Providing inbuilt economic resilience options an obligation of comprehensive cancer care

Cancer

Volumn 113, Issue 12 SUPPL., 2008, Pages 3548-3555

  Cross, Eva Reitschuler ^a   Emanuel, Linda ^b  

^a MOUNT AUBURN HOSPITAL   (United States)

^b NORTHWESTERN UNIVERSITY   (United States)

Author keywords

Caregivers; Comprehensive care; Economic impact of cancer; Economic resilience; Inbuilt economic resilience options (ier options); Palliative care; Professionalism; Training

Indexed keywords

CANCER SURVIVAL; CAREGIVER; CERTIFICATION; CONFERENCE PAPER; ECONOMIC ASPECT; FINANCIAL MANAGEMENT; HEALTH CARE COST; HEALTH CARE INDUSTRY; HEALTH ECONOMICS; HEALTH PROGRAM; HEALTH SERVICE; HOSPICE CARE; HUMAN; MEDICAL CARE; ONCOLOGY; PALLIATIVE THERAPY; PATIENT CARE; PRIORITY JOURNAL; PROFESSIONALISM; RISK ASSESSMENT; TECHNOLOGY; TERMINALLY ILL PATIENT;

COMPREHENSIVE HEALTH CARE; COST OF ILLNESS; DELIVERY OF HEALTH CARE; HUMANS; NEOPLASMS; PALLIATIVE CARE;

EID: 59449094488     PISSN: 0008543X     EISSN: 10970142     Source Type: Journal    
DOI: 10.1002/cncr.23943     Document Type: Conference Paper

References (74)

1. Gold MR, Siegel JE, Russell LB, Weinstein MC. Cost-effectiveness in Health and Medicine. New York: Oxford University Press; 1996.
2. Boni-Saenz A, LoSasso A, Emanuel LL, Dranove D. The price of palliative care: toward a complete accounting of costs and benefits. Clin Geriatr Med. 2005;21:147-163.
3. Langa KM, Fendrick AM, Chernew ME, Kabeto MU, Paisley KL, Hayman JA. Out-of-pocket health-care expenditures among older Americans with cancer. Value Health. 2004; 7:186-194.
4. Fortner BV, Demarco G, Irving G, et al. Description and predictors of direct and indirect costs of pain reported by cancer patients. J Pain Symptom Manage. 2003;25:9-18.
5. Hayman JA, Langa KM, Kabeto MU, et al. Estimating the cost of informal caregiving for elderly patients with cancer. J Clin Oncol. 2001;19:3219-3225.
6. Lubitz J, Beebe J, Baker C. Longevity and Medicare expenditures. N Engl J Med. 1995;332:999-1003.
7. Covinsky KE, Goldman L, Cook EF, et al. The impact of serious illness on patients' families. SUPPORT Investigators. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatment. JAMA. 1994;272:1839-1844.
8. Emanuel EJ, Fairclough DL, Slutsman J, Emanuel LL. Understanding economic and other burden of terminal illness: the experience of patients and their caregivers. Ann Intern Med. 2000;132:451-459.
9. HRS Data Book. Growing Older in America: The Health and Retirement Study. Income and wealth. Unexpected health events. Available at: http://hrsonline. isr.umich.edu/docs/sho-refs.php?hfyle=index&xtyp=7 Accessed October 10, 2007.
10. Gottlieb S. Medical bills account for 40% of bankruptcies. BMJ. 2000;320:1295.
11. Jacoby MB, Sullivan TA, Warren E. Rethinking the debates over health care financing: evidence from the bankruptcy courts. N Y Univ Law Rev. 2001;76:375-418.
12. Himmelstein DU, Warren E, Thorne D, Woolhandler S. Illness and injury as contributors to bankruptcy. Health Aff. 2006;25:w74-w83.
13. Sachs JD. Macroeconomics and health: investing in health for economic development. Report of the Commission on Macroeconomics and Health. Geneva: World Health Organization; 2001. Available at: http://www.eldis.org/go/display/ ?id=27027&type=Document Accessed October 10, 2007.
14. Sachs J. The End of Poverty: Economic Possibilities for Our Time. New York: Penguin Press; 2005.
15. Kikule EMN. A Study to Assess the Palliative Care Needs of Terminally Ill Patients and their Caregivers in Kampala District, Uganda [dissertation]. Kampala, Uganda: Makerere University; 2000.
16. Berer M, Ray S. Women and HIV/AIDS: An International Resource Book. London: Pandora Press; 1993:27-29.
17. Russell S. The economic burden of illness for households in developing countries: a review of studies focusing on malaria, tuberculosis, and human immunodeficiency virus/ acquired immunodeficiency syndrome. Am J Trop Med Hyg. 2004;71(2 suppl):147-155.
18. Jamison DT, Breman JG, Measham AR, et al, eds. Disease Control Priorities in Developing Countries. 2nd ed. New York: Oxford University Press/The World Bank; 2006. Available at: http:// files.dcp2.org/pdf/DCP/DCPpdf A ccessed October 10, 2007.
19. National Cancer Control Programmes. Policies and Managerial Guidelines. Geneva: World Health Organization; Year of Publication. 2002. Available at: http://www.who.int/cancer/nccp/nccp/en/ Accessed October 10, 2007.
20. Census of India 2001 and eCensus India. Available at: www.censusindia.net Accessed October 10, 2007.
21. de Lima L, Wenk R, Rajagopal MR, Mosoiu D, Gwyther E, Bruera E. Palliative care in developing countries. In: Emanuel LL, Librach SL, eds. Palliative Care: Core Skills and Clinical Competencies. Philadelphia: Saunders Elsevier; 2007:597-614.
22. Freeman HP. Poverty, culture and social injustice: determinants of cancer disparities. CACancer JClin. 2004;54:72-77.
23. Bradley CJ, Given CW, Roberts C. Disparities in cancer diagnosis and survival. Cancer. 2001;91:178-188.
24. Marcella S, Miller JE. Racial differences in colorectal mortality: the importance of stage and socioeconomic status. J Clin Epidemiol. 2001;54:359-366.
25. Freeman HP, Chu KC. Determinants of cancer disparities: barrier to screening, diagnosis, and treatment. Surg Oncol Clin North Am. 2005;14:655-669.
26. Ward E, Jemal A, Cokkinides V, et al. Cancer disparities by race/ethnicity and socioeconomic status. CA Cancer J Clin. 2004;54:72-77.
27. Caregiving in the U.S. National Alliance for Caregiving and AARP. Available at: http://www.caregiving.org/data/04exec-summ.pdf Accessed October 10, 2007.
28. Whitehead M, Dahlgren G, Evans T. Equity and health sector reforms: can low-income countries escape the medical poverty trap? Lancet. 2001;358:833-836.
29. Behrman JR, Deolalikar AB. Health and nutrition. In: Chenery H, Srinivasan TN, eds. Handbook of Development Economics. 1st ed. Philadelphia: Elsevier Science; 1988:631-711.
30. Miguel E. Health, education, and economic development. In: Lopez-Casasnovas G, Rivera B, Currais L, eds. Health and Economic Growth: Findings and Policy Implications. Cambridge, MA: MIT Press; 2005:143-168.
31. Sala-i-Martin X. On the health-poverty trap. In: Lopez-Casasnovas G, Rivera B, Currais L, eds. Health and Economic Growth: Findings and Policy Implications. Cambridge, MA: MIT Press; 2005:95-114.
32. Gan L, Gong G. Estimating interdependence between health and education in a dynamic model. National Bureau of Economic Research Working Paper #12830. Cambridge, MA: National Bureau of Economics; 2007. Available at: http://www.nber.org/papers/w12830.pdf. Accessed October 10, 2007.
33. Mutangadura GB. Household Welfare Impacts of Mortality of Adult Females in Zimbabwe: Implications for Policy and Program Development. Presented at AIDS and Economics Symposium, Durban, South Africa, July 7-8, 2000.
34. Topouzis D. Uganda: The socio-economic impact of HIV/AIDS on rural families with an emphasis on youth. Rome: Food and Agriculture Organization of the United Nations; 1994. Available at: http://www.fao.org/docrep/t2942e/ t2942e00.htm Accessed October 11, 2007.
35. McIntyre D, Thiede M, Dahlgren G, Whitehead M. What are the economic consequences for households of illness and of paying for health care in low- and middle-income country contexts? Soc Sci Med. 2006;62:858-865.
36. Wynia MK, Latham SR, Kao AC, Berg JW, Emanuel LL. Medical professionalism in society. N Engl J Med. 1999;341: 1612-1616.
37. Hughes G, Rammohan S, Emanuel L. Corporate citizenship: managing relationships with professionals and government. Organ Ethics. 2004;1:6-20.
38. Emanuel LL. A professional response to demands for accountability: practical recommendations regarding ethical aspects of patient care. Working Group on Accountability. Ann Intern Med. 1996;124:240-249.
39. Emanuel LL, Alexander C, Arnold RM, et al. Integrating palliative care into disease management guidelines. J Palliat Med. 2004;7:774-783.
40. Drummond MF, O'Brien BJ, Stoddart GL, Torrance GW. Methods for the Economic Evaluation of Health Care Programmes. 2nd ed. New York: Oxford University Press; 1997.
41. Emanuel EJ, Emanuel LL. The economics of dying: the illusion of cost savings at the end of life. N Engl J Med. 1994; 330:540-544.
42. Payne SK, Coyne P, Smith TJ. The health economics of palliative care. Oncology. 2002;16:801-808.
43. Buntin MB, Huskamp H. What is known about the economics of end-of-life care for medicare beneficiaries? Gerontologist 2002;42(spec 3):40-48.
44. Agrawal M, Emanuel E. The Payne/Coyne/Smith article reviewed. Oncology. 2002;16:808-811.
45. Higginson IJ, Finlay I, Goodwin DM, et al. Do hospital-based palliative care teams improve care for patients or families at the end of life? J Pain Symptom Manage. 2002;23:96-106.
46. Lynn J, O'Mara A. Reliable, high-quality, efficient end-of-life care for cancer patients: economic issues and barriers. In: Foley KM, Gelband H, eds. Improving Palliative Care for Cancer. Washington, DC: National Cancer Policy Board, National Research Council, National Academy of Sciences; 2002. Available at http://books.nap.edu/html/palliativecare/ch2.pdf. Accessed October 11, 2007.
47. Brumley R,EnguidanosS,Jamison P et al.Increased satisfaction with care and lower costs: results of a randomized trial of in-home palliative care. J Am Geriatr Soc. 2007;55:993-1000.
48. Gold M. Panel on cost-effectiveness in health and medicine. Med Care. 1996;34(12 suppl):DS197-DS199.
49. Gold MR, Siegel JE, Russell LB, Weinstein MC, eds. Cost-Effectiveness in Health and Medicine. New York: Oxford University Press; 1996.
50. Dranove D. Measuring costs. In: Sloan FA, ed. Valuing Health Care. Cambridge, UK: Cambridge University Press; 1995:61-75.
51. World Health Organization. The World Health Organization's 2002 definition of palliative care. Available at: http://www.who.int/cancer/ palliative/definition/en/ Accessed October 11, 2007.
52. Christakis NA, Allison PD. Mortality after the hospitalization of a spouse. N Engl J Med. 2006;354:719-730.
53. Bonanno GA, Wortman CB, Lehman DR, et al. Resilience to loss and chronic grief: a prospective study from preloss to 18-months postloss. J Pers Soc Psychol. 2002;83:1150-1164.
54. Knight SJ, Emanuel L. Process of adjustment to end-of-life losses: a reintegration model. J Palliat Med. 2007;10:1190-1197.
55. Department of Labor Family and Medical Leave Act of 1993. Available at: http://www.dol.gov/esa/whd/fmla/ Accessed October11, 2007.
56. Math A, Meilland C. Family-related leave and industrial relations. Dublin, Ireland: European Foundation for Improvement of Living and Working Conditions; 2004. Available at: http://www.eurofound.europa.eu/eiro/2004/03/ study/tn0403101s.htm AccessedSeptember22, 2008.
57. The Caregiving Project. International Longevity Center. Available at: http://www.ilcusa.org/pages/projects/the-care-giving-project.php Accessed October 11, 2007.
58. Powerful tools for caregiving. Mather Lifeways. Available at: http://www.matherlifeways.com/re-powerfultools.asp Accessed September 22, 2008.
59. Rosalyn Carter Institute for Caregiving. Caring for you, caring for me. Available at: http://www.rosalynncarter.org/caring Accessed October 11, 2007.
60. Merriman A. Uganda: current status of palliative care. J Pain Symptom Manage. 2002;24:252-256.
61. Hospice Africa Uganda. Available at: http://www.hospiceafrica.or.ug/ Accessed October 11, 2007.
62. Gupta H, Tanneberger S. Results of a study to assess quality of life and cost of home based palliative care in New Delhi, India from January to December 2004. Poster presentation at 10th Congress of the European Association for Palliative Care, Budapest, Hungary, June 7-9, 2007.
63. Sepulveda C, Habiyambere V Amandua J, et al. Quality care at the end of life in Africa. BMJ. 2003;327:209-213.
64. Emanuel RH, Emanuel GA, Reitschuler EB, et al. Challenges faced by informal caregivers of hospice patients in Uganda. J Palliat Med. 2008;11:746-753.
65. The Schmeiding Center for Senior Health and Education provides curricula for caregiver training. Available at: http://www.schmiedingcenter.org/education- fam-overview.php Accessed October 11, 2007.
66. Mestheneos E, Triantafillou J; for the EUROFAMCARE Research Consortium EUROFAMCARE. Trans-European-Survey Report. Available at: http://www.uke.uni- hamburg.de/extern/eurofamcare/ Accessed October 11, 2007.
67. The Patient Navigation Program. Rockville, MD: National Cancer Institute; 2005. Available at: http://crchd.cancer.gov/pnp/pnrp-index.html Accessed September 22, 2008.
68. Emanuel LL, Ferris F, von Gunten C, von Roenn JH, eds. Education in Palliative and End-of-Life Care-Oncology Curriculum. Chicago, IL: The EPEC Project, Northwestern University; 2005. Available at: www.epec.net Accessed October 11, 2007.
69. Sherer RD, Teter CJ, Wykoff RF. Microeconomic loans and health education to families in impoverished communities: implications for the HIV pandemic. J Int Assoc Physicians AIDS Care. 2004;3:110-114.
70. Vastag B. Small loans yield big health profits. JAMA. 2004;292:159-160.
71. Sheikh SP. A Healthy Solution to Poverty: Integrating Microfinance and Health Services. Available at: http://www.grameenfoundation.org/ Accessed April 30, 2007.
72. Rahman T. The micro health insurance program of Grameen Kaylan. Available at: http://www.shiconferencemanila.info/download%5C8. 3%20Rahman%20full%20presentation.pdf Accessed October 11, 2007.
73. Smith C, Cowan C, Heffler S, Catlin A. National health spending in 2004: recent slowdown led by prescription drug spending. Health Aff. 2006;25:186-196.
74. Hamilton M, Dorsey ER, Matheson DHM, Their SO. Financial anatomy of biomedical research. JAMA. 2005;294:1333-1342.