Consumer involvement in setting the health services research agenda: Persistent questions of value

Journal of Health Services Research and Policy

Volumn 13, Issue SUPPL. 3, 2008, Pages 76-81

  Entwistle, Vikki ^a   Calnan, Michael ^b   Dieppe, Paul ^c  

^a Social Dimensions of Health Institute   (United Kingdom)

^b UNIVERSITY OF KENT   (United Kingdom)

^c MRC Health Services Research Collaboration   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

CITIZENSHIP; CONSUMER; CONSUMER HEALTH INFORMATION; DECISION MAKING; ECONOMIC DEVELOPMENT; FUNDING; HEALTH CARE COST; HEALTH CARE ORGANIZATION; HEALTH CARE POLICY; HEALTH PROGRAM; HEALTH SERVICES RESEARCH; HEALTH SURVEY; KNEE OSTEOARTHRITIS; MEDICAL RESEARCH; PRIMARY HEALTH CARE; PRIMARY MEDICAL CARE; PRIORITY JOURNAL; PUBLICATION; RESEARCH PRIORITY; REVIEW; SOCIAL CARE; UNITED KINGDOM;

CONSUMER PARTICIPATION; GREAT BRITAIN; HEALTH SERVICES RESEARCH; HUMANS; RESEARCH;

EID: 57349119298     PISSN: 13558196     EISSN: None     Source Type: Journal    
DOI: 10.1258/jhsrp.2008.007167     Document Type: Review

References (34)

1. Entwistle VA. Involving service users in health services research. In: Bowling A, Ebrahim S, eds. Handbook of Health Services Research Methods: Investigation, Measurement and Analysis. Milton Keynes: Open University Press, 2005:535-54
2. Chalmers I. What do I want from health research and researchers when I am a patient? BMJ 1995;310:1315-18
3. Oliver S. How can health service users contribute to the NHS research and development programme? BMJ 1995;310:1318-20
4. Entwistle VA, Renfrew M, Yearley S, Forrester J, Lamont T. Incorporating lay perspectives: advantages for research. BMJ 1998;316:463-6
5. Goodare H, Smith R. The rights of patients in research: patients must come first in research. BMJ 1995;310:1277-8
6. Oliver S. Exploring layperspectives onquestions of effectiveness. In: Maynard A, Chalmers I, eds. Non-random Reflections on Health Services Research. London: BMJ Publishing, 1997
7. Boote J, Telford R, Cooper C. Consumer involvement in health research: a review and research agenda. Health Pol 2002;61:213-36
8. Mayer S. Science out of step with the public: the need for public accountability of science in the UK. Sci Publ Pol 2003;30:177-81
9. Abelson J, Forrest P-G, Eyles J, Smith P, Martin E, Gauvin F-P. Deliberations about deliberative methods: issues in the design and evaluation of public participation processes. Soc Sci Med 2003;57:239-51
10. Department of Health. Research for health: a research and development strategy for the NHS. London: HMSO, 1991
11. See http://www.invo.co.uk
12. Department of Health. Research governance framework for health and social care. London: Department of Health, 2001
13. Ramkalawan T, Dieppe P. Research capacity development and training. J Health Serv Res Policy 2008;13 (Suppl.3):6-11
14. Tallon D, Chard J, Dieppe P. Relation between agendas of the research community and the research consumer. Lancet 2000;355:2037-40
15. Tallon D, Chard J, Dieppe P. Exploring the priorities of patient with osteoarthritis of the knee. Arthritis Care Res 2000;13:312-19
16. Dieppe P, Dixon D, Horwood J, et al. MOBILE and the provision of total joint replacement. J Health Serv Res Policy 2008;13 (Suppl. 3):47-56
17. O'Donnell M, Entwistle VA. Consumer involvement in decisions about what health related research is funded. Health Pol 2004;70:281-90
18. O'Donnell M, Entwistle VA. Consumer involvement in research projects: the activities of research funders. Health Pol 2004;69:229-38
19. Davies C, Wetherell M, Barnett E. Citizens at the centre: deliberative decision making. Bristol: Policy Press, 2006
20. Calnan M. Commentary: the people know best. Int J Epidemiol 2004;33:1-2
21. Calnan M, Masey H, Horwood J. Public assessment of priorities for research: a citizens' jury. Lancet 2007;369:28
22. Avon Primary Care Research Collaboration. Towards a more caring city: report of the 2006 citizens' jury on the research priorities for Bristol primary health and social care. July 2006. See http://www.apcrc.nhs.uk/citizens- jury.htm (last checked 25March 2008)
23. Gooberman-Hill R, Horwood J, Calnan M. Citizens' juries in planning research priorities: process, engagement and outcome. Health Expect 2008 (in press)
24. Pickard S. Citizenship and consumerism in health care: a critique of citizens' juries. Soc Pol Admin 1998;32:226-45
25. Griffiths KM, Jorm AF, Christensen H, Medway J, Dear KBG. Research priorities in mental health, part 2: an evaluation of the current research effort against stakeholders' priorities. Aust New Zeal J Psychiatr 2002;36:327-39
26. Caron-Flinterman JF, Broerse JEW, Teerling J, Bunders JFG. Patients' priorities concerning research: the case of asthma and COPD research in the Netherlands. Health Expectations 2005;8:253-63
27. Welfare MR, Colligan J, Molyneux S, Pearson P, Barton JR. The identification of topics for research that are important to people with ulcerative colitis. Eur J Gastroenterol Hepatol 2006;18:939-44
28. Telford R, Boote JD, Cooper CL. What does it mean to involve consumers successfully in NHS research? A consensus study. Health Expect 2004;7:209-20
29. Oliver S, Clarke-Jones L, Rees R, et al. Involving consumers in research and development agenda setting for the NHS: developing an evidence-based approach. Health Tech Assess 2004;8:1-148
30. Nilsen ES, Myrhaug HT, Johansen M, Oliver S, Oxman AD. Methods of consumer involvement in developing healthcare policy and research, clinical practice guidelines and patient information material (review). Cochrane Database of Systematic Reviews 2006;3:CD004563
31. Rowe G, Frewer LJ. Public participation methods: a framework for evaluation. Sci Tech Hum Val 2000;25:3-29
32. Oliver SR, Rees RW, Clarke-Jones L, et al. A multidimensional conceptual framework for analyzing public involvement in health services research. Health Expect 2008;11:72-84
33. Owens C, Ley A, Aitken P. Do different stakeholder groups share mental health research priorities? A four arm Delphi study. Health Expect 2008 (in press)
34. Caron-Flinterman JF, Broerse JEW, Bunders JFG. The experiential knowledge of patients: a new resource for biomedical research? Soc Sci Med 2005;60:2575-84