Developing a renal supportive care team from the voices of patients, families, and palliative care staff

Palliative and Supportive Care

Volumn 6, Issue 2, 2008, Pages 133-139

  Berzoff, Joan ^a   Swantkowski, Jennifer ^a   Cohen, Lewis M ^b  

^a SMITH COLLEGE   (United States)

^b BAYSTATE MEDICAL CENTER   (United States)

Author keywords

Advance care planning; Dialysis; Hospice; Palliative care

Indexed keywords

ARTICLE; ATTITUDE TO DEATH; CHRONIC KIDNEY FAILURE; DOCTOR PATIENT RELATION; HEALTH PERSONNEL ATTITUDE; HOSPICE CARE; HUMAN; HUMAN RELATION; INFORMATION PROCESSING; METHODOLOGY; PALLIATIVE THERAPY; PATIENT CARE; PATIENT EDUCATION; PATIENT REFERRAL; PSYCHOLOGICAL ASPECT; SOCIAL SUPPORT;

ADVANCE CARE PLANNING; ATTITUDE OF HEALTH PERSONNEL; ATTITUDE TO DEATH; CONTINUITY OF PATIENT CARE; FOCUS GROUPS; HOSPICE CARE; HUMANS; KIDNEY FAILURE, CHRONIC; PALLIATIVE CARE; PATIENT EDUCATION AS TOPIC; PHYSICIAN-PATIENT RELATIONS; PROFESSIONAL-FAMILY RELATIONS; REFERRAL AND CONSULTATION; SOCIAL SUPPORT;

EID: 44449159392     PISSN: 14789515     EISSN: 14789523     Source Type: Journal    
DOI: 10.1017/S1478951508000217     Document Type: Article

References (15)

1. Anastas, J.W & McDonald, M.L. (1994). Research Design for Social Work and the Human Services. New York: Lexington Books.
2. Brick N., Daniels, J., Jenkins, K., et al. (2005). Joint working with hospice teams: A renal collaborative approach. EDTNA/ERCA Journal, 31 88-92.
3. Cohen, L.M., Germain, M.J., Woods, A.L., et al. (2005). The family perspective of ESRD cleaths. American Journal of kidney Disease, 45 154-161.
4. Cohen, L.M., Moss, A.H., Weisbord, S., et al. (2006). Renal palliative care. Journal of Palliative Medicine, 9, 977-992.
5. Davison, S.N. (2006). Facilitating advance care planning for patients with end-stage renal disease: The patient perspective. Clinical Journal of the American Society of Nephrology, 1, 1023-1028.
6. Davison, S.N. & Simpson, C. (2006). Hope and advance care planning in patients with end stage renal disease: Qualitative interview study. British Medical Journal, 333, 886. doi:10.1136/bmj.38965.626250.55.
7. Davison, S.N. & Torgunrud, C. (2007). The creation of an advance care planning process for patients with ESRD. American Journal of Kidney Diseases, 49, 27-36.
8. End-Stage Renal Disease Peer Workgroup: Robert Wood Johnson Foundation Promoting Excellence in End-of-Life Care National Program. (2006). Available at www.promotingexcellence.org/content/workgroups.html.
9. Holley, J.L., Hines, S.C., Glover, J.J., et al. (1999). Failure of advance care planning to elicit patient's preferences for withdrawal from dialysis. American Journal of Kidney Diseases, 33, 688-693.
10. Holley, J.L., Nespor, S., & Rault, R. (1993). The effects of providing chronic hemodialysis patients with material on advance directives. American Journal of Kidney Disease, 22, 413-418.
11. Loftin, L.P. & Beumer, C. (1998). Collaborative end-of-life decision making in end stage renal disease. ANNA Journal, 25, 615-618.
12. Perry, E., Swartz, J., Brown, S.L. et al. (2005). Peer mentoring: A culturally sensitive approach to end-of-life planning for long-term dialysis patients. American Journal of Kidney Diseases, 46, 111-119.
13. Perry, E., Swartz, J., Kelly, G. et al. (2003). Palliative care in chronic kidney disease: Peer mentoring program personalizes advance directives discussions. Nephrology News and Issues, 17(8), 28-31.
14. U.S. Renal Data System. (2004). Annual Data Report (2004). Bethesda, MD: The National Institutes of Health, National Institute of Diabetes and Digestive and Kidney Diseases.
15. U.S. Renal Data System (2005). Annual Data Report: Atlas of End-Stage Renal Disease in the United States. Bethesda, MD: National Institutes of Health, National Institutes of Diabetes and Digestive and Kidney Diseases.