Evaluating the impact of involving young people in developing children's services in an acute hospital trust

Journal of Clinical Nursing

Volumn 17, Issue 23, 2008, Pages 3115-3122

  Coad, Jane ^c   Flay, Julia ^a   Aspinall, Mandy ^a   Bilverstone, Ben ^b   Coxhead, Elodie ^d   Hones, Becky ^d  

^a UNIVERSITY HOSPITALS COVENTRY AND WARWICKSHIRE NHS TRUST   (United Kingdom)

^b University Hospital   (United States)

^c UNIVERSITY OF THE WEST OF ENGLAND   (United Kingdom)

^d University of the West of England ^*

Author keywords

Healthcare service development; Nurses; Nursing; Participation; Patient and public involvement; Youth council

Indexed keywords

ADOLESCENT; ARTICLE; CHILD; CHILD HEALTH CARE; EVALUATION; FEMALE; HUMAN; MALE; NATIONAL HEALTH SERVICE; ORGANIZATION AND MANAGEMENT; PATIENT PARTICIPATION; UNITED KINGDOM;

ADOLESCENT; CHILD; CHILD HEALTH SERVICES; FEMALE; GREAT BRITAIN; HUMANS; MALE; PATIENT PARTICIPATION; STATE MEDICINE;

EID: 56349137262     PISSN: 09621067     EISSN: 13652702     Source Type: Journal    
DOI: 10.1111/j.1365-2702.2008.02634.x     Document Type: Article

References (29)

1. Alderson P Morrow G (2005) Ethics, Social Research and Consulting with Children and Young People. Barnardo's, London.
2. Badham B Wade H (2005) Hear by Right: Standards for the Active Involvement of Children and Young People, revised edn. National Youth Agency/Local Government Association, Leicester, UK.
3. Bekker H, Thornton JG, Airey CM, Connelly JB, Hewison J, Robinson MB, Lilleyman J, Maclntosh M, Maule AJ, Michie S Pearman AD (1999) Informed decision making: an annotated bibliography and systematic review. Health Technology Assessment 3.
4. Boylan P (2004) Children's Voices Project: Feedback from Children and Young People About Their Experiences and Expectations of Healthcare. Commission for Health Improvement. Department of Health. Available at: http://www. healthcarecommission.org.uk/_db/_documents/04012717.pdf (accessed 7 October 2008).
5. Braye S (2000). User involvement and participation in social care: an overview, Chapter 1. In User Involvement and Participation in Social Care: Research Informing Practice (Kemshall H Littlechild R eds). Jessica Kingsley, London, pp. 9 28.
6. Cavet J Sloper P (2004a) The participation of children and young people in decisions about UK service development. Child: Care, Health and Development 30, 613 621.
7. Cavet J Sloper P (2004b) Participation of disabled children in individual decisions about their lives and in public decisions about service development. Children and Society 18, 278 290.
8. Coad J Coad N (2008) Children and young people's preference of thematic design and colour for their hospital environment. British Journal of Child Health 12, 33 48.
9. Coad J Houston R (2007) Involving Children and Young People in the Decision Making Processes of Healthcare Service. A Literature Review. Action for Sick Children, London. ISBN 0904076458.
10. Coad N, Coad J Thiebe L (2006) Through Children's Eyes: An Exploratory Study into Children and Parent's Views of Their Hospital Environment. Available from the 1st author.
11. Cohen J Emanuel J (1998) Positive Participation. Consulting and Involving Young People in Health-Related Work: A Planning and Training Resource. Health Development Agency, London.
12. Curtis K, Liabo K, Roberts H Barker M (2004) Consulted but not heard: a qualitative study of young people's views of their local health service. Health Expectations 7, 149 159.
13. Department of Education and Skills (DfES) (2004) Every Child Matters. Green Paper. DfES, London.
14. Department of Health (DH) (2004) The National Service Framework for Children, Young People and Maternity Services. DH Publications, London.
15. Department of Health (DH) (2006) Our Health, Our Care, Our Say. DH Publications, London.
16. Evans R, Clisby S, Alsop R Craig G (2002). Does Youth Action Pay? An Evaluation of Action Pays. National Council for Voluntary Youth Services/Changemakers Foundation, London.
17. Fajerman L (2001) Children Are Service Users Too: A Guide for Consulting Children and Young People. Save the Children, London.
18. Fajerman L, Jarrett M Sutton E (2000) Children as Partners in Planning: A Training Resource to Support Consultation with Children. Save the Children, London.
19. Gibson F, Richardson A, Hey S Horstman M (2006) Listening to CYP with cancer. Unpublished. Sent to MacMillan. Available from the 1st author.
20. Kirby P Bryson S (2002) Measuring the Magic: Evaluating and Researching Young People's Participation in Public Decision-Making. Carnegie Young People Initiative, London.
21. Kirby P, Lanyon C, Cronin K Sinclair R (2003) Building a Culture of Participation - Involving Children and Young People in Policy, Service Planning, Delivery and Evaluation. Research report. DfES/0827/2003. DfES Publications, Nottingham.
22. Lightfoot J Sloper P (2002). Having a say in health: involving young people with a chronic illness or physical disability in local health services development. Children and Society 17, 277 290.
23. Moss P Petrie P (2002) From Children's Services to Children's Spaces. Routledge, London.
24. National Health Service Reform and Health Professions Act (2002) Published by Office of Public Sector Information (OPSI). Available at: http://www.opsi.gov.uk/acts/acts2002/ukpga_2002017_en_1 (accessed 7 October 2008).
25. Percy-Smith B Walsh D (2006) Improving Services for Children and Families: Listening and Learning, Report from a Systemic Action Inquiry Evaluation Process. Children's Fund Northamptonshire/SOLAR, Northampton.
26. Roaf C Lloyd C (1995) Multi-Agency Work with Young People in Difficulty, Findings: Social Care Research 68, June 1995, Joseph Rowntree Foundation, York.
27. Tates K Meeuwesen L (2001) Doctor-parent-child communication: a (re)view of the literature. Social Science and Medicine 52, 839 851.
28. Viner RM Barker M (2005) Young people's health: the need for action. British Medical Journal 330, 901 903.
29. Young B, Dixon-Woods M, Windridge KC Heney D (2003) Managing communication with young people who have a potentially life threatening chronic illness: qualitative study of patients and parents. British Medical Journal 325, 305 309.