"Public" perceptions of gamete donation: A research review

Public Understanding of Science

Volumn 18, Issue 1, 2009, Pages 61-77

  Hudson, Nicky ^a   Culley, Lorraine ^a   Rapport, Frances ^b   Johnson, Mark ^c   Bharadwaj, Aditya ^d  

^a DE MONTFORT UNIVERSITY   (United Kingdom)

^b SWANSEA UNIVERSITY   (United Kingdom)

^c Mary Seacole Research Centre   (United Kingdom)

^d UNIVERSITY OF EDINBURGH   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; DONOR; FEMALE; HUMAN; INFERTILITY; MALE; OOCYTE DONATION; PSYCHOLOGICAL ASPECT; PUBLIC OPINION; SPERMATOZOON; UNITED KINGDOM;

FEMALE; GREAT BRITAIN; HUMANS; INFERTILITY; MALE; OOCYTE DONATION; PUBLIC OPINION; SPERMATOZOA; TISSUE DONORS;

EID: 57049114415     PISSN: 09636625     EISSN: 13616609     Source Type: Journal    
DOI: 10.1177/0963662507078396     Document Type: Article

References (82)

1. Ahmed, S., Hussain, M. and Vournas, G. (2001) " Consultation with 'Hidden' and Hard-to-Reach Groups: Methods, Techniques and Research Practice, " paper presented to "Consulting Hard to Reach Groups; Laria Seminar," Aston Business School, 15 November. URL: http://www.laria.gov.uk/ content/features/68/feat1.htm (accessed 5 March 2004 ).
2. Anthias, F. (2002) " Where Do I Belong? Narrating Collective Identity and Translocational Positionality, " Ethnicities 2 (4). 491-514.
3. Baluch, B., Fallone, A., Anderson, R., Furnham, A. and Mansour Aghssa, M. (1994 a) " Women's Attitude to Egg Donation and Sperm Donation: A Cross Cultural Study, " Psychology: A Journal of Human Behavior 31 (3-4). 5-8.
4. Baluch, B., Fallone, A. and Khan, J. (1994 b) " Gender Differences and Personality Correlates in Attitudes towards Controversial Aspects of Human Reproduction, " Journal of Social Behavior and Personality 9 (2). 329-34.
5. BBC News (2003) " Doctors Debate Paid Organ Donors, " URL: http://news.bbc.co.uk/1/hi/health/3287341.stm (accessed 21 November 2006 ).
6. BBC News (2006) " IVF Donor Sperm Shortage Revealed, " URL: http://news.bbc.co.uk/1/hi/health/5341982.stm (accessed 30 November 2006 ).
7. Beck, U. (1992) Risk Society: Towards a New Modernity. London: SAGE.
8. Becker, G., Butler, A. and Nachtigall, R. (2005) " Resemblance Talk: A Challenge for Parents whose Children were Conceived with Donor Gametes in the US, " Social Science and Medicine 61: 1300-9.
9. Bharadwaj, A. (2003) " Why Adoption is not an Option in India: the Visibility of Infertility, the Secrecy of Donor Insemination, and other Cultural Complexities, " Social Science and Medicine 56: 1867-80.
10. Blyth, E. and Landau, R. (2004) Third Party Assisted Conception across Cultures: Social, Legal and Ethical Perspectives. London: Jessica Kingsley.
11. Bolton, V., Golombok, S., Cook, R. and Rust, J. (1991) " A Comparative Study of Attitudes towards Donor Insemination and Egg Donation in Recipients, Potential Donors and the Public, " Journal of Psychosomatic Obstetrics and Gynecology 12: 217-28.
12. Child (2003) CHILD Quick Survey: Donor Anonymity Questions. Unpublished survey results.
13. Chliaoutakis, J. (2002) " A Relationship between Traditionally Motivated Patterns and Gamete Donation and Surrogacy in Urban Areas of Greece, " Human Reproduction 17 (8). 2187-91.
14. Chliaoutakis, J., Koukouli, S. and Papadakaki, M. (2002) " Using Attitudinal Indicators to Explain the Public's Intention to Have Recourse to Gamete Donation and Surrogacy, " Human Reproduction 17 (11). 2995-3002.
15. Cramond, J. (1998) " Counselling Needs of Patients Receiving Treatment with Gamete Donation, " Journal of Community and Applied Social Psychology 8 (4). 313-21.
16. Culley, L. and Hudson, N. (2006) " Diverse Bodies and Disrupted Reproduction: Infertility and Minority Ethnic Communities in the UK, " International Journal of Diversity in Organisations, Communities and Nations 5 (2). 117-26.
17. Culley, L., Rapport, F., Katbamna, S., Johnson, M. and Hudson, N. (2004) A Study of the Provision of Infertility Services to South Asian Communities. Final Report to NHS Executive Trent. Leicester: De Montfort University.
18. Culley, L., Hudson, N., Rapport, F., Katbamna, S. and Johnson, M. (2006) " British South Asian Communities and Infertility Services, " Human Fertility 9 (1). 37-45.
19. Department of Health (2003) Summary of Responses Received to the Donor Information Consultation: Providing Information about Sperm, Egg and Embryo Donors. URL: http://www.dh.gov.uk/assetRoot/04/07/18/43/04071843.pdf (accessed 16 August 2005 ).
20. Department of Health (2004) " Anonymity to be Removed from Future Sperm, Egg and Embryo Donors, " DoH Press Release, 21 January. URL: http://www.dh.gov.uk/PublicationsAndStatistics/PressReleases/ PressReleasesNotices/fs/en?CONTENT-ID=4070524&chk=jLTlI%2B (accessed 28 July 2004 ).
21. Edwards, J. (1998) " Donor Insemination and 'Public Opinion,' " in K. Daniels and E. Haimes (eds) Donor Insemination: International Social Science Perspectives, pp. 151-72. Cambridge: Cambridge University Press.
22. Edwards, J. (1999) " Explicit Connections: Ethnographic Enquiry in North-West England, " in J. Edwards, S. Franklin, E. Hirsch, F. Price and M. Strathern (eds) Technologies of Procreation: Kinship in the Age of Assisted Conception, pp. 60-85. London: Routledge.
23. Edwards, J. (2002) " Taking 'Public' Understanding Seriously, " New Genetics and Society 21 (3). 315-25.
24. Edwards, J. (2004) " Incorporating Incest: Gamete, Body and Relation in Assisted Conception, " Journal of Royal Anthropological Institute 10: 755-74.
25. Fenton, S. (1999) Ethnicity: Racism, Class and Culture. Basingstoke: Macmillan.
26. Fishburn Hedges / ICM (2004) Donation of Eggs and Sperm UK Survey. Unpublished research results.
27. Giddens, A. (1991) Modernity and Self-Identity: Self and Society in the Late Modern Age. Cambridge: Polity Press.
28. Golombok, S. (1992) " Review: Psychological Functioning in Infertility Patients, " Human Reproduction 7: 208-12.
29. Golombok, S. and Murray, C. (1999) Egg and Semen Donation: A Survey of UK Licensed Centres. Report for the National Gamete Donation Trust. London: City University.
30. Golombok, S., Cook, R., Bish, A. and Murray, C. (1995) " Families Created by the New Reproductive Technologies: Quality of Parenting and Social and Emotional Development of the Children, " Child Development 66 (2). 285-98.
31. Greil, A.L. (1997) " Infertility and Psychological Distress: A Critical Review of the Literature, " Social Science and Medicine 45 (11). 1679-1704.
32. Haimes, E. (1993) " Issues of Gender in Gamete Donation, " Social Science and Medicine 36 (1). 85-93.
33. Hansard Society (2004) Hansard Society Online Consultation on Human Reproductive Technologies and the Law. Commissioned by House of Commons Science and Technology Select Committee. URL: http://www.tellparliament.net/scitech/ documents/sci-tech-report.pdf (accessed 16 August 2005 ).
34. Heitman, E. and Schlachtenhaufen, M. (1996) " The Differential Effects of Race, Ethnicity and Socio-economic Status on Infertility Treatment: Ethical and Policy Issues for Oocyte Donation, " in C.B. Cohen (ed.) New Ways of Making Babies: The Case of Egg Donation, pp. 188-212. Bloomington: Indiana University Press.
35. Hfea (1994) Donated Ovarian Tissue in Embryo Research and Assisted Conception. Report. London: HFEA.
36. Hfea (2004 a) HFEA Code of Practice, 6 th edn. London: HFEA.
37. Hfea (2004 b) " HFEA Welcomes the Removal of Donor Anonymity, " Press Release, 21 January. URL: http://www.hfea.gov.uk/cps/rde/xchg/SID- 3F57D79B-2E25FEFA/hfea/hs.xsl/1033.html (accessed 21 November 2006 ).
38. Hfea (2006 a) The HFEA Guide to Infertility. URL: http://www.hfea.gov.uk/ cps/rde/xbcr/SID-3F57D79B-2E25FEFA/hfea/Section-1-Guide-to-infertility.pdf (accessed 21 November 2006 ).
39. Hfea (2006 b) SEED Report: A Report on the Human Fertilisation & Embryology Authority's Review of Sperm, Egg and Embryo Donation in the United Kingdom. London: HFEA.
40. Hirsch, E. (1999) " Negotiated Limits: Interviews in South-East England, " in J. Edwards, S. Franklin, E. Hirsch, F. Price and M. Strathern (eds) Technologies of Procreation: Kinship in the Age of Assisted Conception, pp. 91-121. London: Routledge.
41. House of Commons Science and Technology Select Committee (2005) Science and Technology Committee 5th Report: Human Reproductive Technologies and the Law. URL: http://www.publications.parliament.uk/pa/cm200405/cmselect/cmsctech/7/ 7i.pdf (accessed 28 March 2005 ).
42. Human Genetics Commission (2006) Making Babies: Reproductive Decisions and Genetic Technologies. London. URL: http://www.hgc.gov.uk/UploadDocs/DocPub/ Document/Making%20Babies%20Report%20-%20final%20pdf.pdf (accessed 28 March 2006 ).
43. Hunter, M., Salter-Ling, N. and Glover, L. (2000) " Donor Insemination: Telling Children about their Origins, " Child Psychology and Psychiatry Review 5 (4). 157-63.
44. Inhorn, M. (2003) Local Babies, Global Science: Gender, Religion, and In Vitro Fertilization in Egypt. London: Routledge.
45. Inhorn, M. (2006) " 'He Won't Be My Son': Middle Eastern Muslim Men's Discourses of Adoption and Gamete Donation, " Medical Anthropology Quarterly 20 (1). 94-120.
46. Irwin, A. and Wynne, B. (1996) Misunderstanding Science? The Public Reconstruction of Science and Technology. Cambridge: Cambridge University Press.
47. Kailasam, C., Sykes, K. and Jenkins, J. (2001) " A Survey of Public Attitudes to Gamete Donation, " Journal of Fertility Counselling 8 (2). 45-8.
48. Kan, A.K., Abdalla, H.I., Ogunyemi, B.O., Korea, L. and Latarche, E. (1998) " A Survey of Anonymous Oocyte Donors: Demographics, " Human Reproduction 13 (10). 2762-6.
49. Kazem, R., Thompson, L.A., Hamilton, M.P.R. and Templeton, A. (1995) " Current Attitudes towards Egg Donation among Men and Women, " Human Reproduction 10 (6). 1543-8.
50. Kerr, A., Cunningham-Burley, S. and Amos, A. (1998 a) " The New Genetics and Health: Mobilizing Lay Expertise, " Public Understanding of Science 7: 41-60.
51. Kerr, A., Cunningham-Burley, S. and Amos, A. (1998 b) " Drawing the Line: an Analysis of Lay People's Discussions about the New Human Genetics, " Public Understanding of Science 7: 113-33.
52. Kirkman, M. (2003) " Egg and Embryo Donation and the Meaning of Motherhood, " Women and Health 38 (2). 1-19.
53. Klock, S.C. and Greenfeld, D.A. (2004) " Parents' Knowledge about the Donors and their Attitudes toward Disclosure in Oocyte Donation, " Human Reproduction 19 (7). 1575-9.
54. Lessor, R., Reitz, K., Balmaceda, J. and Asch, R. (1990) " A Survey of Public Attitudes toward Oocyte Donation between Sisters, " Human Reproduction 5 (7). 889-92.
55. Lorbach, C. (2003) Experiences of Donor Conception: Parents, Offspring and Donors through the Years. London: Jessica Kingsley.
56. Lui, S.C. and Weaver, S.M. (1996) " Attitudes and Motives of Semen Donors and Non-donors, " Human Reproduction 11 (9). 2061-6.
57. Lyall, H., Murray, E., Glasier, A. and Baird, D. (1995) " Donated Ovarian Tissue in Embryo Research and Assisted Conception-the View of Women of Reproductive Age, " Human Reproduction 10 (5). 1242-5.
58. Lyall, H., Gould, G.W. and Cameron, I.T. (1998) " Should Sperm Donors be Paid? A Survey of the Attitudes of the General Public, " Human Reproduction 13 (3). 771-5.
59. McWhinnie, A.M. (2000) " Children from Assisted Reproductive Technology: the Psychological and Ethical Dilemmas, " Early Child Development and Care 163: 13-23.
60. Mason, S., Hussain-Gambles, M., Leese, B., Atkin, K. and Brown, J. (2003) " Representation of South Asian People in Randomised Clinical Trials: Analysis of Trials' Data " British Medical Journal 326 (7 June). 1244-5.
61. Miall, C. (1994) " Community Constructs of Involuntary Childlessness: Sympathy, Stigma and Social Support, " The Canadian Review of Sociology and Anthropology 31 (4). 392-421.
62. Monach, J.H. (1993) Childless: No Choice. The Experience of Involuntary Childlessness. London: Routledge.
63. Murray, C. and Golombok, S. (2003) " To Tell or Not To Tell: the Decision-making Process of Egg-donation Parents, " Human Fertility 6: 89-95.
64. People, Science and Policy Ltd (2004) Choosing the Future: Genetics and Reproductive Decision-making. Final Report completed for Human Genetics Commission, UK. URL: http://www.hgc.gov.uk/UploadDocs/Contents/Documents/ Analysis%20of%20responses%20to%20the%20HGC%20consultation.pdf (accessed 5 September 2005 ).
65. People, Science and Policy Ltd (2006) Report on the Consultation of the Review of the Human Fertilisation and Embryology Act 1990. Prepared for the Department of Health. London: People, Science and Policy Ltd.
66. Philips, Z., Barraza-Llorens, M. and Posnett, J. (2000) " Evaluation of the Relative Cost-effectiveness of Treatments for Infertility in the UK, " European Society of Human Reproduction and Embryology 15 (1). 95-106.
67. Price, F. (1997) " Matchmaking in the Clinic: Gamete Donation and the Management of Difference, " in A. Clarke and E. Parsons (eds) Culture, Kinship and Genes, pp. 218-30. Basingstoke: Palgrave Macmillan.
68. Purdie, A., Peek, J.C., Adair, V. and Graham, F. (1994) " Attitudes of Parents of Young Children to Sperm Donation-implications for Donor Recruitment, " Human Reproduction 9 (7). 1355-8.
69. Reissman, C.K. (2000) " Stigma and Everyday Practices: Childless Women in South India, " Gender and Society 14 (1). 111-35.
70. Rowe, G. and Frewer, L.J. (2000) " Public Participation Methods: A Framework for Evaluation, " Science Technology and Human Values 25 (1). 3-29.
71. Schenker, J.G. (2000) " Women's Reproductive Health: Monotheistic Perspectives, " International Journal of Gynaecology and Obstetrics 70 (1). 77-86.
72. Schenker, J.G. (2005) " Assisted Reproductive Practice: Religious Perspectives, " Reproductive Biomedicine Online 10 (3). 310-19.
73. Simpson, B. (2004) " Impossible Gifts: Bodies, Buddhism and Bioethics in Contemporary Sri Lanka, " Journal of the Royal Anthropological Institute 10: 839-59.
74. Skoog Svanberg, A., Lampic, C., Bergh, T. and Lundkvist, Ö. (2003) " Public Opinion Regarding Oocyte Donation in Sweden, " Human Reproduction 18 (5). 1107-14.
75. Sturgis, P. and Allum, N. (2004) " Science in Society: Re-evaluating the Deficit Model of Public Attitudes, " Public Understanding of Science 13 (1). 55-74.
76. Templeton, A. (2000) " Infertility and the Establishment of Pregnancy-Overview, " British Medical Bulletin 56 (3). 577-87.
77. Throsby, K. (2004) When IVF Fails: Feminism, Infertility and the Negotiation of Normality. Basingstoke: Palgrave Macmillan.
78. Urdapilleta, L., Chillik, C. and Fernandez, D. (2001) " Do Fertile and Infertile People Think Differently about Ovum Donation?, " Journal of Assisted Reproduction and Genetics 18 (1). 1-7.
79. Westlander, G., Janson, P., TCurrency signgnfors, U. and Bergh, C. (1998) " Attitudes of Different Groups of Women in Sweden to Oocyte Donation and Oocyte Research, " Acta Obstetricia et Gynecologica Scandinavica 77 (3). 317-21.
80. Whiteford, L.M. and Gonzalez, L. (1994) " Stigma: the Hidden Burden of Infertility, " Social Science and Medicine 40 (1). 27-36.
81. Wynne, B. (1992 a) " Public Understanding of Science Research: New Horizons or Hall of Mirrors?, " Public Understanding of Science 1 (1). 37-43.
82. Wynne, B. (1992 b) " Misunderstood Misunderstanding: Social Identities and Public Uptake of Science, " Public Understanding of Science 1 (3). 281-304.