Self-management education for children with epilepsy

Cochrane Database of Systematic Reviews

Volumn , Issue 2, 2007, Pages

  Stokes, Tim ^a   Shaw, E J ^b   Camosso Stefinovic, J ^b   Baker, R ^b   Baker, G A ^b   Jacoby, A ^b  

^a NATIONAL INSTITUTE FOR HEALTH AND CARE EXCELLENCE   (United Kingdom)

^b NONE

Author keywords

*Patient education as topic; *Self care; Child; Epilepsy *therapy ; Humans

Indexed keywords

ANTICONVULSIVE AGENT;

ACADEMIC ACHIEVEMENT; ADOLESCENT HEALTH; ASTHMA; CHILD BEHAVIOR; CHILD CARE; CHILD SAFETY; CLINICAL TRIAL; CONTROLLED CLINICAL TRIAL; DAILY LIFE ACTIVITY; EPILEPSY; HEALTH CARE UTILIZATION; HEALTH PROGRAM; HUMAN; LIFESTYLE MODIFICATION; OUTCOME ASSESSMENT; PATIENT ATTITUDE; PATIENT EDUCATION; QUALITY OF LIFE; RANDOMIZED CONTROLLED TRIAL; REVIEW; SCORING SYSTEM; SEIZURE; SELF CARE; SYSTEMATIC REVIEW;

EID: 44949144940     PISSN: 1469493X     EISSN: None     Source Type: Journal    
DOI: 10.1002/14651858.CD004724.pub2     Document Type: Review

References (40)

1. Tieffenberg 2000 {published data only} Tieffenberg JA, Wood EI, Alonso A, Tossutti MS, Vicente MF. A randomized field trial of ACINDES: A child-centered training model for children with chronic illnesses (asthma and epilepsy). Journal of Urban Health 2000;77(2):280-97.
2. Bauman 1997 Bauman LJ, Drotar D, Leventhal JM, Perrin EC, Pless IB. A review of psychosocial interventions for children with chronic health conditions. Pediatrics 1997;100(2 Pt 1):244-51.
3. Callanan 1988 Callanan M. Epilepsy: putting the patient back in control (continuing education credit). RN 1988;51(2):48-56.
4. Cochrane 1995 Cochrane J. Patient education: lessons from epilepsy. [Review] [12 refs]. Patient Education & Counseling 1995;26(1-3):25-31.
5. Coleman 1999 Coleman H, Fielder A. Epilepsy education in schools. Paediatric Nursing 1999;11(9):29-32.
6. Glueckauf 2002a Carter CB. The effects of targeted vs. non-specific interventions in family therapy for teens with epilepsy and their parents. Dissertation Abstracts International: Section B: The Sciences & Engineering 2002;62(11-B):5365.
7. *Glueckauf RL, Liss HJ, McQuillen DE, Webb PM, Dairaghi J, Carter CB. Therapeutic alliance in family therapy for adolescents with epilepsy: an exploratory study. American Journal of Family Therapy 2002;30(2):125-139.
8. Glueckauf 2002b Glueckauf RL, Fritz SP, Ecklund-Johnson EP, Liss HJ, Dages P, Carney P. Videoconferencing-based family counseling for rural teenagers with epilepsy: Phase 1 findings. Rehabilitation Psychology 2002;47(1):49-72.
9. Hoare 1992 Hoare P, Kerley S. Helping parents and children with epilepsy cope successfully: the outcome of a group programme for parents. Journal of Psychosomatic Research 1992;36(8):759-67.
10. Lewis 1990 Lewis MA, Hatton CL, Salas I, Leake B, Chiofalo N. Impact of the children's epilepsy program on parents. Epilepsia 1991;32(3):365-74.
11. *Lewis MA, Salas I, De la SA, Chiofalo N, Leake B. Randomized trial of a program to enhance the competencies of children with epilepsy. Epilepsia 1990;31(1):101-9.
12. Magendzo 1979 Magendzo S, Devilat M, Astaburuaga I, Mena P, Rauch M. [Opinion about epilepsy among 3 groups of mothers and the effects of education]. [Spanish]. Revista Chilena de Pediatria 1979;50(3):87- 93.
13. Oosterhuis 1994 Oosterhuis A. A psycho-educational approach to epilepsy. Seizure 1994;3(1):23-4.
14. Ramaratnam 2003 Ramaratnam S, Baker GA, Goldstein LH. Psychological treatments for epilepsy. Cochrane Database of Systematic Reviews 2003, Issue 4.Art. No.: CD002029. DOI:10.1002/14651858.CD002029. pub2.
15. Shafer 1994 Shafer PO. Nursing support of epilepsy self-management. Clinical Nursing Practice in Epilepsy 1994;2(1):11-12.
16. Shafer 1999 Shafer PO. Epilepsy and seizures: advances in seizure assessment, treatment, and self-management. [Review] [36 refs]. Nursing Clinics of North America 1999;34(3):743-59.
17. Snead 2004 Snead K, Ackerson J, Bailey K, Schmitt MM, Madan-Swain A, Martin RC. Taking charge of epilepsy: the development of a structured psychoeducational group intervention for adolescents with epilepsy and their parents. Epilepsy & Behavior 2004;5(4):547-56.
18. Vigneux 1998 Vigneux A. Review: some psychosocial interventions can help children and families cope with chronic conditions (commentary on Bauman LJ, Drotar D, Leventhal JM, et al. A review of psychosocial interventions for children with chronic health conditions. Pediatrics 1997;100(2):244-51). Evidence-Based Nursing 1998;1:43.
19. Shore 2005 Shore CP, Perkins SM, Austin JK. Efficacy of the S.E.E. Program on quality of life, seizure management and cost savings for adolescents with epilepsy and their parents (presented at the American Epilepsy Society Meeting, December 2005, Washington, DC. Epilepsia. 2005; Vol. 46, issue Suppl 8:21.
20. Baker 1998 Baker GA, Camfield C, Camfield P, Cramer JA, Elger CE, Johnson AL, et al.Commission on Outcome Measurement in Epilepsy, 1994-1997: final report. Epilepsia 1998;39:213-31.
21. Bandura 1997 Bandura A. Self-efficacy: The Exercise of Control. New York: WH Freeman, 1997.
22. Bodenheimer 2002 Bodenheimer T, Lorig K, Holman H, Grumbach K. Patient self-management of chronic disease in primary care. JAMA 2002;288:2469-75.
23. Buelow 2000 Buelow JM, Johnson J. Self-management of epilepsy: A review of the concept and its outcomes. Disease Management & Health Outcomes 2000;8:327-36.
24. CSAG 2000 Clinical Standards Advisory Group. Services for Patients with Epilepsy. London: Department of Health, 2000.
25. Dilorio 1992 Dilorio C, Faherty B, Manteuffel B. Self-efficacy and social support in self-management of epilepsy. Western Journal of Nursing Research 1992;14:292-303.
26. Dilorio 1994 DiIorio C, Faherty B, Manteuffel B. Epilepsy self-management: partial replication and extension. Research in Nursing & Health 1994;17:167-74.
27. DoH 2001 Department of Health. The expert patient: A new approach to chronic disease management for the 21st century. London: Department of Health, 2001.
28. Higgins 2005 Higgins JPT, Green S, editors. Cochrane Handbook for Systematic Reviews of Interventions 4.2.5 [updated May 2005]. Imputing standard deviations for changes from baseline. Section 8.5.2.10. Cochrane Database of Systematic Reviews 2005, Issue 3.
29. Houston 2000 Houston EC, Cunningham CC, Metcalfe E, Newton R. The information needs and understanding of 5-10-year old children with epilepsy, asthma or diabetes. Seizure 2000;9:340-3.
30. Lhatoo 2001 Lhatoo SD, Johnson AL, Goodridge DM, MacDonald BK, Sander JW, Shorvon SD. Mortality in epilepsy in the first 11 to 14 years after diagnosis: multivariate analysis of a long-term, prospective, population-based cohort. Annals of Neurology 2001;49:336-44.
31. Lorig 2000 Lorig K, Holman H, Sobel D, Laurent D, Gonzalez V, Minor M. Overview of self-management. Living a healthy life with chronic conditions: self-management of hear disease, arthritis, diabetes, asthma, bronchitis, emphysema & others. Second Edition. Boulder CO: Bull Publishing, 2000.
32. MacDonald 2000 MacDonald BK, Cockerell OC, Sander JW, Shorvon SD. The incidence and lifetime prevalence of neurological disorders in a prospective community-based study in the UK. Brain 2000;123:665-76.
33. Nashef 1995 Nashef L, Fish DR, Sander JW, Shorvon SD. Incidence of sudden unexpected death in an adult outpatient cohort with epilepsy at a tertiary referral centre. Journal of Neurology, Neurosurgery & Psychiatry 1995;58:462-4.
34. Nichols 2002 Nichols PJ, Norris SL. A systematic literature review of the effectiveness of diabetes education of school personnel. Diabetes Educator 2002;28:405-14.
35. Norris 2002 Norris SL, Nichols PJ, Caspersen CJ, Glasgow RE, Engelgau MM, Jack L, et al.Increasing diabetes self-management education in community settings. A systematic review. American Journal of Preventive Medicine 2002;22:39-66.
36. Ried 2001 Ried S, Specht U, Thorbecke R, Goecke K, Wohlfarth R. MOSES: an educational program for patients with epilepsy and their relatives. Epilepsia 2001;42 Suppl 3:76-80.
37. Sander 1990 Sander JW, Hart YM, Johnson AL, Shorvon SD. National General Practice Study of Epilepsy: newly diagnosed epileptic seizures in a general population. Lancet 1990;336:1267-71.
38. Shackleton 1999 Shackleton DP, Westendorp RG, Trenite DG, Vandenbroucke JP. Mortality in patients with epilepsy: 40 years of follow up in a Dutch cohort study. Journal of Neurology, Neurosurgery & Psychiatry 1999;66:636-40.
39. Tedman 1995 Tedman S, Thornton E, Baker G. Development of a scale to measure core beliefs and perceived self efficacy in adults with epilepsy. Seizure 1995;4:221-31.
40. Wolf 2003 Wolf FM, Guevara JP, Grum CM, Clark NM, Cates CJ. Educational interventions for asthma in children. Cochrane Database of Systematic Reviews 2002, Issue 4.