Informed consent to healthcare interventions in people with learning disabilities - An integrative review

Journal of Advanced Nursing

Volumn 64, Issue 6, 2008, Pages 549-563

  Goldsmith, Lesley ^a   Skirton, Heather ^a   Webb, Christine ^a  

^a UNIVERSITY OF PLYMOUTH   (United Kingdom)

Author keywords

Cognitive disabilities; Informed consent; Integrative review; Learning disabilities; Nursing

Indexed keywords

ADULT; ATTITUDE TO HEALTH; COGNITIVE DEFECT; HUMAN; INFORMED CONSENT; LEARNING DISORDER; LEGAL ASPECT; MENTAL CAPACITY; MENTAL DEFICIENCY; NEEDS ASSESSMENT; NURSE PATIENT RELATIONSHIP; NURSING; PSYCHOLOGICAL ASPECT; REVIEW;

ADULT; COGNITION DISORDERS; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HUMANS; INFORMED CONSENT; LEARNING DISORDERS; MENTAL COMPETENCY; MENTAL RETARDATION; NEEDS ASSESSMENT; NURSE-PATIENT RELATIONS;

EID: 56849117904     PISSN: 03092402     EISSN: 13652648     Source Type: Journal    
DOI: 10.1111/j.1365-2648.2008.04829.x     Document Type: Review

References (34)

1. Appelbaum P.S. Grisso T. (1988) Assessing patients' capacities to consent to treatment. The New England Journal of Medicine 319 (25 1635 1638.
2. Appelbaum P.S. Roth L.H. (1982) Competency to consent to research: a psychiatric overview. Archives of General Psychiatry 39 (8 951 958.
3. Arscott K., Dagnan D. Kroese B.S. (1998) Consent to psychological research by people with an intellectual disability. Journal of Applied Research in Intellectual Disabilities 11 (1 77 83.
4. Arscott K., Dagnan D. Kroese B.S. (1999) Assessing the ability of people with a learning disability to give informed consent to treatment. Psychological Medicine 29 (6 1367 1375.
5. Arscott K., Kroese B.S. Dagnan D. (2000) A study of the knowledge that people with intellectual disabilities have of their prescribed medication. Journal of Applied Research in Intellectual Disabilities 13, 90 99.
6. Broughton S. (2002) A review of the literature: interventions to maximise capacity to consent and reduce anxiety of women with learning disabilities preparing for a cervical smear test. Health Services Management Research 15, 173 185.
7. Carlson T. (2004) Referrals to a learning disability service and consent to treatment. Learning Disability Review 9 (2 11 17.
8. Cea C.D. Fisher C.B. (2003) Health care decision-making by adults with mental retardation. Mental Retardation 41 (2 78 87.
9. Dean E., Turner S. Cash J. (1998) Assessing the capacity to give consent. Nursing Times 94 (40 58 60.
10. Department of Health (2005) Mental Capacity Act 2005-Summary. Retrieved from http://www.dh.gov.uk/en/Publicationsandstatistics/Bulletins/theweek/ chiefexecutivebulletin/DH_4108436 on 8 September 2008.
11. Dunn A., Kroese B.S., Thomas G., McGarry A. Drew P. (2006) 'Are you allowed to say that?' Using video materials to provide accessible information about psychology services. British Journal of Learning Disabilities 34 (4 215 219.
12. Dye L., Hare D.J. Hendy S. (2007) Capacity of people with intellectual disabilities to consent to take part in a research study. Journal of Applied Research in Intellectual Disabilities 20 (2 168 174.
13. Fisher C.B., Cea C.D., Davidson P.W. Fried A.L. (2006) Capacity of persons with mental retardation to consent to participate in randomized clinical trials. American Journal of Psychiatry 163 (10 1813 1820.
14. Green C. Nicoll L. (2001) Therapeutic caring: a learning disability experience. Complementary Therapies in Nursing & Midwifery 7 (4 180 187.
15. Grisso T. (1986) Evaluating Competencies: Forensic Assessments and Instruments. Plenum Press, New York.
16. Gunn M., Wong J.G., Clare C.H. Holland A.J. (1999) Decision-making capacity. Medical Law Review 7, 269 306.
17. Hart S.L. (1998) Learning disabilities. Learning-disabled people's experience of general hospitals. British Journal of Nursing 7 (8 470 477.
18. Hart S.L. (1999) Meaningful choices: consent to treatment in general health care settings for people with learning disabilities. Journal of Learning Disabilities for Nursing, Health and Social Care 3 (1 20 26.
19. Haw C. Stubbs J. (2005) A survey of off-label prescribing for inpatients with mild intellectual disability and mental illness. Journal of Intellectual Disability Research 49 (11 858 864.
20. Heslop P., Folkes L. Rodgers J. (2005) The knowledge people with learning disabilities and their carers have about psychotropic medication. Learning Disability Review 10 (4 10 18.
21. Hunt C., Flecknor D., King M. Ashman L. (2004) Access to secondary care for people with learning disabilities. Nursing Times 100 (3 34 36.
22. Iqbal Z. (2002) Ethical issues involved in the implementation of a differential reinforcement of inappropriate behaviour programme for the treatment of social isolation and ritualistic behaviour in an individual with intellectual disabilities. Journal of Intellectual Disability Research: JIDR 46 (Pt 1 82 93.
23. Keywood K., Fovargue S. Flynn M. (1999) Best Practice? Health Care Decision-Making By, With and For Adults with Learning Disabilities. National Development Team, Manchester.
24. Kmet L.M., Lee R.C. Cook L.S. (2004) Standard Quality Assessment Criteria for Evaluating Primary Research Papers from a Variety of Fields. Alberta Heritage Foundation for Medical Research. [Online]. Retrieved from http://www.ihe.ca/documents/HTA-FR13.pdf on 8 September 2008.
25. Miles M.B. Huberman A.M. (1994) Qualitative Data Analysis: An Expanded Sourcebook, 2nd edn. Sage Publications Inc., Thousand Oaks, CA.
26. Ministry of Justice (1969) Family Law Reform Act 1969 (c46,s8). HMSO. (Online). Retrieved from http://www.opsi.gov.uk/RevisedStatutes/Acts/ukpga/1969/ cukpga_19690046_en_1 on 8 September 2008.
27. Morris C.D., Niederbuhl J.M. Mahr J.M. (1993) Determining the capability of individuals with mental retardation to give informed consent. American Journal on Mental Retardation 98 (2 263 272.
28. Public Health Resource Unit (2007) Critical Appraisal Skills Programme. 2 January 2007. [Online]. Retrieved from http://www.phru.nhs.uk/Pages/PHD/ resources.htm on 8 September 2008.
29. Suto W.M.I., Clare I.C.H., Holland A.J. Watson P.C. (2005) Capacity to make financial decisions among people with mild intellectual disabilities. Journal of Intellectual Disability Research 49, 199 209.
30. Tuffrey-Wijne I. (2002) The palliative care needs of people with intellectual disabilities: a case study. International Journal of Palliative Nursing 8 (5 222.
31. Tuffrey-Wijne I. (2003) The palliative care needs of people with intellectual disabilities: a literature review. Palliative Medicine 17 (1 55 62.
32. UK Clinical Ethics Network (2006) [Online]. Retrieved from http://www.ethics-network.org.uk/ethical-issues/conscent/introduction on 8 September 2008.
33. Wheeler R. (2006) Gillick or Fraser? A plea for consistency over competence in children. British Medical Journal 332, 807.
34. Wong J.G., Clare C.H., Holland A.J., Watson P.C. Gunn M. (2000) The capacity of people with a 'mental disability' to make a health care decision. Psychological Medicine 30 (2 295 306.