Genetic counseling: Legal issues surrounding nondisclosure of paternity

Journal of Legal Medicine

Volumn 29, Issue 3, 2008, Pages 345-361

  Brown, Kelly ^a  

^a SOUTHERN ILLINOIS UNIVERSITY   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

DECISION MAKING; DOCTOR PATIENT RELATION; FAMILY LIFE; FAMILY RELATION; FATHER; FEAR; GENETIC COUNSELING; HUMAN; HUMAN RIGHTS; INFORMED CONSENT; INTERPERSONAL COMMUNICATION; LAW; MEDICAL ETHICS; MEDICAL PRACTICE; MEDICOLEGAL ASPECT; PATERNITY; PERSONAL AUTONOMY; PHYSICIAN ATTITUDE; PREGNANCY; PRIVACY; PROFESSIONAL SECRECY; REVIEW;

CHROMOSOME ABERRATIONS; CONFLICT (PSYCHOLOGY); DECEPTION; ETHICS, MEDICAL; GENES, RECESSIVE; GENETIC COUNSELING; HETEROZYGOTE DETECTION; HUMANS; INFANT, NEWBORN; MALPRACTICE; NONDIRECTIVE THERAPY; PATERNITY; PRIVACY; TRUTH DISCLOSURE;

EID: 50149101163     PISSN: 01947648     EISSN: 1521057X     Source Type: Journal    
DOI: 10.1080/01947640802297587     Document Type: Review

References (117)

1. NEIL F. SHARP & RONALD F. CARTER, GENETIC TESTING: CARE, CONSENT, AND LIABILITY 1 (2006).
2. Lainie Friedman Ross, Disclosing Misattributed Paternity, 10 BIOETHICS 114, 114 (1996).
3. Anneke Lucassen & Michael Parker, Revealing False Paternity: Some Ethical Considerations, 357 LANCET 1033, 1033 (2001).
4. Id.
5. Id.
6. Ross, supra note 2, at 115.
7. Dianne M. Bartels et al., Nondirectiveness in Genetic Counseling: A Survey of Practitioners, 72 AM. J. MED. GENET. 172, 172 (1997).
8. National Society of Genetic Counselors, Code of Ethics, http://www.nsgc.org/about/codeEthics.cfm (last accessed Mar. 30, 2008). NSGC is a not-for-profit, professional membership organization consisting of more than 2,000 genetic counselors. Genetic counselors work as members of a health care team, providing risk analysis, information, and support to families and individuals who have members with birth defects, genetic disorders, or may be at risk for inherited conditions.
9. Id.
10. Id.
11. Id.
12. Id.
13. Dorothy C.Wertz et al., Medical Geneticists Confront Ethical Dilemmas: Cross-Cultural Comparisons Among 18 Nations, 46 AM. J. HUM. GENET. 1200 (1990).
14. Id. at 1201.
15. Id.
16. Id.
17. Deborah F. Pencarinha et al., Ethical Issues in Genetic Counseling: A Comparison of M.S. Counselor and Medical Geneticist Perspectives, 1 J. GENET. COUNSELING 19, 23 (1992).
18. Id.
19. Wertz et al., supra note 13.
20. Dorothy C. Wertz & John C. Fletcher, Privacy and Disclosure in Medical Genetics Examined in an Ethics of Care, 5 BIOETHICS 212, 217 (1991).
21. Lucassen, supra note 3, at 1034.
22. Erica Lucast, Informed Consent and the Misattributed Paternity Problem in Genetic Counseling, 21 BIOETHICS 41, 45 (2007).
23. Ross, supra note 2, at 126.
24. Id. at 122.
25. Id. at 120.
26. Id. at 121.
27. Lucassen, supra note 3, at 1033.
28. Ross, supra note 2, at 123.
29. Lucast, supra note 22, at 42.
30. Ross, supra note 2.
31. Id. at 126; Lucast, supra note 22.
32. Wertz, supra note 20.
33. Ross, supra note 2, at 119.
34. Id. at 121.
35. Id. at 126.
36. Id. at 120.
37. Id.
38. Id.
39. Id. at 122.
40. Id.
41. Id.
42. Id. at 118.
43. Id.
44. Id.
45. Id. at 122.
46. Lucassen, supra note 3, at 1034.
47. Wertz, supra note 20, at 218.
48. Id. at 219.
49. Id.
50. Id.
51. Id.
52. Ross, supra note 2, at 114.
53. Id. at 130.
54. Id.
55. Lucast, supra note 22, at 49.
56. Id.
57. Id. at 45.
58. Id.
59. Id. at 46.
60. Id.
61. Id.
62. Id. at 49.
63. Wazevich v. Tasse, No. 88938, 2007 WL 2793339 (Ohio App. 2007).
64. Sonia M. Suter, Whose Genes Are These Anyway?: Familial Conflicts Over Access to Genetic Information, 91 MICH. L. REV. 1854, 1870 (1993).
65. Susan B. Apel, Privacy in Genetic Testing: Why Women Are Different, 11 S. CAL. INTERDISC. L.J. 1, 2 (2001); PBS, Hippocratic Oath - Modern Version, http://www.pbs.org/wgbh/nova/ doctors/oath_modern.html (last visited Mar. 30, 2008). Many medical students take a modern version of the Hippocratic Oath at graduation. Advocates for privacy rely on the line: "I will respect the privacy of my patients, for their problems are not disclosed to me that the world may know." The older, classical version states: "What I may see or hear in the course of treatment or even outside the treatment in regard to the life of men, which on account one must spread abroad, I will keep to myself, holding such things shameful to be spoken about."
66. Apel, supra note 65, at 2.
67. Suter, supra note 64, at 1871.
68. Apel, supra note 65, at 7.
69. Id.
70. Id.
71. See supra § I.
72. Wertz et al., supra note 13.
73. Suter, supra note 64, at 1871.
74. William F. Mulholland II & Ami S. Jaeger, Genetic Privacy and Discrimination: A Survey of State Legislation, 39 JURIMETRICS J. 317, 317 (1999).
75. National Conference of State Legislatures, State Genetic Privacy Laws, http://www.ncsl.org/programs/health/genetics/prt.htm (last visited Apr. 15, 2008).
76. Id.
77. Id.
78. Mulholland & Jaeger, supra note 74, at 317.
79. Id.
80. Id.
81. Id.
82. Id.
83. 410 ILL. COMP. STAT. 513/15 (2000).
84. Id.
85. Id.
86. Id. § 513/30.
87. Id.
88. Id.
89. Id.
90. Id.
91. Id. § 513/40.
92. Id.
93. Id.
94. N.Y. CIV. RIGHTS LAW § 79-1 (McKinney 2007).
95. COLO. REV. STAT. ANN. § 10-3-1104.7(1)(a).
96. Id. § 10-3-1104.7(1)(c).
97. Id. § 10-3-1104.7(1)(d).
98. Id. § 10-3-1104.7(5).
99. Id. § 10-3-1104.7(12)(a)-(b).
100. Mulholland & Jaeger, supra note 74.
101. Id.
102. Apel, supra note 65, at 1.
103. Linda Wright et al., Disclosure of Misattributed Paternity: Issues Involved in the Discovery of Unsought Information, 15 SEMINARS IN DIALYSIS 202, 202 (2002).
104. Id.
105. Id. at 204.
106. Id.
107. Id.
108. Id.
109. Id.
110. Id. at 203.
111. Id.
112. Id. at 205.
113. Id.
114. Id.
115. Id. at 204.
116. Id.
117. National Society of Genetic Counselors, supra note 8.