Preference for place of care and place of death in palliative care: Are these different questions?

Palliative Medicine

Volumn 22, Issue 7, 2008, Pages 787-795

  Agar, M ^a   Currow, David ^a,b   Shelby James, T M ^a   Plummer, J ^c   Sanderson, C ^a   Abernethy, A P ^a,d  

^a FLINDERS UNIVERSITY   (Australia)

^b Braeside Hospital   (Australia)

^c FLINDERS MEDICAL CENTRE   (Australia)

^d DUKE UNIVERSITY MEDICAL CENTER   (United States)

Author keywords

Caregivers; Health service planning; Palliative care utilisation; Place of care; Place of death

Indexed keywords

AGED; ARTICLE; ATTITUDE TO DEATH; CAREGIVER SUPPORT; CLINICAL TRIAL; CONTROLLED CLINICAL TRIAL; CONTROLLED STUDY; DEATH; DOCTOR PATIENT RELATION; FEMALE; HEALTH CARE UTILIZATION; HOME CARE; HOME FOR THE AGED; HOSPICE CARE; HOSPITAL CARE; HUMAN; MAJOR CLINICAL STUDY; MALE; PALLIATIVE THERAPY; PATIENT CARE; PATIENT CARE PLANNING; PATIENT DECISION MAKING; PLACE OF DEATH; PLACE PREFERENCE; RANDOMIZED CONTROLLED TRIAL; TIME OF DEATH; AUSTRALIA; CAREGIVER; COMPARATIVE STUDY; DECISION MAKING; DEMOGRAPHY; MIDDLE AGED; PATIENT SATISFACTION; PROSPECTIVE STUDY; PSYCHOLOGICAL ASPECT; STANDARD; TERMINALLY ILL PATIENT; TIME;

AGED; AGED, 80 AND OVER; ATTITUDE TO DEATH; AUSTRALIA; CAREGIVERS; CHOICE BEHAVIOR; FEMALE; HUMANS; MALE; MIDDLE AGED; PALLIATIVE CARE; PATIENT SATISFACTION; PROSPECTIVE STUDIES; RESIDENCE CHARACTERISTICS; TERMINALLY ILL; TIME FACTORS;

EID: 58149234406     PISSN: 02692163     EISSN: None     Source Type: Journal    
DOI: 10.1177/0269216308092287     Document Type: Article

References (23)

1. Bowling A. The hospitalisation of death: Should more people die at home. J Med Ethics 1983; 9: 158-161.
2. Seale C Addington-Hall J McCarthy M. Awareness of dying: Prevalence, causes and consequences. Soc Sci Med 1997; 45: 477-484.
3. Steinhauser K Christakis N Clipp E McNeilly M McIntyre L Tulsky J. Factors considered important at the end of life by patients, family, physicians and other care providers. JAMA 2000; 284: 2476-2482.
4. Thomas C Morris SM Clark D. Place of death: Preferences among cancer patients and their carers. Soc Sci Med 2004; 58: 2431-2444.
5. Higginson IJ Sen-Gupta GJ. Place of care in advanced cancer: A qualitative literature review of patient preferences. J Palliat Med 2000; 3: 287-300.
6. Hinton J. Can home care maintain an acceptable quality of life for patients with terminal cancer and their relatives. Palliat Med 1994; 8: 183-196.
7. Townsend J Frank AO Fermont D Dyer S Karran O Walgrove A. et al. Terminal cancer care and patients' preference for place of death: A prospective study. BMJ 1990; 301: 415-417.
8. Dunlop R. Preferred versus actual place of death: A hospital palliative care support team study. Palliat Med 1989; 3: 197-201.
9. Karlsen S Addington-Hall J. How do cancer patients who die at home differ from those who die elsewhere? Palliat Med 1998; 12: 279-286.
10. Addington-Hall J MacDonald LD. Dying from cancer: The views of bereaved family and friends about the experiences of terminally ill patients. Palliat Med 1991; 5: 207-214.
11. Beccaro M Costantini M Giorgi Rossi P Miccinesi G Grimaldi M Bruzzi P. et al. Actual and preferred place of death of cancer patients. Results from the Italian survey of the dying of cancer (ISDOC). J Epidemiol Community Health 2006; 60: 412-416.
12. Groth-Juncker A McCusker J. Where do elderly patients prefer to die? Place of death and patient characteristics of 100 elderly patients under the care of a home health care team. J Am Geriatr Soc 1983; 31: 457-461.
13. Lee A Pang WS. Preferred place of death - a local study of cancer patients and their relatives. Singapore Med J 1998; 39: 447-450.
14. McWhinney IR Bass MJ Orr V. Factors associated with location of death (home or hospital) of patients referred to a palliative care team. CMAJ 1995; 152: 361-367.
15. Gomes B Higginson IJ. Factors influencing death at home in terminally ill patients with cancer: Systematic review. BMJ 2006; 332: 515-521.
16. Abernethy AP Currow DC Hunt R Williams H Roder-Allen G Rowett D. et al. [ISRCTN 81117481] A pragmatic 2 × 2 × 2 factorial cluster randomized controlled trial of educational outreach visiting and case conferencing in palliative care - methodology of the palliative care trial. Contemp Clin Trials 2006; 27: 83-100.
17. Currow DC Abernethy AP Shelby-James TM Phillips PA. The impact of conducting a regional palliative care clinical study. Palliat Med 2006; 20: 735-743.
18. Cantwell P Turco S Brenneis C Hanson J Neumann CM Bruera E. Predictors of home death in palliative care cancer patients. J Palliat Care 2000; 16: 23-28.
19. Fukui S Kawagoe H Masako S Noriko N Hiroko N Toshie M. Determinants of the place of death among terminally ill cancer patients under home hospice care in Japan. Palliat Med 2003; 17: 445-453.
20. Clayton JM Butow PN Arnold RM Tattersall MHN. Discussing end-of-life issues with terminally ill cancer patients and their carers: A qualitative study. Support Care Cancer 2005; 13: 589-599.
21. Clayton JM Butow PN Arnold RM Tattersall MHN. Discussing life expectancy with terminally ill cancer patients and their carers: A qualitative study. Support Care Cancer 2005; 13: 733-742.
22. Clayton JM Butow PN Tattersall MHN. When and how to initiate discussion about prognosis and end-of-life issues with terminally ill patients. J Pain Symptom Manage 2005; 30: 132-144.
23. Grande GE Addington-Hall JM Todd CJ. Place of death and access to home care services: Are certain patient groups at a disadvantage? Soc Sci Med 1998; 47: 565-579.