A specialist nurse as a resource for family members to patients with brain tumors: An action research study

Cancer Nursing

Volumn 31, Issue 4, 2008, Pages

  Spetz, Agneta ^a   Henriksson, Roger ^a   Salander, Pär ^a  

^a UMEÅ UNIVERSITY   (Sweden)

Author keywords

Action research; Brain tumor; Specialist nurse; Spouse; Support

Indexed keywords

ACTION RESEARCH; ADULT; AGED; ARTICLE; CLINICAL ARTICLE; CLINICAL EVALUATION; CLINICAL FEATURE; DISEASE COURSE; EMOTION; EXPERIENCE; FAMILY; FEMALE; GLIOBLASTOMA; HEALTH CARE NEED; HEALTH EDUCATION; HUMAN; INTERVIEW; MALE; MEDICAL CARE; MEDICAL INFORMATICS; NURSE; NURSING CARE; PRIORITY JOURNAL; SATISFACTION; SUPPORT GROUP; TELECONSULTATION; ADOLESCENT; BRAIN TUMOR; HEALTH CARE QUALITY; HUMAN RELATION; MIDDLE AGED; NURSE PATIENT RELATIONSHIP; ONCOLOGY NURSING; PROSPECTIVE STUDY; PSYCHOLOGICAL ASPECT; QUALITATIVE RESEARCH; QUESTIONNAIRE; SWEDEN;

ADOLESCENT; ADULT; AGED; BRAIN NEOPLASMS; FAMILY; FEMALE; HUMANS; MALE; MIDDLE AGED; NURSE-PATIENT RELATIONS; ONCOLOGIC NURSING; PROFESSIONAL-FAMILY RELATIONS; PROSPECTIVE STUDIES; QUALITATIVE RESEARCH; QUALITY OF HEALTH CARE; QUESTIONNAIRES; SWEDEN;

EID: 56049094359     PISSN: 0162220X     EISSN: None     Source Type: Journal    
DOI: 10.1097/01.NCC.0000305741.18711.8f     Document Type: Article

References (26)

1. Stupp R, Mason WP, van den Bent MJ, et al. Radiotherapy plus concomitant and adjuvant temozolomide for glioblastoma. N Engl J Med. 2005;352(10):987-996.
2. Salander P, Bergenheim AT, Hamberg K, Henriksson R. Pathways from symptoms to medical care: a descriptive study of symptom development and obstacles to early diagnosis in brain tumour patients. Fam Pract. 1999;16(2):143-148.
3. Levin VA LS, Gutin PH. Neoplasms of the central nervous system. In: Devita VT, Hellman S, Rosenberg SA, eds. Cancer: Principle & Practice of Oncology. Vol 2. Philadelphia, PA: Lippincott Williams & Wilkins; 2001:2100-2160.
4. Winterling J, Wasteson E, Glimelius B, Sjoden PO, Nordin K. Substantial changes in life: perceptions in patients with newly diagnosed advanced cancer and their spouses. Cancer Nurs. 2004;27(5):381-388.
5. Davies E, Higginson IJ. Communication, information and support for adults with malignant cerebral glioma: a systematic literature review. Support Care Cancer. 2003;11(1):21-29.
6. Salander P, Spetz A. How do patients and spouses deal with the serious facts of malignant glioma? Palliat Med. 2002;16(4):305-313.
7. Kahlili Y. Ongoing transitions: the impact of a malignant brain tumour on patient and family. Axon. 2007;28(3):5-13.
8. Curren JR. Support needs of brain tumour patients and their carers: the place of a telephone service. Int J Palliat Nurs. 2001;7(7):331-337.
9. Faithfull S, Cook K, Lucas C. Palliative care of patients with a primary malignant brain tumour: case review of service use and support provided. Palliat Med. 2005;19(7):545-550.
10. Sherwood PR, Given BA, Doorenbos AZ, Given CW. Forgotten voices: lessons from bereaved caregivers of persons with a brain tumour. Int J Palliat Nurs. 2004;10(2):67-75; discussion 75.
11. Carter E, McGoldrick. The Expanded Family Life Cycle: Individual, Family and Social Perspectives. Boston, MA: Pearson Education Co; 2005.
12. Faithfull S, Corner J, Meyer L, Huddart R, Dearnaley D. Evaluation of nurse-led follow up for patients undergoing pelvic radiotherapy. Br J Cancer. 2001;85(12):1853-1864.
13. Cox K, Wilson E. Follow-up for people with cancer: nurse-led services and telephone interventions. J Adv Nurs. 2003;43(1):51-61.
14. Moore S, Corner J, Haviland J, et al. Nurse led follow up and conventional medical follow up in management of patients with lung cancer: randomised trial. BMJ. 2002;325(7373):1145.
15. Sardell S, Sharpe G, Ashley S, Guerrero D, Brada M. Evaluation of a nurse-led telephone clinic in the follow-up of patients with malignant glioma. Clin Oncol (R Coll Radiol). 2000;12(1):36-41.
16. Spetz A, Henriksson R, Bergenheim AT, Salander P. A specialist nurse-function in neuro-oncology: possibilities, limitations and pitfalls. Pall Supp Care. 2005;3(2):121-130.
17. Morton-Cooper A. Action Research in Health Care. Oxford, UK: Blackwell Science; 2000.
18. Oken MM, Creech RH, Tormey DC, et al. Toxicity and response criteria of the Eastern Cooperative Oncology Group. Am J Clin Oncol. 1982;5(6):649-655.
19. Strauss AL. Qualitative Analysis for Social Scientists. New York, NY: Cambridge University Press; 1987.
20. Kallio M, Sankila R, Jaaskelainen J, Karjalainen S, Hakulinen T. A population-based study on the incidence and survival rates of 3857 glioma patients diagnosed from 1953 to 1984. Cancer. 1991;68(6):1394-1400.
21. Salander P. Bad news from the patient's perspective: an analysis of the written narratives of newly diagnosed cancer patients. Soc Sci Med. 2002; 55(5):721-732.
22. Salander P. Brain tumours as a threat to life and personality: the spouse's perspective. J Psychosoc Oncol. 1996;14(3):1-18.
23. Kerlinger F. Foundations of Behavioral Research. London, UK: Holt, Reinhardt and Winston; 1969.
24. Wideheim AK, Edvardsson T, Pahlson A, Ahlstrom G. A family's perspective on living with a highly malignant brain tumor. Cancer Nurs. 2002;25(3):236-244.
25. Bowlby J. A Secure Base. London, UK: Routledge; 1988.
26. Winnicott DW. The Maturational Processes and the Facilitating Environment. New York, NY: International Universities Press; 1984.