Integrating the nurturer-trainer roles: Parental and behavior/symptom management processes for mothers of children with autism

Social Science and Medicine

Volumn 67, Issue 11, 2008, Pages 1798-1806

  Tsai, Wen Che ^a   Tsai, Jia Ling ^b   Lotus Shyu, Yea Ing ^a  

^a NATIONAL TAIWAN UNIVERSITY HOSPITAL   (Taiwan)

^b CHANG GUNG UNIVERSITY   (Taiwan)

Author keywords

Autism; Behavior management; Children; Mothers; Parental process; Role integration; Symptom management; Taiwan

Indexed keywords

CHILD CARE; CHILD HEALTH; DISEASE TREATMENT; HEALTH SERVICES; MATERNAL CARE; MENTAL HEALTH; QUESTIONNAIRE SURVEY; SYMPTOM; TRAINING;

ADULT; ARTICLE; AUTISM; CHILD; CHILD PARENT RELATION; CONTROLLED STUDY; FEMALE; HEALTH CARE MANAGEMENT; HEALTH CARE PERSONNEL; HUMAN; MALE; MATERNAL CARE; NURTURING BEHAVIOR; OUTCOME ASSESSMENT;

ADULT; AUTISTIC DISORDER; CHILD; CHILD, PRESCHOOL; COHORT STUDIES; FEMALE; HUMANS; INTERVIEWS AS TOPIC; MALE; MOTHER-CHILD RELATIONS; PATIENT EDUCATION AS TOPIC; TAIWAN;

ASIA; EURASIA; FAR EAST; TAIWAN;

EID: 54549085378     PISSN: 02779536     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.socscimed.2008.07.015     Document Type: Article

References (47)

1. Abbeduto L., Seltzer M.M., Shattuck P., Krauss M.W., Orsmond G., and Murphy M.M. Psychological well-being and coping in mothers of youths with autism, Down syndrome, or fragile X syndrome. American Journal of Mental Retardation 109 3 (2004) 237-254
2. Bebko J.M., Konstantareas M.M., and Springer J. Parent and professional evaluations of family stress associated with characteristics of autism. Journal of Autism & Developmental Disorders 17 (1987) 565-576
3. Bouma R., and Schweitzer R. The impact of chronic childhood illness on family stress: a comparison between autism and cystic fibrosis. Journal of Clinical Psychology 46 (1990) 722-730
4. Burr W.R., Leigh G.K., Day R.D., and Constantine J. Symbolic interaction and the family. In: Burr W.R., Hill R., Nye F.I., and Reiss I.L. (Eds). Contemporary theories about the family Vol. 2 (1979), The Free Press, New York 42-111
5. Corbin J.M., and Strauss A. A nursing model for chronic illness management based upon the trajectory framework. Scholarly Inquiry for Nursing Practice 5 3 (1991) 155-174
6. DeMyer M.K. Parents and children in autism (1979), Wiley, New York
7. Donovan A.M. Family stress and ways of coping with adolescents who have handicaps: maternal perceptions. American Journal of Mental Retardation 92 (1988) 502-509
8. Duarte C.S., Bordin I.A., Yazigi L., and Mooney J. Factors associated with stress in mothers of children with autism. Autism 9 (2005) 416-427
9. Dunn M.E., Burbine T., Bowers C.A., and Tantleff-Dunn S. Moderators of stress in parents of children with autism. Community Mental Health Journal 37 (2001) 39-52
10. Eisenhower A.S., Baker B.L., and Blacher J. Preschool children with intellectual disability: syndrome specificity, behaviour problems, and maternal well-being. Journal of Intellectual Disability Research 49 (2005) 657-671
11. Fisman S.N., Wolf L.C., and Noh S. Marital intimacy in parents of exceptional children. Canadian Journal of Psychiatry 34 (1989) 519-525
12. Fombonne E. The prevalence of autism. Journal of American Medical Association 289 (2003) 87-89
13. Glaser B.G. Theoretical sensitivity: Advances in methodology of grounded theory (1978), Sociology Press, Mill Valley, CA
14. Glaser B.G., and Strauss A.L. The discovery of grounded theory: Strategies for qualitative research (1967), Aldine de Gruyter, New York
15. Gray D.E. Gender and coping: the parents of children with high functioning autism. Social Science & Medicine 56 (2003) 631-642
16. Hall J.M., Stevens P.E., and Meleis A.I. Developing the construct of role integration: a narrative analysis of women clerical workers' daily lives. Research in Nursing and Health 15 (1992) 447-457
17. Hastings R.P., and Brown T. Behavior problems of children with autism, parental self-efficacy, and mental health. American Journal of Mental Retardation 107 3 (2002) 222-232
18. Hastings R.P., Kovshoff H., Ward N.J., degli Espinosa F., Brown T., and Remington B. Systems analysis of stress and positive perceptions in mothers and fathers of pre-school children with autism. Journal of Autism & Developmental Disorders 35 (2005) 635-644
19. Howlin P. Practitioner review: psychological and educational treatments for autism. Journal of Child Psychology & Psychiatry & Allied Disciplines 39 (1998) 307-322
20. Jones P.S. Asian American women caring for elderly parents. Journal of Family Nursing 2 1 (1996) 56-75
21. Jones P.S., Jaceldo K.B., Lee J.R., Zhang X.E., and Meleis A.I. Role integration and perceived health in Asian American women caregivers. Research in Nursing & Health 24 (2001) 133-144
22. Kirk S., and Glendinning C. Developing services to support parents caring for a technology-dependent child at home. Child: Care, Health & Development 30 3 (2004) 209-218
23. Konstantareas M.M., and Homatidis S. Assessing child symptom severity and stress in parents of autistic children. Journal of Child Psychology & Psychiatry & Allied Disciplines 30 (1989) 459-470
24. Konstantareas M.M., Homatidis S., and Plowright C.M. Assessing resources and stress in parents of severely dysfunctional children through the Clarke modification of Holroyd's questionnaire on resources and stress. Journal of Autism & Developmental Disorders 22 (1992) 217-234
25. Konstantareas M.M., and Papageorgiou V. Effects of temperament, symptom severity and level of functioning on maternal stress in Greek children and youth with ASD. Autism 10 (2006) 593-607
26. Lecavalier L., Leone S., and Wiltz J. The impact of behaviour problems on caregiver stress in young people with autism spectrum disorders. Journal of Intellectual Disability Research 50 Pt 3 (2006) 172-183
27. Lincoln Y.S., and Guba E.G. Naturalistic inquiry (1985), Sage, Thousand Oaks, CA
28. Marcus L.M. Patterns of coping in families of psychotic children. American Journal of Orthopsychiatry 47 (1977) 388-399
29. McKinney B., and Peterson R.A. Predictors of stress in parents of developmentally disabled children. Journal of Pediatric Psychology 12 (1987) 133-150
30. Meleis A.I., Norbeck J.S., and Laffrey S.C. Role integration and health among female clerical workers. Research in Nursing & Health 12 (1989) 355-364
31. Milgram N.A., and Atzil M. Parenting stress in raising autistic children. Journal of Autism & Developmental Disorders 18 (1988) 415-424
32. Montes G., and Halterman J.S. Psychological functioning and coping among mothers of children with autism: a population-based study. Pediatrics 119 (2007) e1040-e1046
33. Nakamura M. Creating good mothers (1976), Harvard University Press, Cambridge
34. Olsson M.B., and Hwang C.P. Depression in mothers and fathers of children with intellectual disability. Journal of Intellectual Disability Research 45 (2001) 535-543
35. Organek N.S. Role theory and parent-infant interaction. Western Journal of Nursing Research 14 (1992) 520-525
36. Rodrigue J.R., Morgan S.B., and Geffken G. Families of autistic children: psychological functioning of mothers. Journal of Clinical Child Psychology 19 (1990) 371-379
37. Roy S.C., and Andrews H.A. The Roy adaptation model. 2nd ed. (1999), Appleton & Lange, Stamford, CT
38. Saiki-Craighill S. The children's sentinels: mothers and their relationships with health professionals in the context of Japanese health care. Social Science & Medicine 44 (1997) 291-300
39. Shu B.C., Hsieh H.C., Hsieh S.C., and Li S.M. Toward an understanding of mothering: the care giving process of mothers with autistic children. Journal of Nursing Research 9 5 (2001) 203-213
40. Shu B.C., Lung F.W., and Chang Y.Y. The mental health in mothers with autistic children: a case-control study in southern Taiwan. Kaohsiung Journal of Medical Sciences 16 (2000) 308-314
41. Sivberg B. Coping strategies and parental attitudes, a comparison of parents with children with autistic spectrum disorders and parents with non-autistic children. International Journal of Circumpolar Health 61 Suppl. 2 (2002) 36-50
42. Stern P.N. Grounded theory methodology: its uses and processes. Image 12 (1980) 20-23
43. Strauss A., and Corbin J. Basics of qualitative research: Grounded theory procedures and techniques (1990), Sage, Newbury Park, CA
44. Strauss A., and Corbin J.M. Basics of qualitative research: Techniques and procedures for developing grounded theory. 2nd ed. (1998), Sage, Thousand Oaks, CA
45. Tomanik S., Harris G.E., and Hawkins J. The relationship between behaviours exhibited by children with autism and maternal stress. Journal of Intellectual and Developmental Disability 29 (2004) 16-26
46. Valian V. Why so slow? The advancement of women (1999), The MIT Press, Cambridge, MA; London
47. World Health Organization. (1992). The ICD-10 classification of mental and behavioral disorders: Clinical descriptions and diagnostic guidelines. Geneva.