Palliative care in advanced dementia; A mixed methods approach for the development of a complex intervention

BMC Palliative Care

Volumn 7, Issue 1, 2008, Pages

  Sampson, Elizabeth L ^a,b   Thuné Boyle, Ingela ^a   Kukkastenvehmas, Riitta ^a   Jones, Louise ^a   Tookman, Adrian ^a,c   King, Michael ^a   Blanchard, Martin R ^a,d  

^a ROYAL FREE AND UNIVERSITY COLLEGE MEDICAL SCHOOL   (United Kingdom)

^b BARNET ENFIELD AND HARINGEY MENTAL HEALTH NHS TRUST   (United Kingdom)

^c ROYAL FREE HOSPITAL   (United Kingdom)

^d CAMDEN AND ISLINGTON NHS FOUNDATION TRUST   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; CLINICAL TRIAL; CONTROLLED STUDY; DEMENTIA; HEALTH CARE NEED; HOSPITAL ADMISSION; HUMAN; MEDICAL SPECIALIST; METHODOLOGY; PALLIATIVE THERAPY; PATIENT ASSESSMENT; PATIENT CARE PLANNING; QUALITATIVE ANALYSIS; QUALITY OF LIFE; STAFF NURSE; WARD;

EID: 47649126120     PISSN: None     EISSN: 1472684X     Source Type: Journal    
DOI: 10.1186/1472-684X-7-8     Document Type: Article

References (30)

1. Cognition and survival: an exploration in a large multicentre study of the population aged 65 years and over. R Neale C Brayne AL Johnson, Int J Epidemiol 2001 30 1383 1388 10.1093/ije/30.6.1383 11821351
2. Survival in end-stage dementia following acute illness. RS Morrison AL Siu, JAMA 2000 284 47 52 10.1001/jama.284.1.47 10872012
3. Differences in care received by patients with and without dementia who died during acute hospital admission: a retrospective case note study. EL Sampson V Gould D Lee MR Blanchard, Age Ageing 2006 35 187 189 10.1093/ageing/afj025 16407434
4. Access to hospice programs in end-stage dementia: A national survey of hospice programs. P Hanrahan DJ Luchins, Journal of the American Geriatrics Society 1995 43 56 59 7806741
5. House of Commons Health Committee Report on Palliative Care (Fourth Report of Session 2003-4; Volume 1). House of Commons Health Committee, 2004
6. A Framework for the Development and Evauation of Randomised Controlled Trials for Complex Interventions to Improve Health. MRC, London, MRC 2007
7. A systematic review of the scientific evidence for the efficacy of a palliative care approach in advanced dementia. EL Sampson CW Ritchie R Lai PW Raven MR Blanchard, Int Psychogeriatr 2005 17 31 40 10.1017/S1041610205001018 15945590
8. Dementia staging in chronic care populations. B Reisberg SG Sclan E Franssen A Kluger S Ferris, Alzheimer Dis Assoc Disord 1994 8 Suppl 1 S188 S205 8068258
9. Qualitative data analysis for applied policy research. J Ritchie L Spencer, Analysing qualitative data London, Routledge, Ryman A and Burgess AG, 1994
10. Mortality from pneumonia and hip fractures in patients with advanced dementia. RS Morrison AL Siu, JAMA 2000 284 2447 2448 10.1001/jama.284.1.47 11074771
11. National Institute for Mental Health in England, Complex Evaluations in Mental Health Research - Report from a Day Conference NIMHE 2004
12. Care of the dying patient: the last hours or days of life. J Ellershaw C Ward, BMJ 2003 326 30 34 12511460 10.1136/bmj.326.7379.30
13. Advance Care Planning. University of Nottingham 2007 http://www. endoflifecare.nhs.uk/eolc/eolcpublications/EoLC%20and%20Notts%20Uni%20ACP%20- %20updated%20140807.pdf 22-10-2007
14. Preferred Priorities for Care. 2008 http://www.endoflifecareforadults. nhs.uk/eolc/CS310.htm
15. A Netten L Curtis, Unit Costs of Health and Social Care Canterbury, Personal Social Services & Research Unit 2005
16. Effectiveness of teaching general practitioners skills in brief cognitive behaviour therapy to treat patients with depression: randomised controlled trial. M King O Davidson F Taylor A Haines D Sharp R Turner, BMJ 2002 324 947 950 11964340 10.1136/bmj.324.7343.947
17. Organisational Change. A review for healthcare managers, professionals and researchers. V Iles K Sutherland, London School of Hygiene and Tropical Medicine., National Co-ordinating Centre for NHS 2008
18. Clarifying confusion: the confusion assessment method. A new method for detection of delirium. SK Inouye CH van Dyck CA Alessi S Balkin AP Siegal RI Horwitz, Ann Intern Med 1990 113 941 948 2240918
19. The Abbey Pain Scale: A 1-minute Numerical Indicator for People with End-Stage. J Abbey N Piller A de Bellis A Esterman D Parker L Giles B Lowcay, Int J Palliat Nurs 2004 10 1 6 13 14966439
20. Development and preliminary validation of the pain assessment checklist for seniors with limited ability to communicate (PACSLAC). S Fuchs-Lacelle T Hadjistavropoulos, Pain Manag Nurs 2004 5 37 49 10.1016/j.pmn.2003.10.001 14999652
21. The Doloplus scale - evaluating pain in the elderly. S Lefebvre-Chapiro, European Journal of Palliative Care 2001 8 191 193
22. Pressure sores: a risk assessment card. J Waterlow, Nurs Times 1985 81 49 55 3853163
23. Classification of pressure sore severity. J Reid M Morison, Nurs Times 1994 90 46 50 8008581
24. Short screening scales to monitor population prevalences and trends in non-specific psychological distress. RC Kessler G Andrews LJ Colpe E Hiripi DK Mroczek SL Normand EE Walters AM Zaslavsky, Psychol Med 2002 32 959 976 10.1017/S0033291702006074 12214795
25. EQ-5D: a measure of health status from the EuroQol Group. R Rabin CF de, Ann Med 2001 33 337 343 10.3109/07853890109002087 11491192
26. A ransdomized trial of a multimedia shared decision-making programme for men facing treatment decisions for benign prostatic prostatic hyperplasia. MJ Barry DC Cherkin Y Chang FJ Fowler S Skates, Disease Management and Clinical Outcomes 1997 1 5 14 10.1016/S1088-3371(96)00004-6
27. Decision aids for people facing health treatment or screening decisions. AM O'Connor D Stacey V Entwistle H Llewellyn-Thomas D Rovner M Holmes-Rovner V Tait J Tetroe V Fiset M Barry J Jones, Cochrane Database Syst Rev 2003 CD001431 12804407
28. Satisfaction with end-of-life care for nursing home residents with advanced dementia. SE Engel DK Kiely SL Mitchell, J Am Geriatr Soc 2006 54 1567 1572 17038076 10.1111/j.1532-5415.2006.00900.x
29. Pain and discomfort associated with common hospital procedures and experiences. R Morrison J Ahronheim R Morrison E Darling S Baskin J Morris C Choi D Meier, J Pain Symptom Manage 1998 15 2 91 101 9494307
30. Costing psychiatric interventions. J Beecham M Knapp, Measuring Mental Health Needs London, Gaskell, Thornicroft G, 2nd 2001 200 224