Self-help groups challenge health care systems in the US and UK

Advances in Medical Sociology

Volumn 10, Issue , 2008, Pages 127-150

  Borkman, Thomasina ^a   Munn Giddings, Carol ^a  

^a NONE

Author keywords

[No Author keywords available]

Indexed keywords

EID: 56849116583     PISSN: 10576290     EISSN: None     Source Type: Book Series    
DOI: 10.1016/S1057-6290(08)10007-9     Document Type: Review

References (65)

1. Allsop J., Baggott R., and Jones K. Health consumer groups and the national policy process. In: Henderson S., and Petersen A. (Eds). Consuming health: The commodification of health care (2002), Routledge, London 48-65
2. Allsop J., Jones K., and Baggott R. Health consumer groups in the UK: A new social movement?. In: Brown P., and Zavestoski S. (Eds). Social movements in health (2005), Blackwell Publishing Ltd, Malden, MA 57-76
3. Barnartt S., and Scotch R. Disability protests: Contentious politics 1970-1999 (2001), Gallaudet University Press, Washington, DC
4. Barnes M. Private lives and public policy: The self-organisation of carers in care, communities & citizens (1997), Longman, Harlow
5. Baudrillard J. The consumer society: Myths & structures (1998), Sage, Thousand Oaks, CA
6. Blank R.H., and Burau V. Comparative health policy (2004), Palgrave Macmillan, England
7. Borkman T. Changing sex roles: Consciousness-raising groups as a vehicle of adult resocialization. In: Williams J., Schwartzbaum A., and Caney R. (Eds). Sociological research symposium V (1975), Virginia Commonwealth University, Richmond, VA 296-300
8. Borkman T. Understanding self-help/mutual aid: Experiential learning in the commons (1999), Rutgers University Press, New Brunswick, NJ
9. Borkman T. Self-help groups. In: Burlingame D.F. (Ed). Philanthropy in America: A comprehensive historical encyclopedia Vol. 2 (2004), ABC-Clio, Santa Barbara, CA 428-432
10. Borkman T., Karlsson M., Munn-Giddings C., and Smith L. Self-help organizations and mental health: Case studies of mental health self help organizations in US, England and Sweden (2005), Skondal Institute and University, Stockholm, Sweden
11. Boston Women's Health Book Collective. Our bodies, ourselves: A book by and for women (1971), New England Free Press, Boston, MA
12. Bourgeault I.L., Declercq E., Sandall J., Wrede S., Vanstone M., van Teijlingen E., DeVries R., and Benoit C. Too Posh To Push? Comparative perspectives on maternal request caesarean sections in Canada, the US, the UK and Finland. In: Chambré S., and Goldner M. (Eds). Advances in medical sociology: Patients, consumers and civil society Vol. 10 (2008), Emerald Group Publishing Limited, Bingley, UK 99-123
13. In: Brown P., and Zavestoski S. (Eds). Social movements in health (2005), Blackwell Ltd, Oxford
14. Castillo H., Allen L., and Coxhead N. The hurtfulness of a diagnosis: User research about personality disorder. Mental Health Practice 4 9 (2001) 16-19
15. Chambré S.M. Fighting for our lives: New York's AIDS community and the politics of disease (2006), Rutgers University Press, New Brunswick, NJ
16. Charlton J. Nothing about us without us: Disability oppression and empowerment (1998), University of California Press, Berkeley, CA
17. Chetkovich C., and Kunreuther F. From the bottom up: Grassroots organizations making social change (2006), ILR press, an imprint of Cornell University Press, Ithaca, NY
18. Conrad P., and Schneider J.W. Deviance and medicalization: From badness to sickness (1992), Temple University Press, Philadelphia
19. Croft S., and Beresford P. Getting involved: A practical manual (1993), Open Services Project, London
20. DH - Department of Health. National Health Service and Community Care Act (1990), HMSO, London
21. DH - Department of Health. Carers (Recognition and Services) Act (1995), The Stationery Office, London
22. DH - Department of Health. Living in Britain: Results from the 1998 General Household Survey (1998), The Stationery Office, London
23. DH - Department of Health. National strategy for carers (1999), The Stationery Office, London
24. DH - Department of Health. Requirements for social work training (2002), The Stationery Office, London
25. DH - Department of Health. Patient and public involvement (2003), The Stationery Office, London
26. DH - Department of Health. The expert patients programme (2006), The Stationery Office, London
27. Dill A., and Coury J. Forging a new commons: Self-help associations in Slovenia and Croatia. In: Chambré S., and Goldner M. (Eds). Advances in medical sociology: Patients, consumers and civil society Vol. 10 (2008), Emerald Group Publishing Limited, Bingley, UK 247-271
28. Elsdon K., Reynolds J., and Stewart S. Sharing experience, living and learning: A study of self-help groups (2000), Community Matters, London
29. Epstein S. Impure science: AIDS, activism and the politics of knowledge (1996), University of California Press, Berkeley
30. Finch J. Family obligations and social change (1989), Polity Press, Cambridge
31. Goldstrom I.D., Campbell J., Rogers J.A., Lambert D.B., Blacklow B., Henderson M.J., and Manderscheid R.W. National estimates for mental health mutual support groups, self-help organizations, and consumer-operated services. Administration and Policy in Mental Health and Mental Health Services Research 33 1 (2006) 92-103
32. Greenspan I., and Handy F. From discovery to recovery and beyond: The role of voluntary health sector organizations in the lives of women with breast cancer. In: Chambré S., and Goldner M. (Eds). Advances in medical sociology: Patients, consumers and civil society Vol. 10 (2008), Emerald Group Publishing Limited, Bingley, UK 151-176
33. Halliday M., and Sherwood L. Mental health user/survivor research in UK. A policy briefing (2003), Mental Health Foundation, London
34. Haug M., and Lavin B. Consumerism in medicine: Challenging physician authority (1983), Sage, Beverly Hills, CA
35. Henderson S. Consumerism in the hospital context. In: Henderson S., and Petersen A. (Eds). Consuming health (2002), Routledge, London 105-120
36. In: Henderson S., and Petersen A. (Eds). Consuming health: The commodification of health care (2002), Routledge, London
37. Hess D.J. Medical modernization, scientific research fields and the epistemic politics of health social movements. In: Brown P., and Zavestoski S. (Eds). Social movements in health (2005), Blackwell Publishing Ltd, Oxford 27-30
38. Kennedy M., and Humphreys K. Understanding worldview transformation in members of mutual help groups. In: Lavoie F., Borkman T., and Gidron B. (Eds). Self-help and mutual aid groups (1994), Haworth, New York 181-198
39. Kessler R.C., Mickelson K.D., and Zhao S. Patterns and correlates of self-help group membership in the United States. Social Policy 27 (1997) 27-46
40. Lerner B.H. The breast cancer wars (2001), Oxford University Press, New York, NY
41. Lewis G., and Appleby L. Personality disorder: The patients psychiatrists dislike. British Journal of Psychiatry 153 (1988) 44-49
42. Light D.W. The medical profession and organizational change: From professional dominance to countervailing power. In: Bird C.E., Conrad P., and Fremont A.M. (Eds). Handbook of medical sociology. 5th ed. (2000), Prentice Hall, Upper Saddle River, NJ 201-216
43. Lorig K. Anatormy of a patient education program: Arthritis self-management. Rehabilitation Nursing 7 4 (1982) 16-20
44. Minton H.L. Departing from deviance: A history of homosexual rights and emancipatory science in America (2002), University of Chicago Press, Chicago
45. Morgen S. Into our own hands: The women's health movement in the United States, 1969-1990 (2002), Rutgers University Press, New Brunswick, NJ
46. Munn-Giddings, C. (2003). Mutuality and movement: An exploration of the relationship between self-help/mutual aid and social policy. Unpublished doctoral thesis, Loughborough University, UK.
47. Munn-Giddings C., and McVicar A. Self-help groups as mutual support: What do carers value?. Health and Social Care in the Community 15 1 (2007) 26-34
48. Rappaport J. Narrative studies, personal stories, and identity transformation in the mutual help context. Journal of Applied Behavioral Science 29 2 (1993) 239-256
49. Rappaport J., Seidman E., Toro P.A., McFadden L.S., Reischl T.M., Roberts L.J., Salem D.A., Stein C.H., and Zimmerman M.A. Collaborative research with a mutual help organization. Social Policy Winter, 15 (1985) 13-24
50. Reid M., and Clark A. The active citizen works hard: Living with chronic heart failure. In: Henderson S., and Petersen A. (Eds). Consuming health: The commodification of health care (2002), Routledge, London 121-139
51. Roberts L.J., Salem D., Rappaport J., Toro P., Luke A., Douglas A., and Seidman E. Giving and receiving help: Interpersonal transactions in mutual-help meetings and psychosocial adjustment of members. American Journal of Community Psychology 27 6 (1999) 841-868
52. Room R. Healing ourselves and our planet: The emergence and nature of a generalized twelve-step consciousness. Contemporary Drug Problems 19 Winter (1992) 717-740
53. Room R., and Greenfield T. Alcoholics Anonymous, other 12-step movements and psychotherapy in the US population, 1990. Addiction 88 4 (1993) 555-562
54. Rutherford M., and Gallo-Cruz S. Selling the ideal birth: Rationalization and re-enchantment in the marketing of maternity care. In: Chambré S., and Goldner M. (Eds). Advances in medical sociology: Patients, consumers and civil society Vol. 10 (2008), Emerald Group Publishing Limited, Bingley, UK 75-98
55. Salamon L.M., and Anheier H.K. The emerging nonprofit sector: An overview (1996), Manchester University Press, Manchester
56. Salem D.A., Seidman E., and Rappaport J. Community treatment of the mentally ill: The promise of mutual-help organizations. Social Work 33 5 (1988) 403-408
57. SAMSHA - Substance Abuse and Mental Health Services Administration. (2006). Results from the 2005 National Survey on Drug Use and Health: National Findings. Office of Applied Studies, NSDUH Series H-30, DHHS Publication No. SMA 06-4194. Rockville, MD.
58. Smith D.H. Grassroots associations (2000), Sage, Thousand Oaks, CA
59. Staples L., and Stein R. The clubhouse model: Mental health consumer-provider partnerships for recovery. In: Chambré S., and Goldner M. (Eds). Advances in medical sociology: Patients, consumers and civil society Vol. 10 (2008), Emerald Group Publishing Limited, Bingley, UK 177-196
60. Starr P. The social transformation of American medicine (1982), Basic Books, New York
61. Sulik G.A., and Eich-Krohm A. No longer a patient: The social construction of the medical consumer. In: Chambré S., and Goldner M. (Eds). Advances in medical sociology: Patients, consumers and civil society Vol. 10 (2008), Emerald Group Publishing Limited, Bingley, UK 3-28
62. Tuohy C.H. Accidental logics: The dynamics of change in the health care arena in the United States, Britain, and Canada (1999), Oxford University Press, New York, NY
63. Weitz R. The sociology of health, illness, and health care: A crticial approach. 3rd ed. (2004), Wadsworth/Thompson Learning, Belmont, CA
64. World Health Organization. (2007). Countries data and statistics. Accessed on February 24, 2008. Available at www.who.int/countries
65. Wuthnow R. Sharing the journey: Support groups and America's new quest for community (1994), Free Press, New York