메뉴 건너뛰기




Volumn 40, Issue 4, 2008, Pages 250-256

Understanding the experience of living with spinal muscular atrophy: A qualitative description

Author keywords

[No Author keywords available]

Indexed keywords

ADAPTIVE BEHAVIOR; ADOLESCENT; ADULT; ARTICLE; ATTITUDE TO HEALTH; CHILD; CHILD PSYCHOLOGY; COST OF ILLNESS; CREATIVITY; CURRICULUM; DAILY LIFE ACTIVITY; FAMILY; FEMALE; HUMAN; HUMAN RELATION; MALE; METHODOLOGY; NURSING METHODOLOGY RESEARCH; PROBLEM SOLVING; PSYCHOLOGICAL ASPECT; PSYCHOLOGICAL MODEL; QUALITATIVE RESEARCH; QUALITY OF LIFE; QUESTIONNAIRE; SELF CARE; SOCIAL SUPPORT; SPINAL MUSCULAR ATROPHY;

EID: 54049115900     PISSN: 08880395     EISSN: None     Source Type: Journal    
DOI: 10.1097/01376517-200808000-00009     Document Type: Article
Times cited : (30)

References (15)
  • 1
    • 9744256280 scopus 로고    scopus 로고
    • Living with a chronic deteriorating disease: The trajectory with muscular dystrophy over ten years
    • DOI 10.1080/0963-8280400000898
    • Bostrom, K., & Ahlstrom, G. (2004). Living with a chronic deteriorating disease: The trajectory with muscular dystrophy over ten years. Disability and Rehabilitation, 26, 1388-1398. (Pubitemid 39585812)
    • (2004) Disability and Rehabilitation , vol.26 , Issue.23 , pp. 1388-1398
    • Bostrom, K.1    Ahlstrom, G.2
  • 2
    • 1842432670 scopus 로고    scopus 로고
    • Focus groups: The lived experience of participants with multiple sclerosis
    • Courts, N. F., Buchanan, E. M., & Werstlein, P. O. (2004). Focus groups: The lived experience of participants with multiple sclerosis. Journal of Neuroscience Nursing, 36, 42-47.
    • (2004) Journal of Neuroscience Nursing , vol.36 , pp. 42-47
    • Courts, N.F.1    Buchanan, E.M.2    Werstlein, P.O.3
  • 3
    • 77950963859 scopus 로고    scopus 로고
    • Families of Spinal Muscular Atrophy, Retreived May 29, 2008, from
    • Families of Spinal Muscular Atrophy. (2008). About FSMA. Retreived May 29, 2008, from www.fsma.org/AboutFSMA/.
    • (2008) About FSMA
  • 4
    • 0032832042 scopus 로고    scopus 로고
    • Optimism and adaptation to multiple sclerosis: What does optimism mean?
    • Fournier, M., de Ridder, D., & Bensing, J. (1999). Optimism and adaptation to multiple sclerosis: What does optimism mean? Journal of Behavioral Medicine, 22, 303-325.
    • (1999) Journal of Behavioral Medicine , vol.22 , pp. 303-325
    • Fournier, M.1    Ridder, D.2    Bensing, J.3
  • 6
    • 33744934008 scopus 로고    scopus 로고
    • Internet recruitment and email interviews in qualitative studies
    • Hamilton, R. J., & Bowers, B. J. (2006). Internet recruitment and email interviews in qualitative studies. Qualitative Health Research, 16, 821-835.
    • (2006) Qualitative Health Research , vol.16 , pp. 821-835
    • Hamilton, R.J.1    Bowers, B.J.2
  • 7
    • 27644537716 scopus 로고    scopus 로고
    • Challenges and opportunities in clinical trials for Spinal muscular atrophy
    • Retrieved February 16, 2006, from
    • Hirtz, D., Iannaccone, S., Heemskerk, J., Gwinn-Hardy, K., Moxley, R., & Rowland, L. P. (2005). Challenges and opportunities in clinical trials for spinal muscular atrophy. Neurology, 65, 1352-1357. Retrieved February 16, 2006, from www.neurology.org.
    • (2005) Neurology , vol.65 , pp. 1352-1357
    • Hirtz, D.1    Iannaccone, S.2    Heemskerk, J.3    Gwinn-Hardy, K.4    Moxley, R.5    Rowland, L.P.6
  • 8
    • 1242329007 scopus 로고    scopus 로고
    • Lived experience of korean women suffering from rheumatoid arthritis: A phenomenological approach
    • Hwang, E. J., Kim, Y. H., & Jun, S. S. (2004). Lived experience of Korean women suffering from rheumatoid arthritis: A phenomenological approach. International Journal of Nursing Studies, 41, 239-246.
    • (2004) International Journal of Nursing Studies , vol.41 , pp. 239-246
    • Hwang, E.J.1    Kim, Y.H.2    Jun, S.S.3
  • 10
  • 11
    • 29144463310 scopus 로고    scopus 로고
    • Spinal muscular atrophy: A deficiency in a ubiquitous protein; a motor neuron-specific disease
    • DOI 10.1016/j.neuron.2005.12.001, PII S0896627305010111
    • Monani, U. R. (2005). Spinal muscular atrophy: A deficiency in a ubiquitous protein-A motor neuron-specific disease. Neuron, 48, 885-896. (Pubitemid 41814694)
    • (2005) Neuron , vol.48 , Issue.6 , pp. 885-896
    • Monani, U.R.1
  • 12
    • 77951006651 scopus 로고    scopus 로고
    • National Institute of Neurological Disorders and Stroke, Retrieved August 29, 2007, from
    • National Institute of Neurological Disorders and Stroke. (2007). Spinal muscular atrophy information page. Retrieved August 29, 2007, from www.ninds.nih.gov/disorders/sma/sma.htm.
    • (2007) Spinal Muscular Atrophy Information Page
  • 13
    • 0037221207 scopus 로고    scopus 로고
    • Collecting behavioral Data using the world wide web: Considerations for researchers
    • Retrieved April 10, 2007, from
    • Rhodes, S. D., Bowie, D. A., & Hergenrather, K. C. (2003). Collecting behavioral data using the World Wide Web: Considerations for researchers. Journal of Epidemiology and Community Health, 57, 68-73. Retrieved April 10, 2007, from http://jech.bmj.com.
    • (2003) Journal of Epidemiology and Community Health , vol.57 , pp. 68-73
    • Rhodes, S.D.1    Bowie, D.A.2    Hergenrather, K.C.3
  • 14
    • 0034241415 scopus 로고    scopus 로고
    • Focus on research methods: Whatever happened to qualitative description?
    • Sandelowski, M. (2000). Focus on research methods: Whatever happened to qualitative description? Research in Nursing and Health, 23, 334-340.
    • (2000) Research in Nursing and Health , vol.23 , pp. 334-340
    • Sandelowski, M.1
  • 15
    • 33750577793 scopus 로고    scopus 로고
    • Families, health, and behavior: A section of the commissioned report by the committee on health and behavior-research practice and policy
    • Weis, K., Fisher, L., & Baird, M. (2002). Families, health, and behavior: A section of the Commissioned Report by the Committee on Health and Behavior-Research practice and policy. Families, Systems and Health, 20, 7-20.
    • (2002) Families, Systems and Health , vol.20 , pp. 7-20
    • Weis, K.1    Fisher, L.2    Baird, M.3


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.