Subjective dimensions of patient competence: Relationships with selected healthcare usage behaviors and general features of self-rated competence

Patient Education and Counseling

Volumn 73, Issue 3, 2008, Pages 511-518

  Weis, Joachim ^a   Giesler, Jürgen M ^a  

^a TUMOR BIOLOGY CENTER   (Germany)

Author keywords

Cancer; Complementary medicine; Coping; Empowerment; Oncology; Shared decision making

Indexed keywords

ALTERNATIVE MEDICINE; ARTICLE; COMPETENCE; CONTROLLED STUDY; HEALTH BEHAVIOR; HUMAN; MAJOR CLINICAL STUDY; PATIENT DECISION MAKING; PRIORITY JOURNAL; PSYCHOSOCIAL CARE; QUALITY OF LIFE; SELF CONCEPT;

ADAPTATION, PSYCHOLOGICAL; ASSERTIVENESS; ATTITUDE TO HEALTH; DECISION MAKING; FEMALE; HEALTH BEHAVIOR; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HUMANS; INFORMED CONSENT; LIFE STYLE; MALE; MIDDLE AGED; MODELS, PSYCHOLOGICAL; MULTIVARIATE ANALYSIS; NEEDS ASSESSMENT; NEOPLASMS; PATIENT EDUCATION AS TOPIC; PERSONAL AUTONOMY; PHYSICIAN-PATIENT RELATIONS; QUESTIONNAIRES; REGRESSION ANALYSIS; SELF EFFICACY; SOCIAL SUPPORT;

EID: 55949094897     PISSN: 07383991     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.pec.2008.07.010     Document Type: Article

References (72)

1. Charles C.A., Whelan T., Gafni A., Willan A., and Farrel S. Shared decision-making: what does it mean to physicians?. J Clin Oncol 21 (2003) 932-936
2. Charles C., Gafni A., and Whelan T. Shared decision-making in the medical encounter: what does it mean? (Or it takes at least two to tango). Soc Sci Med 44 (1997) 681-692
3. Elwyn G., Edwards A., and Kinnersley P. Shared decision-making in primary care: the neglected second half of the consultation. Br J Gen Pract 49 (1999) 477-482
4. Emanuel E.J., and Emanuel L.L. Four models of the physician-patient relationship. J Am Med Assoc 267 (1992) 2221-2226
5. Edwards A., Elwyn G., Hood K., Atwell C., Robling M., Houston H., Kinnersley P., Russell I, and and the Study Steering Group. Patient-based outcome results from a cluster randomized trial of shared decision-making skill development and use of risk communication aids in general practice. Fam Pract 21 (2004) 347-354
6. In: Härter M., Loh A., and Spies C. (Eds). Gemeinsam entscheiden, erfolgreich behandeln - Neue Wege für Ärzte und Patienten im Gesundheitswesen (Deciding as partners and treating illness successfully. New ways in healthcare for physicians and patients) (2005), Köln: Deutscher Ärzteverlag
7. Towle A., and Godolphin W. Framework for teaching and learning informed shared decision-making. Brit Med J 319 (1999) 766-769
8. Kranich C. Patientenkompetenz. Was müssen Patienten wissen und können? (Patient competence. What do patients need to know and be able to do?): Bundesgesundheitsbl - Gesundheitsforsch - Gesundheitsschutz 2004; 10:950-6.
9. Nagel G., Theobald S., Neusetzer B., and Audörsch I. Patientenkompetenz: Begriffsbestimmung und prognostische Relevanz bei Krebs - Ergebnisse einer Umfrage (Patient competence: defining the concept and its relevance to prognosis in cancer-a survey). Deutsche Zeitschrift für Onkologie 36 (2004) 110-117
10. Schulte H. Patientenkompetenz aus Sicht der Betroffenen (Patient competence: the patients' view). In: Bartsch H.H., and Weis J. (Eds). Gemeinsame Entscheidung in der Krebstherapie. Arzt und Patient im Spannungsfeld der Shared Decision (Sharing decisions in cancer therapy. A challenge for physicians and patients) (2004), Karger, Basel 114-120
11. Weis J., and Giesler J.M. Patientenkompetenz: Ein neues Konzept in der Onkologie (Patient competence: a new concept in oncology). In: Bartsch H.H., and Weis J. (Eds). Gemeinsame Entscheidung in der Krebstherapie. Arzt und Patient im Spannungsfeld der Shared Decision (Sharing decisions in cancer therapy. A challenge for physicians and patients) (2004), Karger, Basel 132-140
12. Wilson J. Acknowledging the expertise of patients and their organisations. Brit Med J 319 (1999) 771-774
13. Coyne P., Stefanek J.C., and Palmer M.S.C. Psychotherapy and survival in cancer: the conflict between hope and evidence. Psychol Bull 133 (2007) 367-394
14. Petticrew M., Bell R., and Hunter D. Influence of psychological coping on survival and recurrence in people with cancer: systematic review. Brit Med J 325 (2002) 1066-1075
15. In: Sternberg R.J., and Grigorenko E.L. (Eds). The psychology of abilities, competencies, and expertise (2003), Cambridge University Press, New York
16. Weinert F.E. Concept of competence. A conceptual clarification. In: Rychen D.S., and Salganik L.H. (Eds). Defining and selecting key competencies (2001), Hogrefe & Huber, Göttingen 45-65
17. White R.K. Motivation reconsidered: the concept of competence. Psychol Rev 66 (1959) 297-333
18. Lazarus R.S., and Folkman S. Stress, appraisal, and coping (1984), Springer, New York
19. In: Baumeister R., and Vohs K.D. (Eds). Handbook of self-regulation. Theory, research, and applications (2004), Guilford, New York
20. Maes S., and Karoly P. Self-regulation assessment and intervention in health and illness. Appl Psychol 54 (2005) 267-299
21. Rasmussen H.N., Wrosch C., Scheier M.F., and Carver C.S. Self-regulation processes and health: the importance of optimism and goal adjustment. J Pers 74 (2006) 1721-1747
22. Chomsky N. Language and mind. 3rd ed. (2006), Cambridge University Press, Cambridge
23. Buhrmester D., Furman W., Wittenberg M.T., and Reis H.T. Five domains of interpersonal competence in peer relationships. J Pers Soc Psychol 55 (1988) 991-1008
24. Dierk J.M., Sommer G., and Heinrigs S. Social competence and circumplex model of interpersonal behaviors-on the connections between the two constructs. Zeitschrift für Differentielle und Diagnostische Psychologie 23 (2002) 67-81
25. Eisenberg N. The socialization of socioemotional competence. In: Pushkar D., Bukowski W.M., Schwartzman A.E., Stack D.M., and White D.R. (Eds). Improving competence across the lifespan (1998), Plenum Press, New York 59-78
26. Saarni C. Emotional competence: how emotions and relationships become integrated. Nebr Symp Motiv 36 (1988) 115-182
27. Wendt A., and Petermann F. Measuring scales for assessment of coping behavior: a critical evaluation. Z Klin Psychol Psychiatr Psychother 44 (1996) 3-32
28. Lazarus R.S. Coping theory and research: past, present, and future. Psychosom Med 55 (1993) 234-247
29. Parker J.D., and Endler N.S. Coping with coping assessment: a critical review. Eur J Pers 6 (1992) 321-344
30. Schroder K. Self-regulation competence in coping with chronic disease (1997), Waxmann, Münster
31. Lorig K., Sobel D.S., Stewart A.L., Brown Jr. B.W., Bandura A., Ritter P., Gonzalez V.M., Laurent D.D., and Holman R. Evidence suggesting that a chronic disease self-management program can improve health status while reducing hospitalization: a randomized trial. Med Care 37 (1999) 5-17
32. Lorig K., Ritter P., Stewart A.L., Sobel D.S., Brown W.B., Bandura A., Gonzalez V.M., Laurent D.D., and Holman H.R. Chronic disease self-management program: 2-year health status and health care utilization outcomes. Med Care 39 (2001) 1217-1223
33. Lorig K., and Holman H.R. Self-management education: history, definitions, outcomes, and mechanisms. Ann Behav Med 26 (2003) 1-7
34. Cimprich B., Janz N.K., Northouse L., Wren P.A., Given B., and Given C.W. Taking charge: a self-management program for women following breast cancer treatment. Psychooncology 14 (2005) 704-717
35. Giesler J.M., and Weis J. Developing a self-rating measure of patient competence in the context of oncology. Psychooncology 17 (2008) 1089-1099
36. Degner L.F., Kristjanson L.J., Bowman D., Sloan J.A., Carriere K.C., O'Neil J., Bilodeau B., Watson P., and Mueller B. Information needs and decisional preferences in women with breast cancer. J Am Med Assoc 277 (1997) 1485-1492
37. Eisen S.A., Dickey B., and Sederer L.I. A self-report symptom and problem rating scale to increase inpatients' involvement in treatment. Psych Serv 51 (2000) 349-353
38. Graydon J., Galloway S., Palmer-Wickham S., Harrison D., Rich-van der Bij L., West P., Burlein-Hall S., and Evans-Boyden B. Information needs of women during early treatment for breast cancer. J Adv Nurs 26 (1997) 59-64
39. Hope, Williams A.E., and Lunn D. Information provision to cancer patients: a practical example of identifying the need for changes in practice from Dorset Cancer Centre. Eur J Cancer Care 9 (2000) 238-242
40. Jenkins V., Fallowfield L., and Saul J. Information needs of patients with cancer: results from a large study in UK cancer centres. Brit J Cancer 84 (2001) 48-51
41. Leydon G.M., Boulton M., Moynihan C., Jones A., Mossman J., Boudioni M., and McPherson K. Cancer patients' information needs and information seeking behaviour: in depth interview study. Brit Med J 320 (2000) 909-913
42. Mesters I., van den Borne B., De Boer M., and Pruyn J. Measuring information needs among cancer patients. Pat Educ Couns 43 (2001) 253-262
43. Tamburini M., Gangeri L., Brunelli C., Boeri P., Borreani C., Bosisio M., Karmann C.F., Greco M., Miccinesi G., Murru L., and Trimigno P. Cancer patients' needs during hospitalisation: a quantitative and qualitative study. BMC Cancer 3 (2003) 12
44. Wong F., Stewart D.E., Dancey J., Meana M., McAndrews M.P., Bunston T., and Cheung A.M. Men with prostate cancer: influence of psychological factors on informational needs and decision-making. J Psychosom Res 49 (2000) 13-19
45. Merluzzi T.V., Nairn R.C., Hegde K., Martinez-Sanchez M.A., and Dunn L. Self-efficacy for coping with cancer: revision of the cancer behavior inventory (Version 2.0). Psychooncology 10 (2001) 206-217
46. Telch C.F., and Telch M.J. Group coping skills instruction and supportive group therapy for cancer patients: a comparison of strategies. J Consult Clin Psychol 54 (1986) 802-808
47. Cronbach L.J. Coefficient alpha and the internal structure of tests. Psychometrika 16 (1951) 297-334
48. Aaronson N.K., Ahmedzai S., Bergman B., Bullinger M., Cull A., Duez N.J., Filiberti A., Flechtner H., Fleishman S.B., de Haes J.C.J.M., Kaasa S., Klee M., Osoba D., Razavi D., Rofe P.B., Schraub S., Sneeuw K., Sullivan M., and Takeda F. The European organization for research and treatment of cancer QLQ-C30: a quality-of-life instrument for use in international clinical trials in oncology. J Natl Cancer Institute 85 (1993) 365-376
49. Hair J.F., Anderson R.E., Tatham R.L., and Black W.C. Multivariate analysis (1998), Prentice Hall, New Jersey
50. Kuder G.F., and Richardson M.W. The theory of the estimation of test reliability. Psychometrika 2 (1937) 151-160
51. Astin J.A. Why patients use alternative medicine. J Am Med Assoc 279 (1998) 1548-1553
52. Cassileth B.R., and Deng G. Complementary and alternative therapies for cancer. Oncologist 9 (2004) 80-89
53. Henderson J.W., and Donatelle R.J. The relationship between cancer locus of control and complementary and alternative medicine use by women diagnosed with breast cancer. Psychooncology 12 (2003) 59-67
54. McEachrane-Gross F.P., Liebschutz J.M., and Berlowitz D. Use of selected complementary and alternative (CAM) treatments in veterans with cancer or chronic pain: a cross-sectional survey. BMC Complem Altern Med 6 (2006) 34 10.1186/1472-6882-6-34
55. Risberg T., Vickers A., Bremnes R.M., Wist E.A., Kaasa S., and Cassileth B.R. Does use of alternative medicine predict survival from cancer?. Eur J Cancer 39 (2003) 372-377
56. Burstein H.J., Gleber S., Guadagnoli E., and Week J.C. Use of alternative medicine by women with early stage breast cancer. N Engl J Med 22 (1999) 1733-1739
57. Honda K., and Jacobson J.S. Use of complementary and alternative medicine among United States adults: the influences of personality, coping strategies, and social support. Prev Med 40 (2005) 46-53
58. Lerner I.J., and Kennedy B.J. The prevalence of questionable methods of cancer treatment ion the United States. CA Cancer J Clin 42 (1992) 181-191
59. Miller M., Boyer M.J., Butow P.N., Gatellari M., Dunn S.M., and Childs A. The use of unproven methods of treatment by cancer patients. Frequency, expectation and cost. Support Care Cancer 6 (1998) 337-347
60. Velicer C.M., and Ulrich C.M. Vitamin and mineral supplement use among US adults after cancer diagnosis: a systematic review. J Clin Oncol 28 (2008) 665-673
61. Wolsko P.M., Eisenberg D.M., Davis R.B., Ettner Sl, and Phillips R.S. Insurance coverage, medical conditions, and visits to alternative medicine providers. Results of a national survey. Arch Intern Med 2623 (2002) 281-287
62. Scheier M.F., Carver C.S., and Bridges M.W. Distinguishing optimism from neuroticism (and trait anxiety, self-mastery, and self-esteem): a re-evaluation of the Life Orientation Test. J Pers Soc Psychol 67 (1994) 1063-1078
63. Luszczynska A., Scholz U., and Schwarzer R. The general self-efficacy scale: multicultural validation studies. J Psychol 139 (2005) 439-457
64. Gum A., and Snyder C.R. Coping with terminal illness: the role of hopeful thinking. J Palliat Med 5 (2002) 883-894
65. Snyder C.R., Sympson S.C., Ybasco F.C., Borders T.F., Babyak M.A., and Higgins R.L. Development and validation of the State Hope Scale. J Pers Soc Psychol 70 (1996) 321-335
66. Antonovsky A. Health, stress, and coping (1979), Jossey-Bass, San Francisco
67. Aujoulat I., d'Hoore W., and Deccache A. Patient empowerment in theory and practice: polysemy or cacophony?. Patient Educ Couns 66 (2007) 13-20
68. Bulsara C., Style I., Ward A.M., and Bulsara M. The psychometrics of developing the patient empowerment scale. J Psychosoc Oncol 24 (2006) 1-16
69. Hoffman B., and Stovall E. Survivorship perspectives and advocacy. J Clin Oncol 24 (2006) 5154-5159
70. Baker D.W., Williams M.V., Parker R.M., Gazmararian J.A., and Nurss J. Development of a brief test to measure functional health literacy. Patient Educ Couns 38 (1999) 33-42
71. Davis T.C., Williams M.V., Marin E., Parker R.M., and Glass J. Health literacy and cancer communication. CA Cancer J Clin 52 (2002) 134-149
72. Kühner S., Fietkau R., Bruns S., Gonzalez D.V., and Geyer S. Do members of self-help groups know more about breast cancer?. Psychother Psychosom Med Psychol 56 (2006) 432-437