Coping and adjustment in children with primary immunodeficiency disorders and kidney diseases: The role of illness severity

Children's Health Care

Volumn 37, Issue 3, 2008, Pages 210-224

  Piazza Waggoner, Carrie ^a   Adams, Christina D ^b   Muchant, Dianne ^c   Wilson, Nevin W ^d   Hogan, Mary Beth ^d  

^a CINCINNATI CHILDREN'S HOSPITAL MEDICAL CENTER   (United States)

^b UNIVERSITY OF FLORIDA HEALTH   (United States)

^c University of Louisville School of Medicine   (United States)

^d UNIVERSITY OF NEVADA SCHOOL OF MEDICINE   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

CREATININE; IMMUNOGLOBULIN; IMMUNOSUPPRESSIVE AGENT;

ADJUSTMENT; ADOLESCENT; ADULT; ARTICLE; CAREGIVER; CHILD; CLINICAL ARTICLE; CONTROLLED STUDY; COPING BEHAVIOR; DISEASE SEVERITY; DISTRACTIBILITY; FEMALE; HUMAN; IMMUNE DEFICIENCY; KIDNEY DISEASE; KIDNEY TRANSPLANTATION; MALADJUSTMENT; MALE; PROBLEM SOLVING; PSYCHOSOCIAL CARE; PSYCHOSOCIAL WITHDRAWAL; SELF REPORT; SOCIAL PSYCHOLOGY; T LYMPHOCYTE;

EID: 47949099368     PISSN: 02739615     EISSN: None     Source Type: Journal    
DOI: 10.1080/02739610802151555     Document Type: Article

References (23)

1. Bock, G. H., Ruley, E. J., & Moore, M. P. (1993). A parent's guide to kidney disorders.Minneapolis: University of Minnesota Press.
2. Carver, C. S. (1997). You want to measure coping but your protocol's too long: Consider the Brief COPE. International Journal of Behavioral Medicine, 4, 92-100.
3. Christensen, A. J., Smith, T. W., Turner, C. W., Holman, J. M., Gregory, M. C., & Rich, M. A. (1992). Family support, physical impairment, and adherence in hemodialysis: An investigation of main and buffering effects. Journal of Behavioral Medicine, 15, 313-325.
4. Fukunishi, I., & Kudo, H. (1995). Psychiatric problems of pediatric end-stage renal failure. General Hospital Psychiatry, 17(1), 32-36. Garralda, M. E., Jameson, R. A., Reynolds, J. M., & Postlethwaite, R. J. (1989). Psychiatric adjustment in children with chronic renal failure. Journal of Child Psychology and Psychiatry, 29, 79-90.
5. Geist, R., Grdisa, V., & Otley, A. (2003). Psychosocial issues in the child with chronic conditions. Best Practice & Research in Clinical Gastroenterology, 17, 141-152.
6. Holden, E. W., Chmielewski, D., Nelson, C. C., Kager, V. A., & Foltz, L. (1997). Controlling for general and disease-specific effects in child and family adjustment to chronic childhood illness. Journal of Pediatric Psychology, 22, 15-27.
7. Jeney-Gammon, P., Daugherty, T. K., Finch, A. J., Jr., Belter, R. W., & Foster, K. Y. (1993). Children's coping styles and report of depressive symptoms following a natural disaster. Journal of Genetic Psychology, 154, 259-267.
8. Kaplan, E. B. (1992). Primary immunodeficiency disorders. In S. B. Friedman, M. Fisher, & S. K. Schonberg (Eds.), Comprehensive adolescent health care (pp. 625-632). St. Louis, MO: Quality Medical Publishing, Inc.
9. Kotchick, B. A., Forehand, R., Armistead, L., Klein, K., & Wierson, M. (1996). Coping with illness: Interrelationships across family members and predictors of psychological adjustment. Journal of Family Psychology, 10, 358-370.
10. Midence, K. (1994). The effects of chronic illness on children and their families: An overview. Genetic, Social, and General Psychology Monographs, 120, 311-326.
11. National Kidney Foundation. (2002). National Kidney Foundation-Kidney disease outcomes quality initiative: Clinical practice guidelines for chronic kidney disease. Retrieved May 25, 2007, from http://www.kidney.org/ professionals/kdoqi/guidelines_ckd/toi.htm
12. Perrin, J. M., MacLean, W. E., Jr., & Perrin, E. C. (1989). Parental perceptions of health status and psychologic adjustment of children with asthma. Pediatrics, 83, 26-30.
13. Piazza-Waggoner, C., Adams, C. D., Cottrell, L., Taylor, B. K., Wilson, N. W., & Hogan, M. B. (2006). Child and caregiver psychosocial functioning in pediatric immunodeficiency disorders. Annals of Allergy, Asthma, & Immunology, 96, 298-303.
14. Reynolds, C. R., & Kamphaus, R. W. (1992). Behavioral Assessment Scale for Children: Manual. Circle Pines, MN: American Guidance Service.
15. Schweitzer, J. B., & Hobbs, S. A. (1995). Renal and liver disease: End-stage and transplantation issues. In M. C. Roberts (Ed.), Handbook of pediatric psychology (pp. 425-445). New York: Guilford.
16. Siefert, K., Wittmann, D., Farquar, S., & Talsma, F. (1992). Similarities and differences between children with asthma and children with cancer: Implications for preventive intervention. Journal of Primary Prevention, 13, 149-159.
17. Soliday, E., Kool, E., & Lande, M. B. (2000). Psychosocial adjustment in children with kidney disease. Journal of Pediatric Psychology, 25, 93-103.
18. Spirito, A. (1988). Kidcope: Manual. Available from the author.
19. Spirito, A. (1996). Commentary: Pitfalls in the use of brief screening measures of coping. Journal of Pediatric Psychology, 21, 573-575.
20. Spirito, A., Stark, L. J., & Tye, V. L. (1994). Stressors and coping strategies during hospitalization by chronically ill children. Journal of Clinical Child Psychology, 23, 314-322.
21. Stallard, P., Velleman, R., Langsford, J., & Baldwin, S. (2001). Coping and psychological distress in children involved in road traffic accidents. British Journal of Clinical Psychology, 40, 197-208.
22. Winkelstein, J. A., & Winkelstein, M. L. (Eds.). (2001). Patient and family handbook: For the primary immune deficiency diseases. Towson, MD: Immune Deficiency Foundation.
23. Zebraki, K., Palermo, T., Hostoffer, R., Duff, K., & Drotar, D. (2004). Health-related quality of life of children with primary immunodeficiency disease: A comparison study. Annals of Allergy, Asthma, & Immunology, 93, 557-561.