Creating optimal healing environments for patients with cancer and their families: Insights, challenges, and lessons learned from a decade of experience

Journal of Alternative and Complementary Medicine

Volumn 10, Issue SUPPL. 1, 2004, Pages

  Geffen, Jeremy R ^a  

^a Geffen Visions International Inc   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ALTERNATIVE MEDICINE; AWARENESS; CANCER; CANCER PATIENT; CONFERENCE PAPER; ENVIRONMENTAL HEALTH; FAMILY; HEALING; HEALTH CARE PERSONNEL; HEALTH PROMOTION; HUMAN RELATION; INTERPERSONAL COMMUNICATION; LOVE; PATIENT GUIDANCE; PRIORITY JOURNAL; SCIENCE; STATISTICAL ANALYSIS; WELLBEING;

EID: 5344260498     PISSN: 10755535     EISSN: None     Source Type: Journal    
DOI: 10.1089/acm.2004.10.s-93     Document Type: Conference Paper

References (120)

1. Jemal A, Murray T, Samuels A, Ghafoor A, Ward E, Thun MJ. Cancer statistics, 2003. CA Cancer J Clin 2003;53:5-26.
2. Ries LAG, Reichman ME, Lewis DR, Hankey BF, Edwards BK. Cancer survival and incidence from the Surveillance, Epidemiology, and End Results (SEER) program. Oncologist 2003;8:541-552.
3. Howe HL, Wingo PA, Thun MJ, Ries LAG, Rosenberg HM, Feigal EG, Edwards BK. Annual report to the nation on the status of cancer (1973 through 1998), featuring cancers with recent increasing trends. J Natl Cancer Inst 2001;93:824-842.
4. Merrill RM, Weed DL. Measuring the public health burden of cancer in the United States through lifetime and age-controlled risk estimates. Ann Epidemiol 2001;11:547-553.
5. Holland JC, Rowland JH, eds. Handbook of Psychooncology: Psychological Care of the Patient with Cancer. New York: Oxford University Press, 1990.
6. Stark D, Kiely M, Smith A, Velikova G, House A, Selby P. Anxiety disorders in cancer patients: Their nature, associations, and relation to quality of life. J Clin Oncol 2002;20:3137-3148.
7. Rossi Ferrario S, Zotti AM, Massara G, Nuvolone G. A comparative assessment of psychological and psychosocial characteristics of cancer patients and their caregivers. Psychooncology 2003;12:1-7.
8. Cameron JI, Franche RL, Cheung AM, Stewart DE. Lifestyle interference and emotional distress in family caregivers of advanced cancer patients. Cancer 2002;94:521-527.
9. Blanchard CG, Albrecht TL, Ruckdeschel JC. The crisis of cancer: Psychological impact on family caregivers. Oncology (Huntingt) 1997;11:189-194.
10. National Heart, Lung, and Blood Institute. Fact Book Fiscal Year 2002. Online document at: www.nhlbi.nih.gov/about/02factbk.pdf
11. Brown ML, Lipscomb J, Snyder C. The burden of illness of cancer: Economic cost and quality of life. Annu Rev Public Health 2001;22:91-113.
12. Eisenberg DM, Kessler RC, Foster C. et al. Unconventional medicine in the United States. Prevalence, costs, and patterns of use. N Engl J Med 1993;328:246-252.
13. Bernstein BJ, Grasso T. Prevalence of complementary and alternative medicine use in cancer patients. Oncology (Huntingt) 2001;15:1267-1272.
14. Richardson MA, Sanders T, Palmer JL, Greisinger A, Singletary SE. Complementary/alternative medicine use in a comprehensive cancer center and the implications for oncology. J Clin Oncol 2000;18:2505-2514.
15. Hawkley LC, Cacioppo JT. Loneliness and pathways to disease. Brain Behav Immunol 2003;17(Suppl 1):S98-S105.
16. Godman David, ed. Be as You Are: The Teachings of Sri Ramana Maharshi. London, England: Arkana Books, 1991.
17. Nisargadatt M. I Am That. Bangalore, India: Nesma Books, 1997.
18. Goswami A. The Self-Aware Universe. How Consciousness Creates the Material World. New York: Jeremy P. Tarcher/Putnam, 1995.
19. Huxley A. The Perennial Philosophy. New York: Harper and Row, 1970.
20. Hixon L. Coming Home: The Experience of Enlightenment in Sacred Traditions. Burdett, NY: Larson Publications, 1995.
21. Smith H. Forgotten Truth: The Common Vision of the World's Religions. San Francisco: HarperSanFrancisco, 1992.
22. Rettig RA. Cancer Crusade: The Story of the National Cancer Act of 1971. Princeton, NJ: Princeton University Press, 1977.
23. Sporn MB. The war on cancer: A review. Ann NY Acad Sci 1997;833:137-146.
24. DeVita VT, Hellman S, Rosenberg SA, eds. Cancer: Principles and Practice of Oncology, 6th ed. Philadelphia: Lippincott, Williams, & Wilkins, 2001.
25. Colburn WA. Biomarkers in drug discovery and development: From target identification through drug marketing. J Clin Pharmacol 2003;43:329-341.
26. Geffen JR. The Seven Levels of Healing: A Body, Mind, Heart and Spirit Program for Transforming the Whole Person. Niles, IL: Nightingale-Conant Corp, 2001.
27. Mills ME, Sullivan K. The importance of information giving for patients newly diagnosed with cancer: A review of the literature. J Clin Nurs 1999;8:631-642.
28. Harris KA. The informational needs of patients with cancer and their families. Cancer Pract 1998;6:39-46.
29. van der Molen B. Relating information needs to the cancer experience: 1. Information as a key coping strategy. Eur J Cancer Care 1999;8:238-244.
30. Jefford M, Tattersall MH. Informing and involving cancer patients in their own care. Lancet Oncol 2002;3:629-637.
31. Czaja R, Manfredi C, Price J. The determinants and consequences of information seeking among cancer patients. J Health Commun 2003;8:529-562.
32. Matthews SC, Camacho A, Mills PJ, Dimsdale JE. The internet for medical information about cancer: help or hindrance? Psychosomatics 2003;44:100-103.
33. Sorkin D, Rook KS, Lu JL. Loneliness, lack of emotional support, lack of companionship, and the likelihood of having a heart condition in an elderly sample. Ann Behav Med 2002;24:290-298.
34. Ornish D. Love & Survival: The Scientific Basis for the Healing Power of Intimacy. New York: HarperCollins, 1998.
35. Cacioppo JT, Hawkley LC. Social isolation and health, with an emphasis on underlying mechanisms. Perspect Biol Med 2003;46(3 Suppl):S39-S52.
36. Spiegel D, Sephton SE. Psychoneuroimmune and endocrine pathways in cancer: Effects of stress and support. Semin Clin Neuropsychiatry 2001;6:252-265.
37. Weis J. Support groups for cancer patients. Support Care Cancer 2003;11:763-768.
38. Cunningham AJ. Group psychological therapy: An integral part of care for cancer patients. Integr Cancer Ther 2002;1:67-75.
39. Spiegel D. Living Beyond Limits: New Hope and Help for Facing Life-Threatening Illness. New York: Random House, 1993.
40. Rehse B, Pukrop R. Effects of psychosocial interventions on quality of life in adult cancer patients: Meta analysis of 37 published controlled outcome studies. Patient Educ Couns 2003;50:179-186.
41. Ross L, Boesen EH, Dalton SO, Johansen C. Mind and cancer: Does psychosocial intervention improve survival and psychological well-being? Eur J Cancer 2002;38:1447-1457.
42. Lillquist PP, Abramson JS. Separating the apples and oranges in the fruit cocktail: The mixed results of psychosocial interventions on cancer survival. Soc Work Health Care 2002;36:65-79.
43. Cunningham AJ, Edmonds CV, Jenkins GP, Pollack H, Lockwood GA, Warr D. A randomized controlled trial of the effects of group psychological therapy on survival in women with metastatic breast cancer. Psychooncology 1998;7:508-517.
44. Kogon MM, Biswas A, Pearl D, Carlson RW, Spiegel D. Effects of medical and psychotherapeutic treatment on the survival of women with metastatic breast carcinoma. Cancer 1997;80:225-230.
45. Adamsen L. 'From victim to agent': The clinical and social significance of self-help group participation for people with life-threatening diseases. Scand J Caring Sci 2002;16:224-231.
46. Krizek C, Roberts C, Ragan R, Ferrara JJ, Lord B. Gender and cancer support group participation. Cancer Pract 1999;7:86-92.
47. Thiel de Bocanegra H. Cancer patients' interest in group support programs. Cancer Nurs 1992;15:347-352.
48. Johnson J. An overview of psychosocial support services. Resources for healing. Cancer Nurs 2000;23:310-313.
49. Guidry JJ, Aday LA, Zhang D, Winn RJ. The role of informal and formal social support networks for patients with cancer. Cancer Pract 1997;5:241-246.
50. Vickers AJ, Cassileth BR. Unconventional therapies for cancer and cancer-related symptoms. Lancet Oncol 2001;2:226-232.
51. Smith M, Boon HS. Counseling cancer patients about herbal medicine. Patient Educ Couns 1999;38:109-120.
52. Drisko JA, Chapman J, Hunter VJ. The use of antioxidant therapies during chemotherapy. Gynecol Oncol 2003;88:434-439.
53. Holland JC, Lewis S. The Human Side of Cancer: Living with Hope, Coping with Uncertainty. New York: Harper-Collins, 2000.
54. Muzzin LJ, Anderson NJ, Figueredo AT, Gudelis SO. The experience of cancer. Soc Sci Med 1994;38:1201-1208.
55. Watson M, Haviland JS, Greer S, Davidson J, Bliss JM. Influence of psychological response on survival in breast cancer: A population-based cohort study. Lancet 1999;354:1331-1336.
56. Gilbar O. The connection between the psychological condition of breast cancer patients and survival: A follow-up after eight years. Gen Hosp Psychiatry 1996;18:266-270.
57. Angelopoulos NV, Tzivaridou D, Nikolaou N, Pavlidis AN. Mental symptoms, hostility features and stressful life events in people with cancer. Acta Psychiatr Scand 1995;92:44-50.
58. Lee-Jones C, Humphris G, Dixon R, Hatcher MB. Fear of cancer recurrence - A literature review and proposed cognitive formulation to explain exacerbation of recurrence fears. Psychooncology 1997;6:95-105.
59. Spiegel D. Healing words. Emotional expression and disease outcome. JAMA 1999;281:1328-1329.
60. Joshi N, Breibart WS. Psychopharmacologic management during cancer treatment. Semin Clin Neuropsychiatry 2003;8:241-252.
61. Barsevick AM, Sweeney C, Haney E, Chung E. A systematic qualitative analysis of psychoeducational interventions for depression in patients with cancer. Oncol Nurs Forum 2002;29:73-84.
62. Buchanan J, Borland R, Cosolo W, Millership R, Haines I, Zimet A, Zalcberg J. Patients' beliefs about cancer management. Support Care Cancer 1996;4:110-117.
63. Zhang AY, Siminoff LA. The role of the family in treatment decision making by patients with cancer. Oncol Nurs Forum 2003;30:1022-1028.
64. Degner LF, Hack T, O'Neil J, Kristjanson LJ. A new approach to eliciting meaning in the context of breast cancer. Cancer Nurs 2003;26:169-178.
65. Richer MC, Ezer H. Living in it, living with it, and moving on: dimensions of meaning during chemotherapy. Oncol Nurs Forum 2002;29:113-119.
66. Luker KA, Beaver K, Leinster SJ, Owens RG. Meaning of illness for women with breast cancer. J Adv Nurs 1996;23:1194-1201.
67. Bolen JS. Close to the Bone: Life-threatening Illness and the Search for Meaning. New York: Simon and Schuster, 1996.
68. Skott C. Expressive metaphors in cancer narratives. Cancer Nurs 2002;25:230-235.
69. Jones LB. The Path: Creating Your Mission Statement for Work and for Life. New York: Hyperion, 1996.
70. Frankl VE. Man's Search for Meaning. New York: Washington Square Press, 1985.
71. Ventegodt S. The life mission theory: A theory for a consciousness-based medicine. Int J Adolesc Med Health 2003;15:89-91.
72. Fein E. The intention of living fully: An alternative to fighting cancer. Adv Mind Body Med 2003;19:15-16.
73. Singh KD. The Grace in Dying: A Message of Hope, Comfort, and Spiritual Transformation. San Francisco: Harper-SanFrancisco, 2000.
74. Block SD. Perspectives on care at the close of life. Psychological considerations, growth, and transcendence at the end of life: The art of the possible. JAMA 2001;285:2898-2905.
75. Kubler-Ross E. On Death and Dying: What the Dying Have to Teach Doctors, Nurses, Clergy, and Their Own Families. New York: Touchstone, 1997.
76. McVay MR. Medicine and spirituality: A simple path to restore compassion in medicine. S D J Med 2002;55:487-491.
77. Lin HR, Bauer-Wu SM. Psycho-spiritual well-being in patients with advanced cancer: An integrative review of the literature. J Adv Nurs 2003;44:69-80.
78. Geffen JR. Being and doing in the practice of medicine: Embracing the deeper dimensions of healing. Plenary Talk. Comprehensive Cancer Care Conference II: Integrating Complementary and Alternative Therapies. Arlington, VA. June 12, 1999. Document online at: www.cmbm.org/conferences/ccc99/transcripts99/ geffen.html
79. Karner TX. Caring for an aging society: Cohort values and eldercare services. J Aging Soc Policy 2001;13:15-36.
80. Yancik R, Ries LA. Aging and cancer in America: Demographic and epidemiologic perspectives. Hematol Oncol Clin North Am 2000;14:17-23.
81. Mechanic D. The changing elderly population and future health care needs. J Urban Health 1999;76:24-38.
82. Rosenthal B. Broken and unsustainable: The aging of Baby Boomers means a cost crisis in long-term care. Contemp Longterm Care 2003;26:22-25.
83. Sandy LG. Homeostasis without reserve - The risk of health system collapse. N Engl J Med 2003;347:1971-1975.
84. Vladeck BC. Medicar: Can its benefits be sustained as cost of coverage grows? Geriatrics 2001;56:50-54.
85. George B. Authentic Leadership: Rediscovering the Secrets to Creating Lasting Value. San Francisco: Jossey-Bass, 2003.
86. Cox A. Redefining Corporate Soul: Linking Purpose and People. Chicago: Irwin Professional Publishing, 1996.
87. Fallowfield L, Jenkins V. Effective communication skills are the key to good cancer care. Eur J Cancer 1999;35:1592-1597.
88. Einhorn LH, Levinson J, Li S, Lamar L, Kamin D, Mendelson D. American Society of Clinical Oncology 2001 presidential initiative: Impact of regulatory burdens on quality cancer care. J Clin Oncol 2002;20:4722-4726.
89. Xistris DM, Houlihan NG. Impact of reimbursement and health care reform on the ambulatory oncology setting. Semin Oncol Nurs 1994;10:281-287.
90. Welker J, Podleski JM. Preparing the front office staff to carry out HIPAA privacy procedures. J Med Pract Manage 2003;19:67-70.
91. Christensen D. Final regulations set for patient privacy protection. J Natl Cancer Inst 2002;94:1521-1523.
92. Coulson KM, Glasser BL, Liang BA. Informed consent: Issues for providers. Hematol Oncol Clin North Am 2002;16:1365-1380.
93. Miyaji NT. Informed consent, cancer, and truth in prognosis. N Engl J Med 1994;331:810.
94. Valadez AM, Sportsman S. Impact of managed care on oncology. Semin Oncol Nurs 2002;18:149-153.
95. Adams KE, Cohen MH, Eisenberg D, Jonsen AR. Ethical considerations of complementary and alternative medical therapies in conventional medical settings. Ann Intern Med 2002;137:660-664.
96. Eisenberg DM, Cohen MH, Hrbek A, Grayzel J, Van Rompay MI, Cooper RA. Credentialing complementary and alternative medical providers. Ann Intern Med 2002;137:965-973.
97. Cohen MH. Complementary and integrative medical therapies, the FDA, and the NIH: Definitions and regulation. Dermatol Ther 2003;16:77-84.
98. Monaco GP, Smith G. Informed consent in complementary and alternative medicine: Current status and future needs. Semin Oncol 2002;29:601-608.
99. Pelletier KR, Astin JA. Integration and reimbursement of complementary and alternative medicine by managed care and insurance providers: 2000 update and cohort analysis. Altern Ther Health Med 2002;8:38-39.
100. Gerszten PC. Oncology in the era of managed care. J Oncol Manage 1998;7:21-23.
101. Emanuel EJ, Dubler NN. Preserving the physician-patient relationship in the era of managed care. JAMA 1995;273:323-329.
102. Centers for Medicare and Medicaid Services. Medicare Program Revisions to Payment for Drugs and Physician Fee Schedule Payments for Calendar Year 2004 (CMS-1372-FC). Online document at: www.cms.gov/regulations/pfs/2004fc/1372fc/ 1372fc.asp
103. Radzwill M. The health insurance crisis in the United States: Lack of access and the ripple effect. Manage Care Interface 2003;16:28-34.
104. Thrall TH, Scalise D. America's uninsured: Rethinking the problem that won't go away. Hosp Health Netw 2002;76:30-34.
105. Mello MM, Studdert DM, Brennan TA. The new medical malpractice crisis. N Engl J Med 2003;348:2281-2284.
106. Taylor S, Thomas E. Lawsuit hell: How fear of litigation is paralyzing our professions [cover story]. Newsweek, December 15, 2003:43.
107. Weber DO. Malpractice insurance rates reach boiling point: Physicians burned by lawyers, lawsuits and jury awards. Physician Exec 2002;28:12-14.
108. Brachfeld J. "Defensive medicine" and malpractice suits. Arch Intern Med 2002;162:2631.
109. Rubin RJ, Mendelson DN. How much does defensive medicine cost? J Am Health Policy 1994;4:7-15.
110. Cohen MH, Eisenberg DM. Potential physician malpractice liability associated with complementary and integrative medical therapies. Ann Intern Med 2002;136:596-603.
111. Arora NK. Interacting with cancer patients: the significance of physicians' communication behavior. Soc Sci Med 2003;57:791-806.
112. Baile WF, Kudelka AP, Beale EA, Glober GA, Myers EG, Greisinger AJ, Bast RC Jr, Goldstein MG, Novack D, Lenzi R. Communication skills training in oncology: Description and preliminary outcomes of workshops on breaking bad news and managing patient reactions to illness. Cancer 1999;86:887-897.
113. Kissane DW, McKenzie M, McKenzie DP, Forbes A, O'Neill I, Bloch S. Psychosocial morbidity associated with patterns of family functioning in palliative care: Baseline data from the Family Focused Grief Therapy controlled trial. Palliat Med 2003;17:527-537.
114. Neuenschwander H, Bruera E, Cavalli F. Matching the clinical function and symptom status with the expectations of patients with advanced cancer, their families, and health care workers. Support Care Cancer 1997;5:252-256.
115. Ryan M. Medical malpractice: a review of issues for providers. Hematol Oncol Clin North Am 2002;16:1331-1350.
116. Guthrie TH. Breast cancer litigation: an update with practice guidelines. Breast J 1999;5:335-339.
117. Collins MM, Fowler FJ Jr, Roberts RG, Oesterling JE, Annas GJ, Barry MJ. Medical malpractice implications of PSA testing for early detection of prostate cancer. J Law Med Ethics 1997;25:234-242.
118. White JD. Complementary and alternative medicine research: A National Cancer Institute perspective. Semin Oncol 2002;29:546-551.
119. Richardson MA, Straus SE. Complementary and alternative medicine: Opportunities and challenges for cancer management and research. Semin Oncol 2002;29:531-545.
120. Carter B. Methodological issues and complementary therapies: Researching intangibles? Complement Ther Nurs Midwifery 2003;9:133-139.