Validation of the childhood health assessment questionnaire in active juvenile systemic lupus erythematosus

Arthritis Care and Research

Volumn 59, Issue 8, 2008, Pages 1112-1119

  Meiorin, Silvia ^a   Pistorio, Angela ^a   Ravelli, Angelo ^a   Iusan, Silvia M ^a   Filocamo, Giovanni ^a   Trail, Lucia ^a   Oliveira, Sheila ^b   Cuttica, Ruben ^c   Espada, Graciela ^d   Alessio, Maria ^e   Mihaylova, Dimitrina ^f   Cortis, Elisabetta ^g   Martini, Alberto ^a   Ruperto, Nicolino ^a,h  

^a G GASLINI INSTITUTE   (Italy)

^b FEDERAL UNIVERSITY OF RIO DE JANEIRO   (Brazil)

^c HOSPITAL GENERAL DE NIÑOS PEDRO DE ELIZALDE   (Argentina)

^d HOSPITAL DE NIÑOS RICARDO GUTIÉRREZ   (Argentina)

^e UNIVERSITY OF NAPLES FEDERICO II   (Italy)

^f University Children Hospital   (Bulgaria)

^g BAMBINO GESÙ CHILDREN S HOSPITAL   (Italy)

^h UNIVERSITY OF GENOA   (Italy)

Author keywords

[No Author keywords available]

Indexed keywords

CORTICOSTEROID;

ADOLESCENT; ARTICLE; CHILDHOOD HEALTH ASSESSMENT QUESTIONNAIRE; CONSTRUCT VALIDITY; CORRELATION COEFFICIENT; CORTICOSTEROID THERAPY; CRONBACH ALPHA COEFFICIENT; DISEASE ACTIVITY; FEMALE; HUMAN; IMMUNOSUPPRESSIVE TREATMENT; INTERNAL CONSISTENCY; LABORATORY TEST; MAJOR CLINICAL STUDY; MALE; NAMED INVENTORIES, QUESTIONNAIRES AND RATING SCALES; OUTCOME ASSESSMENT; PAIN; PHYSICAL DISABILITY; RESPONSE VARIABLE; RHEUMATOLOGY; SYSTEMIC LUPUS ERYTHEMATOSUS; TREATMENT RESPONSE; VALIDATION STUDY;

ADOLESCENT; ADULT; AGE FACTORS; DISABILITY EVALUATION; FEASIBILITY STUDIES; FEMALE; HEALTH STATUS; HUMANS; LUPUS ERYTHEMATOSUS, SYSTEMIC; MALE; PAIN; QUESTIONNAIRES; REPRODUCIBILITY OF RESULTS;

EID: 49549117553     PISSN: 21514658     EISSN: None     Source Type: Journal    
DOI: 10.1002/art.23912     Document Type: Article

References (31)

1. Strand CV, Russell AS. WHO/ILAR taskforce on quality of life. J Rheumatol 1997;24:1630-3.
2. Burckhardt CS, Archenholtz B, Bjelle A. Measuring the quality of life of women with rheumatoid arthritis or systemic lupus erythematosus: a Swedish version of the Quality of Life Scale (QOLS). Scand J Rheumatol 1992;21:190-5.
3. Milligan SE, Hom DL, Ballou SP, Persse LJ, Svilar GM, Coulton CJ. An assessment of the Health Assessment Questionnaire functional ability index among women with systemic lupus erythematosus. J Rheumatol 1993;20:972-6.
4. Gladman DD, Urowitz MB, Ong A, Gough J, MacKinnon A. A comparison of five health status instruments in patients with systemic lupus erythematosus (SLE). Lupus 1996;5:190-5.
5. Fortin PR, Abrahamowicz M, Neville C, du Berger R, Fraenkel L, Clarke AE, et al. Impact of disease activity and cumulative damage on the health of lupus patients. Lupus 1998;7:101-7.
6. Fries JF, Spitz P, Kraines RG, Holman HR. Measurement of patient outcome in arthritis. Arthritis Rheum 1980;23:137-45.
7. Singh G, Athreya B, Fries J, Goldsmith D, Ostrov B. Measurement of functional status in juvenile rheumatoid arthritis [abstract]. Arthritis Rheum 1990;33 Suppl 9:S15.
8. Huber AM, Hicks JE, Lachenbruch PA, Perez MD, Zemel LS, Rennebohm RM, et al, for the Juvenile Dermatomyositis Disease Activity Collaborative Study Group. Validation of the Childhood Health Assessment Questionnaire in the juvenile idiopathic myopathies. J Rheumatol 2001;28:1106-11.
9. Ruperto N, Ravelli A, Murray KJ, Lovell DJ, Andersson-Gare B, Feldman BM, et al, for the Paediatric Rheumatology International Trials Organisation (PRINTO) and the Pediatric Collaborative Study Group (PRCSG). Preliminary core sets of measures for disease activity and damage assessment in juvenile systemic lupus erythematosus and juvenile dermatomyositis. Rheumatology (Oxford) 2003;42:1452-9.
10. Ruperto N, Ravelli A, Cuttica R, Espada G, Ozen S, Porras O, et al, for the Pediatric Rheumatology International Trials Organization (PRINTO) and the Pediatric Rheumatology Collaborative Study Group (PRCSG). The Pediatric Rheumatology International Trials Organization criteria for the evaluation of response to therapy in juvenile systemic lupus erythematosus: prospective validation of the disease activity core set. Arthritis Rheum 2005;52:2854-64.
11. Ruperto N, Ravelli A, Oliveira S, Alessio M, Mihaylova D, Pasic S, et al, for the Pediatric Rheumatology International Trials Organization (PRINTO) and the Pediatric Rheumatology Collaborative Study Group (PRCSG). The Pediatric Rheumatology International Trials Organization/American College of Rheumatology provisional criteria for the evaluation of response to therapy in juvenile systemic lupus erythematosus: prospective validation of the definition of improvement. Arthritis Rheum 2006;55:355-63.
12. Tan EM, Cohen AS, Fries JF, Masi AT, McShane DJ, Rothfield NF, et al. The 1982 revised criteria for the classification of systemic lupus erythematosus. Arthritis Rheum 1982;25:1271-7.
13. Hochberg MC, for the Diagnostic and Therapeutic Criteria Committee of the American College of Rheumatology. Updating the American College of Rheumatology revised criteria for the classification of systemic lupus erythematosus [letter]. Arthritis Rheum 1997;40:1725.
14. Martini A, Ruperto N, for the Paediatric Rheumatology International Trials Organization (PRINTO). Quality of life in juvenile idiopathic arthritis patients compared to healthy children. Clin Exp Rheumatol 2001;19 Suppl 23:S1-172.
15. Ruperto N, Ravelli A, Pistorio A, Malattia C, Cavuto S, Gado-West L, et al, for the Paediatric Rheumatology International Trials Organisation. Cross-cultural adaptation and psychometric evaluation of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ) in 32 countries: review of the general methodology. Clin Exp Rheumatol 2001;19(4 Suppl 23):S1-9.
16. Vitali C, Bencivelli W, Isenberg DA, Smolen JS, Snaith ML, Sciuto M, et al. Disease activity in systemic lupus erythematosus: report of the Consensus Study Group of the European Workshop for Rheumatology Research. II. Identification of the variables indicative of disease activity and their use in the development of an activity score. Clin Exp Rheumatol 1992;10:541-7.
17. Vitali C, Bencivelli W, Mosca M, Carrai P, Sereni M, Bombardieri S. Development of a clinical chart to compute different disease activity indices for systemic lupus erythematosus. J Rheumatol 1999;26:498-501.
18. Liang MH, Socher SA, Larson MG, Schur PH. Reliability and validity of six systems for the clinical assessment of disease activity in systemic lupus erythematosus. Arthritis Rheum 1989;32:1107-18.
19. Brunner HI, Feldman BM, Bombardier C, Silverman ED. Sensitivity of the Systemic Lupus Erythematosus Disease Activity Index, British Isles Lupus Assessment Group Index, and Systemic Lupus Activity Measure in the evaluation of clinical change in childhood-onset systemic lupus erythematosus. Arthritis Rheum 1999;42:1354-60.
20. Landgraf JM, Abetz L, Ware JE. The CHQ user's manual. 1st ed. Boston: The Health Institute, New England Medical Center; 1996.
21. Boers M, Brooks P, Strand CV, Tugwell P. The OMERACT filter for outcome measures in rheumatology [editorial]. J Rheumatol 1998;25:198-9.
22. Bellamy N. Clinimetric concepts in outcome assessment: the OMERACT filter. J Rheumatol 1999;26:948-50.
23. Liang MH, Fossel AH, Larson MG. Comparisons of five health status instruments for orthopedic evaluation. Med Care 1990;28:632-42.
24. Mosteller F, Tukey JW. Data analysis and regression. Reading (MA): Addison Wesley; 1977.
25. Ruperto N, Ravelli A, Pistorio A, Ferriani V, Calvo I, Ganser G, et al, for the Paediatric Rheumatology International Trials Organisation (PRINTO) and the Pediatric Rheumatology Collaborative Study Group (PRCSG). The provisional Paediatric Rheumatology International Trials Organisation/American College of Rheumatology/European League Against Rheumatism disease activity core set for the evaluation of response to therapy in juvenile dermatomyositis: a prospective validation study. Arthritis Rheum 2008;59:4-13.
26. Cronbach LJ. Coefficient α and the internal structure of tests. Psychometrika 1951;16:297-334.
27. Cohen J. A coefficient of agreement for nominal scales. Educ Psychol Meas 1960;20:37-46.
28. Landis JR, Koch GC. The measurement of observer agreement for categorical data. Biometrics 1977;33:159-74.
29. Ruperto N, Murray KJ, Gerloni V, Wulffraat N, de Oliveira SK, Falcini F, et al, for the Pediatric Rheumatology International Trials Organization. A randomized trial of parenteral methotrexate comparing an intermediate dose with a higher dose in children with juvenile idiopathic arthritis who failed to respond to standard doses of methotrexate. Arthritis Rheum 2004;50:2191-201.
30. Lovell DJ, Giannini EH, Reiff A, Cawkwell D, Silverman ED, Nocton JJ, et al. Etanercept in children with polyarticular juvenile rheumatoid arthritis. N Engl J Med 2000;342:763-9.
31. Ruperto N, Lovell DJ, Cuttica R, Wilkinson N, Woo P, Espada G, et al, for the Pediatric Rheumatology International Trials Organization and the Pediatric Rheumatology Collaborative Study Group. A randomized, placebo-controlled trial of infliximab plus methotrexate for the treatment of polyarticular-course juvenile rheumatoid arthritis. Arthritis Rheum 2007;56:3096-106.