Cystic fibrosis and the transition to adult health services

Archives of Disease in Childhood

Volumn 93, Issue 10, 2008, Pages 817-821

  Hewer, Simon C Langton ^a   Tyrrell, Jennifer ^b  

^a BRISTOL ROYAL HOSPITAL FOR CHILDREN   (United Kingdom)

^b ROYAL UNITED HOSPITAL   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT DISEASE; CHILD HEALTH CARE; CHILDHOOD DISEASE; CYSTIC FIBROSIS; HEALTH CARE DELIVERY; HUMAN; PATIENT CARE; PRIORITY JOURNAL; REVIEW;

ADOLESCENT; ADULT; CHILD; CHILD HEALTH SERVICES; CONTINUITY OF PATIENT CARE; CYSTIC FIBROSIS; DELIVERY OF HEALTH CARE; FEMALE; GREAT BRITAIN; HEALTH CARE COSTS; HUMANS; MALE; STATE MEDICINE;

EID: 53549108047     PISSN: 00039888     EISSN: 14682044     Source Type: Journal    
DOI: 10.1136/adc.2008.143578     Document Type: Review

References (25)

1. Dodge JA. Morison S, Lewis PA, et al. Incidence. population, and survival of cystic fibrosis in the UK, 1968-95. UK Cystic Fibrosis Survey Management Committee. Arch Dis Child 1997;77:493- 6.
2. Dodge JA, Lewis PA, Stanton M, et al. Cystic fibrosis mortality and survival in the UK: 1947-2003 Bur P,espir J 2007;29:522-6.
3. Marshall BC, Butler SM, Stoddard M. et al. Epidemiology of cystic fibrosis-related diabetes. J Pediatr 2005;146:681-7.
4. Andersen HU, Lanng S, Pressler T, et al. Cystic fibrosis-related diabetes: the presence of microvascular diabetes complications. Diabetes Care 2006;29:2660-3.
5. Schwarzenberg SJ, Thomas W. Olsen TW. et al. Microvascular complications in cystic fibrosis-related diabetes. Diabetes Care 2007;30:1056-61.
6. Conway SP, Morton AM, Oldroyd B, et al. Osteoporosis and osteopenia in adults and adolescents with cystic fibrosis: prevalence and associated factors. Thorax 2000;55:798-804.
7. Petrowsky H, Schuster H, Irani S, ef al. Pancreatic cancer in cystic fibrosis after bilateral lung transplantation. Pancreas 2006;33:430-2.
8. kallober T, Staunton M, O'Mahony S. et al. Advanced hepatocelltular carcinoma associated with cystic fibrosis. Eur J Gastroenterol Hepatol 2005;17:1123-4.
9. Maisonneuve P, FitzSimmons SC, Neglia JP, et al. Cancer risk in nontransplanted and transplanted cystic fibrosis patients: a 10-year study. J Natl Cancer Inst 2003;95:381-7.
10. Lamireau T, Monnereau S, Martin S, et al. Epidemiology of liver disease in cystic fibrosis: a longitudinal study. J Hepatol 2004;41:920-5.
11. Colombo C, Battezzati PM, Crosignani A, et al. Liver disease in cystic fibrosis: a prospective study on incidence, risk factors, and outcome. Hepatology 2002;36:1374-82.
12. Hubert D, Patrat C, Guibert J, et al. Results of assisted reproductive technique in men with cystic fibrosis. Hum Reprod 2006;21:1232-6.
13. Rodgers HC, Baldwin DR, Knox AJ. Questionnaire survey of male infertility in cystic fibrosis. Respir Med 2000;94:1002-3.
14. Cappelli M, MacDonald NE, McGrath PJ. Assessment of readiness to transfer to adult care for adolescents with cystic fibrosis. Child Health Care 1989;18:218-24.
15. Nasr SZ, Campbell C, Howatt W. Transition program from pediatric to adult care for cystic fibrosis patients. J Adolesc Health 1992;13:682-5.
16. Mahadeva R, Webb K, Westerbeek RC, et al. Clinical outcome in relation to care in centres specialising in cystic fibrosis: cross sectional study. BMJ 1998;316:1771-5.
17. Cystic Fibrosis Trust, http://www.cftrust.org.uk/ aboutcf/publications/factsheets/ (accessed 18 Jun 2008).
18. Westwood A, Henley L, Willcox P. Transition from paediatric to adult care for persons with cystic fibrosis: patient and parent perspectives. J Paediatr Child Health 1999;35:442-5.
19. Anderson DL, Flume PA, Hardy KK, et al. Transition programs in cystic fibrosis centers: perceptions of patients. Pediatr Pulmonol 2002;33:327-31.
20. Flume PA, Anderson DL, Hardy KK, et al. Transition programs in cystic fibrosis centers: perceptions of pediatric and adult program directors. Pediatr Pulmonol 2001;31:443-50.
21. Schidlow DV. Transition in cystic fibrosis: much ado about nothing? A pediatrician's view. Pediatr Pulmonol 2002;33:325-6.
22. Robson M, Abbott J, Webb K, et al. A cost description of an adult cystic fibrosis unit and cost analyses of different categories of patients. Thorax 1992;47:684-9.
23. Baumann U, Stocklossa C, Greiner W, et al. Cost of care and clinical condition in paediatric cystic fibrosis patients. J Cyst Fibros 2003;2:84-90.
24. British National Formulary 53. London: British Medical Association and Royal Pharmaceutical Society of Great Britain, 2007.
25. Birnkrant DJ. New challenges in the management of prolonged survivors of pediatric neuromuscular diseases: a pulmonologist's perspective. Pediatr Pulmonol 2006;41:1113-17.