Outcomes of management decisions by parents for their infants with hypoplastic left heart syndrome born with and without a prenatal diagnosis

Journal of Paediatrics and Child Health

Volumn 44, Issue 6, 2008, Pages 321-324

  Tibballs, James ^a,b   Cantwell Bartl, Annie ^a,c  

^a ROYAL CHILDREN'S HOSPITAL   (Australia)

^b UNIVERSITY OF MELBOURNE   (Australia)

^c LA TROBE UNIVERSITY   (Australia)

Author keywords

Compassionate care; Hypoplastic left heart syndrome; Prenatal diagnosis

Indexed keywords

ARTICLE; DECISION MAKING; HEART SURGERY; HUMAN; HYPOPLASTIC LEFT HEART SYNDROME; INFANT; MAJOR CLINICAL STUDY; OUTCOME ASSESSMENT; PARENTAL ATTITUDE; PATIENT CARE; PRENATAL DIAGNOSIS; PRIORITY JOURNAL;

ABORTION, INDUCED; CARDIAC SURGICAL PROCEDURES; DECISION MAKING; ECHOCARDIOGRAPHY; FEMALE; HUMANS; HYPOPLASTIC LEFT HEART SYNDROME; INFANT, NEWBORN; MEDICAL RECORDS; PALLIATIVE CARE; PARENTS; PREGNANCY; RETROSPECTIVE STUDIES; TIME FACTORS; ULTRASONOGRAPHY, PRENATAL;

EID: 43549125274     PISSN: 10344810     EISSN: 14401754     Source Type: Journal    
DOI: 10.1111/j.1440-1754.2007.01265.x     Document Type: Article

References (24)

1. Pradat P, Francannet C, Harris JA, Robert E. The epidemiology of cardiovascular defects, part I: a study based on data from three large registries of congenital malformations. Pediatr. Cardiol. 2003 24 : 195 221.
2. Tibballs J, Kawahira Y, Carter BG, Donath S, Brizard C, Wilkinson J. Outcomes of surgical treatment of infants with hypoplastic left heart syndrome; an institutional experience 1983-2004. J. Paediatr. Child Health 2007 43 : 746 51.
3. Galati JC, Tibballs J, Carlin JB, Weintraub R, Carter BG. Probabilities of heart donors arising within specified times for child recipients. J. Paediatr. Child Health 2007 43 : 49 54.
4. Riley MM, Halliday JL, Lumley JM. Congenital malformations in Victoria, Australia, 1983-1995: an overview of infant characteristics. J. Paediatr. Child Health 1998 34 : 233 40.
5. Menahem S, Grimwade J. Pregnancy termination following prenatal diagnosis of serious heart disease in the fetus. Early Hum. Dev. 2003 73 : 71 8.
6. Brackley KJ, Kilby MD, Wright JG et al. Outcome after prenatal diagnosis of hypoplastic left heart syndrome: a case series. Lancet 2000 356 : 1143 7.
7. Andrews R, Tulloh R, Sharland G et al. Outcome of staged reconstructive surgery for hypoplastic left heart syndrome following antenatal diagnosis. Arch. Dis. Child. 2001 85 : 474 7.
8. Corrow C, Lapuk S, Mazzarella K, Sable A, Leopold H, Eisenfeld L. Hypoplastic left heart syndrome: factors influencing therapeutic choice. Conn. Med. 2001 65 : 195 203.
9. Allen RH, Bensen CB, Haug LW. Pregnancy outcome of fetuses with a diagnosis of hypoplastic left ventricle on prenatal sonography. J. Ultrasound Med. 2005 24 : 1199 203.
10. Verheijen PM, Lisowski LA, Plantinga RF et al. Prenatal diagnosis of the fetus with hypoplastic left heart syndrome management and outcome. Herz 2003 28 : 250 6.
11. Fraisse A, Nassi C, Sigaudy S et al. [Outcome of infants with hypoplastic left heart syndrome diagnosed in utero.] Arch. Mal. Coeur Vaiss. 2002 95 : 473 7 (in French).
12. Khoshnood B, De Vigan C, Vodovar V et al. Trends in prenatal diagnosis, pregnancy termination, and perinatal mortlity of newborns with congenital heart disease in France, 1983-2000: a population-based evaluation. Pediatrics 2005 115 : 95 101.
13. Bruce EJ, Schultz CL, Smyrnious KX. A longitudinal study of mothers and fathers of children with intellectual disability. Br. J. Med. Psychol. 1996 69 : 33 5.
14. Balluffi A, Kassam-Adams N, Kazak A, Tucker M, Dominguez T, Helfaer M. Traumatic stress in parents of children admitted to the paediatric intensive care unit. Pediatr. Crit. Care Med. 2004 5 : 547 53.
15. Kazak AE, Alderfer M, Streisard R et al. Treatment of post traumatic stress symptoms in adolescent survivors of childhood cancer and their families: a randomised clinical trial. J. Fam. Psychol. 2004 18 : 493 504.
16. Landolt MA, Vollrath V, Ribi M, Gnehm HE, Sennhauser FH. Incidence and associations of parental and child posttraumatic stress symptoms in pediatric patients. J. Child Psychol. Psychiatry 2003 44 : 1199 207.
17. Stuber ML, Christakis DA, Houskamp B, Kazak AE. Post traumatic symptoms in childhood leukaemia survivors and their parents. Psychosomatics 1996 37 : 254 61.
18. Kon AA, Ackerson L, Lo B. How pediatricians counsel parents when no 'best-choice' management exists: lessons to be learned from hypoplastic left heart syndrome. Arch. Pediatr. Adolesc. Med. 2004 158 : 436 41.
19. Tworetzky W, McElhinney DB, Reddy VM, Brook MM, Hanley FL, Silverman NH. Improved surgical outcome after fetal diagnosis of hypoplastic left heart syndrome. Circulation 2001 103 : 1269 73.
20. Mahle WT, Clancy RR, McGaurn SP, Goin JE, Clark BJ. Impact of prenatal diagnosis on survival and early neurologic morbidity in neonates with the hypoplastic left heart syndrome. Pediatrics 2001 107 : 1277 82.
21. Kumar RK, Newburger JW, Gauvreau K, Kamenir SA, Hornberger LK. Comparison of outcome when hypoplastic left heart syndrome and transposition of the great arteries are diagnosed prenatally versus when diagnosis of these two conditions is made only postnatally. Am. J. Cardiol. 1999 83 : 1649 53.
22. Sullivan ID. Prenatal diagnosis of structural heart disease: does it make a difference to survival? Heart 2002 87 : 405 6.
23. McAuliffe FM, Trines J, Nield LE, Chitayat D, Jaeggi E, Hornberger LK. Early fetal echocardiography - a reliable prenatal diagnosis tool. Am. J. Obstet. Gynecol. 2005 193 : 1253 9.
24. Chew C, Halliday JL, Riley MM, Penny DJ. Population-based study of antenatal detection of congenital heart disease by ultrasound examination. Ultrasound Obstet. Gynecol. 2007 29 : 619 24.