Caregivers' assessments of preference-based quality of life in Alzheimer's disease

Alzheimer's and Dementia

Volumn 4, Issue 3, 2008, Pages 203-211

  Karlawish, Jason H ^a   Zbrozek, Art ^b   Kinosian, Bruce ^a   Gregory, Annemarie ^a   Ferguson, Allison ^a   Low, Dominique V ^c   Glick, Henry A ^a  

^a UNIVERSITY OF PENNSYLVANIA   (United States)

^b PFIZER INC   (United States)

^c WASHINGTON UNIVERSITY SCHOOL OF MEDICINE   (United States)

Author keywords

Alzheimer's disease; Cost effectiveness analysis; EQ 5D; Health Utilities Index; Quality of life

Indexed keywords

ADULT; AGED; ALZHEIMER DISEASE; ARTICLE; CAREGIVER BURDEN; COGNITIVE DEFECT; CONTROLLED STUDY; COST EFFECTIVENESS ANALYSIS; DAILY LIFE ACTIVITY; DISEASE SEVERITY; FEASIBILITY STUDY; FEMALE; HUMAN; MAJOR CLINICAL STUDY; MALE; MINI MENTAL STATE EXAMINATION; MOOD; OUTCOME ASSESSMENT; PRIORITY JOURNAL; QUALITY OF LIFE; RELIABILITY; SCORING SYSTEM; SELF CONCEPT; VALIDATION STUDY; VALIDITY;

ADULT; AGED; AGED, 80 AND OVER; ALZHEIMER DISEASE; CAREGIVERS; FEMALE; HUMANS; MALE; OUTCOME ASSESSMENT (HEALTH CARE); PATIENT SATISFACTION; QUALITY OF LIFE; QUESTIONNAIRES; REPRODUCIBILITY OF RESULTS;

EID: 43649104103     PISSN: 15525260     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.jalz.2007.11.018     Document Type: Article

References (30)

1. Gold M.R., Patrick D.L., Torrance G.W., Fryback D.G., Hadon D.C., Kamlet M.S., et al. Identifying and valuing outcomes. In: Gold M.R., Siegel J.E., Russel L.B., and Weinstein M.C. (Eds). Cost-effectiveness in health and medicine (1996), Oxford University Press, Oxford 82-134
2. The EuroQol Group. EuroQol: a new facility for the measurement of health-related quality of life-the EuroQol group. Health Policy 16 (1990) 199-208
3. Torrance G.W., Feeny D.H., Furlong W.J., Barr R.D., Zhang Y., and Wang Q. Multiattribute utility function for a comprehensive health status classification system: Health Utilities Index Mark 2. Med Care 34 (1996) 702-722
4. Glaser A., Furlong W., Walker D., Fielding K., Davies K., Feeny D.H., et al. Applicability of the Health Utilities Index to a population of childhood survivors of central nervous system tumours in the UK. Eur J Cancer 35 (1999) 256-261
5. Siderowf A., Ravina B., and Glick H.A. Preference-based quality-of-life in patients with Parkinson's disease. Neurology 59 (2002) 103-108
6. Kaplan R.M., Atkins C.J., and Timms R. Validity of a quality of well-being scale as an outcome measure in chronic obstructive pulmonary disease. J Chronic Dis 37 (1984) 85-95
7. Marra C.A., Esdaile J.M., Guh D., Kopec J.A., Brazier J.E., Koehler B.A., et al. A comparison of four indirect methods of assessing utility values in rheumatoid arthritis. Med Care 42 (2004) 1125-1131
8. Hirschman K.B., Xie S.X., Feudtner C., and Karlawish J.H.T. How does an Alzheimer's disease patient's role in medical decision-making change over time?. J Geriatr Psychiatry Neurol 75 (2004) 55-60
9. Galasko D., Bennett D., Sano M., Ernesto C., Thomas R., Grundman M., et al. An inventory to assess activities of daily living for clinical trials in Alzheimer's disease: the Alzheimer's Disease Cooperative Study. Alzheimer Dis Assoc Disord 11 Suppl 2 (1997) S33-S39
10. Olin J.T., Schneider L.S., Doody R.S., Clark C.M., Ferris S.H., Morris J.C., et al. Clinical evaluation of global change in Alzheimer's disease: identifying consensus. J Geriatr Psychiatry Neurol 9 (1996) 176-180
11. Naglie G., Tomlinson G., Tansey C., Irvine J., Ritvo P., Black S., et al. Utility-based quality of life measures in Alzheimer's disease. Qual Life Res 15 (2006) 631-643
12. American Psychiatric Association. Diagnostic and statistical manual of mental disorders IV (1994), American Psychiatric Association, Washington, DC
13. McKhann G., Drachman D., Folstein M., Katzman R., Price D., and Stadlan E. Clinical diagnosis of Alzheimer's disease: report of the NINCDS-ADRDA work group under auspices of the Department of Health and Human Services Task Force on Alzheimer's disease. Neurology 34 (1984) 939-944
14. Folstein M.F., Folstein S.E., and McHugh P.R. "Mini-mental state": a practical method for grading the cognitive state of patients for the clinician. J Psychiatr Res 12 (1975) 189-198
15. Teng E.L., and Chui H.C. The Modified Mini-Mental State (3MS) examination. J Clin Psychiatry 48 (1987) 314-318
16. Lawton M.P., and Brody E.M. Assessment of older people: self-maintaining and instrumental activities of daily living. Gerontologist 9 (1969) 179-186
17. Yesavage J.A., Brink T.L., Rose T.L., Lum O., Huang V., Adey M., et al. Development and validation of a geriatric depression screening scale: a preliminary report. J Psychiatr Res 17 (1983) 37-49
18. Logsdon R.G., Gibbons L.E., McCurry S.M., and Teri L. Quality of life in Alzheimer's disease: patient and caregiver reports. Journal of Mental Health and Aging 5 (1999) 21-32
19. Ware J.E., Kosinski M., and Keller S.D. SF-12: how to score the SF-12 physical and mental health summary scales (1995), The Health Institute, New England Medical Center, Boston
20. Vitaliano P.P., Russo J., Young H.M., Becker J., and Maiuro R.D. The screen for caregiver burden. Gerontologist 31 (1991) 76-83
21. Landis J.R., and Koch G.G. The measurement of observer agreement for categorical data. Biometrics 33 (1977) 159-174
22. Glick H.A., Doshi J.A., Sonnad S.F., and Polsky D. Assessing quality-adjusted life years: economic evaluation in clinical trials (2007), Oxford University Press, Oxford 59-87
23. Neumann P.J., Kuntz K.M., Leon J., Araki S.S., Hermann R.C., Hsu M.-A., et al. Health utilities in Alzheimer's disease: a cross-sectional study of patients and caregivers. Med Care 37 (1999) 27-32
24. Neumann P.J., Sandberg E.A., Araki S.S., Kuntz K.M., Feeny D., and Weinstein M.C. A comparison of HUI2 and HUI3 utility scores in Alzheimer's disease. Med Decis Making 20 (2000) 413-422
25. Jonsson L., Andreasen N., Kilander L., Soininen H., Waldemar G., Nygaard H., et al. Patient- and proxy-reported utility in Alzheimer disease using the EuroQoL. Alzheimer Dis Assoc Disord 20 (2006) 49-55
26. Vogel A., Mortensen E.L., Hasselbalch S.G., Andersen B.B., and Waldemar G. Patient versus informant reported quality of life in the earliest phases of Alzheimer's disease. Int J Geriatr Psychiatry 21 (2006) 1132-1138
27. McCarten J.R., Rottunda S.J., and Kuskowski M.A. Change in the mini-mental state exam in Alzheimer's disease over 2 years: the experience of a dementia clinic. J Alzheimers Dis 6 (2004) 11-15
28. Stern Y., Liu X., Albert M., Brandt J., Jacobs D.M., Del Castillo-Castaneda C., et al. Application of a growth curve approach to modeling the progression of Alzheimer's disease. J Gerontol A Biol Sci Med Sci 51 (1996) M179-M184
29. Stern R.G., Mohs R.C., Davidson M., Schmeidler J., Silverman E., Kramer-Ginsberg E., et al. A longitudinal study of Alzheimer's disease: measurement, rate, and predictors of cognitive deterioration. Am J Psychiatry 151 (1994) 390-396
30. Karlawish J.H.T., Casarett D., Klocinski J., and Clark C.M. The relationship between caregivers' global ratings of Alzheimers disease patients' quality of life, disease severity and the caregiving experience. J Am Geriatr Soc 49 (2001) 1066-1070