Home health and informal care utilization and costs over time in Alzheimer's disease

Home Health Care Services Quarterly

Volumn 27, Issue 1, 2008, Pages 1-20

  Zhu, Carolyn ^a,b   Torgan, Rebecca ^c,d   Scarmeas, Nikolaos ^c,d   Albert, Marilyn ^e   Brandt, Jason ^e   Blacker, Deborah ^f   Sano, Mary ^a,b   Stern, Yaakov ^d  

^a VETERANS AFFAIRS MEDICAL CENTER   (United States)

^b MOUNT SINAI SCHOOL OF MEDICINE   (United States)

^c NewYork Presbyterian Hospital   (United States)

^d Taub Institute for Research on Alzheimer's Disease and the Aging Brain and the Gertrude H Sergievsky Center   (United States)

^e JOHNS HOPKINS UNIVERSITY SCHOOL OF MEDICINE   (United States)

^f MASSACHUSETTS GENERAL HOSPITAL   (United States)

Author keywords

Cost; Dementia; Home health service; Informal care; Longitudinal study

Indexed keywords

AGED; ALZHEIMER DISEASE; ARTICLE; CAREGIVER; CLINICAL TRIAL; COHORT ANALYSIS; COMPARATIVE STUDY; ECONOMICS; FEMALE; HEALTH CARE COST; HOME CARE; HUMAN; LONGITUDINAL STUDY; MALE; MULTICENTER STUDY; STATISTICS; UNITED STATES; UTILIZATION REVIEW;

AGED; AGED, 80 AND OVER; ALZHEIMER DISEASE; CAREGIVERS; COHORT STUDIES; FEMALE; HEALTH CARE COSTS; HOME CARE SERVICES; HUMANS; LONGITUDINAL STUDIES; MALE; UNITED STATES;

EID: 45549085609     PISSN: 01621424     EISSN: 15450856     Source Type: Journal    
DOI: 10.1300/J027v27n01_01     Document Type: Article

References (34)

1. Albert, S. M., Sano, M., Bell, K., Merchant, C., Small, S. and Stern, Y. (1998) Hourly care received by people with Alzheimer's disease: Results from an urban, community survey. The Gerontologist, 38, pp. 704-714.
2. Bass, D. M. and Noelker, L. S. (1987) The influence of family caregivers on elder's use of in-home services: An expanded conceptual framework. Journal of Health Social Behavior, 28, pp. 184-196.
3. Blessed, G., Tomlinson, B. E. and Roth, M. (1968) The association between quantitative measures of dementia and of senile change in the cerebral grey matter of elderly subjects. British Journal of Psychiatry, 114, pp. 797-811.
4. Charlson, M. E., Pompei, P., Ales, K. L. and MacKenzie, C. R. (1987) A new method of classifying prognostic comorbidity in longitudinal studies: Development and validation. Journal of Chronic Diseases, 40, pp. 373-383.
5. Council of Economic Advisers (2003) Economic Report of the President, Washington, DC
6. Devanand, D. P., Miller, L., Richards, M., Marder, K., Bell, K. Mayeux, R. et al. (1992) The Columbia University Scale for Psychopathology in Alzheimer's disease. Archives of Neurology, 49, pp. 371-376.
7. Feldman, H. H., Van Baelen, B., Kavanagh, S. M. and Torfs, K. E. (2005) Cognition, function, and caregiving time patterns in patients with mild-to-moderate Alzheimer disease: A 12-month analysis. Alzheimer Disease and Associated Disorders, 19, pp. 29-36.
8. Folstein, M. F., Folstein, S. E. and McHugh, P. R. (1975) "Mini-mental state". A practical method for grading the cognitive state of patients for the clinician. Journal of Psychiatric Research, 12, pp. 189-198.
9. Garber, A. (1989) Long-term care, wealth, and health of the disabled elderly living in the community. The Economics of Aging, pp. 255-277. University of Chicago Press, Wise, hicago, DA, IL
10. Greene, V. L. (1983) Substitution between formally and informally provided care for the impaired elderly in the community. Medical Care, 21, pp. 609-619.
11. Gwyther, L. P. (1989) Overcoming barriers. Home care for dementia patients. Caring, 8, pp. 12-16.
12. Harrow, B. S., Mahoney, D. F., Mendelsohn, A. B., Ory, M. G., Coon, D. W. Belle, S. H. et al. (2004) Variation in cost of informal caregiving and formal-service use for people with Alzheimer's disease. American Journal of Alzheimer's Disease and Other Dementia, 19, pp. 299-308.
13. Holtzer, R., Tang, M. X., Devanand, D. P., Albert, S. M., Wegesin, D. J. Marder, K. et al. (2003) Psychopathological features in Alzheimer's disease: Course and relationship with cognitive status. Journal of the American Geriatrics Society, 51, pp. 953-960.
14. Langa, K. M., Chernew, M. E., Kabeto, M. U. and Katz, S. J. (2001) The explosion in paid home health care in the 1990s: Who received the additional services. Medical Care, 39, pp. 147-157.
15. Leon, J., Cheng, C. K. and Neumann, P. J. (1998) Alzheimer's disease care: Costs and potential savings. Health Affairs (Millwood), 17, pp. 206-216.
16. Lo Sasso, A.T. and Johnson, R. W. (2002) Does informal care from adult children reduce nursing home admissions for the elderly. Inquiry, 39, pp. 279-297.
17. McDowell, I. (2006) Measuring Health: A Guide to Rating Scales and Questionnaires, Oxford University Press
18. Menzin, J., Lang, K., Friedman, M., Neumann, P. and Cummings, J. L. (1999) The economic cost of Alzheimer's disease and related dementias to the California Medicaid program ("Medi-Cal") in 1995. American Journal of Geriatric Psychiatry, 7, pp. 300-308.
19. Penrod, J. D., Kane, R. L., Finch, M. D. and Kane, R. A. (1998) Effects of post hospital Medicare home health and informal care on patient functional status. Health Services Research, 33, pp. 513-529.
20. Pezzin, L. E., Kemper, K. and Reschovsky, J. (1996) Does publicly provided home care substitute for family care? Experimental evidence with endogenous living arrangements. Journal of Human Resources, 31, pp. 650-676.
21. Richards, M., Folstein, M., Albert, M., Miller, L., Bylsma, F. Lafleche, G. et al. (1993) Multicenter study of predictors of disease course in Alzheimer disease (the 'Predictors Study"). II. Neurological, psychiatric, and demographic influences on baseline measures of disease severity. Alzheimer Disease and Associated Disorders, 7, pp. 22-32.
22. Richards, M., Marder, K., Bell, K., Dooneief, G., Mayeux, R. and Stern, Y. (1991) Interrater reliability of extrapyramidal signs in a group assessed for dementia. Archives of Neurology, 48, pp. 1147-1149.
23. Scarmeas, N., Albert, M., Brandt, J., Blacker, D., Hadjigeorgiou, G. Papadimitriou, A. et al. (2005) Motor signs predict poor outcomes in Alzheimer disease. Neurology, 64, pp. 1696-1703.
24. Scarmeas, N., Brandt, J., Albert, M., Devanand, D. P., Marder, K. Bell, K. et al. (2002) Association between the APOE genotype and psychopathologic symptoms in Alzheimer's disease. Neurology, 58, pp. 1182-1188.
25. Scarmeas, N., Brandt, J., Albert, M., Hadjigeorgiou, G., Papadimitriou, A. Dubois, B. et al. (2005) Delusions and hallucinations are associated with worse outcome in Alzheimer disease. Archives of Neurology, 62, pp. 1601-1608.
26. Scarmeas, N., Hadjigeorgiou, G. M., Papadimitriou, A., Dubois, B., Sarazin, M. Brandt, J. et al. (2004) Motor signs during the course of Alzheimer disease. Neurology, 63, pp. 975-982.
27. Soldo, B. J. (1985) In-home services for the dependent elderly. Determinants of current use and implications for future demand. Research on Aging, 7, pp. 281-304.
28. Stern, M. B. and Hurting, H. I. (1978) The clinical characteristics of Parkinson's Disease and parkinsonian syndromes: Diagnosis and assessment. The Comprehensive Management of Parkinson's Disease, pp. 3-50. PMA Corp, New York
29. Stern, Y., Folstein, M., Albert, M., Richards, M., Miller, L. Bylsma, F. et al. (1993) Multicenter study of predictors of disease course in Alzheimer disease (the "Predictors Study"). I. Study design, cohort description, and intersite comparisons. Alzheimer Disease and Associated Disorders, 7, pp. 3-21.
30. Stern, Y., Sano, M., Paulson, J. and Mayeux, R. (1987) Modified mini-mental state examination: Validity and reliability. Neurology, 37, p. 179.
31. Stern, Y., Tang, M. X., Albert, M. S., Brandt, J., Jacobs, D. M. Bell, K. et al. (1997) Predicting time to nursing home care and death in individuals with Alzheimer disease. Journal of the American Medical Association, 277, pp. 806-812.
32. Vetter, P., Steiner, O., Kraus, S., Moises, H., Kropp, P. Moller, W. D. et al. (1998) Factors affecting the utilization of homecare supports by caregiving relatives of Alzheimer patients. Dementia and Geriatric Cognitive Disorders, 9, pp. 111-116.
33. Wimo, A., von Strauss, E., Nordberg, G., Sassi, F. and Johansson, L. (2002) Time spent on informal and formal care giving for persons with dementia in Sweden. Health Policy, 61, pp. 255-268.
34. Zhu, C., Scarmeas, N., Torgan, R., Albert, M., Brandt, J. Blacker, D. et al. (2006) Clinical Features Associated with Costs in Early AD: Baseline Data from the Predictors Study. Neurology, 66, pp. 1021-1028.