A methodology for shifting the focus of e-health support design onto user needs. A case in the homecare field

International Journal of Medical Informatics

Volumn 77, Issue 9, 2008, Pages 589-601

  De Rouck, Sofie ^a   Jacobs, An ^a   Leys, Mark ^a  

^a VRIJE UNIVERSITEIT BRUSSEL   (Belgium)

Author keywords

Constructive technology assessment; Evaluation studies; Homecare; Telemedicine; User participation

Indexed keywords

(OTDR) TECHNOLOGY; (R ,S ,S) POLICY; DESIGN AND DEVELOPMENT; DOCUMENT ANALYSIS; E HEALTH; E HEALTH SYSTEMS; ELSEVIER (CO); FINANCIAL PRESSURES; HEALTH SERVICES; HOME CARE; HOME ENVIRONMENTS; HUMAN RESOURCES; INTERACTIVE REFLECTIONS; IRELAND; LITERATURE REVIEWS; OPERATIONAL USE; PILOT PROJECTS; POTENTIAL TECHNOLOGIES; SECOND PHASE; SEMI-STRUCTURED; STORYLINES; SUPPORT DESIGNS; SYSTEM FAILURES; THREE PHASES; USE CASES; USER CONTEXT; USER NEEDS;

E-LEARNING; HEALTH; PROCESS DESIGN; PROCESS ENGINEERING; PROJECT MANAGEMENT; REFLECTION; SYSTEMS ENGINEERING; TECHNOLOGY;

PUBLIC KEY CRYPTOGRAPHY;

ARTICLE; BIOMEDICAL TECHNOLOGY ASSESSMENT; COMPUTER LANGUAGE; DOCUMENT DELIVERY; EPIDEMIOLOGICAL DATA; EVALUATION; HEALTH CARE DELIVERY; HEALTH CARE SYSTEM; HOME CARE; HUMAN; INFORMATION PROCESSING; INTERVIEW; METHODOLOGY; PATIENT SELECTION; PRIORITY JOURNAL; QUESTIONNAIRE; SEMI STRUCTURED INTERVIEW; TELEMEDICINE;

HEALTH SERVICES NEEDS AND DEMAND; HOME CARE SERVICES; HUMANS; MODELS, THEORETICAL; TELEMEDICINE;

EID: 47049087154     PISSN: 13865056     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.ijmedinf.2007.11.004     Document Type: Article

References (110)

1. Haux R., Ammenwerth E., Herzog W., and Knaup P. Health care in the information society. A prognosis for the year 2013. Int. J. Med. Inform. 66 (2002) 3-21
2. Duke M., and Street A. Hospital in the home: constructions of the nursing role-a literature review. J. Clin. Nurs. 12 (2003) 852-859
3. Chae Y.M., Heon L.J., Hee H.S., Ja K.H., Hong J.K., and Uk W.J. Patient satisfaction with telemedicine in home health services for the elderly. Int. J. Med. Inform. 61 (2001) 167-173
4. Clasen J. Social insurance-an outmoded concept of protection. In: Clasen J. (Ed). Social Insurance in Europe (1997), The Policy Press, Bristol 1-13
5. Bilchik G.S. The age wave. Trustee 53 (2000) 14-17
6. M. Chiasson, M. Reddy, B. Kaplan, E. Davidson, Expanding multi-disciplinary approaches to healthcare information technologies: what does information systems offer medical informatics?, Int. J. Med. Inform. (2006) (Epub ahead of print).
7. Celler B.G., Lovell N.H., and Basilakis J. Using information technology to improve the management of chronic disease. Med. J. Aust. 179 (2003) 242-246
8. Wallace P., Haines A., Harrison R., Barber J., Thompson S., Jacklin P., Roberts J., Lewis L., and Wainwright P. Joint teleconsultations (virtual outreach) versus standard outpatient appointments for patients referred by their general practitioner for a specialist opinion: a randomised trial. Lancet 359 (2002) 1961-1968
9. Wallace P., Barber J., Clayton W., Currell R., Fleming K., Garner P., Haines A., Harrison R., Jacklin P., Jarrett C., Jayasuriya R., Lewis L., Parker S., Roberts J., Thompson S., and Wainwright P. Virtual outreach: a randomised controlled trial and economic evaluation of joint teleconferenced medical consultations. Health Technol. Assess. 8 (2004) 1-127. http://www.hta.nhsweb.nhs.uk/fullmono/mon850.pdf (last visited on 06/05/2007)
10. Whitten P.S., Mair F.S., Haycox A., May C.R., Williams T.L., and Hellmich S. Systematic review of cost effectiveness studies of telemedicine interventions. BMJ 324 (2002) 1434-1437
11. Roine R., Ohinmaa A., and Hailey D. Assessing telemedicine: a systematic review of the literature. CMAJ 165 (2001) 765-771
12. Kirk S., and Glendinning C. Trends in community care and patient participation: implications for the roles of informal carers and community nurses in the United Kingdom. J. Adv. Nurs. 28 (1998) 370-381
13. Draper D.A., Hurley R.E., Lesser C.S., and Strunk B.C. The changing face of managed care. Health Affairs 21 (2002) 11-23
14. Meystre S. The current state of telemonitoring: a comment on the literature. Telemed. J. E. Health 11 (2005) 63-69
15. Sclove R. Democracy and Technology (1995), Guilford Press, New York
16. Ammenwerth E., and Shaw N.T. Bad health informatics can kill-is evaluation the answer?. Methods Inf. Med. 44 (2005) 1-3
17. Ornetzeder M., and Rohracher H. Using constructive technology assessment and lead user approaches in search for sustainable technology-theoretical considerations and practical implications. SPRU 40th Anniversary Conference-The Future of Science, Technology and Innovation Policy. University of Sussex, Brighton, September 11-13 (2006)
18. Guston H., and Sarewitz D. Real-time technology assessment. Technol. Soc. 24 (2002) 93-109
19. Lehoux P., and Blume S. Technology assessment and the sociopolitics of health technologies. J. Health Polit. Policy Law 25 (2000) 1083-1120
20. Leys M. Health care policy: qualitative evidence and health technology assessment. Health Policy 65 (2003) 217-226
21. Leys M. Health technology assessment: the contribution of qualitative research. Int. J. Technol. Assess. Health Care 19 (2003) 317-329
22. Brender J. Trends in assessment of IT-based solutions in healthcare and recommendations for the future. Int. J. Med Inform. 52 (1998) 217-227
23. Bijker W.E., Hughes T.P., and Pinch T.J. The Social Construction of Technological Systems: New Directions in the Sociology and History of Technology (1989), MIT Press, Cambridge
24. Bijker W.E., and Law J. Shaping Technology/Building Society: Studies in Sociotechnical Change (1994), MIT Press, Cambridge
25. Callon M. Society in the making: the study of technology as a tool for sociological analysis. In: Bijker W.E., Hughes T.P., and Pinch T.J. (Eds). The Social Construction of Technical Systems: New Directions in the Sociology and History of Technology (1987), MIT Press, Cambridge 83-103
26. Latour B., and Woolgar S. Laboratory Life: The Social Construction of Scientific Facts (1979), Sage Publications, Beverly Hills
27. Latour B. Science in Action: How to Follow Scientists and Engineers through Society (1987), Harvard University Press, Cambridge
28. Rip A., and Schot J. Identifying loci for influencing the dynamics of technological development. In: Sorensen K.H., and Williams R. (Eds). Shaping Technology. Guiding Policy, Concepts Spaces and Tools (2002), Edward Elgar, Cheltenham 158-176
29. Bjerknes G., and Bratteteig T. User participation and democracy: a discussion of scandinavian research on system development. Scand. J. Inf. Syst. 7 (1995) 73-98
30. Schuler D., and Namioka A. Participatory Design: Principles and Practices (1993), L. Erlbaum Associates, Hillsdale
31. Greenbaum J.M., and Kyng M. Design at Work: Cooperative Design of Computer Systems (1991), L. Erlbaum Associates, Hillsdale
32. Whyte W.F. Participatory Action Research (1991), Sage Publications, Newbury Park
33. S. Bødker, P. Ehn, D. Sjögren, Y. Sundblad, Co-operative Design-Perspectives on 20 Years with 'the Scandinavian IT Design Model, CID', Centre for User Oriented IT Design, Stockholm, 2000, pp. 1-9, http://cid.nada.kth.se/pdf/cid_104.pdf (last visited on 05/05/2007).
34. Gallivan M.J., and Keil M. The user-developer communication process: a critical case study. Inform. Syst. J. 13 (2003) 37-68
35. Hwang M.I., and Thorn R.G. The effect of user engagement on system success: a meta-analytical integration of research findings. Inf. Manage. 35 (1999) 229-236
36. Damodaran L. User involvement in the systems design process-a practical guide for users. Behav. Inform. Technol. 15 (1996) 363-377
37. Karlsen J., Andersen J., Birkely L., and Oedegaard E. An empirical study of critical success factors in IT projects. Int. J. Med. 3 (2006) 297-311
38. Baroudi J., Olson M., and Ives B. An empirical study of the impact of user involvement on system usage and information satisfaction. Comm. ACM 29 (1986) 232-238
39. Kensing F., and Blomberg J. Participatory design: issues and concerns. CSCW 7 (1998) 167-185
40. Kyng M., and Mathiassen L. Computers and Design in Context (1997), MIT Press, Cambridge
41. A. Jacobs, Sociological Practitioners Contributing to New Product Development: Mapping the Challenges, Sociol. Res. Online 9 (2004) [Serial Online] http://www.socresonline.org.uk/9-4/jacobs.html (last visited on 04/05/2007).
42. Karat J. User centered design: quality or quackery?. Interactions 3 (1996) 18-20
43. Sanders E. From user-centred to participatory design approaches. In: Frascara J. (Ed). Design and the Social Sciences (2002), Taylor and Francis Books, New York 1-8
44. von Hippel E. Perspective: user toolkits for innovation. J. Prod. Inn. Man. 18 (2001) 247-257
45. Thomke S., and von Hippel E. Customers as innovators: a new way to create value. HBR 80 (2002) 74-81
46. Freeman C. Chemical process plant: innovation and the world market. NIER 45 (1968) 29-57
47. Bridges J.F., and Jones C. Patient-based health technology assessment: a vision of the future. Int. J. Technol. Assess. Health Care 23 (2007) 30-35
48. Schulze H., Brau H., Haasis S., Weyrich M., and Rhatje T. Human-centered design of engineering applications: success factors from a case study in the automotive industry. Hum. Factors Ergon. Manuf. 15 (2005) 421-443
49. May C., Harrison R., Finch T., MacFarlane A., Mair F., and Wallace P. Understanding the normalization of telemedicine services through qualitative evaluation. J. Am. Med. Inform. Assoc. 10 (2003) 596-604
50. Roback K., and Herzog A. Home informatics in healthcare: assessment guidelines to keep up quality of care and avoid adverse effects. Technol. Health Care 11 (2003) 195-206
51. Kaplan B. Evaluating informatics applications-some alternative approaches: theory, social interactionism, and call for methodological pluralism. Int. J. Med. Inform. 64 (2001) 39-56
52. Lorenzi N.M., Riley R.T., Blyth A.J., Southon G., and Dixon B.J. Antecedents of the people and organizational aspects of medical informatics: review of the literature. J. Am. Med. Inform. Assoc. 4 (1997) 79-93
53. Kaplan B., Brennan P.F., Dowling A.F., Friedman C.P., and Peel V. Toward an informatics research agenda: key people and organizational issues. J. Am. Med. Inform. Assoc. 8 (2001) 235-241
54. Berg M. Patient care information systems and health care work: a sociotechnical approach. Int. J. Med. Inform. 55 (1999) 87-101
55. Berg M., Aarts J., and van der L.J. ICT in health care: sociotechnical approaches. Methods Inf. Med. 42 (2003) 297-301
56. Berg M., Langenberg C., Van de Burg I., and Kwakkernaat J. Considerations for sociotechnical design: experiences with an electronic patient record in a clinical context. Int. J. Med. Inform. 52 (1998) 243-251
57. Aarts J., and Gorman P. IT in health care: sociotechnical approaches "To Err is System". Int. J. Med. Inform. 76 Suppl. 1 (2007) 1-3
58. Wouters R., Paquay L., De Vliegher K., Debaillie R., and Geys L. KIT-diagnosestudie-Verpleegkundige kerninterventies in de thuiszorg volgens medische pathologieën. Onderzoeksrapport 347.04.1 (2005) 1-64
59. DeCoster V.A. Challenges of type 2 diabetes and role of health care social work: a neglected area of practice. Health Soc. Work 26 (2001) 26-37
60. M. Heptworth, J. Harrison, N. James, The information needs of people with multiple sclerosis, Thesis, Department of Information Science, Loughborough University, 2002.
61. Boeije H.R., Bromberger N., Duijnstee M.S.H., Grypdonck M.H., and Pool A. In relatie tot MS: zorgafhankelijke mensen met multiple sclerose en hun partners (1999), NIWZ Uitgeverij, Utrecht
62. Brassington J.C., and Marsh N.V. Neuropsychological aspects of multiple sclerosis. Neuropsychol. Rev. 8 (1998) 43-77
63. Thornton H.B., and Lea S.J. An investigation into needs of people living with multiple sclerosis, and their families, disability. Handicap Soc. 7 (1992) 321-338
64. J. Wollin, H. Dale, N. Spencer, A. Walsh, The informational needs of the newly diagnosed person with multiple sclerosis and their family, Int. J. MS Care [Serial Online] 2 (2000) http://eprints.qut.edu.au/archive/00001600/01/1600.pdf (last visited on 15/02/07).
65. Hiscock J., Legard R., and Snape D. Listening to Diabetes Service Users: Qualitative Findings for the Diabetes National Service Framework (2001), National Centre for Social Research
66. Mazzi C.P., and Kidd M. A framework for the evaluation of Internet-based diabetes management. J. Med. Internet Res. 4 (2002) e1
67. Beeney L.J., Bakry A.A., and Dunn S.M. Patient psychological and information needs when the diagnosis is diabetes. Patient Educ. Couns. 29 (1996) 109-116
68. Heptworth M., and Harrison J. A survey of the information needs of people with multiple sclerosis. Health Inform. J. 10 (2004) 49-69
69. Loader B.D., Muncer S., Burrows R., Pleace N., and Nettleton S. Medicine on the line? Computer-mediated social support and advice for people with diabetes. Int. J. Soc. Welf. 11 (2002) 53-65
70. Zrebiec J.F., and Jacobson A.M. What attracts patients with diabetes to an internet support group? A 21-month longitudinal website study. Diabet. Med. 18 (2001) 154-158
71. McPherson S.L., Joseph D., and Sullivan E. The benefits of peer support with diabetes. Nurs. Forum 39 (2004) 5-12
72. Peters T.J., Somerset M., Campbell R., and Sharp D.J. Variables associated with attendance at, and the perceived helpfulness of, meetings for people with multiple sclerosis. Health Soc. Care Community 11 (2003) 19-26
73. Callaghan A., and Williams D. Living with diabetes: issues for nursing practice. J. Adv. Nurs. 20 (1994) 132-139
74. Anonymous, Needs for the recently diagnosed. Report and recommendations of the Listening Project, Diabetes UK, Care Interventions Team, London, 2002.
75. Hakim E.A., Bakheit A.M., Bryant T.N., Roberts M.W., McIntosh-Michaelis S.A., Spackman A.J., Martin J.P., and McLellan D.L. The social impact of multiple sclerosis-a study of 305 patients and their relatives. Disabil. Rehabil. 22 (2000) 288-293
76. M. Gedizlioglu, H. Mavioglu, F. Uzunel, C. Pinar, M. Oguz, A. Sagduyu, B. Özer, Y. Zorlu, E. Idiman, H. Korkmaz, Impact of multiple sclerosis on family and employment: a retrospective study in the Aegean district of Turkey, Int. J. MS Care [Serial online]. 2 (2000) http://www.mscare.org/cmsc/images/pdf/ijmsc-2000-oct.pdf (last visited on 15/02/07).
77. Minderhoud J.M. Multiple Sclerose: een boek voor mensen met multiple sclerose, familie, behandelaars en wetenschappers (2002), Bohn Stafleu Van Loghum, Houten
78. Greenhalgh J., Ford H., Long A.F., and Hurst K. The MS Symptom and Impact Diary (MSSID): psychometric evaluation of a new instrument to measure the day to day impact of multiple sclerosis. J. Neurol. Neurosurg. Psychiatry 75 (2004) 577-582
79. Greenhalgh J. An assessment of the feasibility and utility of the MS Symptom and Impact Diary (MSSID). Qual. Life Res. 14 (2005) 1363-1374
80. Beaumont J.G. The MS Symptom and Impact Diary (MSSID): psychometric evaluation of a new instrument to measure the day to day impact of multiple sclerosis. J. Neurol. Neurosurg. Psychiatry 75 (2004) 526-527
81. Johnson K.L., Yorkston K.M., Klasner E.R., Kuehn C.M., Johnson E., and Amtmann D. The cost and benefits of employment: a qualitative study of experiences of persons with multiple sclerosis. Arch. Phys. Med. Rehabil. 85 (2004) 201-209
82. Weiss T., Fels D., and Treviranus J. Telework and video-mediated communication: importance of real-time, interactive communication for workers with disabilities. CSUN's 1999 Conference Proceedings On-Line Now. The Center on Disabilities, Los Angeles, March 15-20 (1999)
83. Broom D., and Whittaker A. Controlling diabetes, controlling diabetics: moral language in the management of diabetes type 2. Soc. Sci. Med. 58 (2004) 2371-2382
84. Klonoff D.C. Diabetes and telemedicine: is the technology sound, effective, cost-effective, and practical?. Diabetes Care 26 (2003) 1626-1628
85. Ralston J.D., Revere D., Robins L.S., and Goldberg H.I. Patients' experience with a diabetes support programme based on an interactive electronic medical record: qualitative study. BMJ 328 (2004) 1159
86. Rubin R.R., and Peyrot M. Psychological issues and treatments for people with diabetes. J. Clin. Psychol. 57 (2001) 457-478
87. Jacobson I. Object-oriented Software Engineering: A Use Case Driven Approach (1992), Adison Wesley, s.l.
88. I. Jacobson, Object oriented development in an industrial environment, in: Conference on Object-Oriented Programming Systems, Languages, and Applications (OOPSLA'87), 22 (1987) 183-191.
89. A. Cockburn, Structuring use cases with goals, JOOP (1997) [Serial Online] http://members.aol.com/acockburn/papers/usecases.htm (lasted visited on 04/05/2007).
90. Cockburn A. Use cases, ten years later. STQE 4 (2002) 37-40
91. Antón A.I., Carter R.A., Dagnino A., Dempster J.H., and Siege D.F. Deriving goals from a use-case based requirements specification. Requir. Eng. 6 (2004) 63-67
92. Booch G., Rumbaugh J., and Jacobson I. The Unified Modeling Language User Guide (1999), Addison-Wesley, Boston
93. Miles M.B., and Huberman A.M. Qualitative Data Analysis: An Expanded Sourcebook (1994), Sage Publications, Thousand Oaks
94. Kaplan B. Addressing organizational issues into the evaluation of medical systems. J. Am. Med. Inform. Assoc. 4 (1997) 94-101
95. Currie L.M. Evaluation frameworks for nursing informatics. Int. J. Med. Inform. 74 (2005) 908-916
96. Ammenwerth E., and De Keizer N. An inventory of evaluation studies of information technology in health care: trends in evaluation research 1982-2002. Methods Inf. Med. 44 (2005) 44-56
97. Ammenwerth E., Graber S., Herrmann G., Burkle T., and Konig J. Evaluation of health information systems-problems and challenges. Int. J. Med. Inform. 71 (2003) 125-135
98. Berg M. Implementing information systems in health care organizations: myths and challenges. Int. J. Med. Inform. 64 (2001) 143-156
99. Lacey G., and MacNamara S. User involvement in the design and evaluation of a smart mobility aid. J. Rehabil. Res. Dev. 37 (2000) 709-723
100. Fujimoto M., Miyazaki K., and von T.N. Complex systems in technology and policy: telemedicine and telecare in Japan. J. Telemed. Telecare 6 (2000) 187-192
101. Whitten P.S., and Allen A. Analysis of telemedicine from an organizational perspective. Telemed. J. 1 (1995) 203-213
102. Southon G., Sauer C., and Dampney K. Lessons from a failed information systems initiative: issues for complex organisations. Int. J. Med. Inform. 55 (1999) 33-46
103. Rondeau P., Ragu-Nathan T., and Vonderembse M. How involvement, IS management effectiveness, and end-user computing impact IS performance in manufacturing firms. Inform. Manage. 43 (2006) 93-107
104. Fakun D., and Greenough R. An exploratory study into whether to or not to include users in the development of industrial hypermedia applications. Requir. Eng. 9 (2004) 57-66
105. Noyes J., Starr A., and Frankish C. User involvement in the early stages of the development of an aircraft warning system. Behav. Inform. Techn. 15 (1996) 67-75
106. J. Bergsten, Scenarios in systems design-catalysts for communication and reflection, unpublished work, Blekinge Tekniska Högskola, 2003 http://www.cs.chalmers.se/idc/ituniv/student/2003/portfolior/it3bejo/public_html/publicerat/scenarios.pdf (last visited on 15/02/07).
107. Agostini A., De Michelis G., and Susani M. From user participation to user seduction in the design of innovative user-centered systems, designing cooperative systems. Use of theories and models. Proceedings of the 5th International Conference on the Design of Cooperative Systems (COOP'2000). Sophia Antipolis, France, May 23-26 (2000)
108. Gallant L.M. An etnography of communication approach to mobile product testing. Pers. Ubiquit. Comp. 10 (2006) 325-332
109. Barki H., and Hartwick J. Measuring user participation, user involvement, and user attitude. MIS Quart. 18 (1994) 59-82
110. Barki H., and Hartwick J. Rethinking the concept of user involvement. MIS Quart. 13 (1989) 53-63