Enhancing psychosocial care for people with cancer in rural communities: What can remote counselling offer?

Australian Health Review

Volumn 32, Issue 3, 2008, Pages 423-438

  Shepherd, Louise ^a,b   Goldstein, David ^b   Olver, Ian ^c   Parle, Michael ^d  

^a UNIVERSITY OF NEW SOUTH WALES   (Australia)

^b PRINCE OF WALES HOSPITAL   (Australia)

^c CANCER COUNCIL AUSTRALIA   (Australia)

^d St Vincent's Private Hospital   (Australia)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; COUNSELING; EMPIRICAL RESEARCH; HEALTH CARE DELIVERY; HEALTH SERVICES RESEARCH; HUMAN; INTERNET; METHODOLOGY; NEOPLASM; PSYCHOLOGICAL ASPECT; RURAL HEALTH CARE; TELECONSULTATION; VIDEOCONFERENCING;

COUNSELING; EMPIRICAL RESEARCH; HEALTH SERVICES ACCESSIBILITY; HEALTH SERVICES RESEARCH; HUMANS; INTERNET; NEOPLASMS; REMOTE CONSULTATION; RURAL HEALTH SERVICES; VIDEOCONFERENCING;

EID: 56849089478     PISSN: 01565788     EISSN: 14498944     Source Type: Journal    
DOI: 10.1071/AH080423     Document Type: Article

References (106)

1. Kissane DW, Clarke DM, Ikin J, et al. Psychological morbidity and quality of life in Australian women with early-stage breast cancer: a cross-sectional survey. Med J Aust 1998; 169: 192-6.
2. Kissane DW, Grabsch B, Love A, et al. Psychiatric disorder in women with early stage and advanced breast cancer: a comparative analysis. Aust NZ J Psychiatry 2004; 38: 320-26.
3. Parle M, Jones B, Maguire P. Maladaptive coping and affective disorders among cancer patients. Psychol Med 1996; 26: 735-44.
4. Fawzy FI, Fawzy NW, Arndt LA, et al. Critical review of psychosocial interventions in cancer care. Arch Gen Psychiatry 2005; 52: 100-135.
5. Kissane DW, Love A, Hatton A, et al. Effect of cognitive-existential group therapy on survival in early-stage breast cancer. J Clin Oncol 2004; 22: 1-6.
6. National Breast Cancer Centre and National Cancer Control Initiative. Clinical practice guidelines for the psychosocial care of adults with cancer. Sydney: National Breast Cancer Centre, 2003.
7. Newell SA, Sanson-Fisher RW, Savolainen NJ. Systematic review of psychological therapies for cancer patients: overview and recommendations for future research. J Natl Cancer Inst 2002; 94: 558-84.
8. Rehse B, Pukrop R. Effects of psychosocial interventions on quality of life in adult cancer patients: meta analysis of 37 published controlled outcome studies. Patient Educ Couns 2003; 179-86.
9. Sheard T, Maguire P. The effect of psychological interventions on anxiety and depression in cancer patients: results of two meta-analyses. Br J Cancer 1999; 80: 1770-80.
10. Rankin N. The challenges of implementing evidence-based psychosocial care: initiatives of the Cancer Institute, NSW. Clinical Oncological Society of Australia, 31st Annual Scientific Meeting; Nov 2004; Canberra.
11. Australian Bureau of Statistics. Australian social trends. Canberra: ABS, 2003. (ABS Cat. No. 4102.0.)
12. Department of Health and Aged Care. Accessibility/Remoteness Index of Australia. Canberra: The Department, Mar 1999. (New Occasional Papers Series No. 6.)
13. Simpson S, Deans G, Brebner E. The delivery of a tele-psychology service to Shetland. Clin Psychol Psychother 2001; 8: 130-35.
14. Williams N, Shucksmith M, Edmond H, et al. Scottish rural life an update: a revised socioeconomic profile of rural Scotland. A report carried out on behalf of the Scottish Executive, The Scottish Office, Edinburgh, 1999.
15. Canadian Medical Association. Report of the advisory panel on the provision of medical services in underserviced regions. Ottawa: CMA, 1992.
16. Jensen GM, Royeen CB. Improved rural access to care: dimensions of best practice. J Interprof Care 2002; 16: 117-28.
17. Office of Rural Health Policy. Healthy people 2010: a companion document for rural areas. College Station, Texas: Southwest Rural Health Research Centre, 2005.
18. Statistics Canada: Censuses of population, 1851-2001. Available at: http://www40.statcan.ca/cbin/sf01.cgi?dtype=fina&lan=eng&se=rural (accessed Jun 2008).
19. Clavarino AM, Lowe JB, Carmont SA, et al. The needs of cancer patients and their families from rural and remote areas of Queensland. Aust J Rural Health 2002; 10: 188-95.
20. Jong KE, Smith DP, Yu XQ, et al. Remoteness of residence and survival from cancer in New South Wales. Med J Aust 2004; 180: 618-22.
21. Kmietowicz Z. Health of people in rural parts of Britain is being neglected. BMJ 2005; 330: 216.
22. Fox JC, Blank M, Rovnyak VG, et al. Barriers to help seeking for mental disorders in a rural impoverished population. Community Mental Health J 2001; 37: 421-36.
23. Girgis A, Boyes A, Sanson-Fisher RW, et al. Perceived needs of women diagnosed with breast cancer: rural versus urban location. Aust N Z J Public Health 2000; 24: 166-73.
24. Sanson-Fisher R, Girgis A, Boyes A, et al. The unmet supportive care needs of patients with cancer. Supportive Care Review Group. Cancer 2000; 88: 226-37.
25. Koopman C, Angell K, Turner-Cobb JM, et al. Distress, coping, and social support among rural women recently diagnosed with primary breast cancer. Breast J 2001; 7: 25-33.
26. Davis C, Williams P, Parle M, et al. Assessing the support needs of women with early breast cancer in Australia. Cancer Nurs 2004; 27: 169-74.
27. Hill D, Jamrozik K, White V, et al. Surgical management of breast cancer in Australia in 1995. Sydney: National Breast Cancer Centre, 1999.
28. Baltic TE, Whedon MB, Fanciullo G. Improving pain relief in a rural cancer center. Cancer Pract 2002; 10: s39-s44.
29. van den Bos GAM. The burden of chronic diseases in terms of disability, use of health care and healthy life expectancies. Eur J Public Health 1996; 5: 29-34.
30. Marcus AC, Garrett KM, Kulchak-Rahm A, et al. Telephone counseling in psychosocial oncology: a report from the Cancer Information and Counseling Line. Patient Educ & Couns 2002; 46: 267-75.
31. Urbis Keys Young. National review of tele counselling and web counselling services: final report. Canberra: Australian Department of Health and Ageing, 2003.
32. Christensen H, Hocking B, Smith D. Web and telecounseling in Australia. Med J Aust 2004; 180: 604-5.
33. Allen SM, Shah AC, Nezu AM, et al. A problem-solving approach to stress reduction among younger women with breast carcinoma: a randomized controlled trial. Cancer 2002; 94: 3089-100.
34. Bennett JA, Lyons KS, Winters-Stone K, et al. Motivational interviewing to increase physical activity in long-term cancer survivors: a randomised controlled trial. Nurs Res 2007; 56: 18-27.
35. Pitceathly C, Maguire P, Fletcher I, et al. Preventing psychological morbidity among newly diagnosed cancer patients. Paper presented at inaugural meeting. Glasgow; European Federation of Psychosocial Oncology Societies; 11-12 Sep 2003.
36. Hilty DM, Marks SL, Urness D, et al. Clinical and educational telepsychiatry applications: a review. Can J Psychiatry 2004; 49: 12-23.
37. Wootton R, Yellowlees P, McLaren P. Telepsychiatry and E-mental health. London: Royal Society of Medicine Press, 2003.
38. McLaren P. Telemedicine and telecare: what can it offer mental health services? Adv Psychiatric Treatment 2003; 9: 54-61.
39. Monnier J, Knapp RG, Frueh BC. Recent advances in telepsychiatry: an updated review. Psychiatr Serv 2003; 54: 1604-9.
40. Rees CS, Haythornthwaite S. Telepsychology and videoconferencing: Issues, opportunities and guidelines for psychologists. Aust Psychologist 2004; 39: 212-19.
41. Rohland BM, Saleh SS, Rohrer JE, et al. Acceptability of telepsychiatry to a rural population. Psychiatr Serv 2000; 51: 672-4.
42. Simpson J, Doze S, Urness D, et al. Evaluation of a routine telepsychiatry service. J Telemed Telecare 2001; 7: 90-8.
43. Laszlo JV, Esterman G, Zabko S. Therapy over the Internet? Theory, research and finances. CyberPsychology and Behaviour 1999; 2: 293-307.
44. Rochlen AB, Zack JS, Speyer C. Online therapy: review of relevant definitions, debates, and current empirical support. J Clin Psychol 2004; 60: 269-83.
45. Eysenbach G, Powell J, Englesakis M, et al. Health related virtual communities and electronic support groups: systematic review of the effects of online peer to peer interactions. BMJ 2004; 328: 1166.
46. Poe MR, DeVore LM. Using the telephone for cancer information. Cancer Pract 1996; 4: 47-49.
47. Vann MJ, Darling E, Dickens C. The experience and impact of contacting a cancer information service. Euro J Cancer Care 1996; 5: 38-42.
48. Livingston P, White V, Hayman J, et al. How acceptable is a referral and telephone-based outcall programme for men diagnosed with cancer? A feasibility study. Euro J Cancer Care 2006; 15: 467-75.
49. Barlow JH, Ellard DR, Hainsworth JM, et al. A review of self-management interventions for panic disorders, phobias and obsessive-compulsive disorders. Acta Psychiatr Scand 2005; 111: 272-85.
50. den Boer PC, Wiersma D, Van den Bosch RJ. Why is self-help neglected in the treatment of emotional disorders? A meta-analysis. Psychol Med 2004; 34: 959-71.
51. Hutchison SD, Steginga SK, Dunn J. The tiered model of psychsocial intervention in cancer: a community based approach. Psycho-Oncology 2006; 15:541-46.
52. Marcus AC, Cella D, Sedackek S. Psychosocial counselling of cancer patients by telephone: a brief note on patient acceptance of an outcall strategy. Psycho-Oncology 1993; 2: 209-14.
53. Gotay CC, Bottomley A. Providing psycho-social support by telephone: what is its potential in cancer patients? Euro J Cancer Care 1998; 7: 225-31.
54. Hagopian GA, Rubenstein JH. Effects of telephone call interventions on patients' well-being in a radiation therapy department. Cancer Nurs 1990; 13: 339-44.
55. Sandgren AK, McCaul KD. Short-term effects of telephone therapy for breast cancer patients. Health Psychology 2003; 22: 310-5.
56. Garrett KM, Marcus AC, Cella D, et al. Can telephone counseling reduce distress, depression and sexual dysfunction post treatment? Results of a randomised controlled trial. Banff, Canada; Sixth World Congress in Psycho-Oncology; 23-27 Apr 2003.
57. Marcus AC, Garrett KM, Cella D, et al. Telephone counseling of breast cancer patients after treatment: a description of a randomized clinical trial. Psycho-Oncology 1998; 7: 470-82.
58. Donnelly JM, Kornblith AB, Fleishman S, et al. A pilot study of interpersonal psychotherapy by telephone with cancer patients and their partners. Psycho-Oncology 2000; 9: 44-56.
59. Heiney SP, McWayne J, Hurley TG, et al. Efficacy of therapeutic group by telephone for women with breast cancer. Cancer Nurs 2003; 26: 439-47.
60. Olver I, Brooksbank M, Champion N, et al. The use of videophones to enhance palliative care outreach nursing in remote areas. Prog Pall Care 2005; 13: 263-7.
61. Olver I, Selva-Nayagam S. Evaluation of a telemedicine link between Darwin and Adelaide to facilitate cancer management. Telemed J 2000; 6: 213-18.
62. Collie K, Kreshka MA, Ferrier S, et al. Videoconferencing for delivery of breast cancer support groups to women living in rural communities: a pilot study. Psycho-Oncology 2007; 16: 778-82.
63. Cluver JS, Schuyler D, Frueh BC, et al. Remote psychotherapy for terminally ill cancer patients. J Telemed Telecare 2005; 11: 157-9.
64. Shepherd L, Goldstein D, Whitford H, et al. The utility of videoconferencing to provide innovative delivery of psychological treatment for rural cancer patients: results of a pilot study. J Pain Symptom Manage 2006; 32: 453-61.
65. Gelber H, Alexander M. An evaluation of an Australian videoconferencing project for child and adolescent telepsychiatry. J Telemed Telecare 1999; 5: S21-3.
66. Ruskin PE, Reed SA, Kumar R, et al. Reliability and acceptability of psychiatric diagnosis via telecommunication and audiovisual technology. Psychiatr Serv 1998; 49: 1086-8.
67. Ruskin PE, Silver-Aylaian M, Kling MA, et al. Treatment outcomes in depression: comparison of remote treatment through telepsychiatry to in-person treatment. Am J Psychiatry 2004; 161: 1471-6.
68. Simpson S, Knox J, Mitchell D, et al. A multidisciplinary approach to the treatment of eating disorders via videoconferencing in north-east Scotland. J Telemed Telecare 2003; 9: S37-8.
69. Freir V, Kirkwood K, Peck D, et al. Telemedicine for clinical psychology in the Highlands of Scotland. J Telemed Telecare 1999; 5: 157-61.
70. NHS Centre for Reviews and Dissemination. Limitations of patient satisfaction studies in telehealthcare: a systematic review of the literature. Telemed J E-Health 2001; 7: 293-316.
71. Tanriverdi H, Iacono CS. Diffusion of telemedicine: a knowledge barrier perspective. Telemed J 1999; 5: 223-44.
72. Whitten P, Kuwahara E. A multi-phase telepsychiatry programme in Michigan: organisational factors affecting utilisation and user perceptions. J Telemed Telecare 2004; 10: 254-61.
73. Rohland BM. Telepsychiatry in the heartland: if we build it, will they come? Community Ment Health J 2001; 37: 449-59.
74. Kopel H, Nunn K, Dossetor D. Evaluating satisfaction with a child and adolescent psychological telemedicine outreach service. J Telemed Telecare 2001; 7: 35-40.
75. Simpson S. The provision of a telepsychology service to Shetland: client and therapist satisfaction and the ability to develop a therapeutic alliance. J Telemed Telecare 2001; 7: 34-6.
76. Hilty DM, Nesbitt TS, Kuenneth TA. Development of a successful telepsychiatry program: a look at the first 200 consultations at UC Davis [poster]. Academy of Psychosomatic Medicine; Palm Springs, CA; 16-19 Nov 2000.
77. Finch T, May C, Mair F, et al. Integrating service development with evaluation in telehealthcare: an ethnographic study. BMJ 2003; 327: 1205-9.
78. Frueh BC, Deitsch SE, Santos AB, et al. Procedural and methodogical issues in telepsychiatry research and program development. Psychiatr Serv 2000; 51: 1522-7.
79. Helft PR. Breast cancer in the information age: a review of recent developments. Breast Disease 2004; 21: 41-6.
80. LaCoursiere SP. Cancer patients' self-reported attitudes about the Internet. J Med Internet Res 2005; 7: e22.
81. Owen JE, Klapow JC, Roth DL, et al. Improving the effectiveness of adjuvant psychological treatment for women with breast cancer: the feasibility of providing online support. Psycho-Oncology 2004; 13: 281-92.
82. Weinberg N, Uken JS, Schmale J. Therapeutic factors: their presence in a computer-mediated support group. Soc Work Groups 1995; 17: 43-54.
83. Walther JB. Computer mediated communication: Impersonal, interpersonal, and hyperpersonal interaction. Communication Res 1996; 23: 3-43.
84. Eysenbach G. The impact of the Internet on cancer outcomes. CA: Cancer J Clin 2003; 53: 356-71.
85. Klemm P, Hardie T. Depression in Internet and face-to-face cancer support groups: a pilot study. Oncol Nurs Forum 2002; 29: E45-51.
86. Gustafson D, Wise M, McTavish F, et al. Development and pilot evaluation of a computer-based support system for women with breast cancer. J Psychosoc Oncol 1993; 11: 69-93.
87. Gustafson DH, McTavish FM, Stengle W, et al. Use and impact of eHealth system by low-income women with breast cancer. J Health Commun 2005; 10 Suppl 1: 195-218.
88. Shaw BR, Hawkins R, Arora N, et al. An exploratory study of predictors of participation in a computer support group for women with breast cancer. Comput Inform Nurs 2006; 24: 18-27.
89. Shaw BR, McTavish F, Hawkins R, et al. Experiences of women with breast cancer: exchanging social support over the CHESS computer network. J Health Commun 2006; 5: 135-59.
90. Gustafson DH, Hawkins R, Pingree S, et al. Effect of computer support on younger women with breast cancer. J Gen Intern Med 2001; 16: 435-45.
91. Winzelberg AJ, Classen C, Alpers GW, et al. Evaluation of an Internet support group for women with primary breast cancer. Cancer 2003; 97: 1164-73.
92. Lieberman MA, Golant M, Giese-Davis J, et al. Electronic support groups for breast carcinoma: a clinical trial of effectiveness. Cancer 2003; 97: 920-5.
93. Winefield HR, Coventry BJ, Lambert V. Setting up a health education website: practical advice for health professionals. Patient Educ Couns 2004; 53: 175-82.
94. Carlbring P, Andersson G. Internet and psychological treatment. How well can they be combined? Computers in Human Behaviour 2006; 22: 545-53.
95. Proudfoot J, Goldberg D, Mann A, et al. Computerized, interactive, multimedia cognitive-behavioural program for anxiety and depression in general practice. Psychol Med 2003; 33: 217-27.
96. Andersson G, Bergstrom J, Hollandare F, et al. Internet-based self-help for depression: a randomised controlled trial. Br J Psychiatry 2005; 187: 456-61.
97. Griffiths KM, Christensen H. Review of randomised controlled trials of Internet interventions for mental disorders and related conditions. Clin Psychologist 2006; 10: 16-29.
98. Christensen H, Griffiths KM, Jorm AF. Delivering interventions for depression by using the Internet: randomised controlled trial. BMJ 2004; 328: 265.
99. Andersson G, Bergstrom J, Hollandare F, et al. Delivering cognitive behavioural therapy for mild to moderate depression via the Internet: predicting outcome at 6-month follow-up. Verhaltenstherapie 2004; 14: 185-189.
100. Carlbring P, Ekselius L, Andersson G. Treatment of panic disorder via the Internet: a randomized trial of CBT vs. applied relaxation. J Behav Ther Exp Psychiatry 2003; 34: 129-40.
101. Andersson G, Carlbring P, Holmström A, et al. Internet-based self-help with therapist feedback and in vivo group exposure for social phobia: a randomized controlled trial. J Consult Clin 2006; 74: 677-86.
102. Carlbring P, Nilsson-Ihrfelt E, Waara J, et al. Treatment of panic disorder: live therapy vs. self-help via the Internet. Behav Res Ther 2005; 43: 1321-33.
103. Kaltenthaler E, Parry G, Beverley C. Computerized cognitive behaviour therapy: a systematic review. Behav Cogn Psychother 2004; 32: 31-55.
104. Shapiro DA, Barkham M, Stiles WB, et al. Time is of the essence: a selective review of the fall and rise of brief therapy research. Psychol Psychother 2003; 76: 211-35.
105. Coleman EA, Tulman L, Samarel N, et al. The effect of telephone social support and education on adaptation to breast cancer during the year following diagnosis. Oncol Nurs Forum 2005; 32: 822-9.
106. Campbell L, Keefe FJ, Scipio C, et al. Facilitating research participation and improving quality of life for African American prostate cancer survivors and their intimate partners. Cancer 2007; 109(2 Suppl): 414-24.