Thinking ethically about genetic inheritance: Liberal rights, communitarianism and the right to privacy for parents of donor insemination children

Journal of Medical Ethics

Volumn 34, Issue 4, 2008, Pages 281-284

  Burr, J ^a   Reynolds, P ^b  

^a UNIVERSITY OF SHEFFIELD   (United Kingdom)

^b EDGE HILL UNIVERSITY   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; ARTIFICIAL INSEMINATION; CHILD; CHILD PARENT RELATION; CONFIDENTIALITY; DONOR; EMBRYO (ANATOMY); ETHICS; FEMALE; GENETIC PRIVACY; GENETIC SCREENING; HUMAN; INTERPERSONAL COMMUNICATION; LEGAL ASPECT; MALE; OOCYTE; PSYCHOLOGICAL ASPECT; SPERMATOZOON;

CHILD; CONFIDENTIALITY; EMBRYO, MAMMALIAN; FEMALE; GENETIC PRIVACY; GENETIC SCREENING; HUMANS; INSEMINATION, ARTIFICIAL, HETEROLOGOUS; MALE; OVUM; PARENT-CHILD RELATIONS; SPERMATOZOA; TISSUE DONORS; TRUTH DISCLOSURE;

EID: 47749122674     PISSN: 03066800     EISSN: 14734257     Source Type: Journal    
DOI: 10.1136/jme.2007.020412     Document Type: Review

References (26)

1. Shenfield F, Steele SJ. What are the effects of anonymity and secrecy on the welfare of the child in gamete donation? Hum Reprod 1997;12:392-5.
2. FHEA information for donors http://212.49.193.187/cps/rde/xchg/SID- 3F57D79B-20110D4D/hfea/hs.xsl/271.html (accessed 21 January 2008).
3. Daniels KR, Taylor K. Secrecy and openness in donor insemination. Politics Life Sci 1993;12:155-70.
4. Klock SC, Jacob NC, Maier DA. A prospective study of donor insemination recipients: Secrecy, privacy, and disclosure. Fertil Steril 1994;62:477-84.
5. Brewaeys A, Golombok S, Naaktgeboren N, et al. Donor insemination: Dutch parents' opinions about confidentiality and donor anonymity and the emotional adjustment of their children. Hum Reprod 1997;12:1591-7.
6. Purdie A, Peek JC, Irwin R, et al. Identifiable semen donors-attitudes of donors and recipient couples. N Z Med J 1992;105:27-8.
7. Brewaeys A, Ponjaert-Kristoffersen I, Van Steirteghem A, et al. Children from anonymous donors: an inquiry into homosexual and heterosexual parents' attitudes. J Psychosom Obstet Gynaecol 1993;14:23-35.
8. Brewaeys A. Donor insemination, the impact on family and child development. J Psychosom Obstet Gynaecol 1996;17:1-13.
9. Leiblum SR, Aviv AL. Disclosure issues and decisions of couples who conceived via donor insemination. J Psychosom Obstet Gynaecol 1997;18:292-300.
10. Golombok S, Breaeys A, Giavazzi MT, et al. The European study of assisted reproduction families: The transition to adolescence. Hum Reprod 2002;17:830-40.
11. Söderström-Anttila V, Foudila T, Ripatti U-R, et al. Embryo donation: Outcome and attitudes among embryo donors and recipients. Hum Reprod 2001;16:1120-8.
12. Cook R, Golombok S, Bish A, et al. Disclosure of donor insemination: parental attitudes. Am J Orthopsychiatry 1995;65:549-59.
13. Gottlieb C, Lalos O, Lindblad F. Disclosure of donor insemination to the child: The impact of Swedish legislation on couples' attitudes. Hum Reprod 2000;15:2052-6.
14. Walker A, Gregson S, McLaughlin E. Attitudes towards donor insemination - a post Warnock survey. Hum Reprod 1987;2:745-50.
15. Daniels KR, Lewis GM, Gillet W. Telling donor insemination offspring about their conception: The nature of couples' decision-making. Soc Sci Med 1995;40:1213-20.
16. Looi K. Donor insemination: which families tell? In: Jansen R, Mortimer D, eds. Towards reproductive certainty: fertility and genetics beyond 1999. Parthenon: Lancashire, 1999:145-56.
17. Mason J. Qualitative researching. London: Sage, 2002:145-203.
18. Kaplan L, Tong R. Controlling our reproductive destiny: a technological and philosophical perspective. Cambridge: MIT Press, 1994:186-213.
19. Kemp P. From ethics to bioethics. In: Kearney R, Dooley M, eds. Questioning ethics: contemporary debates in philosophy. London: Routledge, 1999:283-93.
20. Rawls J. A theory of justice. Cambridge: Harvard University Press, 1999:118-23.
21. Etzioni A. The spirit of community. London: Fontana Press, 1993:1-88.
22. Etzioni A. New communitarian thinking. Charlottesville: University of Virginia Press, 1995:1-19.
23. Tam H. Communitarianism: a new agenda for politics and citizenship. London: MacMillan, 1998:219-46.
24. Taylor C. Philosophy and the human sciences: philosophical papers 2. Cambridge: Cambridge University Press, 1985:190.
25. Avineri S, de-Shalit A. Introduction. In: Avineri S, de-Shalit A, eds. Communitarianism and individualism. Oxford: Oxford University Press, 1992:1-11.
26. Demaine J. Beyond communitarianism: citizenship, politics and education. London: MacMillan, 1996:6-29.