A Software Tool for Removing Patient Identifying Information from Clinical Documents

Journal of the American Medical Informatics Association

Volumn 15, Issue 5, 2008, Pages 601-610

  Friedlin, F Jeff ^a   McDonald, Clement J ^a  

^a REGENSTRIEF INSTITUTE   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; CALCULATION; CLINICAL RESEARCH; COMPUTER LANGUAGE; COMPUTER PROGRAM; COMPUTER SYSTEM; MEDICAL DEIDENTIFICATION SYSTEM; MEDICAL DOCUMENTATION; MEDICAL INFORMATICS; MEDICAL INFORMATION SYSTEM; PATIENT IDENTIFICATION; PRIVACY; PROFESSIONAL SECRECY;

ALGORITHMS; CONFIDENTIALITY; DATA COLLECTION; HEALTH INSURANCE PORTABILITY AND ACCOUNTABILITY ACT; HUMANS; INFORMATION STORAGE AND RETRIEVAL; MEDICAL RECORDS SYSTEMS, COMPUTERIZED; SOFTWARE; UNITED STATES;

EID: 49849102836     PISSN: 10675027     EISSN: None     Source Type: Journal    
DOI: 10.1197/jamia.M2702     Document Type: Article

References (26)

1. NOVA: Public Broadcasting System [homepage on the internet]. Louis Lasagna. Hippocratic Oath-Modern Version; 1964. Available from: http://www.pbs.org/wgbh/nova/doctors/oath_modern.html. Accessed July 17, 2008.
2. Tilton S.H. Right to privacy and confidentiality of medical records. Occup Med 11 (1996) 17-29
3. Kurtz G. EMR confidentiality and information security. J Healthc Inf Manag 17 (2003) 41-48
4. Health and Human Services HIPAA Web site. http://www.hhs.gov/ocr/hipaa/ Accessed July 1, 2006
5. U.S. Department of Health and Human Services. Standards for Privacy of Individually Identifiable Health Information; Final Rule. Code of Federal Regulations, Title 45, Parts 160 and 164. Available at: http://hhs.gov/ocr/combinedregtext.pdf. Accessed May 1, 2006.
6. Thomas S.M., Mamlin B., Schadow G., and McDonald C. A successful technique for removing names in pathology reports using an augmented search and replace method. Proc AMIA Symp (2002) 777-781
7. Gupta D., Saul M., and Gilbertson J. Evaluation of a deidentification (De-Id) software engine to share pathology reports and clinical documents for research. Am J Clin Pathol 121 (2004) 176-186
8. Berman J.J. Concept-match medical data scrubbing. How pathology text can be used in research. Arch Pathol Lab Med 127 (2003) 680-686
9. Beckwith B.A., Mahaadevan R., Balis U.J., and Kuo F. Development and evaluation of an open source software tool for deidentification of pathology reports. BMC Med Inform Decis Mak 6 (2006) 12
10. Sweeney L. Replacing personally-identifying information in medical records, the Scrub system. Proc AMIA Annu Fall Symp (1996) 333-337
11. Sweeney L. Guaranteeing anonymity when sharing medical data, the Datafly System. Proc AMIA Annu Fall Symp (1997) 51-55
12. Ruch P., Baud R.H., Rassinoux A.M., Bouillon P., and Robert G. Medical document anonymization with a semantic lexicon. Proc AMIA Symp (2000) 729-733
13. De-id Web site. http://www.de-idata.com/ Accessed July 5, 2006
14. Deidentify Web site. http://www.deidentify.com/ Accessed July 5, 2006
15. Uzuner O., Luo Y., and Szolovits P. Evaluating the state-of-the-art in automatic de-identification. J Am Med Inform Assoc 14 (2007) 550-563
16. Wellner B., Huyck M., Mardis S., et al. Rapidly retargetable approaches to de-identification in medical records. J Am Med Inform Assoc 14 (2007) 564-573
17. Szarvas G., Farkas R., and Busa-Fekete R. State-of-the-art anonymization of medical records using an iterative machine learning framework. J Am Med Inform Assoc 14 (2007) 574-580
18. Health Level 7. HL7 Web site. http://www.hl7.org Accessed July 1, 2006
19. Henderson M. HL7 Messaging. 2nd ed. (2007), O Tech-Health Care Technology Solutions, Aubrey, TX
20. McDonald C.J., Overhage J.M., Tierney W.M., et al. The Regenstrief Medical Record System: a quarter century experience. Int J Med Inform 54 (1999) 225-253
21. McDonald C.J., Overhage J.M., Barnes M., et al. The Indiana network for patient care: a working local health information infrastructure. An example of a working infrastructure collaboration that links data from five health systems and hundreds of millions of entries. Health Aff (Millwood) 24 (2005) 1214-1220
22. Ispell Web site. http://ficus-www.cs.ucla.edu/geoff/ispell.html Accessed May 1, 2006
23. MetaMap Web site. http://mmtx.nlm.nih.gov/ Accessed July 5, 2006
24. Friedman C., Alderson P.O., Austin J.H., Cimino J.J., and Johnson S.B. A general natural-language text processor for clinical radiology. J Am Med Inform Assoc 1 (1994) 161-174
25. Friedman C., Shagina L., Lussier Y., and Hripcsak G. Automated encoding of clinical documents based on natural language processing. J Am Med Inform Assoc 11 (2004) 392-402
26. Friedman C., and Sideli R. Tolerating spelling errors during patient validation. Comput Biomed Res 25 (1992) 486-509