Informed consent and medical ordeal: A qualitative study

Internal Medicine Journal

Volumn 38, Issue 8, 2008, Pages 624-628

  Little, M ^a,b   Jordens, C F C ^a   McGrath, C ^a   Montgomery, K ^a   Lipworth, W ^a   Kerridge, I ^a  

^a University of Sydney   (Australia)

^b UNIVERSITY OF SYDNEY   (Australia)

Author keywords

Autologous stem cell transplantation; Extreme treatment; Haematological malignancy; Informed consent; Medical communication

Indexed keywords

ADULT; ARTICLE; AUTOLOGOUS STEM CELL TRANSPLANTATION; CAREGIVER; CLINICAL ARTICLE; COHORT ANALYSIS; DECISION MAKING; DOCTOR PATIENT RELATION; FEMALE; HEMATOPOIETIC SYSTEM TUMOR; HUMAN; INFORMED CONSENT; INTERPERSONAL COMMUNICATION; INTERVIEW; LYMPHOMA; MALE; MEDICAL INFORMATION; OUTCOME ASSESSMENT; PATIENT SATISFACTION; PRIORITY JOURNAL; QUALITATIVE RESEARCH; STEM CELL TRANSPLANTATION;

ADULT; AGED; COHORT STUDIES; FEMALE; HUMANS; INFORMED CONSENT; MALE; MIDDLE AGED; PATIENT PARTICIPATION; PATIENT SATISFACTION; PHYSICIAN-PATIENT RELATIONS; QUALITATIVE RESEARCH; STEM CELL TRANSPLANTATION;

EID: 51349117768     PISSN: 14440903     EISSN: 14455994     Source Type: Journal    
DOI: 10.1111/j.1445-5994.2008.01700.x     Document Type: Article

References (29)

1. Dawes PJ, O'Keefe L. Informed consent: Using a structured interview changes patients' attitudes toward informed consent. J Laryngol Otol 1993 107 : 775 9.
2. Fellner CH, Marshall JR. Kidney donors - the myth of informed consent. Am J Psychiatry 1970 126 : 1245 51.
3. Hoshino K. Bioethical issues and principles in cancer treatment. Gan To Kagaku Ryoho 1992 19 : 281 5.
4. Lantos J. Informed consent: the whole truth for patients? Cancer 1993 72 Suppl 2811 15.
5. Lavelle-Jones C, Byrne DJ, Rice P, Cuschieri A. Factors influencing quality of informed consent. BMJ 1993 306 : 885 90.
6. Little JM, Leeder S. Logic, hermeneutics and informed consent. Eur J Surg 1996 162 : 3 10.
7. Marta J. A linguistic model of informed consent. J Med Philos 1996 21 : 41 60.
8. Meisel A, Roth L. What we do and do not know about informed consent. J Am Med Assoc 1981 246 : 2473 7.
9. Tognoni G, Geraci E. Approaches to informed consent. Control Clin Trials 1997 18 : 621 7.
10. Wear S. Informed Consent: Patient Autonomy and Physician Beneficence within Clinical Medicine. Dordrecht : Kluwer Academic Publishers 1993.
11. McNeill PM. The Ethics and Politics of Human Experimentation. Cambridge : Cambridge University Press 1993.
12. Hellman S, Hellman DS. Of mice but not men: problems of the randomized clinical trial. N Engl J Med 1991 324 : 1585 9.
13. McLean SAM. Informed consent, medical research and the competent adult. In : Doyal L, Tobias JS, eds. Informed Consent in Medical Research. London : BMJ Books 2001 166 72.
14. Doyal L, Tobias JS, eds. Informed Consent in Medical Research. London : BMJ Books 2002.
15. Simes RJ, Tattersall MH, Coates AS, Raghavan D, Solomon HJ, Smartt H. Randomised comparisons of procedures for obtaining informed consent in clinical trials of treatment of cancer. BMJ 1986 293 : 1065 8.
16. Monaco GP. The partnership of empowerment: caregivers and survivors. J Psychosoc Oncol 1992 10 : 121 33.
17. Daugherty CK. Informed consent, the cancer patient, and Phase 1 clinical trials. In : Angelos P, ed. Ethical Issues in Cancer Patient Care. Dordrecht : Kluwer Academic Publishers 2000 77 89.
18. Little M. Humane Medicine. Cambridge : Cambridge University Press 1995.
19. Cassell EJ, Leon AC, Kaufman SG. Preliminary evidence of impaired thinking in sick patients. Ann Intern Med 2001 134 : 1120 23.
20. High Court of Australia. Rogers v Whitaker. 1992. 175 CLR 479 F.C. 92/045.
21. Kerridge I, Lowe M, McPhee J. Ethics and the Law for the Health Professions. Sydney : Federation Press 2005.
22. Beauchamp TL, Childress JF. Principles of Biomedical Ethics. Oxford : Oxford University Press 2001.
23. Little M, Jordens CF, McGrath C, Montgomery K, Kerridge I, Carter SM. Pragmatic pluralism: Mutual tolerance of contested understandings between orthodox and alternative practitioners in autologous stem cell transplantation. Soc Sci Med 2007 64 : 1512 23.
24. Little M, Jordens CFC, Sayers E-J. Discourse communities and the discourse of experience. Health 2003 7 : 73 86.
25. Swales JM. Genre Analysis: English in Academic and Research Settings. Cambridge : Cambridge University Press 1990.
26. Alvesson M, Karreman D. Varieties of discourse: on the study of organizations through discourse analysis. Hum Relat 2000 53 : 1125 49.
27. Little M. The fivefold root of an ethics of surgery. Bioethics 2002 16 : 183 201.
28. Broyard A. Intoxicated by My Illness. New York : Fawcett Columbine 1992.
29. Wilson G. Quoted in Surgeons All by H. Graham. London : Rich and Cowan 1956.