Coping with a child with dravet syndrome: Insights from families

Journal of Child Neurology

Volumn 23, Issue 6, 2008, Pages 690-694

  Nolan, Kathleen ^a   Camfield, Carol S ^a,b   Camfield, Peter R ^a  

^a DALHOUSIE UNIVERSITY   (Canada)

^b IWK HEALTH CENTRE   (Canada)

Author keywords

Dravet syndrome; Internet support; Management; Social problems

Indexed keywords

ARTICLE; CHILD; CHILD CARE; CLINICAL ARTICLE; DRAVET SYNDROME; EARLY DIAGNOSIS; EMERGENCY CARE; FAMILY COPING; FEMALE; HEALTH CARE ACCESS; HUMAN; INDWELLING CATHETER; INTERNET; INTRACTABLE EPILEPSY; MALE; PARENTAL ATTITUDE; PARENTAL STRESS; PRIORITY JOURNAL; RESPITE CARE; SOCIAL ISOLATION; SUPPORT GROUP; VEIN CATHETERIZATION;

ADAPTATION, PSYCHOLOGICAL; ADOLESCENT; ADULT; ANTICONVULSANTS; ATTENTION DEFICIT DISORDER WITH HYPERACTIVITY; CAREGIVERS; CATHETERS, INDWELLING; CHILD; CHILD BEHAVIOR DISORDERS; CHILD, PRESCHOOL; COST OF ILLNESS; DRUG RESISTANCE; EMERGENCY MEDICAL SERVICES; EPILEPSY, TONIC-CLONIC; FEMALE; HUMANS; INFANT; MALE; MENTAL RETARDATION; PARENTING; RESPITE CARE; SELF-HELP GROUPS; SIBLING RELATIONS; SOCIAL ISOLATION; STATUS EPILEPTICUS;

EID: 44149128676     PISSN: 08830738     EISSN: None     Source Type: Journal    
DOI: 10.1177/0883073808314162     Document Type: Article

References (7)

1. Chiron C. Prognosis of severe myoclonic epilepsy in infancy (Dravet syndrome). In: Jallon P, ed. Prognosis in Epilepsies. Eastleigh, UK: John Libbey & Co Ltd; 2003: 239-248.
2. Casse-Perot C., Wolf M., Dravet C. Neuropsychological aspects of severe myoclonic epilepsy in infancy. In: Jambaque I, Lassonde M, Dulac O, eds. Neuropsychology of Childhood Epilepsy (Advances in Behavioral Biology). New York, NY: Kluwer Academic; 2001: 131-140.
3. Dravet C., Bureau M., Oguni H., Fukuyama Y., Cokar O. Severe myoclonic epilepsy in infancy (Dravet syndrome). In: Roger J, Bureau M, Dravet C, Genton P, Tassinari CA, Wolf P, eds. Epileptic Syndromes in Infancy, Childhood and Adolescence. 4th ed. London, UK: John Libbey, Eurotext Ltd; 2005: 89-113.
4. Nolan KJ, Camfield CS, Camfield PR Coping with Dravet syndrome: Parental experiences with a catastrophic epilepsy. Dev Med Child Neurol. 2006; 48: 761-765.
5. Dravet C. Les epilepsies graves de l'enfant. Vie Med. 1978; 8: 543-548.
6. Fadiman A. The Spirit Catches You and You Fall Down: A Hmong Child, Her American Doctors, and the Collision of Two Cultures. New York, NY: Farrar, Straus and Giroux; 1997.
7. Claes L., Del-Favero J., Ceulemans B., Lagae L., Van Broeckhoven C., De Jonghe P. De novo mutations in the sodium channel gene SCN1A cause severe myoclonic epilepsy of infancy. Am J Hum Genet. 2001; 68: 1327-1332.