Do knowledge of, perception of, and attitudes toward epilepsy affect the quality of life of Turkish children with epilepsy and their parents?

Epilepsy and Behavior

Volumn 14, Issue 1, 2009, Pages 71-77

  Hirfanoglu, Tugba ^a   Serdaroglu, Ayse ^a   Cansu, Ali ^a   Soysal, A Sebnem ^a   Derle, Eda ^b   Gucuyener, Kivilcim ^a  

^a GAZI UNIVERSITY   (Turkey)

^b BASKENT UNIVERSITY   (Turkey)

Author keywords

Attitudes; Children; Epilepsy; Knowledge; Perception; Quality of life

Indexed keywords

ANTICONVULSIVE AGENT;

ACADEMIC ACHIEVEMENT; ADOLESCENT; ADULT; ANXIETY; ARTICLE; ATTITUDE TO HEALTH; CONTROLLED STUDY; DEPRESSION; EPILEPSY; FAMILY; FEMALE; HUMAN; MAJOR CLINICAL STUDY; MALE; MONOTHERAPY; PARENTAL BEHAVIOR; PERCEPTION; QUALITY OF LIFE; QUESTIONNAIRE; SCHOOL CHILD; SELF ESTEEM; SOCIAL ISOLATION; SOCIAL SUPPORT; TURKEY (REPUBLIC); UNSPECIFIED SIDE EFFECT;

ADOLESCENT; ATTITUDE; CHILD; DATA COLLECTION; DATA INTERPRETATION, STATISTICAL; DEPRESSION; EPILEPSY; FEMALE; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HUMANS; MALE; PARENTS; QUALITY OF LIFE; QUESTIONNAIRES; SCHOOLS; SEIZURES; SELF CONCEPT; SOCIAL PERCEPTION; SOCIAL SUPPORT; SOCIOECONOMIC FACTORS; STEREOTYPING; TURKEY;

EID: 58149156531     PISSN: 15255050     EISSN: 15255069     Source Type: Journal    
DOI: 10.1016/j.yebeh.2008.08.011     Document Type: Article

References (22)

1. Ryan B.L., Speechley K.N., Levin S.D., and Stewart M. Parents' and physicians' perceptions of childhood epilepsy. Seizure 12 (2003) 359-368
2. Kyngäs H. Predictors of good compliance in adolescents with epilepsy. Seizure 10 (2001) 549-553
3. Martiniuk A.L., Speechley K.N., Secco M., and Karen Campbell M. Development and psychometric properties of the Thinking about Epilepsy questionnaire assessing children's knowledge and attitudes about epilepsy. Epilepsy Behav 10 (2007) 595-603
4. Fisher R.S. Epilepsy from the patient's perspective: review of results of a community-based survey. Epilepsy Behav 1 (2000) S9-S14
5. McNelis A.M., Buelow J., Myers J., and Johnson E.A. Concerns and needs of children with epilepsy and their parents. Clin Nurse Spec 21 (2007) 195-202
6. Austin J.K., MacLeod J., Dunn D.W., Shen J., and Perkins S.M. Measuring stigma in children with epilepsy and their parents: instrument development and testing. Epilepsy Behav 5 (2004) 472-482
7. Doughty J., Baker G.A., Jacoby A., and Lavaud V. Cross-cultural differences in levels of knowledge about epilepsy. Epilepsia 44 (2003) 115-123
8. Austin J.K., Shafer P.O., and Deering J.B. Epilepsy familiarity, knowledge, and perceptions of stigma: report from a survey of adolescents in the general population. Epilepsy Behav 3 (2002) 368-375
9. Baker G.A., Spector S., McGrath Y., and Soteriou H. Impact of epilepsy in adolescence. a UK controlled study. Epilepsy Behav 6 (2005) 556-562
10. Hawley S.R., Paschal A.M., Ablah E., et al. Initial perspectives from Midwestern neurologists: epilepsy patients' barriers and motivators for seeking treatment. Epilepsia 48 (2007) 1920-1925
11. Huberty T.J., Austin J.K., Harezlak J., Dunn D.W., and Ambrosius W.T. Informant agreement in behavior ratings for children with epilepsy. Epilepsy Behav 1 (2000) 427-435
12. Long L., Reeves A.L., Moore J.L., Roach J., and Pickering C.T. An assessment of epilepsy patients' knowledge of their disorder. Epilepsia 41 (2000) 727-731
13. Dawkins J.L., Crawford P.M., and Stammers T.G. Epilepsy: a general practice study of knowledge and attitudes among sufferers and non-sufferers. Br J Gen Pract 43 (1993) 453-457
14. Ried S., Specht U., Thorbecke R., Goecke K., and Wohlfarth R. MOSES: an educational program for patients with epilepsy and their relatives. Epilepsia 3 (2001) 76-80
15. Tran D.S., Odermatt P., Singphuoangphet S., et al. Epilepsy in Laos: knowledge, attitudes, and practices in the community. Epilepsy Behav 10 (2007) 565-570
16. Jarvie S., Espie C.A., and Brodie M.J. The development of a questionnaire to assess knowledge of epilepsy: general knowledge of epilepsy. Seizure 2 (1993) 179-185
17. Goldstein L.H., Minchin L., Stubbs P., and Fenwick P.B. Are what people know about their epilepsy and what they want from an epilepsy service related?. Seizure 6 (1997) 435-442
18. Niedzielska K., Wolańczyk T., Baker G.A., Jakoby A., Doughty J., and De Boer H. Level of knowledge about epilepsy among Polish patients with epilepsy and their families in the European study SPOKE (Sanofi-Synthelabo Programme for Outcome Knowledge of Epilepsy). Neurol Neurochir Pol 38 (2004) 447-455
19. Norzila M.Z., Azizi B.H., and Motilal R. Childhood epilepsy: what parents know, believe and do. Med J Malaysia 52 (1997) 60-63
20. Jacoby A. Felt versus enacted stigma: a concept revisited. Evidence from a study of people with epilepsy in remission. Soc Sci Med 38 (1994) 269-274
21. Tedman S., Thornton E., and Baker G. Development of a scale to measure core beliefs and perceived self efficacy in adults with epilepsy. Seizure 4 (1995) 221-231
22. Baker G.A., Brooks J., Buck D., and Jacoby A. The stigma of epilepsy: a European perspective. Epilepsia 41 (2000) 98-104