Information and support interventions for informal caregivers of people with dementia

Cochrane Database of Systematic Reviews

Volumn , Issue 2, 2007, Pages

  Nelis, Sharon ^a   Quinn, C ^b   Clare, L ^b  

^a BANGOR UNIVERSITY   (United Kingdom)

^b NONE

Author keywords

[No Author keywords available]

Indexed keywords

CAREGIVER; CLINICAL TRIAL; CONTROLLED CLINICAL TRIAL; DEMENTIA; HUMAN; LIFE SATISFACTION; MEDICAL INFORMATION; OUTCOME ASSESSMENT; PATIENT CARE; PATIENT COUNSELING; PATIENT EDUCATION; QUALITY OF LIFE; RANDOMIZED CONTROLLED TRIAL; REVIEW; SYSTEMATIC REVIEW;

EID: 44949116057     PISSN: 1469493X     EISSN: None     Source Type: Journal    
DOI: 10.1002/14651858.CD006440     Document Type: Review

References (58)

1. Acton 2001 Acton GJ, Kang J. Interventions to reduce: The burden of caregiving for an adult with dementia: A meta-analysis. Research in Nursing & Health 2001;5:349-60.
2. Bamford 2004 Bamford C, Lamont S, Eccles M, Robinson L, May C, Bond J. Disclosing a diagnosis of dementia: A systematic review. International Journal of Geriatric Psychiatry 2004;19:151-69.
3. Bass 1998 Bass DM, McClendon MJ, Brennan PF, McCarthy C. The buffering effect of a computer support network on caregiver strain. Journal of Aging and Health 1998;10(1):20-43.
4. Baumgarten 1992 Baumgarten M, Battista RN, Infanterivard C, Hanley JA, Becker R, Gauthier S. The psychological and physical health of family members caring for an elderly person with dementia. Journal of Clinical Epidemiology 1992;45(1):61-70.
5. Brennan 1995 Brennan PF, Moore SM, Smyth KA. The effects of a special computer network on caregivers of persons with Alzheimers-Disease. Nursing Research 1995;44(3):166-72.
6. Brodaty 1989 Brodaty H, Gresham M. Effect of a training-program to reduce stress in carers of patients with dementia. British Medical Journal 1989;299(6712):1375-9.
7. Brodaty 2003 Brodaty H, Green A, Koschera A. Meta-analysis of psychosocial interventions for caregivers of people with dementia. Journal of the American Geriatrics Society 2003;51(5):657-64.
8. Buckwalter 1999 Buckwalter KC, Gerdner L, Kohout F, Hall GR, Kelly A, Richards B, et al. A nursing intervention to decrease depression in family caregivers of persons with dementia. Archives of Psychiatric Nursing 1999;13(2):80-8.
9. Burgener 1998 Burgener SC, Bakas T, Murray C, Dunahee J, Tossey S. Effective caregiving approaches for patients with Alzheimer's disease. Geriatric Nursing 1998;19(3):121-6.
10. Cohen 1993 Cohen CA, Gold DP, Shulman K, Tracey J, McDonald G, Wargon M. Factors determining the decision to institutionalise dementing individuals: A prospective study. Gerontologist 1993;33:714-20.
11. Cohen 1994 Cohen CA, Gold DP, Shlman KI, Zucchero CA. Positive aspects in caregiving: An overlooked variable in research. Canadian Journal on Aging 1994;13(3):378-91.
12. Cooke 2001 Cooke DD, McNally L, Mulligan KT, Harrison MJG, Newman SP. Psychosocial interventions for caregivers of people with dementia: A systematic review. Aging & Mental Health 2001;5(2):120-35.
13. Dellasega 1990 Dellasega C. Coping with care-giving: Stress management for caregivers of the elderly. Journal of Psychosocial Nursing 1990;28:15-22.
14. Droes 2006 Droes RM, Meiland FJM, Schmitz MJ, Van Tilburg W. Effect of the Meeting Centres Support Program on informal carers of people with dementia: Results from a multi-centre study. Aging & Mental Health 2006;10(2):112-124.
15. Gonyea 1990 Gonyea J. Alzheimer's disease support group participation and caregiver well-being. Clinical Gerentologist 1990;10(2):17-34.
16. Goodman 1990 Goodman CC, Pynoos J. A Model Telephone Information and support program for caregivers of Alzheimers Patients. Gerontologist 1990;30(3):399-404.
17. Hebert 2003 Hebert R, Levesque L, Vezina J, Lavoie JP, Ducharme F, Gendron C, et al. Efficacy of a psychoeducative group program for caregivers of demented persons living at home: A randomized controlled trial. Journals of Gerontology Series B-Psychological Sciences and Social Sciences 2003;58(1):S58-S67.
18. Horowitz 1983 Horowitz A, Sindelman LW. Reciprocity and affection: Past influences on current caregiving. Journal of Gerentological Social Work 1983;5(3):5-20.
19. Keady 1995 Keady J, Nolan M. A stitch in time. Journal of Psychiatric and Mental Health Nursing 1995;2:33-40.
20. Kiecolt-Glaser 2001 Kiecolt-Glaser JK, Glaser R. Stress and immunity: Age enhances the risks. Current Directions in Psychological Science 2001;10(1):18-21.
21. Knight 1993 Knight BG, Lutzky SM, Macofskyurban F. A meta-analytic review of interventions for caregiver distress: Recommendations for future-research. Gerontologist 1993;33(2):240-8.
22. Kramer 1997 Kramer BJ. Gain in the caregiving experience: Where are we? What next?. Gerontologist 1997;37(2):218-32.
23. Lawton 1992 Lawton MP, Rajagopal D, Brody E, Kleban MH. The dynamics of caregiving for a demented elder among Black-and-White families. Journals of Gerontology 1992;47(4):S156-S64.
24. Lee 2004 Lee H, Cameron M. Respite care for people with dementia and their carers. Cochrane Database of Systematic Reviews 2004, Issue 1.Art. No.: CD004396. DOI:10.1002/14651858.CD004396.pub2.
25. Loomis 1995 Loomis LS, Booth A. Multigenerational caregiving and well-being: The myth of the beleaguered sandwich generation. Journal of Family Issues 1995;16(2):131-48.
26. Lorensini 1997 Lorensini S, Bates GW. The health, psychological and social consequences of caring for a person with dementia. Australian Journal on Ageing 1997;16(4):198-202.
27. Marziali 2006 Marziali E, Donahue P. Caring for others: Internet video-conferencing group intervention for family caregivers of older adults with neurodegenerative disease. Gerontologist 2006;46(3):398-403.
28. Melzer 1999 Melzer D, McWilliams B, Brayne C, Johnson T, Bond J. Profile of disability in elderly people: Estimates froma longitudinal population study. British Medical Journal 1999;348(1):1108-11.
29. Mittelman 1993 Mittelman MS, Ferris SH, Steinberg G, Shulman E, Mackell JA, Ambinder A, et al. An intervention that delays institutionalization of Alzheimers-Disease patients: treatment of spouse-caregivers. Gerontologist 1993;33(6):730-40.
30. Mittelman 1995 Mittelman MS, Ferris SH, Shulman E, Steinberg G, Ambinder A, Mackell JA, et al. A comprehensive support program: Effect on depression in spouse-caregivers of AD patients. Gerontologist 1995;35(6):792-802.
31. Mittelman 1996 Mittelman MS, Ferris SH, Shulman E, Steinberg G, Levin B. A family intervention to delay nursing home placement of patients with Alzheimer disease: A randomized controlled trial. Journal of the American Medical Association 1996;276(21):1725-31.
32. Mittelman 2004 Mittelman MS, Roth DL, Coon D, Haley WE. Sustained benefit of supportive intervention for depressive symptoms in caregivers of patients with Alzheimer's disease. American Journal of Psychiatry 2004;161(5):850-6.
33. Mittelman 2006 Mittelman MS, Haley WE, Clay OJ, Roth DL. Improving caregiver well-being delays nursing home placement of patients with Alzheimer disease. Neurology 2006;67:1592-1599.
34. Mohide 1990 Mohide EA, Pringle DM, Streiner DL, Gilbert JR, Muir G, Tew M. A randomized trial of family caregiver support in the home management of dementia. Journal of the American Geriatrics Society 1990;38(4):446-54.
35. Morris 1992 Morris RG, Woods RT, Davies KS, Berry J. The use of coping strategy focused support group for carers of dementia sufferers. Counselling Psychology Quarterly 1992;5:337-48.
36. NIH 1999 National Institute of Health. Progress report on Alzheimer's disease. Report nr 99-4664. Washington DC: U.S. Department of Health and Human Services, 1999.
37. Ostwald 1999 Ostwald SK, Hepburn KW, Caron W, Burns T, Mantell R. Reducing caregiver burden: A randomized psychoeducational intervention for caregivers of persons with dementia. Gerontologist 1999;39(3):299- 309.
38. Pearlin 1990 Pearlin LI, Mullan JT, Semple SJ, Skaff MM. Caregiving and the stress process: An overview of concepts and their measures. Gerontologist 1990;30(5):583-94.
39. Picot 1995 Picot SJ. Rewards, costs, and coping of African-American caregivers. Nursing Research 1995;44(3):147-52.
40. Pillemer 2003 Pillemer K, Suitor JJ, Wethington E. Integrating theory, basic research, and intervention: Two case studies from caregiving research. Gerontologist 2003;43:19-28.
41. Pinquart 2006 Pinquart M, Sorensen S. Gender differences in caregivers stressors, social resources, and health: An updated meta-analysis. Journal of Gerontology 2006;61(1):33-45.
42. Pinquart 2006b Pinquart M, Sorensen S. Helping caregivers of persons with dementia: which interventions work and how large are their effects?. International Psychogeriatrics 2006;18(4):577-95.
43. Pusey 2001 Pusey H, Richards D. A systematic review of the effectiveness of psychosocial interventions for carers of people with dementia. Aging & Mental Health 2001;5(2):107-19.
44. Robinson 1994 Robinson K, Yates K. Effects of two caregiving-training programs on burden and attitude toward help. Archives of Psychiatric Nursing 1994;8:312-9.
45. Rosenthal 1993 Rosenthal CJ, Sulman J, Marshall VW. Depressive symptoms in family caregivers of long-stay patients. Gerontologist 1993;33(2):249-57.
46. Schulz 1999 Schulz R, Beach SR. Caregiving as a risk factor for mortality: The caregiver health effects study. Journal of the American Medical Association 1999;282:2215-9.
47. Schulz 2002 Schulz R, O'Brien A, Czaja S, Ory M, Norris R, Martire LM, et al. Dementia caregiver intervention research: In search of clinical significance. Gerontologist 2002;42(5):589-602.
48. Shaw 1997 Shaw WS, Patterson TL, Semple SJ, Ho S, Irwin MR, Hauger RL, et al. Longitudinal analysis of multiple indicators of health decline among spousal caregivers. Annals of Behavioral Medicine 1997;19(2):101- 9.
49. Sorensen 2002 Sorensen S, Pinquart M, Duberstein P. How effective are interventions with caregivers? An updated meta-analysis. Gerontologist 2002;42(3):356-72.
50. Sorensen 2006 Sorensen S, Duberstein P, Gill D, Pinquart M. Dementia care: Mental health effects, intervention strategies, and clinical implications. The Lancet Neurology 2006;5(11):961-73.
51. Stoltz 2004 Stoltz P, Uden G, Willman A. Support for family carers who care for an elderly person at home: A systematic literature review. Scandinavian Journal of Caring Sciences 2004;18(2):111-9.
52. Stone 1987 Stone R, Cafferata GL, Sangl J. Caregivers of the frail elderly: A national profile. The Gerentologist 1987;31:770-7.
53. Toseland 1997 Toseland RW, McCallion P. Trends in caregiving intervention research. Social Work Research 1997;21(3):154-64.
54. Toseland 2006 Toseland RW, Smith TL. The impact of a caregiver health education program on health care costs. Research on Social Work Practice 2006;16(1):9-19.
55. Vernooij-Dassen 2003 Vernooij-Dassen M, Van Hout H, Hund K, Hoefnagels W, Grol R. Information for dementia patients and their caregivers: What information does a memory clinic pass on, and to whom?. Aging & Mental Health 2003;7(1):34-8.
56. Vitaliano 2003 Vitaliano PP, Zhang JP, Scanlan JM. Is caregiving hazardous to one's physical health? A meta-analysis. Psychological Bulletin 2003;129(6):946-72.
57. Wilkins 1999 Wilkins SS, Castle S, Heck E, Tanzy K, Fahey J. Immune function, mood, and perceived burden among caregivers participating in a psychoeducational intervention. Psychiatric Services 1999;50(6): 747-9.
58. Wright 1993 Wright L, Clipp E, George L. Health consequences of caregiver stress. Medical Exercise and Nutritional Health 1993;2:181-95.