The development of a psychoeducational intervention for women living with an increased risk of breast cancer

Patient Education and Counseling

Volumn 55, Issue 1, 2004, Pages 99-104

  Appleton, Sally ^a   Garcia Minaur, Sixto ^a   Porteous, Mary ^a   Campbell, Joyce ^a   Anderson, Elaine ^a   Watson, Maggie ^b   Cull, Ann ^a  

^a WESTERN GENERAL HOSPITAL   (United Kingdom)

^b INSTITUTE OF CANCER RESEARCH   (United Kingdom)

Author keywords

Breast cancer; Increased risk; Intervention development; Psychoeducational intervention; Written information

Indexed keywords

BREAST CARCINOMA; CANCER RISK; CLINICAL PRACTICE; HEALTH CARE NEED; HEALTH CARE PERSONNEL; HEALTH SERVICES RESEARCH; HIGH RISK PATIENT; HUMAN; MEDICAL INFORMATION; PATIENT COUNSELING; PATIENT EDUCATION; PATIENT INFORMATION; PILOT STUDY; PRIORITY JOURNAL; PROCESS DEVELOPMENT; PSYCHOSOCIAL CARE; PSYCHOTHERAPY; REVIEW; SELF HELP;

EID: 5344224727     PISSN: 07383991     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.pec.2003.08.004     Document Type: Article

References (28)

1. Slattery M., Kerber R. A comprehensive evaluation of family history and breast cancer risk. J. Am. Med. Assoc. 270:1993;1563-1568
2. Appleton S., Fry A., Rees G., Rush R., Cull A. Psychosocial effects of living with an increased risk of breast cancer: an exploratory study using telephone focus groups. Psycho-Oncology. 9:2000;511-521
3. Appleton S. Cross-sectional study to investigate the impact of appraisal, coping style, social support and breast cancer cues on psychological distress in women living with an increased risk of breast cancer. In: Psychosocial effects of living with an increased risk of breast cancer. Unpublished PhD thesis, University of Edinburgh; 2003 [chapter 4].
4. Thomas R., Thornton H., Mackay J. Patient information materials in oncology: are they needed and do they work? Clin. Oncol. 11:1999;225-231
5. National Cancer Institute. Genetic testing for breast cancer risk: it's your choice. 1997. http://cancernet.nci.nih.gov/peb/genetic-testing/ (accessed 30/04/2001).
6. Cancer Research Campaign. Breast and/or ovarian cancer in the family: learning more about your risks and options. 1999.
7. Kelly PT. Assess your true risk of breast cancer. New York: Henry Holt; 2000.
8. Audrain J., Rimer B., Cella D., Stefanek M., Garber J., Pennanen M., et al. The impact of a brief coping skills intervention on adherence to breast self-examination among first-degree relatives of newly diagnosed breast cancer patients. Psycho-Oncology. 8:1999;220-229
9. Cull A., Miller H., Porterfield T., Mackay J., Anderson E.D.C., Steel C.M., et al. The use of videotaped information in cancer genetic counselling: a randomized evaluation study. Br. J. Cancer. 77:1998;830-837
10. Esplen M., Toner B., Hunter J., Glendon G., Liede A., Narod S., et al. A supportive-expressive group intervention for women with a family history of breast cancer: results of a phase II study. Psycho-Oncology. 9:2000;243-252
11. Gagnon P., Massie M.J., Kash K.M., Gronert M., Heerdt A.S., Brown K., et al. Perception of breast cancer risk and psychosocial distress in women attending a surveillance program. Psycho-Oncology. 5:1996;259-269
12. Kash K., Holland J., Miller D., Osborne M. Intervention for women at risk for breast cancer. Psycho-Oncology. 8:1999;9. [abstract]
13. Lerman C., Schwartz M.D., Miller S.M., Daly M., Sands C., Rimer B.K. A randomized trial of breast cancer risk counseling: interacting effects of counseling, education level, and coping style. Health Psychol. 15:1996;75-83
14. Schwartz M.D., Lerman C., Audrain J., Cella D., Rimer B., Stefanek M., et al. The impact of a brief problem-solving training intervention for relatives of recently diagnosed breast cancer patients. Ann. Beh. Med. 20:1998;7-12
15. Watson M., Duvivier V., Wade Walsh M., Ashley S., Davidson J., Papaikonomou M., et al. Family history of breast cancer: what do women understand and recall about their genetic risk? J. Med. Genet. 35:1998;731-738
16. Wellisch D., Hoffman A., Goldman S., Hammerstein J., Klein K., Bell M. Depression and anxiety symptoms in women at high risk for breast cancer: pilot study of a group intervention. Am. J. Psychiatry. 156:1999;1644-1645
17. Bower P., Richards D., Lovell K. The clinical and cost-effectiveness of self-help treatments for anxiety and depressive disorders in primary care: a systematic review. Br. J. Gen. Pract. 51:2001;838-845
18. Ewles L, Simnett I. Promoting health: a practical guide to health education. Chichester: Wiley; 1985.
19. Coulter A, Entwistle V, Gilbert D. Informing patients: an assessment of the quality of patient information materials. London: King's Fund; 1998.
20. Centre for Health Information Quality. Readability and quality tools. 1997. http://www.hfht.org/chiq/publications.htm (accessed 09/01/2001).
21. Centre for Health Information Quality. Involving consumers in the development and evaluation of health information. 1999. http://www.hfht.org/ chiq/publications.htm (accessed 09/01/2001).
22. Centre for Health Information Quality. Guidelines for producing and maintaining patient information on conditions and treatments. 2000. http://www.hfht.org/chiq/guidelines.htm (accessed 09/01/2001).
23. Plain English Campaign. How to write medical information in plain English. 2001. http://www.plainenglish.co.uk/guides.html (accessed 09/01/2001).
24. Plain English Campaign. The plain English guide to design and layout. 2001. http://www.plainenglish.co.uk/guides.html (accessed 09/01/2001).
25. McLaughlin G. SMOG grading - a new readability formula. J. Reading. 12:1969;639-646
26. Beaver K., Luker K. Readability of patient information booklets for women with breast cancer. Patient Educ. Couns. 31:1997;95-102
27. Rimer BK, Schildkraut JM, Lerman C, Lin TH, Audrain J for the High Risk Breast Cancer Consortium. Participation in a women's breast cancer risk counseling trial: who participates? Who declines? Cancer 1996;77:2348-55.
28. Smith H., Gooding S., Brown R., Frew A. Evaluation of readability and accuracy of information leaflets in general practice for patients with asthma. Br. Med. J. 317:1998;264-265