.
18. Clements, J., I. Clare, and L.A. Ezelle. 1995. Real men, real women, real lives? Gender issues in learning disabilities and challenging behaviour. Disability & Society 10, no. 4: 425-35.
19. Coll, C.G., J.L. Surrey, K. Weingarten, eds. 1998. Mothering against the odds: Diverse voices of contemporary mothers. New York: The Guilford Press.
20. Daikin, N., and J. Naidoo. 1995. Feminist critiques of health promotion. In The sociology of health promotion: Critical analyses of consumption, lifestyle and risk, ed. R. Bunton, S. Nettleton, and R. Burrows, 59-69. London: Routledge.
21. Devauit, M.L. 1990. Talking and listening from women's standpoint: Feminist strategies for interviewing and analysis. Social Problems 37, no. 1: 96-116.
22. Donzelot, J. 1997. The policing of families. Trans. R. Hurley. Baltimore, Maryland: The Johns Hopkins University Press.
23. Doucet, A., and N. Mauthner. 2002. Knowing responsibly: Linking ethics, research practice and epistemology. In Ethics in qualitative research, ed M. Mauthner and M. Birch, 123-45. Thousand Oaks, CA: Sage.
24. Earle, S. 1999. Facilitated sex and the concept of sexual need: Disabled students and their personal assistants. Disability & Society 14, no. 3: 309-23.
25. Ehrenreich, B., and D. English. 2005. For her own good: Two centuries of the experts' advice to women (Revised Edition). New York: Anchor Books.
26. Fitzmaurice, S. 2002. A mother's narrative: Reflections on life with disability. Sexuality and Disability 20, no. 2: 117-23.
27. Frank, A.W. 2002. Why study peoples' stories? The dialogical ethics of narrative analysis. International Journal of Qualitative Methods 1, no. 1: 1-9.
28. Gerodetti, N. 2003. 'Disabling' feminities and eugenics: Sexuality, disability and citizenship in modern Switzerland, Paper presented at the First Disability Studies Association Conference, September 4-6, in Lancaster, UK.
29. Glaser, B., and A. Strauss. 1967. The discovery of grounded theory: Strategies for qualitative research. New York: Aldine de Gruyter.
30. Goffman, E. 1963. Stigma: Notes on the management of spoiled identity. New Jersey: Prentice-Hall.
31. Grue, L., and K.T. Laerum. 2002. Doing motherhood: Some experiences of mothers with physical disabilities. Disability & Society 17, no. 6: 671-83.
32. Hamilton, C. 2002. Doing the wild thing: Supporting an ordinary sexual life for people with intellectual disabilities. Disability Studies Quarterly 22, no. 4: 40-59.
33. Haraway, D. 1991. Situated knowledges: The science question in feminism and the privilege of partial perspective. In Simians, cyborgs and women: The reinvention of nature, 183-201. New York/London: Routledge.
34. Harding, S. 1987. Introduction: Is there a feminist method? In Feminism and methodology, ed. S. Harding, 1-14. Bloomington: Indiana University Press.
35. Hays, S. 1996. The cultural contradictions of motherhood. New Haven, Connecticut: Yale University Press.
36. Hooper, C.-A. 1992. Mothers surviving child sexual abuse. London/New York: Tavistock/Routledge.
37. Huberman, A.M., and M.B. Miles. 1998. Data management and analysis methods. In Collecting and interpreting qualitative materials, ed. N.K. Denzin and Y.S. Lincoln, 179-210. Thousand Oaks, CA: Sage.
38. Kallianes, V., and P. Rubenfeld. 1997. Disabled women and reproductive rights. Disability & Society 12, no. 2: 203-21.
39. Killoran, C. 1994. Women with disabilities having children: It's our right too. Sexuality and Disability 12, no. 2: 121-26.
40. Kleinman, A. 1988. The illness narratives: Suffering, healing and the human condition. New York: Basic Books.
41. Knowles, C. 1996. Family boundaries: The invention of normality and dangerousness. Peterborough, Ontario: Broadview Press.
42. Ladd-Taylor, M., and L. Umansky. 1998. 'Bad' mothers: The politics of blame in twentiethcentury America. New York: New York University Press.
43. Malacrida, C. 2003. Cold comfort: Mothers, professionals and ADD. Toronto: University of Toronto Press.
44. -. 2007a. Negotiating the dependency/nurturance tightrope: Dilemmas of disabled motherhood. Canadian Review of Sociology 44, no. 4: 469-93.
45. -. 2007b. Reflexive journaling on emotional research topics: Issues for team researchers. Qualitative Health Research 17, no. 10: 1329-40.
46. Malacrida, C., and S. Duguay. in press. The AISH review is a big joke: Contradictions of policy participation and consultation in a neoliberal context. Disability & Society 24, no. 1.
47. McCarthy, M., and D. Thompson. 1996. Sexual abuse by design: An examination of the issues in learning disability services. Disability & Society 11, no. 2: 205-17.
48. McMahon, M. 1995. Engendering motherhood: Identity and self-transformation in women's lives. New York: The Guilford Press.
49. Miller, W.L., and B.F. Crabtree. 1998. Clinical research. Strategies of qualitative inquiry, ed. N.K. Denzin and Y.S. Lincoln, 292-314. Thousand Oaks, CA: Sage.
50. Morris, J. 1992. Personal and political: A feminist perspective on researching physical disability. Disability, Handicap & Society 7, no. 2: 157-66.
51. -. 1996. Introduction. In Encounters with strangers: Feminism and disability, ed. J. Morris 1-16. London: The Women's Press.
52. Nelson, A. 2006. Gender in Canada. Toronto, Canada: Prentice Hall.
53. O'Toole, C.J., and T. Doe. 2002. Sexuality and disabled parents with disabled children. Sexuality and Disability 20, no. 1: 89-102.
54. Patterson, A., and M. Satz. 2002. Genetic counseling and the disabled: Feminism examines the stance of those who stand at the gate. Hypatia 17, no. 3: 118-42.
55. Reinelt, C., and M. Fried. 1993. I am this child's mother: A feminist perspective on mothering with a disability. In Perspectives on disability: Text and readings, ed. M. Nagler 195-202. Palo Alto, CA: Health Markets Research.
56. Roberts, D.E. 1999. Mothers who fail to protect their children: Accounting for private and public responsibility. In Mother troubles, ed. J.E. Hanigsberg and S. Ruddick, 31-49. Boston, MA: Beacon.
57. Ruddick, S. 1982. Maternal thinking. In Rethinking the family: Some feminist questions, ed. B. Thorne and M. Yalorn, 76-94. New York: Longman.
58. Sakalys, J.A. 2000. The political role of illness narratives. Journal of Advanced Nursing 31, no. 6: 1469-1475.
59. Saxton, M., M.A. Curry, L.E. Powers, S. Maley, K. Eckels, and J. Gross. 2001. Bring my scooter so I can leave you: A study of disabled women handling abuse by personal assistance providers. Violence Against Women 7, no. 4: 393-417.
60. Smith, D.E. 1990. The conceptual practices of power: A Feminist sociology of knowledge. Toronto: University of Toronto Press.
61. Strauss, A., and J. Corbin. 1994. Grounded theory methodology: An overview. In Handbook of qualitative research, ed. N.K. Denzin and Y.S. Lincoln, 273-85. Thousand Oaks, CA: Sage.
62. Swift, K. 1995. Manufacturing 'bad mothers': A critical perspective on child neglect. Toronto: University of Toronto Press.
63. Thomas, C. 1997. The baby and the bathwater: Disabled women and motherhood in social context. Sociology of Health and Illness 19, no. 5: 622-43.
64. Tringo, J.L. 1970. The hierarchy of preference toward disability groups. Journal of Special Education 4, no. 3: 295-306.
65. Wehmeyer, M.L., and M. Schwartz. 2001. Research on gender bias in special education services. In Double jeopardy: Addressing gender equity in special education, ed. H. Rousso and M.L. Wehmeyer, 271-88. Albany: State University of New York Press.
66. Wilton, R. 2000. Grounding hierarchies of acceptance: The social construction of disability in NIMBY conflicts. Urban Geography 21, no. 7: 586-608.
67. Witz, A. 2000. Whose body matters? Feminist sociology and the corporeal turn in sociology and feminism. Body & Society 6, no. 2: 1-24.