Communicating genetic information in the family: Enriching the debate through the notion of integrity

Medicine, Health Care and Philosophy

Volumn 11, Issue 4, 2008, Pages 445-454

  Boddington, Paula ^a   Gregory, Maggie ^b  

^a UNIVERSITY OF OXFORD   (United Kingdom)

^b CARDIFF UNIVERSITY   (United Kingdom)

Author keywords

Autonomy; Biomedical ethics; Communication; Family; Genetics; Integrity

Indexed keywords

ARTICLE; FAMILY; FAMILY RELATION; GENETIC PRIVACY; HUMAN; INTERPERSONAL COMMUNICATION; SOCIOLOGY;

COMMUNICATION; DISCLOSURE; FAMILY; FAMILY RELATIONS; GENETIC PRIVACY; HUMANS; SOCIOLOGY, MEDICAL;

EID: 57949102354     PISSN: 13867423     EISSN: 15728633     Source Type: Journal    
DOI: 10.1007/s11019-008-9132-4     Document Type: Article

References (27)

1. Beauchamp Tom L., and James Childress. 1994. Principles of biomedical ethics, 4th ed. New York: Oxford University Press.
2. Bell, Dean, and Belinda Bennett. 2001. Genetic secrets and the family. Medical Law Review 9: 130.
3. Bennett, Rebecca. 2001. Antenatal genetic testing and the right to remain in ignorance. Theoretical Medicine 22: 461-471.
4. Boddington, Paula. 1998. Self-deception. In Encyclopedia of applied ethics, ed. Ruth Chadwick, 39-51, vol. 4. San Diego: Academic Press, Inc.
5. Case, Paula. 2003. Confidence matters: The rise and fall of informational autonomy in medical law, Medical Law Review 11: 208.
6. Chadwick, Ruth, Levitt, Mairi, and Darren Shickle, eds. 1998. The right to know and the right not to know. Ashgate: Aldershot.
7. Cox, Damian, Marguerite La Caze, and Michael P. Levine. 2003. Integrity and the fragile self. Ashgate: Aldershot.
8. Fingarette, Herbert. 1969. Self-deception. London, Routledge and Kegan Paul.
9. Fjellstrom, Roger. 2005. Respect for persons, respect for integrity. Medicine, Health Care and Philosophy 8: 231-242.
10. Gaita, Raymond. 1981. Integrity. In Aristotelian society supplementary, vol. LV: 161-176.
11. Hallowell N., Ardern Jones A., Eeles R., Foster C., Lucassen A., Moynihan C., and M. Watson. 2005. Men's decision making about predictive BRCA1/2 testing: The role of the family. Journal of Genetic Counselling 14 (3): 207.
12. Harris, John, and Kirsty Keywood. 2001. Ignorance, information and autonomy. Theoretical Medicine 22: 415-436.
13. Häyry, Matti, and Tuija Takala. 2001. Genetic information, rights and autonomy. Theoretical Medicine 22: 403-414.
14. Laurie, Graeme. 1999. Obligations arising from genetic information: negligence and the protection of family interests. Child and Family Law Quarterly 11 (2): 109.
15. Mason J.K., McCall Smith R.A., and G.T. Laurie. 2002. Law and medical ethics, 6th ed. London: Butterworths.
16. McLaughlin, Brian P., and Amelie Oksenberg Rorty. 1988. Perspectives on self-deception. Berkeley and Los Angeles: University of California Press.
17. Nesbitt, E. 1991. The railway children. Oxford: Oxford University Press.
18. Räikkä, Juha. 1998. Freedom and a right (not) to know. Bioethics 12: 49-63.
19. Rendtorff, Jacob Dahl. 2000. Basic ethical principles in European bioethics and biolaw: Autonomy, dignity, integrity and vulnerability-towards a foundation of bioethics and biolaw. Medicine, Health Care and Philosophy 5: 235-244.
20. Rhodes, Rosamund. 1998. Genetic links, family ties and social bonds: Rights and responsibilities in the face of genetic knowledge. Journal of Medicine and Philosophy 23: 10-30.
21. Rhodes, Rosamund. 2000. Autonomy respect and genetic information policy: A reply to Tuija Takala and Matti Häyry. Journal of Medicine and Philosophy 25: 114-120.
22. Skene, Loane. 2001. Genetic secrets and the family: A response to Bell and Bennett. Medical Law Review 9: 162.
23. Takala, Tuija. 2001. Genetic ignorance and reasonable paternalism. Theoretical Medicine 22: 485-491.
24. Takala, Tuija, and Matti Häyry. 2000. Genetic ignorance, moral obligations and social duties. Journal of Medicine and Philosophy 25: 107-113.
25. Taylor, Gabriele. 1981. Integrity. In Aristotelian society supplementary Vol. LV: 143-159.
26. Vehmas, Simo. 2001. Just ignore it? Parents and genetic information. Theoretical Medicine 22: 473-484.
27. Voysey, Margaret. 1975. A constant burden: The reconstitution of family life. London: Routledge and Kegan Paul.