Attitudes towards the diagnosis of Alzheimer’s disease among carers and non-carers

International Journal of Therapy and Rehabilitation

Volumn 12, Issue 9, 2005, Pages 379-386

  Sullivan, Karen ^a   Muscat, Tracey ^a  

^a QUEENSLAND UNIVERSITY OF TECHNOLOGY   (Australia)

Author keywords

Alzheimer s disease; Dementia; Diagnosis; Disclosure

Indexed keywords

EID: 44649158732     PISSN: 17411645     EISSN: 1759779X     Source Type: Journal    
DOI: 10.12968/ijtr.2005.12.9.19742     Document Type: Article

References (30)

1. Bachman DL, Wagner MT, DePalma MJ, Spangenberg KB, Hendrix SA, Pearlman DJ (2000) Caregiver attitudes about patients being told they have Alzheimer’s disease after truth disclosure. J Clin Geropsychol 6(4): 309–13.
2. Bamford C, Lamont S, Eccles M, Robinson L, May C, Bond J (2004) Disclosing a diagnosis of dementia: a systematic review. Int J Geriatr Psychiatry 19: 151–69.
3. Barnes R (1997) Telling the diagnosis to patients with Alzheimer’s disease. Br Med J 314: 375–6.
4. Benbassat J, Pilpel D, Tidhar M (1998) Patients’ preferences for participation in clinical decision making: a review of published surveys. Behav Med 24: 81–8.
5. Brodaty H, Griffin D, Hadzi-Pavlovic D (1990) A survey of dementia carers: doctors’ communication problem behaviours and institutional care. Aust NZ J Psychiatr 24: 362–70.
6. Burns A, Lawlor B, Craig S (2002) Rating scales in old age psychiatry. Br J Psychiatry 180: 161–7.
7. Chenoweth B, Spencer B (1986) Dementia: the experience of family caregivers. Gerontologist 26: 267–72.
8. Connell CM, Gallant MP (1996) Spouse caregivers’ attitudes toward obtaining a diagnosis of a dementing illness. Aging Ment Health 44: 1003–9.
9. Dautzenberg PLJ, van Marum RJ, van der Hammen R, Paling HA (2003) Patients and families desire a patient to be told the diagnosis of dementia: a survey by questionnaire on a Dutch memory clinic. Int J Geriatr Psychiatry 18: 777–9.
10. Deber R (1994) Physicians in health care management: 7. The patient-physician partnership: changing roles and the desire for information. Can Med Assoc J 151: 171–6.
11. Dieckmann L, Zarit S, Zarit J, Gat M (1988) The Alzheimer’s disease knowledge test. Gerontologist 28: 4027.
12. Erde E, Evan C, Nadal D, Scholl T (1988) On truth telling and the diagnosis of Alzheimer’s disease. J Fam Pract 26: 401–6.
13. Fahy M, Wald C, Walker Z, Livingston G (2003) Secrets and lies: the dilemma of disclosing the diagnosis to an adult with dementia. Age Ageing 32: 439–41.
14. Folstein MF, Folstein SE, McHugh PR (1975) Mini-mental state: a practical method for grading the cognitive state of patients for the clinician. J Psychiatr Res 12: 189–98.
15. Graham C, Ballard C, Sham P (1997a) Carers’ knowledge of dementia and their expressed concerns. Int J Geriatr Psychiatry 12: 470–3.
16. Graham C, Ballard C, Sham P (1997b) Carers’ knowledge of dementia, their coping strategies and morbidity. Int J Geriatr Psychiatry 12: 931–6.
17. Holroyd S, Snustad D, Chalifoux Z (1996) Attitudes of older adults on being told the diagnosis of Alzheimer’s disease. J Am Geriatr Soc 44: 400–3.
18. Jha A, Tabet N, Orrell M (2001) To tell or not to tell – comparison of older patients’ reaction to their diagnosis of dementia and depression. Int J Geriatr Psychiatry 16: 879–85.
19. Maguire C, Kirby M, Coen R, Coakley D, Lawlor B, O’Neill D (1996) Family members’ attitudes toward telling the patient with Alzheimer’s disease their diagnosis. Br Med J 313: 529–30.
20. Marzanski M (2000) Would you like to know what is wrong with you? On telling the truth to patients with dementia. J Med Ethics 26: 108–13.
21. McWilliams E (1998) The process of giving and receiving of a diagnosis of dementia: an in-depth study of sufferers’, carers’ and consultants’ experiences. PSIGE Newsletter 64: 18–25.
22. Pinner G (2000) Truth-telling and the diagnosis of dementia. Br J Psychiatry 176: 514–15.
23. Pinner G, Bouman P (2003) Attitudes of patients with mild dementia and their carers towards disclosure of the diagnosis. Int Psychogeriatr 15: 279–88.
24. Pucci E, Belardinelli N, Borsetti G, Giuliani G (2003) Relatives’ attitudes towards inforing patients about the diagnosis of Alzheimer’s disease. J Med Ethics 29: 51–4.
25. Rice K, Warner N, Tye T, Bayer A (1997) Geriatricians’ and psychiatrists’ practice differs. Br Med J 314: 375–6.
26. Rohde K, Peskind ER, Raskind MA (1995) Suicide in two patients with Alzheimer’s disease. J Am Geriatr Soc 43: 187–9.
27. Sullivan KA, O’Conor F (2001a) Providing education about Alzheimer’s disease. Aging Ment Health 5: 5–13.
28. Sullivan K, O’Conor F (2001b) Should a diagnosis of Alzheimer’s disease be disclosed? Aging Ment Health 5: 340–8.
29. Turnbull Q, Wolf AM, Holroyd S (2003) Attitudes of elderly subjects towards ‘truth telling’ for the diagnosis of Alzheimer’s disease. J Geriatr Psychiatry Neurol 16: 90–3.
30. Ware JE, Kosinski M (2001) SF-36. Physical & Mental Health Summary Scales: A Manual for Users of Version 1 2nd edn. QualityMetric, Lincoln