Health beliefs and culture: Essential considerations for outcome measurement

Disease Management and Health Outcomes

Volumn 16, Issue 6, 2008, Pages 411-419

  Bhui, Kamaldeep ^a   Dinos, Sokratis ^a  

^a QUEEN MARY UNIVERSITY OF LONDON   (United Kingdom)

Author keywords

Outcomes research; Psychiatric disorders

Indexed keywords

CULTURAL ANTHROPOLOGY; DEVELOPED COUNTRY; EMOTION; ETHNIC GROUP; HEALTH BELIEF; HEALTH PROMOTION; HUMAN; LANGUAGE; MENTAL HEALTH; MENTAL HEALTH CARE; MENTAL STRESS; OUTCOME ASSESSMENT; PHYSICAL DISEASE; PSYCHIATRY; PSYCHOLOGY; RACE; RELIABILITY; REVIEW; SOCIAL PROBLEM; SOCIOLOGY; SYMPTOM; VALIDITY;

EID: 58149216292     PISSN: 11738790     EISSN: None     Source Type: Journal    
DOI: 10.2165/0115677-200816060-00006     Document Type: Review

References (90)

1. Kirmayer LJ. Cultural variations in the response to psychiatric disorders and emotional distress. Soc Sci Med 1989; 29: 327-39
2. Lopez SR, Guarnaccia PJJ. Cultural psychopathology: uncovering the social world of mental illness. Annu Rev Psychol 2000; 51: 571-98
3. Kleinman A. Rethinking psychiatry: from cultural category to personal experience. New York: Macmillan, 1988
4. Mezzich JE, Kleinman A, Fabrega H, et al. Culture and psychiatric diagnosis: a DSM-IV perspective. Washington, DC: American Psychological Association, 1996
5. Patel N, Bennet E, Dennis M, et al. Clinical psychology, 'race' and culture: a training manual. Leicester: British Psychological Society, 2000
6. Hays PA. Addressing cultural complexities in practice: a framework for clinicians and counselors. Washington, DC: American Psychological Association, 2001
7. Vega WA, Murphy JW. Culture and the restructuring of community mental health. Westport (CT): Greenwood, 1990
8. Thornicroft G, Tansella M. Mental health outcome measures. Berlin, New York: Springer, 1996
9. US Public Health Service. US Department of Health and Human Services. Mental health: culture, race and ethnicity. A supplement to mental health: a report of the Surgeon General [online]. Available from URL: http://www. surgeongeneral.gov/library/mentalhealth/cre/execsummary-1.html [Accessed 2008 Nov 18]
10. Smedley BD, Stith AY, Nelson AR. Unequal treatment: confronting racial and ethnic disparities in mental health care. Institute of Medicine. Washington, DC: The National Academies Press, 1999
11. Warren RC. Preface. In: Centers for Disease Control and Prevention, editors. Use of race and ethnicity in public health surveillance: summary of the CDC/ATSDR workshop. MMWR 1993; 42 (No. RR-10)
12. Bhui K. Racism and mental health, prejudice and suffering. London: Jessica Kingsley Publishers, 2002
13. National Institute for Mental Health in England. Outcome measures for routine practice in mental health services. London: NIMHE, 2002 [online]. Available from URL: http://www.outcomemeasures.csip.org.uk [Accessed 2008 Nov 18]
14. UK Department of Health. Delivering race equality in mental health care: an action plan for reform inside and outside services and the Government's response to the independent inquiry into the death of David Bennett. London: Department of Health, 2005 [online]. Available from URL: http://www.dh.gov.uk/ en/Publicationsandstatistics/ Publications/PublicationsPolicyAndGuidance/ DH_41007 73 [Accessed 2008 Nov 18]
15. UK Department of Health. Improving access to psychological therapies (IAPT) programme: computerised cognitive behavioural therapy (cCBT) implementation guidance. London: Department of Health, 2007 [online]. Available from URL: http://www.dh.gov.uk/en/Publicationsandstatistics/Publications/ PublicationsPolicyAndGuidance/DH _073470 [Accessed 2008 Nov 18]
16. Janca A, Ustun TB, Sartorius S. New versions of World Health Organization instruments for the assessment of mental disorders. Acta Psychiat Scand 1994; 90 Suppl. 2: 73-83
17. Spaniol L. Editorial. Psychosoc Rehabil J 1991; 14 Suppl. 4: 1
18. Deegan PE. Recovery: the lived experience of rehabilitation. Psychosoc Rehabil J 1988; 11 Suppl. 4: 11-9
19. Anthony W. Recovery from mental illness: the new vision of services researchers. Innovations Res 1991; 1: 13-4
20. Anthony W, Rogers ES, Farkas M. Research on evidence-based practices: future directions in an era of recovery. Community Ment Health J 2003; 39 Suppl. 2: 101-14
21. Fenton S, Sadiq-Sangster A. Culture, relativism and the expression of mental distress: South Asian women in Britain. Sociol Health Illn 1996; 18 Suppl. 1: 66-85
22. Blaxter M. Health and lifestyles. London: Routledge, 1990
23. Kleinman A, Good B. Culture and depression. Los Angeles (CA): University of California Press, 1985
24. Duclos CW, Beals J, Novins DK, et al. Prevalence of common psychiatric disorders among American Indian adolescent detainees. J Am Acad Child Adolesc Psychiatry 1998; 37 Suppl. 8: 866-73
25. Marsella AJ, Friedman MJ, Gerrity ET, et al., editors. Ethnocultural aspects of posttraumatic stress disorder: issues, research, and clinical applications. Washington, DC: American Psychology Association, 1996
26. Jablensky A, Sartorius N, Ernberg G, et al. Schizophrenia: manifestations, incidence and course in different cultures. A World Health Organization ten-country study. Psychol Med Monogr Suppl 1992 Nov; 22 Suppl. 4: 1-97
27. Cohen A, Patel V, Thara R, et al. Questioning an axiom: better prognosis for schizophrenia in the developing world? Schizophr Bull 2008; 34: 229-44
28. McKenzie K, van Os J, Fahy T, et al. Psychosis with good prognosis in Afro-Caribbean people now living in the United Kingdom. BMJ 1995; 311: 1325-8
29. Azuonye IO. Psychosis in Afro-Caribbean people: 'Afro-Caribbean' could have been of Chinese, Indian, European, or African extraction. BMJ 1996; 312: 1157-8
30. Cochrane R, Stopes Roe M. The mental health of immigrants. New Community 1980; 8 (Suppl 1 & 2): 123-8
31. Krause IB. Sinking heart: a Punjabi communication of distress. Soc Sci Med 1989; 29 Suppl. 4: 563-7
32. Weiss MG, Sharma SD, Gaur RK, et al. Traditional concepts of mental disorder among Indian psychiatric patients: preliminary report of work in progress. Soc Sci Med 1986; 23 Suppl. 3: 379-86
33. Broadbent E, Petrie KJ, Main J, et al. The brief illness perception questionnaire. J Psychosom Res 2006 Jun; 60 Suppl. 6: 631-7
34. Bhui K, Rüdell K, Priebe S. Assessing explanatory models for common mental disorders. J Clin Psychiatry 2006 Jun; 67 Suppl. 6: 964-71
35. Currer C. Concepts of mental well- and ill-being: the case of Pathan mothers in Britain. In: Currer C, Stacey M, editors. Concepts of health, illness and disease: a comparative perspective. Leamington Spa: Berg, 1986
36. Sachs L. Evil eye or bacteria: Turkish migrant women and Swedish health care [dissertation]. Stockholm: University of Sweden, Department of Social Anthropology, 1983
37. Carr JE, Vitaliano PP. The theoretical implications of converging research on depression and the culture-bound syndromes. In: Kleinman A, Good B, editors. Culture and depression. Los Angeles (CA): University of California Press, 1985
38. Bhui K, Craig T, Mohamud S, et al. Mental disorders among Somali refugees: developing culturally appropriate measures and assessing socio-cultural risk factors. Soc Psychiatry Psychiatr Epidemiol 2006 May; 41 Suppl. 5: 400-8
39. Incayawar M. Efficacy of Quichua healers as psychiatric diagnosticians. Brit J Psych 2008; 192: 390-1
40. Bhui K, Bhugra D. Transcultural psychiatry: some social and epidemiological research issues. Int J Soc Psychiatry 2001 Autumn; 47 (Suppl. 3): 1-9
41. Bhugra D, Bhui K. Cross-cultural psychiatry: a practical guide. London: Arnold, 2001
42. Bhugra D, Bhui K. Textbook of cultural psychiatry. Cambridge: Cambridge University Press, 2007
43. Ohio Department of Mental Health Office of Program Evaluation and Research. The Ohio mental health consumer outcomes system: procedural manual. Columbus (OH): Ohio Department of Mental Health, 2000
44. Bhui K, Warfa N, Edonya P, et al. Cultural competence in mental health care: a review of model evaluations. BMC Health Serv Res 2007; 7: 15
45. Leininger M. Culture care diversity and universality: a theory of nursing. New York: National League for Nursing Press, 1991
46. Locke DC. The Locke paradigm of cross cultural counseling. Int J Adv Couns 1991; 14: 15-25
47. Locke DC. Increasing multicultural understanding. Newbury Park (CA): Sage, 1992
48. Campinha-Bacote J. The process of cultural competence in the delivery of healthcare services. 3rd ed. Cincinnati (OH): Transcultural C.A.R.E. Associates, 1998
49. Campinha-Bacote J. Cultural competence in psychiatric nursing: have you "ASKED" the right questions? J Am Psychiatr Nurses Assoc 2002; 8: 183-7
50. Spector RE. Cultural diversity in health and illness. 5th ed. Upper Saddle River (NJ): Prentice Hall, 2000
51. Spector RE. Cultural diversity in health and illness. J Transcult Nurs 2002; 13 Suppl. 3: 197-9
52. Srole L, Langner TS, Michael ST, et al. Mental health in the metropolis: the midtown Manhattan Study. Vol. 1. New York: McGraw-Hill, 1962
53. Leighton DC, Harding JS, Macklin DB, et al. The character of danger: stifling county study. Vol. 3. New York: Basic, 1963
54. Manson SM, Shore JH, Bloom JD. The depressive experience in American Indian communities. In: Kleinman A, Good B, editors. Culture and depression. Berke-ley (CA): University of California Press, 1985: 331-68
55. Radloff LS. The CES-D scale: a self-report depression scale for research in the general population. Appl Pscyhol Measure 1977; 1: 385-401
56. Kolody B, Vega W, Meinhardt K, et al. The correspondence of health complaints and depressive symptoms among Mexican Americans and Anglos. J Nervous Mental Dis 1986; 174: 221-8
57. Kleinman A. Social origins of distress and disease: depression, neurasthenia, and pain in modern china. New Haven (CT): Yale University Press, 1986
58. Vega WA, Rumbaut RG. Ethnic minorities and mental health. Annu Rev Sociol 1991; 17: 351-83
59. Robins LN, Helzer JE, Croughan J, et al. National Institute of Mental Health Diagnostic Interview Schedule: its history, characteristics, and validity. Arch Gen Psych 1981; 38: 381-9
60. Lewis G, Pelosi AG, Araya R, et al. Measuring psychiatric disorder in the community: a standardized assessment for use by lay interviewers. Psychol Med 1992 May 22; (2): 465-86
61. Bhui K, Bhugra D, Goldberg D, et al. Assessing the prevalence of depression in Punjabi and English primary care attenders: the role of culture, physical illness and somatic symptoms. Transcult Psychiatry 2004 Sep; 41 Suppl. 3: 307-22
62. Bhui K, Stansfeld S, Hull S, et al. Ethnic variations in pathways to and use of specialist mental health services in the UK: systematic review. Br J Psychiatry 2003 Feb; 182: 105-16
63. Bhui K, Bhugra D. Explanatory models in psychiatry [letter]. Br J Psychiatry 2003 Aug; 183: 170
64. Bhui K, Mohamud S, Warfa N, et al. Cultural adaptation of mental health measures: improving the quality of clinical practice and research. Br J Psychiatry 2003 Sep; 183: 184-6
65. Wing JK, Lelliott P, Beevor AS. Progress on HoNOS. Br J Psychiatry 2000; 176: 392-3
66. Wing JK, Beevor AS, Curtis RH, et al. Health of the Nation Outcome Scales (HoNOS): research and development. Br J Psychiatry 1998; 172: 11-8
67. Gowers SG, Harrington RC, Whitton A, et al. Brief scale for measuring the outcomes of emotional and behavioural disorders in children: Health of the Nation Outcome Scales for Children and Adolescents (HoNOSCA). Br J Psychiatry 1999; 174: 413-6
68. Gowers S, Bailey-Rogers SJ, Shore A, et al. The Health of the Nation Outcome Scales for Child and Adolescent Mental Health (HoNOSCA). Child Psychol Psychiatr Rev 2000; 5: 50-6
69. Burns A, Beevor A, Lelliott P, et al. Health of the Nation Outcome Scales for Elderly People (HoNOS65+). Br J Psychiatry 1999; 174: 424-7
70. Pirkis J, Burgess P, Coombs T, et al. Routine measurement of outcomes in Australian public sector mental health services. Aust New Zealand Health Policy 2005; 2: 8
71. Pirkis JE, Burgess PM, Kirk PK. A review of the psychometric properties of the Health of the Nation Outcome Scales (HoNOS) family of measures. Health Qual Life Outcomes 2005; 3: 76
72. Shergill SS, Shankar KK, Seneviratna K, et al. The validity and reliability of the Health of the Nation Outcome Scales (HoNOS) in the elderly. J Ment Health (UK) 1999; 8: 511-21
73. Orrell M, Yard P, Handysides J, et al. Validity and reliability of the Health of the Nation Outcome Scales in psychiatric patients in the community. Br J Psychiatry 1999; 174: 409-12
74. Isaac M, Chand P, Murthy P. Schizophrenia outcome measures in the wider international community. Br J Psychiatry 2007; 191 Suppl. 50: s71-7
75. Kulhara P, Chakrabarti S. Culture and schizophrenia and other psychotic disorders. Psychiat Clin N Am 2001; 24: 449-64
76. WHO. World Health Organization Disability Assessment Schedule II (WHODAS II). Geneva: WHO, 2000
77. American Psychiatric Association. Diagnostic and Statistical Manual of Mental Disorders. 3rd ed. Washington, DC: APA, 1987
78. Saraswat N, Rao K, Subbakrishna DK, et al. The Social Occupational Functioning Scale (SOFS): a brief measure of functional status in persons with schizophrenia. Schizophr Res 2006; 81: 301-9
79. Bhui K, Bhugra D, Goldberg D. Cross-cultural validity of the Amritsar Depression Inventory and the General Health Questionnaire amongst English and Punjabi primary care attenders. Soc Psychiatry Psychiatr Epidemiol 2000 Jun; 35 Suppl. 6: 248-54
80. Bhui K, Bhugra D, Goldberg D, et al. Cultural influences on the prevalence of common mental disorder, general practitioners' assessments and help-seeking among Punjabi and English people visiting their general practitioner. Psychol Med 2001 Jul; 31 Suppl. 5: 815-25
81. Bhui K. Over-representation of Black people in secure psychiatric facilities [letter]. Br J Psychiatry 2001 Jun; 178: 575
82. Fitzpatrick R, Davey C, Buxton MJ, et al. Evaluating patient-based outcome measures for use in clinical trials. Health Technol Asses 1998; 2 Suppl. 14: 1-74
83. Patel V, Musara T, Butau T, et al. Concepts of mental illness and medical pluralism in Harare. Psychol Med 1995 May; 25 Suppl. 3: 485-94
84. Bullinger M, Alonso J, Apolone G, et al. Translating health status questionnaires and evaluating their quality: the IQOLA Project approach. J Clin Epidemiol 1998; 51 Suppl. 11: 913-23
85. Leplege A, Verdier A. The adaptation of health status measures: methodological aspects of the translation procedure. In: Shumaker S, Berzon R, editors. The international assessment of health-related quality of life: theory, translation, measurement and analysis. Oxford: Rapid Communications of Oxford, 1995: 93-101
86. Hunt SM. Cross-cultural issues in the use of quality of life measures in randomised controlled trials. In: Staquet M, Hays R, Fayers P, editors. Quality of life assessment in clinical trials. Oxford: Oxford University Press, 1998: 51-68
87. Collinge A, Rudell K, Bhui K. Quality of life assessment in non-Western cultures. Int Rev of Psychiatr 2002; 14 Suppl. 3: 212-8
88. WHOQOL Group. The World Health Organization quality of life assessment (WHOQOL): development and general psychometric properties. Soc Sci Med 1998; 46: 1569-86
89. Marsella AJ, Sartorius N, Jablensky A, et al. Culture and depressive disorders. In: Kleinman A, Good B, editors. Culture and depression. Berkeley (CA): University of California Press, 1986: 299-324
90. Bhui K, Dinos S, Khoshaba B. Outcomes compendium: helping you select the right tools for best mental health care practice in your field [report to the Department of Health]. London: Department of Health. In press